Re: pediatricians

[Guest guest]

Vent away. Most pediatricians are completely worthless when it comes to our kids. Time to shop for another doc. I'm sorry you had that experience….. Like you don't have enough stress. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of lynnett1114Sent: Tuesday, February 22, 2011 10:23 PMTo: mb12 valtrex Subject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration.

[Guest guest]

Me, too Tammy. Causes me physical pain. Been there myself. <sigh> Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of T LynnSent: Tuesday, February 22, 2011 10:33 PMTo: mb12 valtrex Subject: Re: pediatricians Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration.

[Guest guest]

Me, too Tammy. Causes me physical pain. Been there myself. <sigh> Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of T LynnSent: Tuesday, February 22, 2011 10:33 PMTo: mb12 valtrex Subject: Re: pediatricians Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration.

[Guest guest]

Me, too Tammy. Causes me physical pain. Been there myself. <sigh> Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of T LynnSent: Tuesday, February 22, 2011 10:33 PMTo: mb12 valtrex Subject: Re: pediatricians Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration.