Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I can imagine how unbelievably difficult this is and the swirling cacophony of emotion you are struggling with right now. It's difficult as hell to watch a loved one slowly deteriorate themselves and then a real disease kicks in and does the rest of the job. It is not easy by any stretch of the imagination. I've been through this with my dad and his alcoholism. It hurt like hell to watch him slowly kill himself and when it finally happened and his life was draining out from him daily, it hurt. With him went the dream of the father I wanted. I had to mourn him. I had to understand the tragedy of the disease he suffered and know that nothing bad that ever happened was wholly his fault. All I could do was just try to be there as best I could. All you can do for you know is do what you need to do, be gentle with yourself, make sure you get some grief counseling (it's different than the other stuff we get to deal with their disorders and it's affect on our lives). It's hard to let go and say good bye. It's hard to even imagine being a participant. It's hard to describe a scenario that feels so unreal...you are connected and disconnected interchangeably and the pure sadness that comes with that. My heart goes out to you. I will keep you both in my prayers and send good thoughts and strength so you can deal with this chapter closing. It won't help much to know this now, but I'll say it anyway becomes when someone said it to me, it helped strangely...the pain is difficult but you can bear it, as the months pass, it will become easier to deal with, less heavy and even as the years pass, understanding and forgiveness will come and you will again feel light. My dad's been gone now 17 years. It was so painful to watch him go through the process of leaving this place but I remember a prayer I prayed in earnest one night: God, if you can't make him well, please take him home so his suffering is not prolonged. That prayer was answered 3 hours later when dad's suffering ended and he was free. In a way, maybe mom's suffering is going to end soon. Maybe looking at it that way might help you cope. I hope so. Hang in there. Blessings and love! Jaie > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I can imagine how unbelievably difficult this is and the swirling cacophony of emotion you are struggling with right now. It's difficult as hell to watch a loved one slowly deteriorate themselves and then a real disease kicks in and does the rest of the job. It is not easy by any stretch of the imagination. I've been through this with my dad and his alcoholism. It hurt like hell to watch him slowly kill himself and when it finally happened and his life was draining out from him daily, it hurt. With him went the dream of the father I wanted. I had to mourn him. I had to understand the tragedy of the disease he suffered and know that nothing bad that ever happened was wholly his fault. All I could do was just try to be there as best I could. All you can do for you know is do what you need to do, be gentle with yourself, make sure you get some grief counseling (it's different than the other stuff we get to deal with their disorders and it's affect on our lives). It's hard to let go and say good bye. It's hard to even imagine being a participant. It's hard to describe a scenario that feels so unreal...you are connected and disconnected interchangeably and the pure sadness that comes with that. My heart goes out to you. I will keep you both in my prayers and send good thoughts and strength so you can deal with this chapter closing. It won't help much to know this now, but I'll say it anyway becomes when someone said it to me, it helped strangely...the pain is difficult but you can bear it, as the months pass, it will become easier to deal with, less heavy and even as the years pass, understanding and forgiveness will come and you will again feel light. My dad's been gone now 17 years. It was so painful to watch him go through the process of leaving this place but I remember a prayer I prayed in earnest one night: God, if you can't make him well, please take him home so his suffering is not prolonged. That prayer was answered 3 hours later when dad's suffering ended and he was free. In a way, maybe mom's suffering is going to end soon. Maybe looking at it that way might help you cope. I hope so. Hang in there. Blessings and love! Jaie > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I can imagine how unbelievably difficult this is and the swirling cacophony of emotion you are struggling with right now. It's difficult as hell to watch a loved one slowly deteriorate themselves and then a real disease kicks in and does the rest of the job. It is not easy by any stretch of the imagination. I've been through this with my dad and his alcoholism. It hurt like hell to watch him slowly kill himself and when it finally happened and his life was draining out from him daily, it hurt. With him went the dream of the father I wanted. I had to mourn him. I had to understand the tragedy of the disease he suffered and know that nothing bad that ever happened was wholly his fault. All I could do was just try to be there as best I could. All you can do for you know is do what you need to do, be gentle with yourself, make sure you get some grief counseling (it's different than the other stuff we get to deal with their disorders and it's affect on our lives). It's hard to let go and say good bye. It's hard to even imagine being a participant. It's hard to describe a scenario that feels so unreal...you are connected and disconnected interchangeably and the pure sadness that comes with that. My heart goes out to you. I will keep you both in my prayers and send good thoughts and strength so you can deal with this chapter closing. It won't help much to know this now, but I'll say it anyway becomes when someone said it to me, it helped strangely...the pain is difficult but you can bear it, as the months pass, it will become easier to deal with, less heavy and even as the years pass, understanding and forgiveness will come and you will again feel light. My dad's been gone now 17 years. It was so painful to watch him go through the process of leaving this place but I remember a prayer I prayed in earnest one night: God, if you can't make him well, please take him home so his suffering is not prolonged. That prayer was answered 3 hours later when dad's suffering ended and he was free. In a way, maybe mom's suffering is going to end soon. Maybe looking at it that way might help you cope. I hope so. Hang in there. Blessings and love! Jaie > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 ((((((((justicecamp))))))))))) I'm so sorry. I can't think of anything to offer you except my heartfelt empathy. I hope that your mom finds some peace and joy in the afterlife that she never had in this one. Nobody deserves the cancer of the mind that is mental illness; its a genuine tragedy. And I hope for your own peace and healing. -Annie > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 ((((((((justicecamp))))))))))) I'm so sorry. I can't think of anything to offer you except my heartfelt empathy. I hope that your mom finds some peace and joy in the afterlife that she never had in this one. Nobody deserves the cancer of the mind that is mental illness; its a genuine tragedy. And I hope for your own peace and healing. -Annie > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I'm sorry to hear that your mom has cancer. My dad was misdiagnosed for almost a year. By the time they figured out he had cancer, he had stage 3/4. He passed away within 2 1/2 months. It's hard to watch someone suffer like that. It's even harder when you have unresolved issues with that person. The only thing that cancer gives you is a little time to prepare for the death before it actually happens (it's not sudden like a fatal car accident). My thoughts are with you. I hope you find a counselor to help you through this difficult event, if you haven't already. Best, Grace > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I'm sorry to hear that your mom has cancer. My dad was misdiagnosed for almost a year. By the time they figured out he had cancer, he had stage 3/4. He passed away within 2 1/2 months. It's hard to watch someone suffer like that. It's even harder when you have unresolved issues with that person. The only thing that cancer gives you is a little time to prepare for the death before it actually happens (it's not sudden like a fatal car accident). My thoughts are with you. I hope you find a counselor to help you through this difficult event, if you haven't already. Best, Grace > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I'm sorry to hear that your mom has cancer. My dad was misdiagnosed for almost a year. By the time they figured out he had cancer, he had stage 3/4. He passed away within 2 1/2 months. It's hard to watch someone suffer like that. It's even harder when you have unresolved issues with that person. The only thing that cancer gives you is a little time to prepare for the death before it actually happens (it's not sudden like a fatal car accident). My thoughts are with you. I hope you find a counselor to help you through this difficult event, if you haven't already. Best, Grace > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 This is so difficult for you. I'm sorry. I'm so thankful that there are hospice workers there to care for her so you're not forced into that role. It would be way too difficult. I don't care what other people say (but she's your mother). They don't know how painful it is to be around someone like this. And yet we don't want to see them suffer. Odd how we take the neglect and abuse for decades and yet in the end, we still care if they're hurting. Just goes to show what a gentle heart you still have. Take care of yourself. There's not a lot you can do for her at this stage. The waiting is hard. Again, take care. irene > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 This is so difficult for you. I'm sorry. I'm so thankful that there are hospice workers there to care for her so you're not forced into that role. It would be way too difficult. I don't care what other people say (but she's your mother). They don't know how painful it is to be around someone like this. And yet we don't want to see them suffer. Odd how we take the neglect and abuse for decades and yet in the end, we still care if they're hurting. Just goes to show what a gentle heart you still have. Take care of yourself. There's not a lot you can do for her at this stage. The waiting is hard. Again, take care. irene > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 This is so difficult for you. I'm sorry. I'm so thankful that there are hospice workers there to care for her so you're not forced into that role. It would be way too difficult. I don't care what other people say (but she's your mother). They don't know how painful it is to be around someone like this. And yet we don't want to see them suffer. Odd how we take the neglect and abuse for decades and yet in the end, we still care if they're hurting. Just goes to show what a gentle heart you still have. Take care of yourself. There's not a lot you can do for her at this stage. The waiting is hard. Again, take care. irene > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 ((((((Justicecamp)))))) I'm so sorry, this must be so very difficult. All I can do is parrot back what others here have said: be gentle with yourself & allow yourself time to grieve. Please know we are here for you. Mia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 ((((((Justicecamp)))))) I'm so sorry, this must be so very difficult. All I can do is parrot back what others here have said: be gentle with yourself & allow yourself time to grieve. Please know we are here for you. Mia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 ((((((Justicecamp)))))) I'm so sorry, this must be so very difficult. All I can do is parrot back what others here have said: be gentle with yourself & allow yourself time to grieve. Please know we are here for you. Mia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 But watching it happen this way, with this long transition, is ... something. I certainly can relate to your experience. My 87 year old Fada is living with us because he had reached a point where he was starving and couldn't properly care for himself. Though once he moved in and I could study him, I realized he probably could have done more for himself but that he had just given up. He exhibits such learned dependence that it is frustrating. I keep telling his caregivers that I don't know where his physical disabilities end and his mental disabilities take over, but everyone concerned is in agreement that he could do more for himself than he is doing. I pray every day for God's mercy on my dad and that he will have a quick end. For a BP to die of cancer the way your mother is, must be excruciating. The BP's feel so sorry for themselves and are so sure that their existence is more miserable than anyone else's and then to have to deal with them through a legitimate painful horrible illness is as you said something. I am so sorry you have had such a difficult time, you are to be commended for seeking therapy and self healing. We must all comfort each other and comfort ourselves as our parents were never capable. continue to work on yourself and see your therapist and just remember that you are to be praised for working on you. You are also to be commended for sticking by your mother and helping her through to the bitter end. I will also do this for my father but I know it isn't easy! My mother in law had pancreatic cancer and was gentle and unselfish to the end, my father is in generally good health and pouts and moans and bewails his horrible existence so I can imagine how awful it must be to deal with a BP with a real illness that causes such excruciating pain. The longer I live the sadder the world seems to be, but it is important to know that you can comfort yourself, that you are worthy of whatever happiness you can make for yourself, your compassion towards your mother is a light of unselfishness in a sometimes sad and lonely world. So glad you are part of this group, there is such comfort and compassion here. I send you all good vibrations and healing thoughts and will keep you in my prayers. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 But watching it happen this way, with this long transition, is ... something. I certainly can relate to your experience. My 87 year old Fada is living with us because he had reached a point where he was starving and couldn't properly care for himself. Though once he moved in and I could study him, I realized he probably could have done more for himself but that he had just given up. He exhibits such learned dependence that it is frustrating. I keep telling his caregivers that I don't know where his physical disabilities end and his mental disabilities take over, but everyone concerned is in agreement that he could do more for himself than he is doing. I pray every day for God's mercy on my dad and that he will have a quick end. For a BP to die of cancer the way your mother is, must be excruciating. The BP's feel so sorry for themselves and are so sure that their existence is more miserable than anyone else's and then to have to deal with them through a legitimate painful horrible illness is as you said something. I am so sorry you have had such a difficult time, you are to be commended for seeking therapy and self healing. We must all comfort each other and comfort ourselves as our parents were never capable. continue to work on yourself and see your therapist and just remember that you are to be praised for working on you. You are also to be commended for sticking by your mother and helping her through to the bitter end. I will also do this for my father but I know it isn't easy! My mother in law had pancreatic cancer and was gentle and unselfish to the end, my father is in generally good health and pouts and moans and bewails his horrible existence so I can imagine how awful it must be to deal with a BP with a real illness that causes such excruciating pain. The longer I live the sadder the world seems to be, but it is important to know that you can comfort yourself, that you are worthy of whatever happiness you can make for yourself, your compassion towards your mother is a light of unselfishness in a sometimes sad and lonely world. So glad you are part of this group, there is such comfort and compassion here. I send you all good vibrations and healing thoughts and will keep you in my prayers. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I have often wondered this myself. What is the point of such long, long suffering over a person's entire life, and then to suffer an end like this? This has to be excruciating to watch. My heart goes out to you. Maybe there's some mercy in the fact that she isn't really attached to reality at this point. I hope you are able to find some peace in all this. --. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I have often wondered this myself. What is the point of such long, long suffering over a person's entire life, and then to suffer an end like this? This has to be excruciating to watch. My heart goes out to you. Maybe there's some mercy in the fact that she isn't really attached to reality at this point. I hope you are able to find some peace in all this. --. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 I have often wondered this myself. What is the point of such long, long suffering over a person's entire life, and then to suffer an end like this? This has to be excruciating to watch. My heart goes out to you. Maybe there's some mercy in the fact that she isn't really attached to reality at this point. I hope you are able to find some peace in all this. --. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 (((Justicecamp))) I'm so sorry...this is alot of trauma to take in--please try to give yourself plenty of grace at this time.I can only imagine how rough this is for you.My self destructive fada had had me on an emotional roller coaster with his health problems and when he did die it was from something I hadn't anticipated or expected.It was very difficult to make the adjustment to how he actually was dying along with all of the pain he had caused me as well as himself.As you said,it was all " sad beyond sad beyond sad " .And in many ways just horrifying. I send you my empathy and my sincere condolences.It's a many layered loss and a complicated grief that is nowhere easy to bear.Please avail yourself of any and all support that you can.And we are here if you need us. Take good care, > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 (((Justicecamp))) I'm so sorry...this is alot of trauma to take in--please try to give yourself plenty of grace at this time.I can only imagine how rough this is for you.My self destructive fada had had me on an emotional roller coaster with his health problems and when he did die it was from something I hadn't anticipated or expected.It was very difficult to make the adjustment to how he actually was dying along with all of the pain he had caused me as well as himself.As you said,it was all " sad beyond sad beyond sad " .And in many ways just horrifying. I send you my empathy and my sincere condolences.It's a many layered loss and a complicated grief that is nowhere easy to bear.Please avail yourself of any and all support that you can.And we are here if you need us. Take good care, > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 (((Justicecamp))) I'm so sorry...this is alot of trauma to take in--please try to give yourself plenty of grace at this time.I can only imagine how rough this is for you.My self destructive fada had had me on an emotional roller coaster with his health problems and when he did die it was from something I hadn't anticipated or expected.It was very difficult to make the adjustment to how he actually was dying along with all of the pain he had caused me as well as himself.As you said,it was all " sad beyond sad beyond sad " .And in many ways just horrifying. I send you my empathy and my sincere condolences.It's a many layered loss and a complicated grief that is nowhere easy to bear.Please avail yourself of any and all support that you can.And we are here if you need us. Take good care, > > I've been away from this group because these past two weeks have been the most harrowing of my life. BPD Mom has been placed in a hospice program with full-time caregivers living in her house, because the doctors say she has terminal cancer. > > At least a year ago, I first noticed signs of dementia in her -- repeated questions, memory loss, etc. -- but last month everything seemed to start collapsing rapidly. She was nodding off in the middle of sentences, forgetting where rooms of her house were, and hallucinating ever more wildly, to the point where we took her to the ER. Over the next two days, she was diagnosed with severe malnutrition and dehydration (because she has been anorexic since 1964, although no one seems to believe me about this), dementia, major infections, and bone cancer. > > Doctors and social workers kept coming to me to discuss this. I wept. I was stunned. It was so many layers of feelings at once. BPD Mom has been suicidal for years, telling me in every conversation that she wanted to get a gun and shoot herself, or burn down the house with herself inside it. Her suicidal ravings have nearly drowned me. She has also been physically very disabled for years. Combined with her BPD, which of course she never knew she had, and of course which went untreated, she has been in unbelievable physical and mental pain for most of her life. I have had so many issues with her, but it was only last summer when I actually realized that she was mentally ill (BPD) and that it was she not I who was crazy, and that she had wrecked much of my life without ever meaning to. > > And now this. > > She has remained totally out of her mind since January 3, except for one moment during which she said to me, " I'm going to die, aren't I? How long do I have? " > > I sat beside her in the hospital and then at home day after day, during which she had no idea who I was or even that I was there, but talked continuously to invisible people -- endless conversations, even laughter (and I haven't seen her laugh since around 1974), on and on and on. Once in a while she would notice " me, " then begin yelling at me to " get off your f***ing ass and take me out of here so I can get on the ship " (nonsense, she had no idea where she was, there was no ship, etc.). > > Seeing her like that, and seeing the condition of her body -- skeletal and raddled not just by the cancer but by many decades of her own mistreatment of it -- is sad beyond sad beyond sad. What is the point of life for the mentally ill whose suffering is largely self-induced but who don't know that and it just goes on and on? My own life has mostly felt meaningless, although I didn't until recently know why -- that it was because I was raised by someone whose mental illness did not let them love or really understand anyone, including (especially?) me. Her illness which I did not know was illness dominated my entire world. Her negativity and self-loathing were all I knew for my first twenty years. Her delusions became my philosophy, my Bible. I've spent years in therapy, years struggling for self-awareness and recovery. Of course I always knew she would pass away someday -- I thought she would have an accident or kill herself, as she threatened to do. But watching it happen this way, with this long transition, is ... something. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Thanks, everyone. I can see that many of you have been through similar experiences. Grief is grief, which is always awful, but this is a strange kind of grief that not everyone out there could understand. While one of the hospice nurses was taking Mom's vital signs the other day, Mom got into one of her nasty moods -- still delusional, still with no idea where she was or who we all were, but entirely recognizable in her BPD meanness. The nurse said brightly, " I'm the nurse and I'm here to check your pulse! " Mom snarled at her in a mocking voice, " Well -- I'm glad you think you're so smart. Do whatever the hell you think you have to do. " The nurse said, " Aren't you glad that you're daughter's here with you? " Mom snarled, " Well -- she's here. " Afterward, in another room, the nurse told me that " whatever personality people had before they became ill just gets bigger when they're dying. If someone was a gentle little lamb all her life, that's how she'll go out of this world. If someone was mean and sarcastic all her life, then ... well, you're going to see a lot more of that. It's going to be a hard road for you. " She said that when it got rough I should just leave the room for a while. So logical. And so profound. And I wished wished wished that someone had given me that very same advice about 45 years ago. Better late than never. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Thank you for sharing that with us, the wisdom that when the abuse starts up, its OK to just leave the room, or the house, for a while. I remember when it finally, finally dawned on me that *I* could do that too. It sounds so simplistically obvious but when one has spent their whole life trying to please this individual and when one has never escaped a child's perspective of the primal relationship: " She's the mother, I'm the child, I must obey her and show her respect " it ISN'T simple and it ISN'T obvious, at all. But one time I'd flown out for yet another visit, and nada was starting in on me, and it finally just " clicked " in my head that *I could walk away from her even though she was yelling at me* and I could get in the car I'd rented and drive away... to anywhere I wanted. It had simply never occurred to me that that was an option, before. Weird, huh? And thank you for sharing that wisdom of the hospice nurse, that whatever a person's main personality traits are, their standard way of behaving, it will intensify as they approach death. I think Sister and I need to know that. My thoughts and prayers are with you as you go through your nada's end-of-life process with her; I wish you both peace. -Annie > > Thanks, everyone. I can see that many of you have been through similar experiences. Grief is grief, which is always awful, but this is a strange kind of grief that not everyone out there could understand. > > While one of the hospice nurses was taking Mom's vital signs the other day, Mom got into one of her nasty moods -- still delusional, still with no idea where she was or who we all were, but entirely recognizable in her BPD meanness. The nurse said brightly, " I'm the nurse and I'm here to check your pulse! " > > Mom snarled at her in a mocking voice, " Well -- I'm glad you think you're so smart. Do whatever the hell you think you have to do. " > > The nurse said, " Aren't you glad that you're daughter's here with you? " > > Mom snarled, " Well -- she's here. " > > Afterward, in another room, the nurse told me that " whatever personality people had before they became ill just gets bigger when they're dying. If someone was a gentle little lamb all her life, that's how she'll go out of this world. If someone was mean and sarcastic all her life, then ... well, you're going to see a lot more of that. It's going to be a hard road for you. " > > She said that when it got rough I should just leave the room for a while. So logical. And so profound. And I wished wished wished that someone had given me that very same advice about 45 years ago. > > Better late than never. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Thank you for sharing that with us, the wisdom that when the abuse starts up, its OK to just leave the room, or the house, for a while. I remember when it finally, finally dawned on me that *I* could do that too. It sounds so simplistically obvious but when one has spent their whole life trying to please this individual and when one has never escaped a child's perspective of the primal relationship: " She's the mother, I'm the child, I must obey her and show her respect " it ISN'T simple and it ISN'T obvious, at all. But one time I'd flown out for yet another visit, and nada was starting in on me, and it finally just " clicked " in my head that *I could walk away from her even though she was yelling at me* and I could get in the car I'd rented and drive away... to anywhere I wanted. It had simply never occurred to me that that was an option, before. Weird, huh? And thank you for sharing that wisdom of the hospice nurse, that whatever a person's main personality traits are, their standard way of behaving, it will intensify as they approach death. I think Sister and I need to know that. My thoughts and prayers are with you as you go through your nada's end-of-life process with her; I wish you both peace. -Annie > > Thanks, everyone. I can see that many of you have been through similar experiences. Grief is grief, which is always awful, but this is a strange kind of grief that not everyone out there could understand. > > While one of the hospice nurses was taking Mom's vital signs the other day, Mom got into one of her nasty moods -- still delusional, still with no idea where she was or who we all were, but entirely recognizable in her BPD meanness. The nurse said brightly, " I'm the nurse and I'm here to check your pulse! " > > Mom snarled at her in a mocking voice, " Well -- I'm glad you think you're so smart. Do whatever the hell you think you have to do. " > > The nurse said, " Aren't you glad that you're daughter's here with you? " > > Mom snarled, " Well -- she's here. " > > Afterward, in another room, the nurse told me that " whatever personality people had before they became ill just gets bigger when they're dying. If someone was a gentle little lamb all her life, that's how she'll go out of this world. If someone was mean and sarcastic all her life, then ... well, you're going to see a lot more of that. It's going to be a hard road for you. " > > She said that when it got rough I should just leave the room for a while. So logical. And so profound. And I wished wished wished that someone had given me that very same advice about 45 years ago. > > Better late than never. > Quote Link to comment Share on other sites More sharing options...
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