Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Dave I am so sorry to hear about your diagnosis. I have a friend who was dx with kidney cancer right at the same time I was dx with my IgAN. It was so strange that we started having problems at the same time, I was dx first and she was hoping her dx would come back with something as " simple " as IgAN. She has been in and out of the hospital for radiation and chemo treatments. So far she is hanging in there and last I talked with her they were going to get her ready for dialysis in the near future. Both kidney cancer and IgAN are survivable with careful treatment. I also hope your disability claim goes thru now...I don't think they can fight it anymore with this sort of dx. Hang in there and keep fighting! Amy update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 she must have cancwr else were beisdes jsut the kidney ebcuse my doc who is one of the top kidney cancer docks says all the studies they ahve done show chemo and radioation don't help with kidney cancr becuse of the way it is broke down befor eit hits the kidys it goes through the liver first and is broke down. Amy Griswold wrote: >Dave I am so sorry to hear about your diagnosis. I have a friend who was dx >with kidney cancer right at the same time I was dx with my IgAN. It was so >strange that we started having problems at the same time, I was dx first and >she was hoping her dx would come back with something as " simple " as IgAN. >She has been in and out of the hospital for radiation and chemo treatments. >So far she is hanging in there and last I talked with her they were going to >get her ready for dialysis in the near future. > >Both kidney cancer and IgAN are survivable with careful treatment. I also >hope your disability claim goes thru now...I don't think they can fight it >anymore with this sort of dx. Hang in there and keep fighting! >Amy > update > > > > >>well Im back from denver and it is kidney cancer r and iga so i guess >>double death sentance. I have to go back in two weeks and he will run >>some more tests and have some of the results from what he did this week. >>they might take one kiddy out the one the larger tumors course that can >>cause extra tress on the other kidney and make it stop or grow even more >>so the has to run it by his partners and the kidney doctors down there >>that I also saw >> >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 she must have cancwr else were beisdes jsut the kidney ebcuse my doc who is one of the top kidney cancer docks says all the studies they ahve done show chemo and radioation don't help with kidney cancr becuse of the way it is broke down befor eit hits the kidys it goes through the liver first and is broke down. Amy Griswold wrote: >Dave I am so sorry to hear about your diagnosis. I have a friend who was dx >with kidney cancer right at the same time I was dx with my IgAN. It was so >strange that we started having problems at the same time, I was dx first and >she was hoping her dx would come back with something as " simple " as IgAN. >She has been in and out of the hospital for radiation and chemo treatments. >So far she is hanging in there and last I talked with her they were going to >get her ready for dialysis in the near future. > >Both kidney cancer and IgAN are survivable with careful treatment. I also >hope your disability claim goes thru now...I don't think they can fight it >anymore with this sort of dx. Hang in there and keep fighting! >Amy > update > > > > >>well Im back from denver and it is kidney cancer r and iga so i guess >>double death sentance. I have to go back in two weeks and he will run >>some more tests and have some of the results from what he did this week. >>they might take one kiddy out the one the larger tumors course that can >>cause extra tress on the other kidney and make it stop or grow even more >>so the has to run it by his partners and the kidney doctors down there >>that I also saw >> >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 she must have cancwr else were beisdes jsut the kidney ebcuse my doc who is one of the top kidney cancer docks says all the studies they ahve done show chemo and radioation don't help with kidney cancr becuse of the way it is broke down befor eit hits the kidys it goes through the liver first and is broke down. Amy Griswold wrote: >Dave I am so sorry to hear about your diagnosis. I have a friend who was dx >with kidney cancer right at the same time I was dx with my IgAN. It was so >strange that we started having problems at the same time, I was dx first and >she was hoping her dx would come back with something as " simple " as IgAN. >She has been in and out of the hospital for radiation and chemo treatments. >So far she is hanging in there and last I talked with her they were going to >get her ready for dialysis in the near future. > >Both kidney cancer and IgAN are survivable with careful treatment. I also >hope your disability claim goes thru now...I don't think they can fight it >anymore with this sort of dx. Hang in there and keep fighting! >Amy > update > > > > >>well Im back from denver and it is kidney cancer r and iga so i guess >>double death sentance. I have to go back in two weeks and he will run >>some more tests and have some of the results from what he did this week. >>they might take one kiddy out the one the larger tumors course that can >>cause extra tress on the other kidney and make it stop or grow even more >>so the has to run it by his partners and the kidney doctors down there >>that I also saw >> >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 the thing that sucks is that chemo wont help becuse the way it is in the body and broke down it is broke down befor ethe kidney if I undestood hiom right it break down in the liver before ti hits the kidney but not sure . Pierre L wrote: >I'm so sorry to hear that Dave. You must be very upset about this, >naturally. Any one of us would be. I hope you can start taking control of >the situation after the initial shock passes (easier said than done, I'm >sure). Have you seen this website? It seems very helpful. >http://kidneycancerassociation.org/facts.html > >I had a friend in the army who died of kidney cancer. In fact, I took over >his job afterwards. I think they have made significant progress since then >though. That was more than a decade ago. > >My thoughts and prayers are with you on this. > >Pierre > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dave, My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. They say that many times that they can get the whole thing and that it often encapsulated. They are not evven doing cemo on her. update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dave, My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. They say that many times that they can get the whole thing and that it often encapsulated. They are not evven doing cemo on her. update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Dave, My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. They say that many times that they can get the whole thing and that it often encapsulated. They are not evven doing cemo on her. update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 yea from what i have been told that checmo is usless with kidney cancr becuse the way it is broke down in the body it wont work on kidny cancer . if i had it in one kidney I would be beter off but in both kidneys make it harder ebcuse they cant take both out smustard wrote: >Dave, > >My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 yea from what i have been told that checmo is usless with kidney cancr becuse the way it is broke down in the body it wont work on kidny cancer . if i had it in one kidney I would be beter off but in both kidneys make it harder ebcuse they cant take both out smustard wrote: >Dave, > >My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 , It's good to hear from you! I am so sorry to hear about your sister. Is this the sister that was rejected as a possible donor for you? Bet you're glad that the school year is out. What a year! Cy update > > > > well Im back from denver and it is kidney cancer r and iga so i guess > > double death sentance. I have to go back in two weeks and he will run > > some more tests and have some of the results from what he did this week. > > they might take one kiddy out the one the larger tumors course that can > > cause extra tress on the other kidney and make it stop or grow even more > > so the has to run it by his partners and the kidney doctors down there > > that I also saw > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 , It's good to hear from you! I am so sorry to hear about your sister. Is this the sister that was rejected as a possible donor for you? Bet you're glad that the school year is out. What a year! Cy update > > > > well Im back from denver and it is kidney cancer r and iga so i guess > > double death sentance. I have to go back in two weeks and he will run > > some more tests and have some of the results from what he did this week. > > they might take one kiddy out the one the larger tumors course that can > > cause extra tress on the other kidney and make it stop or grow even more > > so the has to run it by his partners and the kidney doctors down there > > that I also saw > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 , It's good to hear from you! I am so sorry to hear about your sister. Is this the sister that was rejected as a possible donor for you? Bet you're glad that the school year is out. What a year! Cy update > > > > well Im back from denver and it is kidney cancer r and iga so i guess > > double death sentance. I have to go back in two weeks and he will run > > some more tests and have some of the results from what he did this week. > > they might take one kiddy out the one the larger tumors course that can > > cause extra tress on the other kidney and make it stop or grow even more > > so the has to run it by his partners and the kidney doctors down there > > that I also saw > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Dave, My heart just breaks for you. I am so sorry you have kidney cancer on top of IgAN. I do want to encourage you that I also have a good friend who survived kidney cancer so it is definitely not a death sentence. I am sorry you have some rough times ahead with your treatment for it though. Please know you are in my thoughts and prayers. Let us know how you are doing Dave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Dave, My heart just breaks for you. I am so sorry you have kidney cancer on top of IgAN. I do want to encourage you that I also have a good friend who survived kidney cancer so it is definitely not a death sentence. I am sorry you have some rough times ahead with your treatment for it though. Please know you are in my thoughts and prayers. Let us know how you are doing Dave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hi Dave, My heart just breaks for you. I am so sorry you have kidney cancer on top of IgAN. I do want to encourage you that I also have a good friend who survived kidney cancer so it is definitely not a death sentence. I am sorry you have some rough times ahead with your treatment for it though. Please know you are in my thoughts and prayers. Let us know how you are doing Dave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Oh Dave, that is so bad. If you lose your kidneys to Igan, you lose both of them. Why can't they take both out? Re: update yea from what i have been told that checmo is usless with kidney cancr becuse the way it is broke down in the body it wont work on kidny cancer . if i had it in one kidney I would be beter off but in both kidneys make it harder ebcuse they cant take both out smustard wrote: >Dave, > >My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Oh Dave, that is so bad. If you lose your kidneys to Igan, you lose both of them. Why can't they take both out? Re: update yea from what i have been told that checmo is usless with kidney cancr becuse the way it is broke down in the body it wont work on kidny cancer . if i had it in one kidney I would be beter off but in both kidneys make it harder ebcuse they cant take both out smustard wrote: >Dave, > >My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Oh Dave, that is so bad. If you lose your kidneys to Igan, you lose both of them. Why can't they take both out? Re: update yea from what i have been told that checmo is usless with kidney cancr becuse the way it is broke down in the body it wont work on kidny cancer . if i had it in one kidney I would be beter off but in both kidneys make it harder ebcuse they cant take both out smustard wrote: >Dave, > >My sister just had her kidney taken out bedause of kidney cancer. Every Dr. that I have talked to about it has been very positive about her prognosis. > > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Hi Martha, I am sorry PT seems to be taking longer than you would like. Being depressed on top of medical problems can be overwhelming. Do you have enough support at home from friends and family? Depression is not uncommon when you are dealing with a chronic illness, and I am glad you made your doctor aware of it so they can treat it. I hope your computer problems are quickly resolved. n a message dated 7/25/2004 4:32:54 AM Pacific Daylight Time, wldfireflower6969@... writes: > Sorry i havn't been on much internet problems. Well i see my doctors > in Sept they just up my anti-depression meds. Oh ya. i am on > predisone for 9 days to see if it willl help my feet they are > thinging i have a another case of gout not sure if they are going to > put me on anything to prevent it. PT is going not really seeing much > progess but i guess it will take time. other then that i am just > trying to hang on and dig myself out of this depression. My doctor > has a counsler call me once a month and she is trying to find a > support group in my area to see if that will help. Well gotta run bye > please don't feel bad if i don't response quickly still working > trying to get the internet back to where it was . > > MArtha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Hi Martha, I am sorry PT seems to be taking longer than you would like. Being depressed on top of medical problems can be overwhelming. Do you have enough support at home from friends and family? Depression is not uncommon when you are dealing with a chronic illness, and I am glad you made your doctor aware of it so they can treat it. I hope your computer problems are quickly resolved. n a message dated 7/25/2004 4:32:54 AM Pacific Daylight Time, wldfireflower6969@... writes: > Sorry i havn't been on much internet problems. Well i see my doctors > in Sept they just up my anti-depression meds. Oh ya. i am on > predisone for 9 days to see if it willl help my feet they are > thinging i have a another case of gout not sure if they are going to > put me on anything to prevent it. PT is going not really seeing much > progess but i guess it will take time. other then that i am just > trying to hang on and dig myself out of this depression. My doctor > has a counsler call me once a month and she is trying to find a > support group in my area to see if that will help. Well gotta run bye > please don't feel bad if i don't response quickly still working > trying to get the internet back to where it was . > > MArtha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 It can be depressing enough just knowing we have an incurable chronic illness. I mean, none of us can really be all positive all of the time, even though we try. But with chronic kidney disease and the renal insufficiency it causes, other things happen and the chemistry in our bodies gets out of whack in many ways. Depression can be one of those things that happen. Medications can sometimes be at least partly the culprit. There isn't much evidence that ACE inhibitors and their cousins the ARB's cause depression, but there certainly is for other kinds of BP meds. Prednisone is a strange one in some ways too, because it can cause mood swings both ways, depression and anxiety, and other things. So, I'm glad they are looking after you, Martha. Pierre Re: update > Hi Martha, > > I am sorry PT seems to be taking longer than you would like. Being depressed > on top of medical problems can be overwhelming. Do you have enough support > at home from friends and family? Depression is not uncommon when you are > dealing with a chronic illness, and I am glad you made your doctor aware of it so > they can treat it. > > I hope your computer problems are quickly resolved. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 It can be depressing enough just knowing we have an incurable chronic illness. I mean, none of us can really be all positive all of the time, even though we try. But with chronic kidney disease and the renal insufficiency it causes, other things happen and the chemistry in our bodies gets out of whack in many ways. Depression can be one of those things that happen. Medications can sometimes be at least partly the culprit. There isn't much evidence that ACE inhibitors and their cousins the ARB's cause depression, but there certainly is for other kinds of BP meds. Prednisone is a strange one in some ways too, because it can cause mood swings both ways, depression and anxiety, and other things. So, I'm glad they are looking after you, Martha. Pierre Re: update > Hi Martha, > > I am sorry PT seems to be taking longer than you would like. Being depressed > on top of medical problems can be overwhelming. Do you have enough support > at home from friends and family? Depression is not uncommon when you are > dealing with a chronic illness, and I am glad you made your doctor aware of it so > they can treat it. > > I hope your computer problems are quickly resolved. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Thanks guys. Things with my family have been off. I have an older sister that don't talk to me any more; and the onther ones are (feeling like) they are waiting for me to get my retro-check from ssdi. My dad hinted at borrowing money, my sister just came out and ask and my other sister wants me to buy my parnets plane ticket so they can go to her graduation and still I will have to buy for an motel for two to go myself. So right now I don't have them for support plus they all don't want to hear about it. i was told I was being a burden on my family. I do still have my rock , my boyfriend of 10 years , his mom and little brother and my best friend. But don't see or talk much to my friend she going to school and work. I think i have to much time to think. Well again thanks. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Martha, That is really not right that your family is wanting to make claims on your SSDI. That money is to secure YOUR future and to protect YOU. Please don't let your family feel you have to give any of your disability check over to them, particularly since they tell you that you are a burden to them. That is just terrible for you to feel you are a burden to them. I am glad that you have the support of your boyfriend and his family though. Take care, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.