Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 P. S. He just meant it as a joke. There ;are always ads in the paper for nurses for the dialysis center, and now you know why. Love yall, _____ From: LBusby Sent: Tuesday, April 13, 2004 9:44 PM To: iga-nephropathy Subject: RE: update forgot to mention that the hours really aren't so good. I don't know if those of you on dialysis realize this, but those nurses work 4 A.M. to 8 P.M. shifts. Only 2 or 3 days a week, but on those days, they kill themselves. Maybe not all dialysis centers work on those schedules, but they do here. 16 hrs. shifts. No way, !! _____ From: Cy Webb Sent: Tuesday, April 13, 2004 4:30 PM To: iga-nephropathy Subject: Re: update While I can see enormous benefits to taking the position, I just gotta agree with on this one. That might easily be way too much kidney consciousness! sounds wise that she is not pursueing this too closely Speaking entirely for myself, I'd burn out in two weeks. Cy Cy Busby wrote: On my wife 's job hunting and such.. Although is not going to pursue it, the local Dialysis Center, which is run by her Nephrologist, is looking for a Nurse. They have great benefits, good hours and pretty decent pay. They even include training for all the differnt aspects of dialysis for their nurses. On the up-side, she'd get to keep her current doctor, she understands renal failure from the patient's perspective, possible employee discounts! However, it might be weird to work with your Neph everyday and " be at work " even when you are dialyizing! - To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 At my dialysis centre, they work mostly 12 hour shifts that change every few days. For example, when I get there for my dialysis at 6 PM, the nurse who puts me on has usually been there since 6:30am, and she/he will leave at 6:30pm. Then the next shift takes over. Generally, that next shift actually started work at 11:30am and will go home at 11:30pm. In addition, there are many casual and part-time nurses who may go in at various hours. Now, this is a dialysis centre for stable patients. It opens in the morning and closes after the last shift of patients is all gone, about midnight. We have another private non-profit dialysis unit that works the same way, and two acute dialysis units. The acute ones are open 24 hours a day, so those have different shifts. Pierre RE: update > forgot to mention that the hours really aren't so good. I don't know > if those of you on dialysis realize this, but those nurses work 4 A.M. to 8 > P.M. shifts. Only 2 or 3 days a week, but on those days, they kill > themselves. Maybe not all dialysis centers work on those schedules, but > they do here. 16 hrs. shifts. No way, !! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 At my dialysis centre, they work mostly 12 hour shifts that change every few days. For example, when I get there for my dialysis at 6 PM, the nurse who puts me on has usually been there since 6:30am, and she/he will leave at 6:30pm. Then the next shift takes over. Generally, that next shift actually started work at 11:30am and will go home at 11:30pm. In addition, there are many casual and part-time nurses who may go in at various hours. Now, this is a dialysis centre for stable patients. It opens in the morning and closes after the last shift of patients is all gone, about midnight. We have another private non-profit dialysis unit that works the same way, and two acute dialysis units. The acute ones are open 24 hours a day, so those have different shifts. Pierre RE: update > forgot to mention that the hours really aren't so good. I don't know > if those of you on dialysis realize this, but those nurses work 4 A.M. to 8 > P.M. shifts. Only 2 or 3 days a week, but on those days, they kill > themselves. Maybe not all dialysis centers work on those schedules, but > they do here. 16 hrs. shifts. No way, !! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 At my dialysis centre, they work mostly 12 hour shifts that change every few days. For example, when I get there for my dialysis at 6 PM, the nurse who puts me on has usually been there since 6:30am, and she/he will leave at 6:30pm. Then the next shift takes over. Generally, that next shift actually started work at 11:30am and will go home at 11:30pm. In addition, there are many casual and part-time nurses who may go in at various hours. Now, this is a dialysis centre for stable patients. It opens in the morning and closes after the last shift of patients is all gone, about midnight. We have another private non-profit dialysis unit that works the same way, and two acute dialysis units. The acute ones are open 24 hours a day, so those have different shifts. Pierre RE: update > forgot to mention that the hours really aren't so good. I don't know > if those of you on dialysis realize this, but those nurses work 4 A.M. to 8 > P.M. shifts. Only 2 or 3 days a week, but on those days, they kill > themselves. Maybe not all dialysis centers work on those schedules, but > they do here. 16 hrs. shifts. No way, !! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Oh , I'm so happy and excited for you! I hope all goes well. Sharon Re: update Hi dear , You know, I don't want to minimize the stress of being let go, but in this case with your boss, I think it is a blessing in disguise. With your faith and your positive attitude and focusing on the things you have to be grateful for, everything will work out just fine. There is a verse I love in the Bible that says in 29:11, " For I know the plans I have for you, declares the Lord. Plans to prosper you and not to harm you, plans to give you hope and a future. " So, if you are a woman of faith, you can look at it as nothing can come into your life that does not pass through God's hands first. He is our provider. I will join you in prayer that you will find a healthier work environment. That alone can help your kidneys stay stable longer since it is well known that high blood pressure just by itself even without IgAN is a risk factor for renal failure. Please keep us posted on how the job hunt is going. In a message dated 4/12/2004 3:42:44 PM Pacific Daylight Time, leslielist@... writes: > But, I prayed > about it and there are SO many more things for me to be thankful for, > so I need to dwell on them. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Oh , I'm so happy and excited for you! I hope all goes well. Sharon Re: update Hi dear , You know, I don't want to minimize the stress of being let go, but in this case with your boss, I think it is a blessing in disguise. With your faith and your positive attitude and focusing on the things you have to be grateful for, everything will work out just fine. There is a verse I love in the Bible that says in 29:11, " For I know the plans I have for you, declares the Lord. Plans to prosper you and not to harm you, plans to give you hope and a future. " So, if you are a woman of faith, you can look at it as nothing can come into your life that does not pass through God's hands first. He is our provider. I will join you in prayer that you will find a healthier work environment. That alone can help your kidneys stay stable longer since it is well known that high blood pressure just by itself even without IgAN is a risk factor for renal failure. Please keep us posted on how the job hunt is going. In a message dated 4/12/2004 3:42:44 PM Pacific Daylight Time, leslielist@... writes: > But, I prayed > about it and there are SO many more things for me to be thankful for, > so I need to dwell on them. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Oh , I'm so happy and excited for you! I hope all goes well. Sharon Re: update Hi dear , You know, I don't want to minimize the stress of being let go, but in this case with your boss, I think it is a blessing in disguise. With your faith and your positive attitude and focusing on the things you have to be grateful for, everything will work out just fine. There is a verse I love in the Bible that says in 29:11, " For I know the plans I have for you, declares the Lord. Plans to prosper you and not to harm you, plans to give you hope and a future. " So, if you are a woman of faith, you can look at it as nothing can come into your life that does not pass through God's hands first. He is our provider. I will join you in prayer that you will find a healthier work environment. That alone can help your kidneys stay stable longer since it is well known that high blood pressure just by itself even without IgAN is a risk factor for renal failure. Please keep us posted on how the job hunt is going. In a message dated 4/12/2004 3:42:44 PM Pacific Daylight Time, leslielist@... writes: > But, I prayed > about it and there are SO many more things for me to be thankful for, > so I need to dwell on them. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 I'm so sorry to hear about that jump in creatinine. I hope the doctor can get things under control quickly for you. Let us know what your next round of testing shows. Sending much healing energy your way. Stay strong. Amy update > Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 I'm so sorry to hear about that jump in creatinine. I hope the doctor can get things under control quickly for you. Let us know what your next round of testing shows. Sending much healing energy your way. Stay strong. Amy update > Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 I'm so sorry to hear about that jump in creatinine. I hope the doctor can get things under control quickly for you. Let us know what your next round of testing shows. Sending much healing energy your way. Stay strong. Amy update > Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 That's sometimes the way it goes when your serum cr is up in that territory, . My own experience involved a number of swings from about 3 to over 4 and back. Pierre update > Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Unfortunately, there is nothing to explain advancing renal failure except that it feeds on itself. When you're in 3 or above territory (chronically), it's not so much the IgAN that is affecting kidney function as much as it is the nephrons just plain wearing themselves out from overwork, as the remaining good ones try to work harder to compensate for the lost kidney function. It's not like those flare-ups people have with IgAN. There's nothing really obvious that happens. The kidney function just gradually goes until there isn't enough left to keep you healthy without dialysis or a kidney transplant. Sometimes, it goes faster the closer you get to it, sometimes not. Sometimes, it's a drug that causes a rise in serum creatinine. ACE inhibitors, ARB's (like Cozaar, Avapro, etc.) and other BP meds can do that. There are some rare cases where they can affect kidney function too much (by more than 30%), and in that case, it can be a case of the benefits of the drug not outweighing the adverse effects. In that case, the drug will be stopped and another tried. But if you haven't had a change of meds recently, or an increased dose, then it's probably not that. It's scary when the reality of impending kidney failure starts looming. But many have been there before, young and old. All any of us can do is to keep positive, follow the renal diet to help keep us as healthy as possible for as long as possible, and make sure our doctor doesn't drop the ball in terms of preparing us for dialysis access (fistula or PD catheter) well ahead of time so that it will be ready when it's needed, with plenty of lead time in case it's needed sooner than expected. There have been people who got, say, fistula surgery done, and then didn't need it for years. It can happen, but it's better to be prepared. You don't want to have to start hemodialysis via a chest catheter if you can avoid it. The other thing people who haven't been there often don't realize is that, if you plan on trying for a kidney transplant, whether it's for the waiting list or a pre-emptive one from a living relative, it can take time to complete the evaluation process, both for yourself, and then for your potential donor. Sometimes, it can literally take months before everything is completed, all the appointments done, all the extra tests done and the go ahead given. If you have a potential donor that seems good but doesn't pan out in the end, the whole process has to be repeated for another if you have one. As with the fistula or PD cath, it doesn't hurt to start getting that done months before dialysis is needed. By the time your serum cr is at 4, your doctor should be able to guesstimate at what creatinine level you will probably start dialysis, and how much time that might be (it's just a rough guess though, as it can't be predicted that accurately). I'm not saying this to discourage you, but just so you know what to expect, and you know if your nephrologist is taking care of things for you. Pierre > hotchkissm wrote:Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Unfortunately, there is nothing to explain advancing renal failure except that it feeds on itself. When you're in 3 or above territory (chronically), it's not so much the IgAN that is affecting kidney function as much as it is the nephrons just plain wearing themselves out from overwork, as the remaining good ones try to work harder to compensate for the lost kidney function. It's not like those flare-ups people have with IgAN. There's nothing really obvious that happens. The kidney function just gradually goes until there isn't enough left to keep you healthy without dialysis or a kidney transplant. Sometimes, it goes faster the closer you get to it, sometimes not. Sometimes, it's a drug that causes a rise in serum creatinine. ACE inhibitors, ARB's (like Cozaar, Avapro, etc.) and other BP meds can do that. There are some rare cases where they can affect kidney function too much (by more than 30%), and in that case, it can be a case of the benefits of the drug not outweighing the adverse effects. In that case, the drug will be stopped and another tried. But if you haven't had a change of meds recently, or an increased dose, then it's probably not that. It's scary when the reality of impending kidney failure starts looming. But many have been there before, young and old. All any of us can do is to keep positive, follow the renal diet to help keep us as healthy as possible for as long as possible, and make sure our doctor doesn't drop the ball in terms of preparing us for dialysis access (fistula or PD catheter) well ahead of time so that it will be ready when it's needed, with plenty of lead time in case it's needed sooner than expected. There have been people who got, say, fistula surgery done, and then didn't need it for years. It can happen, but it's better to be prepared. You don't want to have to start hemodialysis via a chest catheter if you can avoid it. The other thing people who haven't been there often don't realize is that, if you plan on trying for a kidney transplant, whether it's for the waiting list or a pre-emptive one from a living relative, it can take time to complete the evaluation process, both for yourself, and then for your potential donor. Sometimes, it can literally take months before everything is completed, all the appointments done, all the extra tests done and the go ahead given. If you have a potential donor that seems good but doesn't pan out in the end, the whole process has to be repeated for another if you have one. As with the fistula or PD cath, it doesn't hurt to start getting that done months before dialysis is needed. By the time your serum cr is at 4, your doctor should be able to guesstimate at what creatinine level you will probably start dialysis, and how much time that might be (it's just a rough guess though, as it can't be predicted that accurately). I'm not saying this to discourage you, but just so you know what to expect, and you know if your nephrologist is taking care of things for you. Pierre > hotchkissm wrote:Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Unfortunately, there is nothing to explain advancing renal failure except that it feeds on itself. When you're in 3 or above territory (chronically), it's not so much the IgAN that is affecting kidney function as much as it is the nephrons just plain wearing themselves out from overwork, as the remaining good ones try to work harder to compensate for the lost kidney function. It's not like those flare-ups people have with IgAN. There's nothing really obvious that happens. The kidney function just gradually goes until there isn't enough left to keep you healthy without dialysis or a kidney transplant. Sometimes, it goes faster the closer you get to it, sometimes not. Sometimes, it's a drug that causes a rise in serum creatinine. ACE inhibitors, ARB's (like Cozaar, Avapro, etc.) and other BP meds can do that. There are some rare cases where they can affect kidney function too much (by more than 30%), and in that case, it can be a case of the benefits of the drug not outweighing the adverse effects. In that case, the drug will be stopped and another tried. But if you haven't had a change of meds recently, or an increased dose, then it's probably not that. It's scary when the reality of impending kidney failure starts looming. But many have been there before, young and old. All any of us can do is to keep positive, follow the renal diet to help keep us as healthy as possible for as long as possible, and make sure our doctor doesn't drop the ball in terms of preparing us for dialysis access (fistula or PD catheter) well ahead of time so that it will be ready when it's needed, with plenty of lead time in case it's needed sooner than expected. There have been people who got, say, fistula surgery done, and then didn't need it for years. It can happen, but it's better to be prepared. You don't want to have to start hemodialysis via a chest catheter if you can avoid it. The other thing people who haven't been there often don't realize is that, if you plan on trying for a kidney transplant, whether it's for the waiting list or a pre-emptive one from a living relative, it can take time to complete the evaluation process, both for yourself, and then for your potential donor. Sometimes, it can literally take months before everything is completed, all the appointments done, all the extra tests done and the go ahead given. If you have a potential donor that seems good but doesn't pan out in the end, the whole process has to be repeated for another if you have one. As with the fistula or PD cath, it doesn't hurt to start getting that done months before dialysis is needed. By the time your serum cr is at 4, your doctor should be able to guesstimate at what creatinine level you will probably start dialysis, and how much time that might be (it's just a rough guess though, as it can't be predicted that accurately). I'm not saying this to discourage you, but just so you know what to expect, and you know if your nephrologist is taking care of things for you. Pierre > hotchkissm wrote:Hello, all. > > I had some blood work the other day, in advance of my next appt which > actually wasn't supposed to be until the 24th. Unfortunately, the > nephrologist called me and left a message to say that my results > weren't good. I really understand what you mean about the shoe > starting to drop, . > > So, my creatinine went from 3.3 to 4.5 in less than 3 months. The > urea is up to 26 mmol/L. There is nothing to explain it. I'm not sick > or anything and meds have stayed the same. In fact, I feel better > than I usually do and thought perhaps my hematocrit had gone up a bit > on its own. > > It all seems a bit unreal. When I left the States for Australia less > than 2 years ago, my creatinine was about 1.4. > > Anyway, I have to call my doctor tomorrow and set up some more > tests. I am just taking deep breaths and saying over and again, " All > will be well. " God is my help and strength. > > Thanks for a place to share and be understood. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Dave I am so sorry to hear about the spots on your kidneys and the possibility of cancer. What do the specialists in Denver want to do if they aren't going to biopsy you?? Beyond the ct scans and x-rays how much can they do? I pray that you will find a way to get the medical help your current doctor wants for you. Keep on pushing with the disability, one of our other members kept on them and was finally granted it after a long fight. Out of pure curiosity are you in Colorado? What nephthrologist do you see? I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and we have a few other members in Colorado too. Hang in there. Amy update > I dweicded to give an update the doctor got the reultes from denver on > the kidney biopsey and they sadi that I do have iga has far has the > spots go on the kidneys he sent my xrays and ct scans and ultrasound to > denver for the expert to look at they the experts in denevr said the > charicteristics of the spots and te way they haev rown and the odd > shape of thm they are for sure a tummer and with the iga and the high > iron it is almost 99 % sure they are malignate. he sadi the experts are > also not sure if it would be ebst to biopsey them ebcuse if they are > then the cancer would folow he trat fo the biopsey needel. they want to > see me next week. I was thinking yea if your rich like the doctor is it > is easy to run to denevr and get stuff done. So i have turned it over to > god thatr soem how I will find a way to get the money to ghet there and > stay there and figgure this thing out . has far has disbaility goes they > want anther doctor tor eview my claim heck I don't know why m,y doctor > isnt good enough for them : > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Dave I am so sorry to hear about the spots on your kidneys and the possibility of cancer. What do the specialists in Denver want to do if they aren't going to biopsy you?? Beyond the ct scans and x-rays how much can they do? I pray that you will find a way to get the medical help your current doctor wants for you. Keep on pushing with the disability, one of our other members kept on them and was finally granted it after a long fight. Out of pure curiosity are you in Colorado? What nephthrologist do you see? I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and we have a few other members in Colorado too. Hang in there. Amy update > I dweicded to give an update the doctor got the reultes from denver on > the kidney biopsey and they sadi that I do have iga has far has the > spots go on the kidneys he sent my xrays and ct scans and ultrasound to > denver for the expert to look at they the experts in denevr said the > charicteristics of the spots and te way they haev rown and the odd > shape of thm they are for sure a tummer and with the iga and the high > iron it is almost 99 % sure they are malignate. he sadi the experts are > also not sure if it would be ebst to biopsey them ebcuse if they are > then the cancer would folow he trat fo the biopsey needel. they want to > see me next week. I was thinking yea if your rich like the doctor is it > is easy to run to denevr and get stuff done. So i have turned it over to > god thatr soem how I will find a way to get the money to ghet there and > stay there and figgure this thing out . has far has disbaility goes they > want anther doctor tor eview my claim heck I don't know why m,y doctor > isnt good enough for them : > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Dave I am so sorry to hear about the spots on your kidneys and the possibility of cancer. What do the specialists in Denver want to do if they aren't going to biopsy you?? Beyond the ct scans and x-rays how much can they do? I pray that you will find a way to get the medical help your current doctor wants for you. Keep on pushing with the disability, one of our other members kept on them and was finally granted it after a long fight. Out of pure curiosity are you in Colorado? What nephthrologist do you see? I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and we have a few other members in Colorado too. Hang in there. Amy update > I dweicded to give an update the doctor got the reultes from denver on > the kidney biopsey and they sadi that I do have iga has far has the > spots go on the kidneys he sent my xrays and ct scans and ultrasound to > denver for the expert to look at they the experts in denevr said the > charicteristics of the spots and te way they haev rown and the odd > shape of thm they are for sure a tummer and with the iga and the high > iron it is almost 99 % sure they are malignate. he sadi the experts are > also not sure if it would be ebst to biopsey them ebcuse if they are > then the cancer would folow he trat fo the biopsey needel. they want to > see me next week. I was thinking yea if your rich like the doctor is it > is easy to run to denevr and get stuff done. So i have turned it over to > god thatr soem how I will find a way to get the money to ghet there and > stay there and figgure this thing out . has far has disbaility goes they > want anther doctor tor eview my claim heck I don't know why m,y doctor > isnt good enough for them : > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 no I am in wyoming. they might biopsey it. and they want to run a few tests tehy cant do here. yea i am fighting for the disability. what seucks is I don't have insurnce so seing this doctors is bank rupting me i have no clue how im going to aford this trip. Amy Griswold wrote: >Dave I am so sorry to hear about the spots on your kidneys and the >possibility of cancer. What do the specialists in Denver want to do if they >aren't going to biopsy you?? Beyond the ct scans and x-rays how much can >they do? I pray that you will find a way to get the medical help your >current doctor wants for you. > > Keep on pushing with the disability, one of our other members kept on >them and was finally granted it after a long fight. > >Out of pure curiosity are you in Colorado? What nephthrologist do you see? >I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and >we have a few other members in Colorado too. > >Hang in there. >Amy > update > > > > >>I dweicded to give an update the doctor got the reultes from denver on >>the kidney biopsey and they sadi that I do have iga has far has the >>spots go on the kidneys he sent my xrays and ct scans and ultrasound to >>denver for the expert to look at they the experts in denevr said the >>charicteristics of the spots and te way they haev rown and the odd >>shape of thm they are for sure a tummer and with the iga and the high >>iron it is almost 99 % sure they are malignate. he sadi the experts are >>also not sure if it would be ebst to biopsey them ebcuse if they are >>then the cancer would folow he trat fo the biopsey needel. they want to >>see me next week. I was thinking yea if your rich like the doctor is it >>is easy to run to denevr and get stuff done. So i have turned it over to >>god thatr soem how I will find a way to get the money to ghet there and >>stay there and figgure this thing out . has far has disbaility goes they >>want anther doctor tor eview my claim heck I don't know why m,y doctor >>isnt good enough for them : >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 no I am in wyoming. they might biopsey it. and they want to run a few tests tehy cant do here. yea i am fighting for the disability. what seucks is I don't have insurnce so seing this doctors is bank rupting me i have no clue how im going to aford this trip. Amy Griswold wrote: >Dave I am so sorry to hear about the spots on your kidneys and the >possibility of cancer. What do the specialists in Denver want to do if they >aren't going to biopsy you?? Beyond the ct scans and x-rays how much can >they do? I pray that you will find a way to get the medical help your >current doctor wants for you. > > Keep on pushing with the disability, one of our other members kept on >them and was finally granted it after a long fight. > >Out of pure curiosity are you in Colorado? What nephthrologist do you see? >I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and >we have a few other members in Colorado too. > >Hang in there. >Amy > update > > > > >>I dweicded to give an update the doctor got the reultes from denver on >>the kidney biopsey and they sadi that I do have iga has far has the >>spots go on the kidneys he sent my xrays and ct scans and ultrasound to >>denver for the expert to look at they the experts in denevr said the >>charicteristics of the spots and te way they haev rown and the odd >>shape of thm they are for sure a tummer and with the iga and the high >>iron it is almost 99 % sure they are malignate. he sadi the experts are >>also not sure if it would be ebst to biopsey them ebcuse if they are >>then the cancer would folow he trat fo the biopsey needel. they want to >>see me next week. I was thinking yea if your rich like the doctor is it >>is easy to run to denevr and get stuff done. So i have turned it over to >>god thatr soem how I will find a way to get the money to ghet there and >>stay there and figgure this thing out . has far has disbaility goes they >>want anther doctor tor eview my claim heck I don't know why m,y doctor >>isnt good enough for them : >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2004 Report Share Posted June 13, 2004 no I am in wyoming. they might biopsey it. and they want to run a few tests tehy cant do here. yea i am fighting for the disability. what seucks is I don't have insurnce so seing this doctors is bank rupting me i have no clue how im going to aford this trip. Amy Griswold wrote: >Dave I am so sorry to hear about the spots on your kidneys and the >possibility of cancer. What do the specialists in Denver want to do if they >aren't going to biopsy you?? Beyond the ct scans and x-rays how much can >they do? I pray that you will find a way to get the medical help your >current doctor wants for you. > > Keep on pushing with the disability, one of our other members kept on >them and was finally granted it after a long fight. > >Out of pure curiosity are you in Colorado? What nephthrologist do you see? >I live just East of Colorado Springs and go to Dr. Yuan (great guy!)....and >we have a few other members in Colorado too. > >Hang in there. >Amy > update > > > > >>I dweicded to give an update the doctor got the reultes from denver on >>the kidney biopsey and they sadi that I do have iga has far has the >>spots go on the kidneys he sent my xrays and ct scans and ultrasound to >>denver for the expert to look at they the experts in denevr said the >>charicteristics of the spots and te way they haev rown and the odd >>shape of thm they are for sure a tummer and with the iga and the high >>iron it is almost 99 % sure they are malignate. he sadi the experts are >>also not sure if it would be ebst to biopsey them ebcuse if they are >>then the cancer would folow he trat fo the biopsey needel. they want to >>see me next week. I was thinking yea if your rich like the doctor is it >>is easy to run to denevr and get stuff done. So i have turned it over to >>god thatr soem how I will find a way to get the money to ghet there and >>stay there and figgure this thing out . has far has disbaility goes they >>want anther doctor tor eview my claim heck I don't know why m,y doctor >>isnt good enough for them : >> >> >> >> >>To edit your settings for the group, go to our Yahoo Group >>home page: >>http://groups.yahoo.com/group/iga-nephropathy/ >> >>To unsubcribe via email, >>iga-nephropathy-unsubscribe >>Visit our companion website at www.igan.ca. The site is entirely supported >> >> >by donations. If you would like to help, go to: > > >>http://www.igan.ca/id62.htm >> >>Thank you >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hi , Welcome to the group! If your creatinine has stayed at 4.5 for three years, that is fantastic. Well, not fantastic that it is that high, but that you have been able to stabilize it for that long! I agree that exercise is so important. I always feel so much better when I get mine in. In a message dated 6/13/2004 10:21:19 AM Pacific Daylight Time, GNCCLEVENGER@... writes: > Hi everyone, > Iwas diagnosed almost 3years ago with IGAN. My creatine has stayed > around 4.5 since. Drs told me it was too late for immunosuppresents > when I was diagnosed. The one thing I have controlled is my BP. My dr > thinks this is why I am still doing so well. I started walking 1 mile > on the treadmill every morning before work since March and feel > better than I have in awhile.My meds are-zestril,lasix,Vit > D,tums,aranesp injections and renagel. > > talk to you later, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hi , Welcome to the group! If your creatinine has stayed at 4.5 for three years, that is fantastic. Well, not fantastic that it is that high, but that you have been able to stabilize it for that long! I agree that exercise is so important. I always feel so much better when I get mine in. In a message dated 6/13/2004 10:21:19 AM Pacific Daylight Time, GNCCLEVENGER@... writes: > Hi everyone, > Iwas diagnosed almost 3years ago with IGAN. My creatine has stayed > around 4.5 since. Drs told me it was too late for immunosuppresents > when I was diagnosed. The one thing I have controlled is my BP. My dr > thinks this is why I am still doing so well. I started walking 1 mile > on the treadmill every morning before work since March and feel > better than I have in awhile.My meds are-zestril,lasix,Vit > D,tums,aranesp injections and renagel. > > talk to you later, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 I'm so sorry to hear that Dave. You must be very upset about this, naturally. Any one of us would be. I hope you can start taking control of the situation after the initial shock passes (easier said than done, I'm sure). Have you seen this website? It seems very helpful. http://kidneycancerassociation.org/facts.html I had a friend in the army who died of kidney cancer. In fact, I took over his job afterwards. I think they have made significant progress since then though. That was more than a decade ago. My thoughts and prayers are with you on this. Pierre update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Dave I am so sorry to hear about your diagnosis. I have a friend who was dx with kidney cancer right at the same time I was dx with my IgAN. It was so strange that we started having problems at the same time, I was dx first and she was hoping her dx would come back with something as " simple " as IgAN. She has been in and out of the hospital for radiation and chemo treatments. So far she is hanging in there and last I talked with her they were going to get her ready for dialysis in the near future. Both kidney cancer and IgAN are survivable with careful treatment. I also hope your disability claim goes thru now...I don't think they can fight it anymore with this sort of dx. Hang in there and keep fighting! Amy update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Dave I am so sorry to hear about your diagnosis. I have a friend who was dx with kidney cancer right at the same time I was dx with my IgAN. It was so strange that we started having problems at the same time, I was dx first and she was hoping her dx would come back with something as " simple " as IgAN. She has been in and out of the hospital for radiation and chemo treatments. So far she is hanging in there and last I talked with her they were going to get her ready for dialysis in the near future. Both kidney cancer and IgAN are survivable with careful treatment. I also hope your disability claim goes thru now...I don't think they can fight it anymore with this sort of dx. Hang in there and keep fighting! Amy update > well Im back from denver and it is kidney cancer r and iga so i guess > double death sentance. I have to go back in two weeks and he will run > some more tests and have some of the results from what he did this week. > they might take one kiddy out the one the larger tumors course that can > cause extra tress on the other kidney and make it stop or grow even more > so the has to run it by his partners and the kidney doctors down there > that I also saw > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
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