Re: AMELIE BACK IN HOSPITAL

[Guest guest]

Les,

Sending huge ((((((Hugs)))))). I hope Amelie is feeling better soon .

Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

Scotland

[Guest guest]

Les,

Sending huge ((((((Hugs)))))). I hope Amelie is feeling better soon .

Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

Scotland

[Guest guest]

Les,

Sending huge ((((((Hugs)))))). I hope Amelie is feeling better soon .

Elaine mum to Elise(13yrs) & Jack(8yrs) CHaRGE

Scotland

[Guest guest]

Sending love, best wishes & positive thoughts from across the ocean.

>

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Dearest Lesley-

Oh my goodness! Prolonged sleep deprivation and prolonged medical

rollercoaster - I am awed how you have managed to stay in tune with your

intuition. If these conditions were imposed upon us it would constitute

inhumane treatment and torture. Life has such a tremendous sense of humour.

When I ask for strength it seems to come with its own testing. Then when I

feel being strong gives me control, life manages to knock me down to my

knees so that I can be humble and re-connect with prayer and gratitude.

I do smile broadly at the image of Amelie laughing and wriggling around.

For what it's worth, was never without a bucket of mucous at his ready

disposal from birth to age four. The mucous was never clear - the best we

had was milky. Often it was day-old-left-out-in-the-sun-guacamole-green.

In hindsight I shudder at our cavalier attitude about his chronic

congestion. Yet I also reserve great tenderness for the inexperienced

mother that I was - for it was the only way I could go forward bearing the

intensity the journey demanded.

who was never healthy for the first four years of his life hasn't even

had so much as a cold for the last three years! (but then let's not talk

about the four corrected ingrown toenails, the new Milwaukee brace, and the

new eyeglasses for nearsightedness - all first quarter of '06!)

When was three he was re-hospitalized for pneumonia. He responded

beautifully to treatment, and we were the apple of every professionals eye -

it was a sort of holiday retreat. It didn't have the stress of surgery and

medical discovery his previous hospitalization had, and we were among people

who understood the fibre of our moment-to-moment lives. I hope the same for

you )

Count it all joy -

with love,

yuka

AMELIE BACK IN HOSPITAL

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

[Guest guest]

Dearest Lesley-

Oh my goodness! Prolonged sleep deprivation and prolonged medical

rollercoaster - I am awed how you have managed to stay in tune with your

intuition. If these conditions were imposed upon us it would constitute

inhumane treatment and torture. Life has such a tremendous sense of humour.

When I ask for strength it seems to come with its own testing. Then when I

feel being strong gives me control, life manages to knock me down to my

knees so that I can be humble and re-connect with prayer and gratitude.

I do smile broadly at the image of Amelie laughing and wriggling around.

For what it's worth, was never without a bucket of mucous at his ready

disposal from birth to age four. The mucous was never clear - the best we

had was milky. Often it was day-old-left-out-in-the-sun-guacamole-green.

In hindsight I shudder at our cavalier attitude about his chronic

congestion. Yet I also reserve great tenderness for the inexperienced

mother that I was - for it was the only way I could go forward bearing the

intensity the journey demanded.

who was never healthy for the first four years of his life hasn't even

had so much as a cold for the last three years! (but then let's not talk

about the four corrected ingrown toenails, the new Milwaukee brace, and the

new eyeglasses for nearsightedness - all first quarter of '06!)

When was three he was re-hospitalized for pneumonia. He responded

beautifully to treatment, and we were the apple of every professionals eye -

it was a sort of holiday retreat. It didn't have the stress of surgery and

medical discovery his previous hospitalization had, and we were among people

who understood the fibre of our moment-to-moment lives. I hope the same for

you )

Count it all joy -

with love,

yuka

AMELIE BACK IN HOSPITAL

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

[Guest guest]

Les,

I'm so sorry to read that Amelie is back in but I'm thrilled you're listening

to your mothers gut instincts. I also always say better safe than sorry.

Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Good goin' mommy! Never doubt your instincts! Amelie is very lucky to have

you! You caught it early enough that she won't struggle as hard. Plus, you

have her in a place that knows her very well. I don't know about you, but I

take comfort when I walk into the Children's Hospital, and they know us by

name. Who know, maybe the newest angels of CHARGE put this worry in you for

a reason. They do look down on us you know....

Good luck Amelie! We love you pumpkin!

, mommy to Meagan (CHaRgE) and 18 months, and big brother

3 3/4 years, married to the best daddy in the world for 9 years

-- AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

Good goin' mommy! Never doubt your instincts! Amelie is very lucky to have

you! You caught it early enough that she won't struggle as hard. Plus, you

have her in a place that knows her very well. I don't know about you, but I

take comfort when I walk into the Children's Hospital, and they know us by

name. Who know, maybe the newest angels of CHARGE put this worry in you for

a reason. They do look down on us you know....

Good luck Amelie! We love you pumpkin!

, mommy to Meagan (CHaRgE) and 18 months, and big brother

3 3/4 years, married to the best daddy in the world for 9 years

-- AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

Good goin' mommy! Never doubt your instincts! Amelie is very lucky to have

you! You caught it early enough that she won't struggle as hard. Plus, you

have her in a place that knows her very well. I don't know about you, but I

take comfort when I walk into the Children's Hospital, and they know us by

name. Who know, maybe the newest angels of CHARGE put this worry in you for

a reason. They do look down on us you know....

Good luck Amelie! We love you pumpkin!

, mommy to Meagan (CHaRgE) and 18 months, and big brother

3 3/4 years, married to the best daddy in the world for 9 years

-- AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

I second that....my mommy instincts are rarely wrong when it comes to 's

health!!!

Lori Myers

AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

I second that....my mommy instincts are rarely wrong when it comes to 's

health!!!

Lori Myers

AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

I second that....my mommy instincts are rarely wrong when it comes to 's

health!!!

Lori Myers

AMELIE BACK IN HOSPITAL

I think my panic and anxiety, was deep down the realism, that we

were not far away from this addmission, although my husband thought

initially it was all brought on by the weekends sadness, i think he

thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

started to dip below 91 and her heart rate was creeping up to 180 at

its highest.I took her jimjams off and her recession was evident and

more marked than usual subcostal and intercostal, she is teething

badly and Darren thought her temp was due to this, after reading

this weekends posts with much panic, I took the decision to call an

ambulance.

At the A & E she was smiling laughing and wriggling around, and I too

started to think I had made a big mistake!! We were transfered to

the childrens hospital where she is known, chest xray for Amelie was

not the worst I had seen, but there was patchyness on the lower

right lobe, they did her bloods, and we waited 4.30am her CRP is 80

and her white cell count is up, they have started IV antibiotics and

treating her as pneumonia, she is ok very green secretions on her

chest but in high spirits, which tells me:

1 I didnt overeact, thank god, because this was niggling me!

2 We have got her in at the right time for a change, early enough

and so shes not as sick as she can get,

3 the team will be back tomorrow from the bank holiday, and we will

get on with the decision making regarding her lungs which right now

given whats happened I want to get on with surgery before one of

these pneumonias gets worse, beyond recovery!

As usual please keep the prayers up for her, and I am thinking of

you all, because you seriously keep me strong, if i didnt have all

of you i would have given up months ago, with this struggle!

love Les x

CHARGE SYNDROME LISTSERV PHOTO PAGE:

http://www.imagestation.com/album/?id=2117043995

Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter),

please contact marion@... or visit

the web site at http://www.chargesyndrome.org

8th International

CHARGE Syndrome Conference, July, 2007. Information will be available at www

chargesyndrome.org or by calling 1-.

[Guest guest]

Lesley-

I'm sorry Amelie is facing another illness. I'm especially sorry for the

timing -- for this happening when you are feeling so vulnerable. I will

hold her close in my heart and hope that things move along swiftly for her.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley-

I'm sorry Amelie is facing another illness. I'm especially sorry for the

timing -- for this happening when you are feeling so vulnerable. I will

hold her close in my heart and hope that things move along swiftly for her.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley-

I'm sorry Amelie is facing another illness. I'm especially sorry for the

timing -- for this happening when you are feeling so vulnerable. I will

hold her close in my heart and hope that things move along swiftly for her.

Michele W

mom to Aubrie 8 yrs CHARGE, 14 yrs and wife to DJ

[Guest guest]

Lesley,

Sorry to hear of the latest episode but glad to hear that you caught things

early. Never underestimate the value of parental instinct. I hope that

things get back on course for her soon and she can go back home and enjoy

her family.

I too had a smirk about her A & E antics. Sounds so familiar, just to try and

make us out to be overanxious parents. Lucky no-one believes our babies!

Of course lots of positive thoughts and wishes from Catford where life is

one HUGE green nose snot, so you are not alone in that one. I am still

trying to get over Yuka's very graphic description of 's green

productions!

Hugs........

Flo

[Guest guest]

Lesley,

My thoughts and prayers are with for a speedy recovery for missy moo.

love nicole xoxoxo

[Guest guest]

Lesley,

My thoughts and prayers are with for a speedy recovery for missy moo.

love nicole xoxoxo

[Guest guest]

Lesley,

My thoughts and prayers are with for a speedy recovery for missy moo.

love nicole xoxoxo

[Guest guest]

hope she is feeling better--and home again soon!

AMELIE BACK IN HOSPITAL

>I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

hope she is feeling better--and home again soon!

AMELIE BACK IN HOSPITAL

>I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

hope she is feeling better--and home again soon!

AMELIE BACK IN HOSPITAL

>I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband thought

> initially it was all brought on by the weekends sadness, i think he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180 at

> its highest.I took her jimjams off and her recession was evident and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is 80

> and her white cell count is up, they have started IV antibiotics and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we will

> get on with the decision making regarding her lungs which right now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Les,

As always, thoughts and prayers with you and yours.

Sharon from West Oz

>I think my panic and anxiety, was deep down the realism, that we

>were not far away from this addmission, although my husband thought

>initially it was all brought on by the weekends sadness, i think he

>thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

>started to dip below 91 and her heart rate was creeping up to 180 at

>its highest.I took her jimjams off and her recession was evident and

>more marked than usual subcostal and intercostal, she is teething

>badly and Darren thought her temp was due to this, after reading

>this weekends posts with much panic, I took the decision to call an

>ambulance.

>

>At the A & E she was smiling laughing and wriggling around, and I too

>started to think I had made a big mistake!! We were transfered to

>the childrens hospital where she is known, chest xray for Amelie was

>not the worst I had seen, but there was patchyness on the lower

>right lobe, they did her bloods, and we waited 4.30am her CRP is 80

>and her white cell count is up, they have started IV antibiotics and

>treating her as pneumonia, she is ok very green secretions on her

>chest but in high spirits, which tells me:

>

>1 I didnt overeact, thank god, because this was niggling me!

>2 We have got her in at the right time for a change, early enough

>and so shes not as sick as she can get,

>3 the team will be back tomorrow from the bank holiday, and we will

>get on with the decision making regarding her lungs which right now

>given whats happened I want to get on with surgery before one of

>these pneumonias gets worse, beyond recovery!

>

>As usual please keep the prayers up for her, and I am thinking of

>you all, because you seriously keep me strong, if i didnt have all

>of you i would have given up months ago, with this struggle!

>

>love Les x

>

>

>

>

>

>CHARGE SYNDROME LISTSERV PHOTO PAGE:

>http://www.imagestation.com/album/?id=2117043995

>

>Membership of this email support group does not constitute

>membership in the CHARGE Syndrome Foundation; for information about

>the CHARGE Syndrome

>Foundation or to become a member (and get the newsletter),

>please contact marion@... or visit

>the web site at http://www.chargesyndrome.org

>

>8th International

>CHARGE Syndrome Conference, July, 2007. Information will be

>available at www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

-Lesley,

UGH!! I hope by now things are turning around.

pam