Re: AMELIE BACK IN HOSPITAL

[Guest guest]

Les,

Amelie is always on my mind and in my prayers. I am always telling

people about you and her and they pray for you also.

I hope she feels better soon!!

Hugs,

Crystal and Eva

>

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband

thought

> initially it was all brought on by the weekends sadness, i think

he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180

at

> its highest.I took her jimjams off and her recession was evident

and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call

an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I

too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie

was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is

80

> and her white cell count is up, they have started IV antibiotics

and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early

enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we

will

> get on with the decision making regarding her lungs which right

now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

[Guest guest]

Les,

Amelie is always on my mind and in my prayers. I am always telling

people about you and her and they pray for you also.

I hope she feels better soon!!

Hugs,

Crystal and Eva

>

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband

thought

> initially it was all brought on by the weekends sadness, i think

he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180

at

> its highest.I took her jimjams off and her recession was evident

and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call

an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I

too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie

was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is

80

> and her white cell count is up, they have started IV antibiotics

and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early

enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we

will

> get on with the decision making regarding her lungs which right

now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

[Guest guest]

Les,

Amelie is always on my mind and in my prayers. I am always telling

people about you and her and they pray for you also.

I hope she feels better soon!!

Hugs,

Crystal and Eva

>

> I think my panic and anxiety, was deep down the realism, that we

> were not far away from this addmission, although my husband

thought

> initially it was all brought on by the weekends sadness, i think

he

> thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> started to dip below 91 and her heart rate was creeping up to 180

at

> its highest.I took her jimjams off and her recession was evident

and

> more marked than usual subcostal and intercostal, she is teething

> badly and Darren thought her temp was due to this, after reading

> this weekends posts with much panic, I took the decision to call

an

> ambulance.

>

> At the A & E she was smiling laughing and wriggling around, and I

too

> started to think I had made a big mistake!! We were transfered to

> the childrens hospital where she is known, chest xray for Amelie

was

> not the worst I had seen, but there was patchyness on the lower

> right lobe, they did her bloods, and we waited 4.30am her CRP is

80

> and her white cell count is up, they have started IV antibiotics

and

> treating her as pneumonia, she is ok very green secretions on her

> chest but in high spirits, which tells me:

>

> 1 I didnt overeact, thank god, because this was niggling me!

> 2 We have got her in at the right time for a change, early

enough

> and so shes not as sick as she can get,

> 3 the team will be back tomorrow from the bank holiday, and we

will

> get on with the decision making regarding her lungs which right

now

> given whats happened I want to get on with surgery before one of

> these pneumonias gets worse, beyond recovery!

>

> As usual please keep the prayers up for her, and I am thinking of

> you all, because you seriously keep me strong, if i didnt have all

> of you i would have given up months ago, with this struggle!

>

> love Les x

>

[Guest guest]

maybe it was coz of that weekend that u were all saddend but my belief is

like us all we will get sick one day the question is when and the time to

notice and you noticed in godo time YAY so that means hopefuly a shorter

admissoin for u

>

> Les,

> Amelie is always on my mind and in my prayers. I am always telling

> people about you and her and they pray for you also.

> I hope she feels better soon!!

>

> Hugs,

> Crystal and Eva

>

>

> >

> > I think my panic and anxiety, was deep down the realism, that we

> > were not far away from this addmission, although my husband

> thought

> > initially it was all brought on by the weekends sadness, i think

> he

> > thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> > started to dip below 91 and her heart rate was creeping up to 180

> at

> > its highest.I took her jimjams off and her recession was evident

> and

> > more marked than usual subcostal and intercostal, she is teething

> > badly and Darren thought her temp was due to this, after reading

> > this weekends posts with much panic, I took the decision to call

> an

> > ambulance.

> >

> > At the A & E she was smiling laughing and wriggling around, and I

> too

> > started to think I had made a big mistake!! We were transfered to

> > the childrens hospital where she is known, chest xray for Amelie

> was

> > not the worst I had seen, but there was patchyness on the lower

> > right lobe, they did her bloods, and we waited 4.30am her CRP is

> 80

> > and her white cell count is up, they have started IV antibiotics

> and

> > treating her as pneumonia, she is ok very green secretions on her

> > chest but in high spirits, which tells me:

> >

> > 1 I didnt overeact, thank god, because this was niggling me!

> > 2 We have got her in at the right time for a change, early

> enough

> > and so shes not as sick as she can get,

> > 3 the team will be back tomorrow from the bank holiday, and we

> will

> > get on with the decision making regarding her lungs which right

> now

> > given whats happened I want to get on with surgery before one of

> > these pneumonias gets worse, beyond recovery!

> >

> > As usual please keep the prayers up for her, and I am thinking of

> > you all, because you seriously keep me strong, if i didnt have all

> > of you i would have given up months ago, with this struggle!

> >

> > love Les x

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

maybe it was coz of that weekend that u were all saddend but my belief is

like us all we will get sick one day the question is when and the time to

notice and you noticed in godo time YAY so that means hopefuly a shorter

admissoin for u

>

> Les,

> Amelie is always on my mind and in my prayers. I am always telling

> people about you and her and they pray for you also.

> I hope she feels better soon!!

>

> Hugs,

> Crystal and Eva

>

>

> >

> > I think my panic and anxiety, was deep down the realism, that we

> > were not far away from this addmission, although my husband

> thought

> > initially it was all brought on by the weekends sadness, i think

> he

> > thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> > started to dip below 91 and her heart rate was creeping up to 180

> at

> > its highest.I took her jimjams off and her recession was evident

> and

> > more marked than usual subcostal and intercostal, she is teething

> > badly and Darren thought her temp was due to this, after reading

> > this weekends posts with much panic, I took the decision to call

> an

> > ambulance.

> >

> > At the A & E she was smiling laughing and wriggling around, and I

> too

> > started to think I had made a big mistake!! We were transfered to

> > the childrens hospital where she is known, chest xray for Amelie

> was

> > not the worst I had seen, but there was patchyness on the lower

> > right lobe, they did her bloods, and we waited 4.30am her CRP is

> 80

> > and her white cell count is up, they have started IV antibiotics

> and

> > treating her as pneumonia, she is ok very green secretions on her

> > chest but in high spirits, which tells me:

> >

> > 1 I didnt overeact, thank god, because this was niggling me!

> > 2 We have got her in at the right time for a change, early

> enough

> > and so shes not as sick as she can get,

> > 3 the team will be back tomorrow from the bank holiday, and we

> will

> > get on with the decision making regarding her lungs which right

> now

> > given whats happened I want to get on with surgery before one of

> > these pneumonias gets worse, beyond recovery!

> >

> > As usual please keep the prayers up for her, and I am thinking of

> > you all, because you seriously keep me strong, if i didnt have all

> > of you i would have given up months ago, with this struggle!

> >

> > love Les x

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

maybe it was coz of that weekend that u were all saddend but my belief is

like us all we will get sick one day the question is when and the time to

notice and you noticed in godo time YAY so that means hopefuly a shorter

admissoin for u

>

> Les,

> Amelie is always on my mind and in my prayers. I am always telling

> people about you and her and they pray for you also.

> I hope she feels better soon!!

>

> Hugs,

> Crystal and Eva

>

>

> >

> > I think my panic and anxiety, was deep down the realism, that we

> > were not far away from this addmission, although my husband

> thought

> > initially it was all brought on by the weekends sadness, i think

> he

> > thougth I was 'OVER REACTING' Sunday evening 10pm, Amelies sats

> > started to dip below 91 and her heart rate was creeping up to 180

> at

> > its highest.I took her jimjams off and her recession was evident

> and

> > more marked than usual subcostal and intercostal, she is teething

> > badly and Darren thought her temp was due to this, after reading

> > this weekends posts with much panic, I took the decision to call

> an

> > ambulance.

> >

> > At the A & E she was smiling laughing and wriggling around, and I

> too

> > started to think I had made a big mistake!! We were transfered to

> > the childrens hospital where she is known, chest xray for Amelie

> was

> > not the worst I had seen, but there was patchyness on the lower

> > right lobe, they did her bloods, and we waited 4.30am her CRP is

> 80

> > and her white cell count is up, they have started IV antibiotics

> and

> > treating her as pneumonia, she is ok very green secretions on her

> > chest but in high spirits, which tells me:

> >

> > 1 I didnt overeact, thank god, because this was niggling me!

> > 2 We have got her in at the right time for a change, early

> enough

> > and so shes not as sick as she can get,

> > 3 the team will be back tomorrow from the bank holiday, and we

> will

> > get on with the decision making regarding her lungs which right

> now

> > given whats happened I want to get on with surgery before one of

> > these pneumonias gets worse, beyond recovery!

> >

> > As usual please keep the prayers up for her, and I am thinking of

> > you all, because you seriously keep me strong, if i didnt have all

> > of you i would have given up months ago, with this struggle!

> >

> > love Les x

> >

>

>

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in

> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

Les,

You know best! Hoping for a speedy recovery.

Jeanie

[Guest guest]

Les,

You know best! Hoping for a speedy recovery.

Jeanie