new to group

[Guest guest]

Hi, , and welcome to the group!

> Hello all,

>

> Just joined this group. I had thyroid cancer 25 years ago. Have

> been on synthetic thyroid ever since. My current dose is 0.3 MG of

> Levoxyl. My Dr's office called yesterday and said my dose was to

> high. Had a TSH blood test last week - results were less than 0.02.

> Why do you think he wants to cut my dose? Does a low TSH mean you

> are hyperthyroid? I'm confused.

As others have mentioned, the goal for thyca patients is to keep our

TSH <0.1. That is technically hyperthyroid (hyper is generally,

depending on the lab, about 0.3-5.0), and is done to prevent the

cancer from recurring. However, there is some concern about long term

bone loss with levels being very low. So it's a balancing act.

> In addition, I just started natural

> hormone replacement therapy last month because I was having lots of

> hot flashes, etc. Anyone have any information about menopause and

> not having a thyroid gland?

When you say natural hrt, are you taking estrogen? From

http://thyroid.about.com/library/weekly/aa032398.htm :

" Women taking estrogen [snip]may need to take more thyroid

replacement hormone. Estrogen increases the body's production of a

blood protein that binds thyroid hormone to it, making it inactive.

For women without thyroids in particular, this can cause a need to

increase the dosage level slightly, as there is no thyroid to

compensate. "

Essentially, yes, menopause can mean a change in thyroid hormone

levels. And, the bone loss issue becomes more important, since it

happens to post-menopausal women. You definitely should be getting a

bone density test (baseline) and taking calcium and doing other things

to ensure healthy bones.

>Sorry this is so rambling. I had almost

> my entire thyroid gland removed - they left a small amount to

> protect the parathyroid gland.

There are actually 4 of those little critters :-). Obviously, you did

not have RAI (radioiodine) treatment done - which is a bit different

than what is usually done these days.

> Thanks for any infomation you may have. Feel free to email me

> directly.

>

>

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

Hi, , and welcome to the group!

> Hello all,

>

> Just joined this group. I had thyroid cancer 25 years ago. Have

> been on synthetic thyroid ever since. My current dose is 0.3 MG of

> Levoxyl. My Dr's office called yesterday and said my dose was to

> high. Had a TSH blood test last week - results were less than 0.02.

> Why do you think he wants to cut my dose? Does a low TSH mean you

> are hyperthyroid? I'm confused.

As others have mentioned, the goal for thyca patients is to keep our

TSH <0.1. That is technically hyperthyroid (hyper is generally,

depending on the lab, about 0.3-5.0), and is done to prevent the

cancer from recurring. However, there is some concern about long term

bone loss with levels being very low. So it's a balancing act.

> In addition, I just started natural

> hormone replacement therapy last month because I was having lots of

> hot flashes, etc. Anyone have any information about menopause and

> not having a thyroid gland?

When you say natural hrt, are you taking estrogen? From

http://thyroid.about.com/library/weekly/aa032398.htm :

" Women taking estrogen [snip]may need to take more thyroid

replacement hormone. Estrogen increases the body's production of a

blood protein that binds thyroid hormone to it, making it inactive.

For women without thyroids in particular, this can cause a need to

increase the dosage level slightly, as there is no thyroid to

compensate. "

Essentially, yes, menopause can mean a change in thyroid hormone

levels. And, the bone loss issue becomes more important, since it

happens to post-menopausal women. You definitely should be getting a

bone density test (baseline) and taking calcium and doing other things

to ensure healthy bones.

>Sorry this is so rambling. I had almost

> my entire thyroid gland removed - they left a small amount to

> protect the parathyroid gland.

There are actually 4 of those little critters :-). Obviously, you did

not have RAI (radioiodine) treatment done - which is a bit different

than what is usually done these days.

> Thanks for any infomation you may have. Feel free to email me

> directly.

>

>

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

[Guest guest]

> Hi Everyone, Hi , I made it here, thanks to you. There is some awesome

information here:)

---

Sure is. It could keep one awake all night. LOL

Glad you made it. Would you like to tell us about your thyca journey thus far?

Hugs,

in Canton, OH

--

1965 TT, P/F thyca, no RAI, hypoparathyroidism

1982 Recurrence neck and chest, RAI 176 mCi

2001 Clean hypo scan PTL~!

[Guest guest]

> Hi Everyone, Hi , I made it here, thanks to you. There is some awesome

information here:)

---

Sure is. It could keep one awake all night. LOL

Glad you made it. Would you like to tell us about your thyca journey thus far?

Hugs,

in Canton, OH

--

1965 TT, P/F thyca, no RAI, hypoparathyroidism

1982 Recurrence neck and chest, RAI 176 mCi

2001 Clean hypo scan PTL~!

[Guest guest]

> Hi Everyone, Hi , I made it here, thanks to you. There is some awesome

information here:)

---

Sure is. It could keep one awake all night. LOL

Glad you made it. Would you like to tell us about your thyca journey thus far?

Hugs,

in Canton, OH

--

1965 TT, P/F thyca, no RAI, hypoparathyroidism

1982 Recurrence neck and chest, RAI 176 mCi

2001 Clean hypo scan PTL~!

[Guest guest]

Hi Ana,

Thanks for the email. I just recently found this site. In June of 2001 I

had a full thyroidectomy for pap/foll. thyroid cancer. Due to the my surgery

I now how parathyroid damage. Is this what you have too? I am taking

Synthroid and I don't feel very good on it. What type of thyroid medication

do you take. I am trying to get my doctor to change it. I hope you don't

mind all the questions:) Take care:)

[Guest guest]

Hi Ana,

Thanks for the email. I just recently found this site. In June of 2001 I

had a full thyroidectomy for pap/foll. thyroid cancer. Due to the my surgery

I now how parathyroid damage. Is this what you have too? I am taking

Synthroid and I don't feel very good on it. What type of thyroid medication

do you take. I am trying to get my doctor to change it. I hope you don't

mind all the questions:) Take care:)

[Guest guest]

Hi Jeni:

Yes, there is a lot of awesome (a new word to learn for me) and useful

information here. I´m a recent thyca member and I still learning (and learning

english too), but you can ask to me anything whatsoever (or whatever you want).

There are a lot of awesome folks here too.

Ana from Spain.

TT: 11-07-02; RAI: 27-08-02

Fol Ca, 3 cm, Hürthle cells (I think that I must to go to have a look to

abbreviations message, I know I wrote the number somewhere, but I can´t find it

now, sorry).

jeniflower3235 wrote: Hi Everyone, Hi , I made it

here, thanks to you. There is some

awesome information here:)

[Guest guest]

Hi Jeni:

Yes, there is a lot of awesome (a new word to learn for me) and useful

information here. I´m a recent thyca member and I still learning (and learning

english too), but you can ask to me anything whatsoever (or whatever you want).

There are a lot of awesome folks here too.

Ana from Spain.

TT: 11-07-02; RAI: 27-08-02

Fol Ca, 3 cm, Hürthle cells (I think that I must to go to have a look to

abbreviations message, I know I wrote the number somewhere, but I can´t find it

now, sorry).

jeniflower3235 wrote: Hi Everyone, Hi , I made it

here, thanks to you. There is some

awesome information here:)

[Guest guest]

Hi Jeni:

Yes, there is a lot of awesome (a new word to learn for me) and useful

information here. I´m a recent thyca member and I still learning (and learning

english too), but you can ask to me anything whatsoever (or whatever you want).

There are a lot of awesome folks here too.

Ana from Spain.

TT: 11-07-02; RAI: 27-08-02

Fol Ca, 3 cm, Hürthle cells (I think that I must to go to have a look to

abbreviations message, I know I wrote the number somewhere, but I can´t find it

now, sorry).

jeniflower3235 wrote: Hi Everyone, Hi , I made it

here, thanks to you. There is some

awesome information here:)

[Guest guest]

Hi again, :

Of course, I don´t mind the questions, but I´m afraid, I can´t give you worthy

responses. I have read something about parathyroids before my first partial

thyroidectomy (june, 5th), there are several parathyroid glands, depending the

person. Parathyroids are in relation with calcium. Doctors must analyse your

level of calcium, and if they give you calcium to take you must take it five

hours after the levotiroxyne, because the interferences of absortion.I don´t

know anything about this, but in this list are several persons with parathyroids

damage. You must do that:

You must send a message with a tittle like this: " I´m new, parathyroids damage,

need help " or " a scared newbie, parathyroids questions " or something similar,

and the lot of kind people here in the list with parathyroids knowledge could

response you, because you´ll see it is not easy to read all the messages, there

are a lot.

My meds? This week I started with 150 mcg of Euthirox (Euthyrox, don´t remember)

from monday to thursday and 200 mcg from friday to sunday. Euthirox is a

European name of levothyroxine (I think) T4. I could see in the list you have

Synthroid, Unythroid, etc. My TSH must go down to 0.05 (Hürthle cells), but most

of the thycans are OK with a TSH about 0.1. It take some time to doctors to find

your ideal level of levothyroxine dose, you must be patient, but also you must

tell to them how do you feel.

Well, see you later, good luck.

Ana, from Spain.

Feel free to correct my english please.

jeniflower32@... wrote: Hi Ana,

Thanks for the email. I just recently found this site. In June of 2001 I

had a full thyroidectomy for pap/foll. thyroid cancer. Due to the my surgery

I now how parathyroid damage. Is this what you have too? I am taking

Synthroid and I don't feel very good on it. What type of thyroid medication

do you take. I am trying to get my doctor to change it. I hope you don't

mind all the questions:) Take care:)

[Guest guest]

Hi again, :

Of course, I don´t mind the questions, but I´m afraid, I can´t give you worthy

responses. I have read something about parathyroids before my first partial

thyroidectomy (june, 5th), there are several parathyroid glands, depending the

person. Parathyroids are in relation with calcium. Doctors must analyse your

level of calcium, and if they give you calcium to take you must take it five

hours after the levotiroxyne, because the interferences of absortion.I don´t

know anything about this, but in this list are several persons with parathyroids

damage. You must do that:

You must send a message with a tittle like this: " I´m new, parathyroids damage,

need help " or " a scared newbie, parathyroids questions " or something similar,

and the lot of kind people here in the list with parathyroids knowledge could

response you, because you´ll see it is not easy to read all the messages, there

are a lot.

My meds? This week I started with 150 mcg of Euthirox (Euthyrox, don´t remember)

from monday to thursday and 200 mcg from friday to sunday. Euthirox is a

European name of levothyroxine (I think) T4. I could see in the list you have

Synthroid, Unythroid, etc. My TSH must go down to 0.05 (Hürthle cells), but most

of the thycans are OK with a TSH about 0.1. It take some time to doctors to find

your ideal level of levothyroxine dose, you must be patient, but also you must

tell to them how do you feel.

Well, see you later, good luck.

Ana, from Spain.

Feel free to correct my english please.

jeniflower32@... wrote: Hi Ana,

Thanks for the email. I just recently found this site. In June of 2001 I

had a full thyroidectomy for pap/foll. thyroid cancer. Due to the my surgery

I now how parathyroid damage. Is this what you have too? I am taking

Synthroid and I don't feel very good on it. What type of thyroid medication

do you take. I am trying to get my doctor to change it. I hope you don't

mind all the questions:) Take care:)

[Guest guest]

Hi again, :

Of course, I don´t mind the questions, but I´m afraid, I can´t give you worthy

responses. I have read something about parathyroids before my first partial

thyroidectomy (june, 5th), there are several parathyroid glands, depending the

person. Parathyroids are in relation with calcium. Doctors must analyse your

level of calcium, and if they give you calcium to take you must take it five

hours after the levotiroxyne, because the interferences of absortion.I don´t

know anything about this, but in this list are several persons with parathyroids

damage. You must do that:

You must send a message with a tittle like this: " I´m new, parathyroids damage,

need help " or " a scared newbie, parathyroids questions " or something similar,

and the lot of kind people here in the list with parathyroids knowledge could

response you, because you´ll see it is not easy to read all the messages, there

are a lot.

My meds? This week I started with 150 mcg of Euthirox (Euthyrox, don´t remember)

from monday to thursday and 200 mcg from friday to sunday. Euthirox is a

European name of levothyroxine (I think) T4. I could see in the list you have

Synthroid, Unythroid, etc. My TSH must go down to 0.05 (Hürthle cells), but most

of the thycans are OK with a TSH about 0.1. It take some time to doctors to find

your ideal level of levothyroxine dose, you must be patient, but also you must

tell to them how do you feel.

Well, see you later, good luck.

Ana, from Spain.

Feel free to correct my english please.

jeniflower32@... wrote: Hi Ana,

Thanks for the email. I just recently found this site. In June of 2001 I

had a full thyroidectomy for pap/foll. thyroid cancer. Due to the my surgery

I now how parathyroid damage. Is this what you have too? I am taking

Synthroid and I don't feel very good on it. What type of thyroid medication

do you take. I am trying to get my doctor to change it. I hope you don't

mind all the questions:) Take care:)

[Guest guest]

Hi Chuck,

Welcome to the group too! We do always love having new members. I am glad

you have had a successful transplant and I assume are doing well.

As Pierre responded, we have not been able to pinpoint a cause or a known

trigger of IgAN. I have never had problems with my tonsils at all. My doctor

suggested it may have been triggered by a strept infection that may have gone

untreated in my early teens, but who knows.

Welcome to our family though.

[Guest guest]

Hi Chuck. I've been on hemodialysis for about 18 months now, on the waiting

list. I'm hoping to join all you guys and gals with transplants anytime now.

You can read things about tonsils and IgAN. Who knows what has a connection

to what. I've always tended to connect my IgAN to a series of vaccinations I

got in the military, but, it's impossible to prove anything, and not for

lack of trying (as it would have meant a military medical pension for me).

It's probably just a coincidence though. We can all find things that we

suspect of having been the trigger, but truly, there's nothing to really

support any connection. My brother had constant problems with tonsillitis

when he was a child. In and out of the hospital numerous times. He's

middle-aged now, and he still has his tonsils, but no sign of any IgAN

whatsoever, and that's even after the extensive kidney donor workups he did

(he was rejected for something else in the end). I, on the other hand, have

never had any problems at all with my tonsils, and I'm the one on dialysis

right now because of IgAN. So, go figure.

You can take hundreds of IgAN patients, as we see in this group, and despite

looking very hard for it, never find any consistent pattern as to what might

have caused the IgAN. But of course, some people who do have problems with

their tonsils might be helped, if it also helps to reduce the frequency of

upper respiratory infections.

Pierre

new to group

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of what

> lead up to being one of the people that acquire this diseases. I was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never had

> them removed, has anyone else had this problem or read anything about

> this?

> Chuck Biddle

>

>

>

[Guest guest]

Hi Chuck. I've been on hemodialysis for about 18 months now, on the waiting

list. I'm hoping to join all you guys and gals with transplants anytime now.

You can read things about tonsils and IgAN. Who knows what has a connection

to what. I've always tended to connect my IgAN to a series of vaccinations I

got in the military, but, it's impossible to prove anything, and not for

lack of trying (as it would have meant a military medical pension for me).

It's probably just a coincidence though. We can all find things that we

suspect of having been the trigger, but truly, there's nothing to really

support any connection. My brother had constant problems with tonsillitis

when he was a child. In and out of the hospital numerous times. He's

middle-aged now, and he still has his tonsils, but no sign of any IgAN

whatsoever, and that's even after the extensive kidney donor workups he did

(he was rejected for something else in the end). I, on the other hand, have

never had any problems at all with my tonsils, and I'm the one on dialysis

right now because of IgAN. So, go figure.

You can take hundreds of IgAN patients, as we see in this group, and despite

looking very hard for it, never find any consistent pattern as to what might

have caused the IgAN. But of course, some people who do have problems with

their tonsils might be helped, if it also helps to reduce the frequency of

upper respiratory infections.

Pierre

new to group

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of what

> lead up to being one of the people that acquire this diseases. I was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never had

> them removed, has anyone else had this problem or read anything about

> this?

> Chuck Biddle

>

>

>

[Guest guest]

Hi Chuck. I've been on hemodialysis for about 18 months now, on the waiting

list. I'm hoping to join all you guys and gals with transplants anytime now.

You can read things about tonsils and IgAN. Who knows what has a connection

to what. I've always tended to connect my IgAN to a series of vaccinations I

got in the military, but, it's impossible to prove anything, and not for

lack of trying (as it would have meant a military medical pension for me).

It's probably just a coincidence though. We can all find things that we

suspect of having been the trigger, but truly, there's nothing to really

support any connection. My brother had constant problems with tonsillitis

when he was a child. In and out of the hospital numerous times. He's

middle-aged now, and he still has his tonsils, but no sign of any IgAN

whatsoever, and that's even after the extensive kidney donor workups he did

(he was rejected for something else in the end). I, on the other hand, have

never had any problems at all with my tonsils, and I'm the one on dialysis

right now because of IgAN. So, go figure.

You can take hundreds of IgAN patients, as we see in this group, and despite

looking very hard for it, never find any consistent pattern as to what might

have caused the IgAN. But of course, some people who do have problems with

their tonsils might be helped, if it also helps to reduce the frequency of

upper respiratory infections.

Pierre

new to group

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of what

> lead up to being one of the people that acquire this diseases. I was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never had

> them removed, has anyone else had this problem or read anything about

> this?

> Chuck Biddle

>

>

>

[Guest guest]

Chuck,

I wouldnt say it was directly the tonsils that caused your IGAN. No

one can prove that. But I believe that you were predisposed to

develeope it as each of us has. Now what IGAN basically is, is a

disease of the immune system. What happens is your body begins to

produce an excessive amount of IGAN antibodies. Once it starts it

doesnt stop and the antibodies are like retarded sailors on shore

leave. They get rowdy and go to the nearest bar ( your

kidneys ) and cause as much havoc as possible.

Now as far as your tonsils go, its very possible that the contributed

or acted as a catalyst. But its usually a viral infection that would

begin the process. Now if you had a tonsil infection that you didnt

take care of and it escalated into a viral infection . Bingo you

may have a love match.

Of course I am only going by what my doc told me, potentially

causes IGAN. BUt the jury is still out on the true cause.

Maybe it is the war in IRAQ which is to blame.

Tony C and Schmeagle

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of

being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of

what

> lead up to being one of the people that acquire this diseases. I

was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never

had

> them removed, has anyone else had this problem or read anything

about

> this?

> Chuck Biddle

[Guest guest]

Hi Chuck,

That is just so encouraging to hear you are doing so well post transplant. I

think it is true that from 20% or so until transplant is the hardest part of

the process, but it is good to keep in mind the new life that is offered post

transplant.

Thanks for the encouragement!

[Guest guest]

Hi Chuck,

That is just so encouraging to hear you are doing so well post transplant. I

think it is true that from 20% or so until transplant is the hardest part of

the process, but it is good to keep in mind the new life that is offered post

transplant.

Thanks for the encouragement!

[Guest guest]

Hi Chuck,

That is just so encouraging to hear you are doing so well post transplant. I

think it is true that from 20% or so until transplant is the hardest part of

the process, but it is good to keep in mind the new life that is offered post

transplant.

Thanks for the encouragement!

[Guest guest]

Welcome to the group Chuck. We have quite a few transplantees on here. I

hope to join them soon - on hemodialysis for a year and a half, going on two

years in October

Pierre

Re: new to group

> Hello Everyone,

> Since my transplant I have been super. I work full time like I did while

I was on dialis. I am just over six years since my transplant now. I have

been throught alot of stuff with this, so if anyone is near ESRD or going

through it just hold on, when you get a transplant your whole life changes

for the better. You wake up every day just glad that you get another day.

When I was sick I remember the dispare, not wanting to do anything just

wanting the pain and suffering to stop. But my life is so much better now, I

am excited to get up every day.

>

>

>

[Guest guest]

Welcome to the group Chuck. We have quite a few transplantees on here. I

hope to join them soon - on hemodialysis for a year and a half, going on two

years in October

Pierre

Re: new to group

> Hello Everyone,

> Since my transplant I have been super. I work full time like I did while

I was on dialis. I am just over six years since my transplant now. I have

been throught alot of stuff with this, so if anyone is near ESRD or going

through it just hold on, when you get a transplant your whole life changes

for the better. You wake up every day just glad that you get another day.

When I was sick I remember the dispare, not wanting to do anything just

wanting the pain and suffering to stop. But my life is so much better now, I

am excited to get up every day.

>

>

>

[Guest guest]

my neph used to insist that I have my tonsils removed. what he explained was

that people w/tonsils tend to have more respiratory/throat infections. These

can cause the kidneys to flare in someone who already has IgAN. It doesn't

cause it though. I guess I am fortunate that I am rarely sick (once-twice a

year since diagnosis) so have kept my tonsils intact. I'm sure some of the

others can give more medical sounding advice on the tonsils vs. IgAN debate.

jen

new to group

Hello All,

I had been diagnosed with IgA eight years ago. Within a year of being

informed of the news I had already started having problems. I spent

eighteen months of my life on hemo dalais before receiving a

transplant. I have read some about all of the circumstances of what

lead up to being one of the people that acquire this diseases. I was

hoping some one would confirm my suspicions of my theory of the

reason I ended up with this.

When I was young I had several problems with my tonsils. I never had

them removed, has anyone else had this problem or read anything about

this?

Chuck Biddle

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Thank you

[Guest guest]

Hi Chuck welcome to the group and it's great to hear you are doing well post

transplant! As for the tonsil thing there is a theory out there that tries

to connect the tonsil problems with IgAN...but it is just a theory with no

real proof backing it. I did have my tonsils out post dx but it was due to

lots of discharge from them, history of constant strep infections, and the

fact that the discharge was causing me to gag constantly. My neph is now

watching my labs to see if the tonsil removal does anything to improve my

state of health. I had problems with my tonsils for years but I honestly

don't think they were the trigger to my IgAN. I can trace mine back roughly

to a severe case of food poisoning my family had, I never really recovered

from it and within a few months I was at 35% kidney function. However no

one can say for sure if the food poisoning caused it. Since my husband and

kids had the same food poisoning problem and all of them are healthy I may

have been predisposed to IgAN prior to the food poisoning incident.

As my neph says, you will never find the cause so just concentrate on the

present and what we can do to keep function as long as possible.

Amy

new to group

> Hello All,

> I had been diagnosed with IgA eight years ago. Within a year of being

> informed of the news I had already started having problems. I spent

> eighteen months of my life on hemo dalais before receiving a

> transplant. I have read some about all of the circumstances of what

> lead up to being one of the people that acquire this diseases. I was

> hoping some one would confirm my suspicions of my theory of the

> reason I ended up with this.

> When I was young I had several problems with my tonsils. I never had

> them removed, has anyone else had this problem or read anything about

> this?

> Chuck Biddle

>

>

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