Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Carolyn wrote: <<Having to urinate a lot. I can't even drink one sip of water at night before going to bed, or I'll be up in an hour to go to the bathroom.>> That happens to me too. Seems the pituitary releases a hormone called Anti Diuretic Hormone, which restricts peeing, and this is the normal situation. A fibrillating atrium sometimes (but not in every instance) releases a hormone that blocks ADH. The result of two negatives is a positive, so when in afib, we can pee a lot. That in turn can wash out potassium, which can beget more afib. The faint feeling can be the result of not enough blood circulating because a fibbing heart is not as efficient. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Carolyn wrote: <<Having to urinate a lot. I can't even drink one sip of water at night before going to bed, or I'll be up in an hour to go to the bathroom.>> That happens to me too. Seems the pituitary releases a hormone called Anti Diuretic Hormone, which restricts peeing, and this is the normal situation. A fibrillating atrium sometimes (but not in every instance) releases a hormone that blocks ADH. The result of two negatives is a positive, so when in afib, we can pee a lot. That in turn can wash out potassium, which can beget more afib. The faint feeling can be the result of not enough blood circulating because a fibbing heart is not as efficient. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 This is pretty interesting to read. Are the symptoms that I've described serious enough that I should see my doctor right away? I'm afraid to go and have the doctor blow it off as something not so serious. That's just the impressions I get. Carolyn > <<Having to urinate a lot. I can't even drink one sip of water at > night before going to bed, or I'll be up in an hour to go to the > bathroom.>> > > That happens to me too. Seems the pituitary releases a hormone called > Anti Diuretic Hormone, which restricts peeing, and this is the normal > situation. > > A fibrillating atrium sometimes (but not in every instance) releases a > hormone that blocks ADH. The result of two negatives is a positive, so > when in afib, we can pee a lot. That in turn can wash out potassium, > which can beget more afib. > > The faint feeling can be the result of not enough blood circulating > because a fibbing heart is not as efficient. > > - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 This is pretty interesting to read. Are the symptoms that I've described serious enough that I should see my doctor right away? I'm afraid to go and have the doctor blow it off as something not so serious. That's just the impressions I get. Carolyn > <<Having to urinate a lot. I can't even drink one sip of water at > night before going to bed, or I'll be up in an hour to go to the > bathroom.>> > > That happens to me too. Seems the pituitary releases a hormone called > Anti Diuretic Hormone, which restricts peeing, and this is the normal > situation. > > A fibrillating atrium sometimes (but not in every instance) releases a > hormone that blocks ADH. The result of two negatives is a positive, so > when in afib, we can pee a lot. That in turn can wash out potassium, > which can beget more afib. > > The faint feeling can be the result of not enough blood circulating > because a fibbing heart is not as efficient. > > - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Carolyn, Urinating all the time is probably not " right away " but faintness is. But the urinating merits checking electrolyte levels soon. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Carolyn, Urinating all the time is probably not " right away " but faintness is. But the urinating merits checking electrolyte levels soon. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Carolyn, Urinating all the time is probably not " right away " but faintness is. But the urinating merits checking electrolyte levels soon. - OU alum in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > Hi all, > > I've been diagnosed with PAC's in early 2000, but I was aware of > them about 5 years before. I've had ekg's and echo's done but they > didn't show anything until I wore a halter monitor. I'm worried that > I have something more than PAC's though. Carolyn, I would go back to your doctor, or if you think he or she isn't treating you seriously then absolutely find a better doctor. I would ask to wear a holter monitor again, for at least long enough to catch whatever is happening, which sounds like a 24 or 48 hours monitor would do. If this is afib, there are other meds than beta blockers, with pros and cons. It may be that you are in pre-menopause, which can cause this stuff to kick up. I would do this promptly so you can fix whatever is going on, and not delay and drive yourself nuts with anxiety. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > Hi all, > > I've been diagnosed with PAC's in early 2000, but I was aware of > them about 5 years before. I've had ekg's and echo's done but they > didn't show anything until I wore a halter monitor. I'm worried that > I have something more than PAC's though. Carolyn, I would go back to your doctor, or if you think he or she isn't treating you seriously then absolutely find a better doctor. I would ask to wear a holter monitor again, for at least long enough to catch whatever is happening, which sounds like a 24 or 48 hours monitor would do. If this is afib, there are other meds than beta blockers, with pros and cons. It may be that you are in pre-menopause, which can cause this stuff to kick up. I would do this promptly so you can fix whatever is going on, and not delay and drive yourself nuts with anxiety. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > Hi all, > > I've been diagnosed with PAC's in early 2000, but I was aware of > them about 5 years before. I've had ekg's and echo's done but they > didn't show anything until I wore a halter monitor. I'm worried that > I have something more than PAC's though. Carolyn, I would go back to your doctor, or if you think he or she isn't treating you seriously then absolutely find a better doctor. I would ask to wear a holter monitor again, for at least long enough to catch whatever is happening, which sounds like a 24 or 48 hours monitor would do. If this is afib, there are other meds than beta blockers, with pros and cons. It may be that you are in pre-menopause, which can cause this stuff to kick up. I would do this promptly so you can fix whatever is going on, and not delay and drive yourself nuts with anxiety. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > Hi all, > p.s. being dehydrated can bring on afib. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 The funny thing is that I've been drinking a lot of water and other beverages. But I still feel severely dehydrated. Almost like the water I drink is going somewhere else. > > Hi all, > > > > p.s. being dehydrated can bring on afib. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 > The funny thing is that I've been drinking a lot of water and other > beverages. But I still feel severely dehydrated. Almost like the > water I drink is going somewhere else. > > Carolyn, With cats :-) consuming thirst can indicate diabetes or a thyroid imbalance. Thyroid stuff can bring on afib. All the more reason to get yourself to a doc and figure out what's going on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 As far as I can tell, that talkabouthealth seems to just gather discussion threads from USENET newsgroups - probably automatically without much human intervention. Those newsgroups are a real free-for-all wild west kind of place where anything goes. For some reason, I became the subject of a personal attack on one of the kidney newsgroups a few months ago. The person doing it is probably a lurker on this group right now. It's a little disheartening, especially the part about all the money I seem to be making. NOT! I can't afford the proverbial pot to pee in, so it's hardly a money-making enterprise. Pierre Re: new to group > Pierre, > Thanks for the clarification about IgAN.ca. In > retracing my steps and clicking on choices that come > up when I do a search for your site, I realize that > what I read yesterday was not yours, but a site called > Talkabouthealth.net and the first page is a lot of > opinionated statements about you and your site! It > mentions your name several times. It was confusing to > me. Anyway, thank you. I DID find IgAN.ca and > recongnized it as a site that I have visited before > and printed out info from to keep in my files. Very > helpful. > > I'm glad to know that your asthma is under control. > With Grant, it's been a challenge. Because it's > triggered severely when he has a cold, add the IgAN, > and it seems his entire body shuts down. Now he's on > a daily inhaled steroid, which is helpful, but it's > known to stunt growth in children and this is a double > whammy. I'm not concerned about drug interactions, > but I'm just trying to figure out how to better manage > the symptoms of both the asthma and nephritis > together. > > I'm amazed to find that so many folks in this group > are on Prednisone, and that it seems to work so well. > Having been diagnosed with IgAN when I was 5, I was on > large doses of Prednisone in the early 70s. I vividly > remember having to start shopping in the chubby > section of the girls department at Sears! After two > years of side effects, a doctor simply told my mom, > " the Prednisone didn't change anything for her. " And > that was that. But, maybe it DID help in some way. I > certainly have been blessed with good health as an > adult. Hmmmm. > > Thank you for your welcome. I hope you are WELL. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2004 Report Share Posted July 2, 2004 As far as I can tell, that talkabouthealth seems to just gather discussion threads from USENET newsgroups - probably automatically without much human intervention. Those newsgroups are a real free-for-all wild west kind of place where anything goes. For some reason, I became the subject of a personal attack on one of the kidney newsgroups a few months ago. The person doing it is probably a lurker on this group right now. It's a little disheartening, especially the part about all the money I seem to be making. NOT! I can't afford the proverbial pot to pee in, so it's hardly a money-making enterprise. Pierre Re: new to group > Pierre, > Thanks for the clarification about IgAN.ca. In > retracing my steps and clicking on choices that come > up when I do a search for your site, I realize that > what I read yesterday was not yours, but a site called > Talkabouthealth.net and the first page is a lot of > opinionated statements about you and your site! It > mentions your name several times. It was confusing to > me. Anyway, thank you. I DID find IgAN.ca and > recongnized it as a site that I have visited before > and printed out info from to keep in my files. Very > helpful. > > I'm glad to know that your asthma is under control. > With Grant, it's been a challenge. Because it's > triggered severely when he has a cold, add the IgAN, > and it seems his entire body shuts down. Now he's on > a daily inhaled steroid, which is helpful, but it's > known to stunt growth in children and this is a double > whammy. I'm not concerned about drug interactions, > but I'm just trying to figure out how to better manage > the symptoms of both the asthma and nephritis > together. > > I'm amazed to find that so many folks in this group > are on Prednisone, and that it seems to work so well. > Having been diagnosed with IgAN when I was 5, I was on > large doses of Prednisone in the early 70s. I vividly > remember having to start shopping in the chubby > section of the girls department at Sears! After two > years of side effects, a doctor simply told my mom, > " the Prednisone didn't change anything for her. " And > that was that. But, maybe it DID help in some way. I > certainly have been blessed with good health as an > adult. Hmmmm. > > Thank you for your welcome. I hope you are WELL. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 I don't know Dr. Plumb, but the reputation of UAB medical center for Afib is excellent. I think some on this list have been treated there and perhaps they will reply. Good luck! Brenta new to group > hi all > i want to thank in Seattle for telling me about this group. > i am a 72 yr. old male thinking about having an ablation at UAB in > birmingham,alabama by dr.Plumb of the Kirkland Clinic. has anyone > heard of this dr. or clinic? > Ed in alabama > > > > > Web Page - http://www.afibsupport.com > List owner: AFIBsupport-owner > For help on how to use the group, including how to drive it via email, > send a blank email to AFIBsupport-help > > Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I would fit into that category as well. I am guessing I have had mine for about 30 years although not officially diagnosed until 1997, but I did have protein and blood in my urine since my teens. You have held out a bit longer than I have thus far, but I am not giving up yet! My creatinine bounces around 3, but my clearance is down to 20. You are indeed very blessed to have it this long and be so stable. In a message dated 7/26/2004 5:47:38 PM Pacific Daylight Time, bpeterson12000@... writes: > Ive been reading your posts for some time now and havent run across > anyone who has had the same lab results as me for such a long time > {probably off and on for over 20 years}. I consider myself very > fortunate but just wondered if anyone out there is like me? It > started in 1967 with my discharge physical. Blood found in urine. > creat.cl fell to 40%....Had a biopsy..diagnosed with acute > glomerulonephritis {they thought from strep throat} Everything > improved except blood in urine but they said it take time for the > blood to go away so they discharged me and sent me on my way. Since > 1967 I have always had blood found in all my urinalasists. Never > paid much attention to it until 1985..Had a UTI with creat. at 2.4 > and BUN at 38. Protein started showing up about this time {+3 } > These symptoms have never gone away since.They fluctuate a little > but have never returned to normal. About four years ago I had > another UTI with creat. at 3.7 and BUN at 42. After the infection > was taken care of the creat. dropped down to 2.2 and the BUN in the > 30s ever since. My blood pressure is stable with the help of > Candisartin {120/70} creat. cl. at about 43.. Began spilling more > protein {about 2gr a day} As of three months ago creat. was 2.4 and > BUN was 42. Not taking anything for tdhe protein yet. The neph > thinks its probably IgAN but Ive never had another biopsy. Ive gone > on long enough...Just wondered if anyone has been at it for over 35 > years?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I was diagnosed 10 years ago but my labs showed signs as far back as 21 years ago. I started dialysis 2 weeks ago. BRANDY 27 years old > Ive been reading your posts for some time now and havent run across > anyone who has had the same lab results as me for such a long time > {probably off and on for over 20 years}. I consider myself very > fortunate but just wondered if anyone out there is like me? It > started in 1967 with my discharge physical. Blood found in urine. > creat.cl fell to 40%....Had a biopsy..diagnosed with acute > glomerulonephritis {they thought from strep throat} Everything > improved except blood in urine but they said it take time for the > blood to go away so they discharged me and sent me on my way. Since > 1967 I have always had blood found in all my urinalasists. Never > paid much attention to it until 1985..Had a UTI with creat. at 2.4 > and BUN at 38. Protein started showing up about this time {+3 } > These symptoms have never gone away since.They fluctuate a little > but have never returned to normal. About four years ago I had > another UTI with creat. at 3.7 and BUN at 42. After the infection > was taken care of the creat. dropped down to 2.2 and the BUN in the > 30s ever since. My blood pressure is stable with the help of > Candisartin {120/70} creat. cl. at about 43.. Began spilling more > protein {about 2gr a day} As of three months ago creat. was 2.4 and > BUN was 42. Not taking anything for tdhe protein yet. The neph > thinks its probably IgAN but Ive never had another biopsy. Ive gone > on long enough...Just wondered if anyone has been at it for over 35 > years?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I was diagnosed 10 years ago but my labs showed signs as far back as 21 years ago. I started dialysis 2 weeks ago. BRANDY 27 years old > Ive been reading your posts for some time now and havent run across > anyone who has had the same lab results as me for such a long time > {probably off and on for over 20 years}. I consider myself very > fortunate but just wondered if anyone out there is like me? It > started in 1967 with my discharge physical. Blood found in urine. > creat.cl fell to 40%....Had a biopsy..diagnosed with acute > glomerulonephritis {they thought from strep throat} Everything > improved except blood in urine but they said it take time for the > blood to go away so they discharged me and sent me on my way. Since > 1967 I have always had blood found in all my urinalasists. Never > paid much attention to it until 1985..Had a UTI with creat. at 2.4 > and BUN at 38. Protein started showing up about this time {+3 } > These symptoms have never gone away since.They fluctuate a little > but have never returned to normal. About four years ago I had > another UTI with creat. at 3.7 and BUN at 42. After the infection > was taken care of the creat. dropped down to 2.2 and the BUN in the > 30s ever since. My blood pressure is stable with the help of > Candisartin {120/70} creat. cl. at about 43.. Began spilling more > protein {about 2gr a day} As of three months ago creat. was 2.4 and > BUN was 42. Not taking anything for tdhe protein yet. The neph > thinks its probably IgAN but Ive never had another biopsy. Ive gone > on long enough...Just wondered if anyone has been at it for over 35 > years?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I was diagnosed 10 years ago but my labs showed signs as far back as 21 years ago. I started dialysis 2 weeks ago. BRANDY 27 years old > Ive been reading your posts for some time now and havent run across > anyone who has had the same lab results as me for such a long time > {probably off and on for over 20 years}. I consider myself very > fortunate but just wondered if anyone out there is like me? It > started in 1967 with my discharge physical. Blood found in urine. > creat.cl fell to 40%....Had a biopsy..diagnosed with acute > glomerulonephritis {they thought from strep throat} Everything > improved except blood in urine but they said it take time for the > blood to go away so they discharged me and sent me on my way. Since > 1967 I have always had blood found in all my urinalasists. Never > paid much attention to it until 1985..Had a UTI with creat. at 2.4 > and BUN at 38. Protein started showing up about this time {+3 } > These symptoms have never gone away since.They fluctuate a little > but have never returned to normal. About four years ago I had > another UTI with creat. at 3.7 and BUN at 42. After the infection > was taken care of the creat. dropped down to 2.2 and the BUN in the > 30s ever since. My blood pressure is stable with the help of > Candisartin {120/70} creat. cl. at about 43.. Began spilling more > protein {about 2gr a day} As of three months ago creat. was 2.4 and > BUN was 42. Not taking anything for tdhe protein yet. The neph > thinks its probably IgAN but Ive never had another biopsy. Ive gone > on long enough...Just wondered if anyone has been at it for over 35 > years?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hi , You are doing great to be holding under 2 on your serum creatinine after 25 years! I think you have every reason to be hopeful that you will escape ESRD. It is a little concerning that your clearance has dropped some, but we'll focus on the positives. In a message dated 7/27/2004 2:36:05 PM Pacific Daylight Time, nise2us@... writes: > Welcome to the group. I have had symptoms of igan for about 25 years. > I find it amazing that your creatinine clearance has remained about the same > all this time. At the time of my biopsy in 1993 my clearance was 80. It was > 61 a few weeks ago with my serum creatinine holding steady at 1.7. A year > and a half ago is when my serum creatinine went out of range but has > declined > slightly since. Your story gives me hope that my kidneys may indeed last a > very > long time to come. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hi , You are doing great to be holding under 2 on your serum creatinine after 25 years! I think you have every reason to be hopeful that you will escape ESRD. It is a little concerning that your clearance has dropped some, but we'll focus on the positives. In a message dated 7/27/2004 2:36:05 PM Pacific Daylight Time, nise2us@... writes: > Welcome to the group. I have had symptoms of igan for about 25 years. > I find it amazing that your creatinine clearance has remained about the same > all this time. At the time of my biopsy in 1993 my clearance was 80. It was > 61 a few weeks ago with my serum creatinine holding steady at 1.7. A year > and a half ago is when my serum creatinine went out of range but has > declined > slightly since. Your story gives me hope that my kidneys may indeed last a > very > long time to come. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi, Robyn, welcome. 30 mg, 1/2 grain, is a good starting dose but most likely is just that, a starting dose. It would be great if you could post your labs for us to take a gander at, to see what your doc is actually testing and how the numbers look. As for gaining weight, Armour won't make you gain weight, having low thyroid levels makes you gain weight. We'll have a better idea as to what is going on when we see your labs..... Hey, why did they remove so much of your gland? What was your original diagnosis? Topper () On Wed, 7 Sep 2005 16:37:50 -0700 (PDT) Robyn writes: I'm new to this group. I just started taking armour thyroid today at 30 mg. I had 3/4 of my thyroid removed over 23 years ago but tests have always been okay. After years of being prescribed every antidepressant you can imagine, a doctor prescribed armour based on symptoms and circumstances. I have questions about armour. For instance, does it make you gain weight. I'm aboug 20 lbs. overweight now and would hate to gain any more weight, however, I really want to feel better. Also, is 30 mg. too low a dose to do any good, or does that amount seem to work for people. Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 Hi, Robyn, welcome. 30 mg, 1/2 grain, is a good starting dose but most likely is just that, a starting dose. It would be great if you could post your labs for us to take a gander at, to see what your doc is actually testing and how the numbers look. As for gaining weight, Armour won't make you gain weight, having low thyroid levels makes you gain weight. We'll have a better idea as to what is going on when we see your labs..... Hey, why did they remove so much of your gland? What was your original diagnosis? Topper () On Wed, 7 Sep 2005 16:37:50 -0700 (PDT) Robyn writes: I'm new to this group. I just started taking armour thyroid today at 30 mg. I had 3/4 of my thyroid removed over 23 years ago but tests have always been okay. After years of being prescribed every antidepressant you can imagine, a doctor prescribed armour based on symptoms and circumstances. I have questions about armour. For instance, does it make you gain weight. I'm aboug 20 lbs. overweight now and would hate to gain any more weight, however, I really want to feel better. Also, is 30 mg. too low a dose to do any good, or does that amount seem to work for people. Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 I have been on Armour for a while now it is better than sythroid but not quite good. I take 120mg it seems high but my tests seem to be ok. Now as far as " feeling like your self " it is still a struggle. It seems every person that hypothyriod is on antidepresants. ______________________________________________________ Click here to donate to the Hurricane Katrina relief effort. http://store.yahoo.com/redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
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