Re: lonely and desperate and about to give up!

[Guest guest]

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PMSubject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like

raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us,

it was raisins, avocados, bananas, and asparagus.  Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it.  When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

[Guest guest]

have you tried nutriiveda from pursuit of research,worth looking into

 

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PM

Subject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

[Guest guest]

I've already looked at what Nutriiveda is.  My children would not be good candidates for success with Nutriiveda.  My daughter has moderately high IgG issues with cane sugar -- it actually came back on her IgG.  Giving her anything with cane sugar would feed yeast and disrupt her immune system at this point.  My son is also not be a good candidate for Nutriiveda.  Nutriiveda has rice powder and he has severe reactions to all things derived from rice (rice causes major stimming behavior and head banging with him). 

 

have you tried nutriiveda from pursuit of research,worth looking into

 

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PM

Subject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

[Guest guest]

I've already looked at what Nutriiveda is.  My children would not be good candidates for success with Nutriiveda.  My daughter has moderately high IgG issues with cane sugar -- it actually came back on her IgG.  Giving her anything with cane sugar would feed yeast and disrupt her immune system at this point.  My son is also not be a good candidate for Nutriiveda.  Nutriiveda has rice powder and he has severe reactions to all things derived from rice (rice causes major stimming behavior and head banging with him). 

 

have you tried nutriiveda from pursuit of research,worth looking into

 

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PM

Subject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921