Re: lonely and desperate and about to give up!

[Guest guest]

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.