Re: Could it be PANDAS? Brain Inflammation?

[Guest guest]

Jen, my son is basically recovered except this stupid jargon he has - but when

he got a fever - his speech is 100%, better than average. (I would say, better

than his peers) ....

If you figure this out - or have some ideas -- please post.

thanks! laura:)

PS. I've been looking into viral - the herpes simplex virus can cause brain

inflammation -- there was a guy that got rid of this virus using zinc gluconate

here is his site:

http://george-eby-research.com/html/herpes.html

He also said that you could use MMS - which I think I am going to start up

again. (I have it on hand!)

I'm also going to look into the parasite thing.

>

> Without going into huge history, I will explain that my son was diagnosed

> with regressive autism when he was 2 years old. He lost all language, eye

> contact, functional play skills over a period of about 6 months. Very

> devastating. He did not utter another word until he was nearly 3, after a

> high spike of a 105.2 fever..and that following week he made tremendous

> gains including letter recognition and labeling of all sorts of items that I

> had no clue he was retaining..it was as if a latent virus had burned off in

> his brain through the high fever, and he was able to make breakthroughs

> never attempted before.

>

>

>

> My son is now 6, completely verbal, tho not quite fully conversational. We

> have done biomed for 4 years to include the DAN protocol, diet, oral

> chelation and most recently YASKO, along with intense SLP, OT, behavioral

> therapy, recreational therapy, and music therapy. He is in mainstream

> kindergarten with a full time paraprofessional. Over the years, we have

> notably recognized that along with high fevers, come gains - some stick,

> some do not. We have always suspected some sort of viral/brain inflammation

> connection with my son's symptoms, but have never been able to find a doctor

> who could give us substantial answers as to why.or how to treat it or

> utilize a treatment that would key into this occurrence of fevers/sickness

> and gains. I have questioned PANDAS before to my DAN, he ran some viral

> titers and they all came back negative - tho I do not believe my DAN had any

> idea of what PANDAS was or how to diagnose it, and my knowledge was limited

> too, so he poo pooed it and we moved on - looking for answers in other ways.

>

>

>

>

> Long story short - my son is just recovering from a 7 day stretch of high

> fevers which concluded in pink eye, double ear infection and a bad

> cough/cold. I have never seen him this sick for so long. While sick I

> treated him around the clock with Ibuprofen to keep his fever at bay and

> ended up with a round of Omnicef to treat the bacterial infection manifested

> in his ears/eyes, (gooping with green discharge, so I knew I had to treat

> with RX)... Tho off the Ibuprofin now, he is still finishing up his round

> of RX..7 days to go actually. This week we have noticed a tremendous leap

> in cognition and connections and language, as have his behavioral therapists

> and today - I got a note from his speech therapist at school, saying that

> his session was the most productive she's ever seen with him - that he got

> most of the responses at 100% with no verbal prompting and initiated

> conversations with his peers in ways she has never seen before. Looking at

> our perspective, along with 2 others outside of the family home, I am

> finding a correlation of something..what I do not know. Is it the ibuprofen

> - reducing brain inflammation... is it the RX in his body that is making him

> sharper, etc?

>

>

>

> When we Google PANDAS, his major symptoms are consistent with the following:

>

>

>

> Need for routine/control of environment (OCD)

>

> Huge separation anxiety/generalized anticipatory anxiety

>

> Trouble sleeping/settling down to sleep

>

> Bed wetting

>

> Eye tics (developed just recently with in last 3 months)

>

> Feeling as if on roller coaster (ups and downs wax and wane)

>

> Sudden onset trouble with transitions (when never a problem before)

>

> Inattention/inability to stay focused

>

> Occasional hyperactivity/stimming/scripting

>

>

>

> I feel this is a big indication of his missing puzzle piece, but do not know

> how to move forward or what to do with this information. Can anyone help?

>

>

>

> Work like it is all up to you...but pray like it is all up to God...

>

> 1 in 91 Children...1 in 58 Boys...1 Child Every 20 Minutes... Is Diagnosed

> With Autism.

>