Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Man oh man, Rob's story is enough to give a real boost to some tired, worried moms. Way to go, Rob! woot-woot! -tammy To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Man oh man, Rob's story is enough to give a real boost to some tired, worried moms. Way to go, Rob! woot-woot! -tammy To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 If he keeps going at this rate, by this time next year, he'll be bringing girls home. You got a juicer-juice to fix THAT? ; ) To: mb12 valtrex Sent: Wed, March 9, 2011 11:55:08 PMSubject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) Man oh man, Rob's story is enough to give a real boost to some tired, worried moms. Way to go, Rob! woot-woot! -tammy To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 That's really exciting, . I'm sorry, I don't know a lot about the history with Rob -- how long ago did he start biomed? (I got a bit confused because you mentioned the thing about him rocking in the closet 2 years ago).  You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief. He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 That's really exciting, . I'm sorry, I don't know a lot about the history with Rob -- how long ago did he start biomed? (I got a bit confused because you mentioned the thing about him rocking in the closet 2 years ago).  You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief. He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 thank you for sharing this with us. i am up again all night with a screaming chld and have no clue why he is not sleeping. i feel hpeless and cry a lot these past weeks not knowing what will happen to him when he grows up. (he is 7 now) your story give me a bit of a boost and hope that there is a light at the end of the tunnel. Thank you I really needed it Tunde  You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief. He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) -- " Our lives begin to end the day we become silent about things that matter. " MLK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 thank you for sharing this with us. i am up again all night with a screaming chld and have no clue why he is not sleeping. i feel hpeless and cry a lot these past weeks not knowing what will happen to him when he grows up. (he is 7 now) your story give me a bit of a boost and hope that there is a light at the end of the tunnel. Thank you I really needed it Tunde  You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief. He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) -- " Our lives begin to end the day we become silent about things that matter. " MLK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 thank you for sharing this with us. i am up again all night with a screaming chld and have no clue why he is not sleeping. i feel hpeless and cry a lot these past weeks not knowing what will happen to him when he grows up. (he is 7 now) your story give me a bit of a boost and hope that there is a light at the end of the tunnel. Thank you I really needed it Tunde  You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief. He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) -- " Our lives begin to end the day we become silent about things that matter. " MLK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 , What an amazing sister you are! I have a daughter who is 3 years older than my now 7 yo son with autism (my only other child) and I worry about her having to take care of him in the future. She is wonderful with him now.....but it is a concern for her future as well. So nice to hear that you are taking and active role.....you should know that! I hope he continues to progress! -- Kasey Dettinger ---- Tunde Brazlik wrote: > thank you for sharing this with us. i am up again all night with a screaming > chld and have no clue why he is not sleeping. i feel hpeless and cry a lot > these past weeks not knowing what will happen to him when he grows up. (he > is 7 now) your story give me a bit of a boost and hope that there is a > light at the end of the tunnel. > Thank you I really needed it > Tunde > > On Wed, Mar 9, 2011 at 11:24 PM, laurargoddin wrote: > > > > > > > You know, I think about the generation where children are being diagnosed > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly > > the poster child of what is to come for many of them. It's really not > > pretty. In fact, it's like what becomes of our parents in nursing homes - > > they are dead long before they are put in the ground. It's not only > > disturbing, it's a burden, and it's really no way to live. I refuse to let > > my brother be a burden. Today, he helped me dismantle a part of my wooden > > deck. He learned how to use a manual screwdriver, and a cordless one, not > > too shabby for a guy who rocked in my closet almost two years ago. > > > > Rob went to FL three months ago to up his prescription on his glasses (so > > they are closer to what he is supposed to be wearing) and get his teeth > > fixed. All the mercury fillings are out. Whew! What a relief. > > He says he feels better. He played with the kids, and the kids were excited > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > kitchen, start some laundry, and thumb thru a recipe book to find some > > cookie recipe he wants to make. WOW. Was all I could think. > > > > Interestingly enough, he tried on his " old " glasses (the glasses that are > > closest to his actual prescription) and this time when he put them on, he > > didn't flinch, wince, or get teary eyed from the prescription being too > > strong...in fact, he sat there with them on for a total of 5 minutes. Two > > years ago he couldn't leave them on for 30 seconds without tears falling on > > his face, the drooling picking up to a high speed swell out of his mouth. > > And him literally looking like he was going to come out of his skin. > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > everything. " I said would you like to 'see everything?' and he said " no, not > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > mentioned that the frames made his face look weird. (Noticing his own looks? > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and > > starting to be a little more consistent. > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > that finding a job (that had more hours) would be good. He wants to take an > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > (education) he wasn't completely against it. There is hope yet... > > > > We are going to test him this week for metals. Starting his 'natural' detox > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > sister, added Lysine to his supplements, Rob mentioned that he got a very > > large rash all over his belly, and then it was gone. I have also noticed > > that he isn't drooling anymore. (This drooling stuff seems to come and > > go...) > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before > > he has to take his IGg test again...gotta get rid of the 57 allergies > > remaining... > > > > laura:) > > > > > > > > > > -- > * " Our lives begin to end the day we become silent about things that matter. " > MLK* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 , What an amazing sister you are! I have a daughter who is 3 years older than my now 7 yo son with autism (my only other child) and I worry about her having to take care of him in the future. She is wonderful with him now.....but it is a concern for her future as well. So nice to hear that you are taking and active role.....you should know that! I hope he continues to progress! -- Kasey Dettinger ---- Tunde Brazlik wrote: > thank you for sharing this with us. i am up again all night with a screaming > chld and have no clue why he is not sleeping. i feel hpeless and cry a lot > these past weeks not knowing what will happen to him when he grows up. (he > is 7 now) your story give me a bit of a boost and hope that there is a > light at the end of the tunnel. > Thank you I really needed it > Tunde > > On Wed, Mar 9, 2011 at 11:24 PM, laurargoddin wrote: > > > > > > > You know, I think about the generation where children are being diagnosed > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly > > the poster child of what is to come for many of them. It's really not > > pretty. In fact, it's like what becomes of our parents in nursing homes - > > they are dead long before they are put in the ground. It's not only > > disturbing, it's a burden, and it's really no way to live. I refuse to let > > my brother be a burden. Today, he helped me dismantle a part of my wooden > > deck. He learned how to use a manual screwdriver, and a cordless one, not > > too shabby for a guy who rocked in my closet almost two years ago. > > > > Rob went to FL three months ago to up his prescription on his glasses (so > > they are closer to what he is supposed to be wearing) and get his teeth > > fixed. All the mercury fillings are out. Whew! What a relief. > > He says he feels better. He played with the kids, and the kids were excited > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > kitchen, start some laundry, and thumb thru a recipe book to find some > > cookie recipe he wants to make. WOW. Was all I could think. > > > > Interestingly enough, he tried on his " old " glasses (the glasses that are > > closest to his actual prescription) and this time when he put them on, he > > didn't flinch, wince, or get teary eyed from the prescription being too > > strong...in fact, he sat there with them on for a total of 5 minutes. Two > > years ago he couldn't leave them on for 30 seconds without tears falling on > > his face, the drooling picking up to a high speed swell out of his mouth. > > And him literally looking like he was going to come out of his skin. > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > everything. " I said would you like to 'see everything?' and he said " no, not > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > mentioned that the frames made his face look weird. (Noticing his own looks? > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and > > starting to be a little more consistent. > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > that finding a job (that had more hours) would be good. He wants to take an > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > (education) he wasn't completely against it. There is hope yet... > > > > We are going to test him this week for metals. Starting his 'natural' detox > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > sister, added Lysine to his supplements, Rob mentioned that he got a very > > large rash all over his belly, and then it was gone. I have also noticed > > that he isn't drooling anymore. (This drooling stuff seems to come and > > go...) > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before > > he has to take his IGg test again...gotta get rid of the 57 allergies > > remaining... > > > > laura:) > > > > > > > > > > -- > * " Our lives begin to end the day we become silent about things that matter. " > MLK* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Check out a Natural dr in your area or a DAN dr. Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! > > >> >> > You know, I think about the generation where children are being diagnosed> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > the poster child of what is to come for many of them. It's really not> > pretty. In fact, it's like what becomes of our parents in nursing homes -> > they are dead long before they are put in the ground. It's not only> > disturbing, it's a burden, and it's really no way to live. I refuse to let> > my brother be a burden. Today, he helped me dismantle a part of my wooden> > deck. He learned how to use a manual screwdriver, and a cordless one, not> > too shabby for a guy who rocked in my closet almost two years ago.> >> > Rob went to FL three months ago to up his prescription on his glasses (so> > they are closer to what he is supposed to be wearing) and get his teeth> > fixed. All the mercury fillings are out. Whew! What a relief.> > He says he feels better. He played with the kids, and the kids were excited> > that he was finally home. He proceeded to vacuum my upstairs, clean my> > kitchen, start some laundry, and thumb thru a recipe book to find some> > cookie recipe he wants to make. WOW. Was all I could think.> >> > Interestingly enough, he tried on his "old" glasses (the glasses that are> > closest to his actual prescription) and this time when he put them on, he> > didn't flinch, wince, or get teary eyed from the prescription being too> > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > years ago he couldn't leave them on for 30 seconds without tears falling on> > his face, the drooling picking up to a high speed swell out of his mouth.> > And him literally looking like he was going to come out of his skin.> > Progress? You bet! I asked him if he could see..and he said, "Yes,> > everything." I said would you like to 'see everything?' and he said "no, not> > yet." -- I wonder what THAT means...we have time, I guess. And then he> > mentioned that the frames made his face look weird. (Noticing his own looks?> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > starting to be a little more consistent.> >> > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > that finding a job (that had more hours) would be good. He wants to take an> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > (education) he wasn't completely against it. There is hope yet...> >> > We are going to test him this week for metals. Starting his 'natural' detox> > protocol, and then next week a visit to see his doctor. WHile in FL, my> > sister, added Lysine to his supplements, Rob mentioned that he got a very> > large rash all over his belly, and then it was gone. I have also noticed> > that he isn't drooling anymore. (This drooling stuff seems to come and> > go...)> >> > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > he has to take his IGg test again...gotta get rid of the 57 allergies> > remaining...> >> > laura:)> >> > > >> > > > -- > *"Our lives begin to end the day we become silent about things that matter."> MLK* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Congratulations !!!!!!! Again thank you so much for helping us! God bless you and your family! Take care Grace To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Congratulations !!!!!!! Again thank you so much for helping us! God bless you and your family! Take care Grace To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Congratulations !!!!!!! Again thank you so much for helping us! God bless you and your family! Take care Grace To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Hey Alberta, He's been on Biomed since July 2009. A little less than 2 years. Rob is the youngest of 7 children. (I am the third - there is a 13 year difference between Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care of him. My father has had several strokes and is unable to truly care for him. Rob's option was to go to a group home. I found this option terrifying after visiting one. Rob is very high functioning, but his education/experience is that of maybe a 10 year old now. (probably 7 when I got him two years ago.) Rob has a hernia that didn't heal, and was a disaster to put it mildly when he arrived at my house. The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother) had very similar issues -- an event one night literally brought me back to being 16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I started to question my brother's diagnosis. Could diet possibly help him too? When Rob arrived, I took him to the autism clinic here in Houston. I did about $3k worth of tests on him, and they had confirmed what I suspected, and some test results were quite surprising. I immediately put him on 'the diet' -- and then removed all the IGg foods - all 60 of them. While Jimmy's progress was almost immediate and noticeable, I noticed that Rob, while maybe not noticeable to the average person, was very noticeable to me. His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded) and would not be able to recover from that. I accepted that information, but put that out of my head, because I wanted to see what was truly possible. I don't think if I believe that, that I would be able to see positive results. As people see what they want to see, not necessarily what is there. Needless to say, after seeing the doctor from being on the diet for a month - Rob's processing time went from 20 minutes to almost instant. While she still maintained that Rob was mentally retarded, she agreed that it was significant. It's true. Rob may be mentally retarded. He could have been lacking so much in nutrition and bombarded with toxins that his body shut down and may not recover completely. I'm not willing to throw in the towel just yet. I wouldn't want someone to give up on my Jimmy, and therefore, I can't give up on him. He's with me, because he's supposed to be. :)laura > > > > > > > You know, I think about the generation where children are being diagnosed > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly > > the poster child of what is to come for many of them. It's really not > > pretty. In fact, it's like what becomes of our parents in nursing homes - > > they are dead long before they are put in the ground. It's not only > > disturbing, it's a burden, and it's really no way to live. I refuse to let > > my brother be a burden. Today, he helped me dismantle a part of my wooden > > deck. He learned how to use a manual screwdriver, and a cordless one, not > > too shabby for a guy who rocked in my closet almost two years ago. > > > > Rob went to FL three months ago to up his prescription on his glasses (so > > they are closer to what he is supposed to be wearing) and get his teeth > > fixed. All the mercury fillings are out. Whew! What a relief. > > He says he feels better. He played with the kids, and the kids were excited > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > kitchen, start some laundry, and thumb thru a recipe book to find some > > cookie recipe he wants to make. WOW. Was all I could think. > > > > Interestingly enough, he tried on his " old " glasses (the glasses that are > > closest to his actual prescription) and this time when he put them on, he > > didn't flinch, wince, or get teary eyed from the prescription being too > > strong...in fact, he sat there with them on for a total of 5 minutes. Two > > years ago he couldn't leave them on for 30 seconds without tears falling on > > his face, the drooling picking up to a high speed swell out of his mouth. > > And him literally looking like he was going to come out of his skin. > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > everything. " I said would you like to 'see everything?' and he said " no, not > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > mentioned that the frames made his face look weird. (Noticing his own looks? > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and > > starting to be a little more consistent. > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > that finding a job (that had more hours) would be good. He wants to take an > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > (education) he wasn't completely against it. There is hope yet... > > > > We are going to test him this week for metals. Starting his 'natural' detox > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > sister, added Lysine to his supplements, Rob mentioned that he got a very > > large rash all over his belly, and then it was gone. I have also noticed > > that he isn't drooling anymore. (This drooling stuff seems to come and > > go...) > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before > > he has to take his IGg test again...gotta get rid of the 57 allergies > > remaining... > > > > laura:) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Hey Alberta, He's been on Biomed since July 2009. A little less than 2 years. Rob is the youngest of 7 children. (I am the third - there is a 13 year difference between Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care of him. My father has had several strokes and is unable to truly care for him. Rob's option was to go to a group home. I found this option terrifying after visiting one. Rob is very high functioning, but his education/experience is that of maybe a 10 year old now. (probably 7 when I got him two years ago.) Rob has a hernia that didn't heal, and was a disaster to put it mildly when he arrived at my house. The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother) had very similar issues -- an event one night literally brought me back to being 16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I started to question my brother's diagnosis. Could diet possibly help him too? When Rob arrived, I took him to the autism clinic here in Houston. I did about $3k worth of tests on him, and they had confirmed what I suspected, and some test results were quite surprising. I immediately put him on 'the diet' -- and then removed all the IGg foods - all 60 of them. While Jimmy's progress was almost immediate and noticeable, I noticed that Rob, while maybe not noticeable to the average person, was very noticeable to me. His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded) and would not be able to recover from that. I accepted that information, but put that out of my head, because I wanted to see what was truly possible. I don't think if I believe that, that I would be able to see positive results. As people see what they want to see, not necessarily what is there. Needless to say, after seeing the doctor from being on the diet for a month - Rob's processing time went from 20 minutes to almost instant. While she still maintained that Rob was mentally retarded, she agreed that it was significant. It's true. Rob may be mentally retarded. He could have been lacking so much in nutrition and bombarded with toxins that his body shut down and may not recover completely. I'm not willing to throw in the towel just yet. I wouldn't want someone to give up on my Jimmy, and therefore, I can't give up on him. He's with me, because he's supposed to be. :)laura > > > > > > > You know, I think about the generation where children are being diagnosed > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly > > the poster child of what is to come for many of them. It's really not > > pretty. In fact, it's like what becomes of our parents in nursing homes - > > they are dead long before they are put in the ground. It's not only > > disturbing, it's a burden, and it's really no way to live. I refuse to let > > my brother be a burden. Today, he helped me dismantle a part of my wooden > > deck. He learned how to use a manual screwdriver, and a cordless one, not > > too shabby for a guy who rocked in my closet almost two years ago. > > > > Rob went to FL three months ago to up his prescription on his glasses (so > > they are closer to what he is supposed to be wearing) and get his teeth > > fixed. All the mercury fillings are out. Whew! What a relief. > > He says he feels better. He played with the kids, and the kids were excited > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > kitchen, start some laundry, and thumb thru a recipe book to find some > > cookie recipe he wants to make. WOW. Was all I could think. > > > > Interestingly enough, he tried on his " old " glasses (the glasses that are > > closest to his actual prescription) and this time when he put them on, he > > didn't flinch, wince, or get teary eyed from the prescription being too > > strong...in fact, he sat there with them on for a total of 5 minutes. Two > > years ago he couldn't leave them on for 30 seconds without tears falling on > > his face, the drooling picking up to a high speed swell out of his mouth. > > And him literally looking like he was going to come out of his skin. > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > everything. " I said would you like to 'see everything?' and he said " no, not > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > mentioned that the frames made his face look weird. (Noticing his own looks? > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and > > starting to be a little more consistent. > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > that finding a job (that had more hours) would be good. He wants to take an > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > (education) he wasn't completely against it. There is hope yet... > > > > We are going to test him this week for metals. Starting his 'natural' detox > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > sister, added Lysine to his supplements, Rob mentioned that he got a very > > large rash all over his belly, and then it was gone. I have also noticed > > that he isn't drooling anymore. (This drooling stuff seems to come and > > go...) > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before > > he has to take his IGg test again...gotta get rid of the 57 allergies > > remaining... > > > > laura:) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2011 Report Share Posted March 10, 2011 Hey Alberta, He's been on Biomed since July 2009. A little less than 2 years. Rob is the youngest of 7 children. (I am the third - there is a 13 year difference between Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care of him. My father has had several strokes and is unable to truly care for him. Rob's option was to go to a group home. I found this option terrifying after visiting one. Rob is very high functioning, but his education/experience is that of maybe a 10 year old now. (probably 7 when I got him two years ago.) Rob has a hernia that didn't heal, and was a disaster to put it mildly when he arrived at my house. The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother) had very similar issues -- an event one night literally brought me back to being 16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I started to question my brother's diagnosis. Could diet possibly help him too? When Rob arrived, I took him to the autism clinic here in Houston. I did about $3k worth of tests on him, and they had confirmed what I suspected, and some test results were quite surprising. I immediately put him on 'the diet' -- and then removed all the IGg foods - all 60 of them. While Jimmy's progress was almost immediate and noticeable, I noticed that Rob, while maybe not noticeable to the average person, was very noticeable to me. His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded) and would not be able to recover from that. I accepted that information, but put that out of my head, because I wanted to see what was truly possible. I don't think if I believe that, that I would be able to see positive results. As people see what they want to see, not necessarily what is there. Needless to say, after seeing the doctor from being on the diet for a month - Rob's processing time went from 20 minutes to almost instant. While she still maintained that Rob was mentally retarded, she agreed that it was significant. It's true. Rob may be mentally retarded. He could have been lacking so much in nutrition and bombarded with toxins that his body shut down and may not recover completely. I'm not willing to throw in the towel just yet. I wouldn't want someone to give up on my Jimmy, and therefore, I can't give up on him. He's with me, because he's supposed to be. :)laura > > > > > > > You know, I think about the generation where children are being diagnosed > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly > > the poster child of what is to come for many of them. It's really not > > pretty. In fact, it's like what becomes of our parents in nursing homes - > > they are dead long before they are put in the ground. It's not only > > disturbing, it's a burden, and it's really no way to live. I refuse to let > > my brother be a burden. Today, he helped me dismantle a part of my wooden > > deck. He learned how to use a manual screwdriver, and a cordless one, not > > too shabby for a guy who rocked in my closet almost two years ago. > > > > Rob went to FL three months ago to up his prescription on his glasses (so > > they are closer to what he is supposed to be wearing) and get his teeth > > fixed. All the mercury fillings are out. Whew! What a relief. > > He says he feels better. He played with the kids, and the kids were excited > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > kitchen, start some laundry, and thumb thru a recipe book to find some > > cookie recipe he wants to make. WOW. Was all I could think. > > > > Interestingly enough, he tried on his " old " glasses (the glasses that are > > closest to his actual prescription) and this time when he put them on, he > > didn't flinch, wince, or get teary eyed from the prescription being too > > strong...in fact, he sat there with them on for a total of 5 minutes. Two > > years ago he couldn't leave them on for 30 seconds without tears falling on > > his face, the drooling picking up to a high speed swell out of his mouth. > > And him literally looking like he was going to come out of his skin. > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > everything. " I said would you like to 'see everything?' and he said " no, not > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > mentioned that the frames made his face look weird. (Noticing his own looks? > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and > > starting to be a little more consistent. > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > that finding a job (that had more hours) would be good. He wants to take an > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > (education) he wasn't completely against it. There is hope yet... > > > > We are going to test him this week for metals. Starting his 'natural' detox > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > sister, added Lysine to his supplements, Rob mentioned that he got a very > > large rash all over his belly, and then it was gone. I have also noticed > > that he isn't drooling anymore. (This drooling stuff seems to come and > > go...) > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before > > he has to take his IGg test again...gotta get rid of the 57 allergies > > remaining... > > > > laura:) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura > > > > > > > > > > > > > > > > > > > You know, I think about the generation where children are being > diagnosed > > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is > >truly > > > > > the poster child of what is to come for many of them. It's really not > > > > > pretty. In fact, it's like what becomes of our parents in nursing homes > - > > > > > they are dead long before they are put in the ground. It's not only > > > > > disturbing, it's a burden, and it's really no way to live. I refuse to > >let > > > > > my brother be a burden. Today, he helped me dismantle a part of my > wooden > > > > > deck. He learned how to use a manual screwdriver, and a cordless one, > not > > > > > too shabby for a guy who rocked in my closet almost two years ago. > > > > > > > > > > Rob went to FL three months ago to up his prescription on his glasses > (so > > > > > they are closer to what he is supposed to be wearing) and get his teeth > > > > > fixed. All the mercury fillings are out. Whew! What a relief. > > > > > He says he feels better. He played with the kids, and the kids were > >excited > > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > > > > kitchen, start some laundry, and thumb thru a recipe book to find some > > > > > cookie recipe he wants to make. WOW. Was all I could think. > > > > > > > > > > Interestingly enough, he tried on his " old " glasses (the glasses that > are > > > > > closest to his actual prescription) and this time when he put them on, > he > > > > > didn't flinch, wince, or get teary eyed from the prescription being too > > > > > strong...in fact, he sat there with them on for a total of 5 minutes. > Two > > > > > years ago he couldn't leave them on for 30 seconds without tears falling > >on > > > > > his face, the drooling picking up to a high speed swell out of his > mouth. > > > > > And him literally looking like he was going to come out of his skin. > > > > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > > > > everything. " I said would you like to 'see everything?' and he said " no, > >not > > > > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > > > > mentioned that the frames made his face look weird. (Noticing his own > >looks? > > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, > and > > > > > starting to be a little more consistent. > > > > > > > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > > > > that finding a job (that had more hours) would be good. He wants to take > >an > > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > > > > (education) he wasn't completely against it. There is hope yet... > > > > > > > > > > We are going to test him this week for metals. Starting his 'natural' > >detox > > > > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > > > > sister, added Lysine to his supplements, Rob mentioned that he got a > very > > > > > large rash all over his belly, and then it was gone. I have also noticed > > > > > that he isn't drooling anymore. (This drooling stuff seems to come and > > > > > go...) > > > > > > > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish > >before > > > > > he has to take his IGg test again...gotta get rid of the 57 allergies > > > > > remaining... > > > > > > > > > > laura:) > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura > > > > > > > > > > > > > > > > > > > You know, I think about the generation where children are being > diagnosed > > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is > >truly > > > > > the poster child of what is to come for many of them. It's really not > > > > > pretty. In fact, it's like what becomes of our parents in nursing homes > - > > > > > they are dead long before they are put in the ground. It's not only > > > > > disturbing, it's a burden, and it's really no way to live. I refuse to > >let > > > > > my brother be a burden. Today, he helped me dismantle a part of my > wooden > > > > > deck. He learned how to use a manual screwdriver, and a cordless one, > not > > > > > too shabby for a guy who rocked in my closet almost two years ago. > > > > > > > > > > Rob went to FL three months ago to up his prescription on his glasses > (so > > > > > they are closer to what he is supposed to be wearing) and get his teeth > > > > > fixed. All the mercury fillings are out. Whew! What a relief. > > > > > He says he feels better. He played with the kids, and the kids were > >excited > > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > > > > kitchen, start some laundry, and thumb thru a recipe book to find some > > > > > cookie recipe he wants to make. WOW. Was all I could think. > > > > > > > > > > Interestingly enough, he tried on his " old " glasses (the glasses that > are > > > > > closest to his actual prescription) and this time when he put them on, > he > > > > > didn't flinch, wince, or get teary eyed from the prescription being too > > > > > strong...in fact, he sat there with them on for a total of 5 minutes. > Two > > > > > years ago he couldn't leave them on for 30 seconds without tears falling > >on > > > > > his face, the drooling picking up to a high speed swell out of his > mouth. > > > > > And him literally looking like he was going to come out of his skin. > > > > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > > > > everything. " I said would you like to 'see everything?' and he said " no, > >not > > > > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > > > > mentioned that the frames made his face look weird. (Noticing his own > >looks? > > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, > and > > > > > starting to be a little more consistent. > > > > > > > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > > > > that finding a job (that had more hours) would be good. He wants to take > >an > > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > > > > (education) he wasn't completely against it. There is hope yet... > > > > > > > > > > We are going to test him this week for metals. Starting his 'natural' > >detox > > > > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > > > > sister, added Lysine to his supplements, Rob mentioned that he got a > very > > > > > large rash all over his belly, and then it was gone. I have also noticed > > > > > that he isn't drooling anymore. (This drooling stuff seems to come and > > > > > go...) > > > > > > > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish > >before > > > > > he has to take his IGg test again...gotta get rid of the 57 allergies > > > > > remaining... > > > > > > > > > > laura:) > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura > > > > > > > > > > > > > > > > > > > You know, I think about the generation where children are being > diagnosed > > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is > >truly > > > > > the poster child of what is to come for many of them. It's really not > > > > > pretty. In fact, it's like what becomes of our parents in nursing homes > - > > > > > they are dead long before they are put in the ground. It's not only > > > > > disturbing, it's a burden, and it's really no way to live. I refuse to > >let > > > > > my brother be a burden. Today, he helped me dismantle a part of my > wooden > > > > > deck. He learned how to use a manual screwdriver, and a cordless one, > not > > > > > too shabby for a guy who rocked in my closet almost two years ago. > > > > > > > > > > Rob went to FL three months ago to up his prescription on his glasses > (so > > > > > they are closer to what he is supposed to be wearing) and get his teeth > > > > > fixed. All the mercury fillings are out. Whew! What a relief. > > > > > He says he feels better. He played with the kids, and the kids were > >excited > > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my > > > > > kitchen, start some laundry, and thumb thru a recipe book to find some > > > > > cookie recipe he wants to make. WOW. Was all I could think. > > > > > > > > > > Interestingly enough, he tried on his " old " glasses (the glasses that > are > > > > > closest to his actual prescription) and this time when he put them on, > he > > > > > didn't flinch, wince, or get teary eyed from the prescription being too > > > > > strong...in fact, he sat there with them on for a total of 5 minutes. > Two > > > > > years ago he couldn't leave them on for 30 seconds without tears falling > >on > > > > > his face, the drooling picking up to a high speed swell out of his > mouth. > > > > > And him literally looking like he was going to come out of his skin. > > > > > Progress? You bet! I asked him if he could see..and he said, " Yes, > > > > > everything. " I said would you like to 'see everything?' and he said " no, > >not > > > > > yet. " -- I wonder what THAT means...we have time, I guess. And then he > > > > > mentioned that the frames made his face look weird. (Noticing his own > >looks? > > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, > and > > > > > starting to be a little more consistent. > > > > > > > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought > > > > > that finding a job (that had more hours) would be good. He wants to take > >an > > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class > > > > > (education) he wasn't completely against it. There is hope yet... > > > > > > > > > > We are going to test him this week for metals. Starting his 'natural' > >detox > > > > > protocol, and then next week a visit to see his doctor. WHile in FL, my > > > > > sister, added Lysine to his supplements, Rob mentioned that he got a > very > > > > > large rash all over his belly, and then it was gone. I have also noticed > > > > > that he isn't drooling anymore. (This drooling stuff seems to come and > > > > > go...) > > > > > > > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish > >before > > > > > he has to take his IGg test again...gotta get rid of the 57 allergies > > > > > remaining... > > > > > > > > > > laura:) > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself. Â Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself. Â Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 My "good" computer died (figures). I lost everything. files, bookmarks, favorites...totally bummed. Anyhow, this does not pertain to the viral issue specifically, but it's a great read about increased cognition with fever.... https://sfari.org/.../director-s-column-fever-s-promising-puzzle?... To: mb12 valtrex Sent: Fri, March 11, 2011 2:21:38 PMSubject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura> > > > > > > > >> > > > >> > > > > You know, I think about the generation where children are being > diagnosed> > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is > >truly> > > > > the poster child of what is to come for many of them. It's really not> > > > > pretty. In fact, it's like what becomes of our parents in nursing homes > -> > > > > they are dead long before they are put in the ground. It's not only> > > > > disturbing, it's a burden, and it's really no way to live. I refuse to > >let> > > > > my brother be a burden. Today, he helped me dismantle a part of my > wooden> > > > > deck. He learned how to use a manual screwdriver, and a cordless one, > not> > > > > too shabby for a guy who rocked in my closet almost two years ago.> > > > >> > > > > Rob went to FL three months ago to up his prescription on his glasses > (so> > > > > they are closer to what he is supposed to be wearing) and get his teeth> > > > > fixed. All the mercury fillings are out. Whew! What a relief.> > > > > He says he feels better. He played with the kids, and the kids were > >excited> > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my> > > > > kitchen, start some laundry, and thumb thru a recipe book to find some> > > > > cookie recipe he wants to make. WOW. Was all I could think.> > > > >> > > > > Interestingly enough, he tried on his "old" glasses (the glasses that > are> > > > > closest to his actual prescription) and this time when he put them on, > he> > > > > didn't flinch, wince, or get teary eyed from the prescription being too> > > > > strong...in fact, he sat there with them on for a total of 5 minutes. > Two> > > > > years ago he couldn't leave them on for 30 seconds without tears falling > >on> > > > > his face, the drooling picking up to a high speed swell out of his > mouth.> > > > > And him literally looking like he was going to come out of his skin.> > > > > Progress? You bet! I asked him if he could see..and he said, "Yes,> > > > > everything." I said would you like to 'see everything?' and he said "no, > >not> > > > > yet." -- I wonder what THAT means...we have time, I guess. And then he> > > > > mentioned that the frames made his face look weird. (Noticing his own > >looks?> > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, > and> > > > > starting to be a little more consistent.> > > > >> > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > > > > that finding a job (that had more hours) would be good. He wants to take > >an> > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > > > > (education) he wasn't completely against it. There is hope yet...> > > > >> > > > > We are going to test him this week for metals. Starting his 'natural' > >detox> > > > > protocol, and then next week a visit to see his doctor. WHile in FL, my> > > > > sister, added Lysine to his supplements, Rob mentioned that he got a > very> > > > > large rash all over his belly, and then it was gone. I have also noticed> > > > > that he isn't drooling anymore. (This drooling stuff seems to come and> > > > > go...)> > > > >> > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish > >before> > > > > he has to take his IGg test again...gotta get rid of the 57 allergies> > > > > remaining...> > > > >> > > > > laura:)> > > > >> > > > > > > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Very rarely do I ever give my kids something to reduce thier fever. We get 'em for a reason. that's how I see it... To: mb12 valtrex Sent: Fri, March 11, 2011 3:19:10 PMSubject: Re: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself. Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 Very rarely do I ever give my kids something to reduce thier fever. We get 'em for a reason. that's how I see it... To: mb12 valtrex Sent: Fri, March 11, 2011 3:19:10 PMSubject: Re: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS) Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself. Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
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