Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 jo, can I ask his age and how much you are giving him? Also, are you using any of the companion supps and if so when in relation to the iodine are you dosing?Many thanks,GayleTo: mb12 valtrex Sent: Sat, March 5, 2011 8:35:33 AMSubject: Iodine Questions? I started my son on iodine a couple weeks ago and am seeing really good progress with him. My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. Thanks! jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Hi jo, How much iodine (Lugols?) are you giving him? what other supps is he taking and how old and weight? What does he eat? Stimming is probably die off. Did he stim before or just since the addition of the Lugols iodine? Cheryl > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > Thanks! > > jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Hi jo, How much iodine (Lugols?) are you giving him? what other supps is he taking and how old and weight? What does he eat? Stimming is probably die off. Did he stim before or just since the addition of the Lugols iodine? Cheryl > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > Thanks! > > jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Hi jo, How much iodine (Lugols?) are you giving him? what other supps is he taking and how old and weight? What does he eat? Stimming is probably die off. Did he stim before or just since the addition of the Lugols iodine? Cheryl > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > Thanks! > > jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi Cheryl and Gayle, my son is 13, severely autistic with grand mals, not controlled with meds. He has never been vaccinated. He has severe allergies, having grand mals as a reaction. I muscle test his foods to make sure he gets no food he will have a reaction to. This is not accurate of course. I did not know I was supposed to give him other supplements along with the iodine. His allergies are so bad, this is not an option for me to do for him. He is on biotics research liquid iodide forte. The back of the bottle says, iodine(as potassium iodide) 1 drop is 150 mcg. This was recommended by a chiro, 15 drops a day. I did find online that some use this at 8 drops 3 times a day. This is the only thing I have ever used for my thyroid that has helped me. I was amazed that after being on it for a short amount of time, that my hair started coming in thicker, the thinning areas grew in and the hair on my arms came back. I am thinking it is die off. I backed off his dosage one day to 2 drops and he sat on the couch all day, that is how he spends most of his day. When I upped it the next day, he went back to playing with his puzzles, something I haven't seen him do in 2 years. He is also making elaborate shapes with his blue thomas tracks. You can just see his brain working. He has also been hitting everything and drooling. I just gave him charcoal, so if it helps, I am going to assume it has been die off and push through this. Thank you for any help you can offer me. jo > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > Thanks! > > > > jo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi Cheryl and Gayle, my son is 13, severely autistic with grand mals, not controlled with meds. He has never been vaccinated. He has severe allergies, having grand mals as a reaction. I muscle test his foods to make sure he gets no food he will have a reaction to. This is not accurate of course. I did not know I was supposed to give him other supplements along with the iodine. His allergies are so bad, this is not an option for me to do for him. He is on biotics research liquid iodide forte. The back of the bottle says, iodine(as potassium iodide) 1 drop is 150 mcg. This was recommended by a chiro, 15 drops a day. I did find online that some use this at 8 drops 3 times a day. This is the only thing I have ever used for my thyroid that has helped me. I was amazed that after being on it for a short amount of time, that my hair started coming in thicker, the thinning areas grew in and the hair on my arms came back. I am thinking it is die off. I backed off his dosage one day to 2 drops and he sat on the couch all day, that is how he spends most of his day. When I upped it the next day, he went back to playing with his puzzles, something I haven't seen him do in 2 years. He is also making elaborate shapes with his blue thomas tracks. You can just see his brain working. He has also been hitting everything and drooling. I just gave him charcoal, so if it helps, I am going to assume it has been die off and push through this. Thank you for any help you can offer me. jo > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > Thanks! > > > > jo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Hi Cheryl and Gayle, my son is 13, severely autistic with grand mals, not controlled with meds. He has never been vaccinated. He has severe allergies, having grand mals as a reaction. I muscle test his foods to make sure he gets no food he will have a reaction to. This is not accurate of course. I did not know I was supposed to give him other supplements along with the iodine. His allergies are so bad, this is not an option for me to do for him. He is on biotics research liquid iodide forte. The back of the bottle says, iodine(as potassium iodide) 1 drop is 150 mcg. This was recommended by a chiro, 15 drops a day. I did find online that some use this at 8 drops 3 times a day. This is the only thing I have ever used for my thyroid that has helped me. I was amazed that after being on it for a short amount of time, that my hair started coming in thicker, the thinning areas grew in and the hair on my arms came back. I am thinking it is die off. I backed off his dosage one day to 2 drops and he sat on the couch all day, that is how he spends most of his day. When I upped it the next day, he went back to playing with his puzzles, something I haven't seen him do in 2 years. He is also making elaborate shapes with his blue thomas tracks. You can just see his brain working. He has also been hitting everything and drooling. I just gave him charcoal, so if it helps, I am going to assume it has been die off and push through this. Thank you for any help you can offer me. jo > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > Thanks! > > > > jo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Thanks Gayle!! The charcoal helped alot with the hitting. I also joined the vitamin k group and there is alot of iodide info there. jo > > > > > > I started my son on iodine a couple weeks ago and am seeing really good > >progress with him. > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone > >thought it might be die off. I hesitate to give him charcoal since he has > >problems with constipation. > > > > > > When I backed off the dosage one day, he went back to his old just sit on the > >couch all day self. Lately, he has actually been playing with toys. You can > >see him using his brain. > > > > > > Thanks! > > > > > > jo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Thanks Gayle!! The charcoal helped alot with the hitting. I also joined the vitamin k group and there is alot of iodide info there. jo > > > > > > I started my son on iodine a couple weeks ago and am seeing really good > >progress with him. > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone > >thought it might be die off. I hesitate to give him charcoal since he has > >problems with constipation. > > > > > > When I backed off the dosage one day, he went back to his old just sit on the > >couch all day self. Lately, he has actually been playing with toys. You can > >see him using his brain. > > > > > > Thanks! > > > > > > jo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Thanks Gayle!! The charcoal helped alot with the hitting. I also joined the vitamin k group and there is alot of iodide info there. jo > > > > > > I started my son on iodine a couple weeks ago and am seeing really good > >progress with him. > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone > >thought it might be die off. I hesitate to give him charcoal since he has > >problems with constipation. > > > > > > When I backed off the dosage one day, he went back to his old just sit on the > >couch all day self. Lately, he has actually been playing with toys. You can > >see him using his brain. > > > > > > Thanks! > > > > > > jo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Hi jo, Sorry it took me so long to respond. I had to think about this for a bit. Cause i have never been around anyone having grand mals and the thought of it is very scary to me. I cant imagine what you must go thru. I have only had one friend whose son had seizures and not grand mals so my experience is very limited and I wouldnt want to say something that could make the sitution worse and since didnt have seizures i never really studied it that much. You are giving a very weak solution of iodide only. It can help some. Most the Iodine docs say that the body needs both the iodide and iodine. I have never used the iodide only so i cant comment on the difference how it would feel. If he is having bad die off from it i would just stay steady (it does get better) or change to Lugols at a very very small amount. There are some that use both the SSKI (the product you have) and the Lugols solutions. The dosage is small enough that the companion supplements wouldnt necessarily be needed if he was getting adequate nutrition, salt and water. When you say the allergies cause the grand mals is that the only reaction or are there other allergic reaction type signs? Does it happen quickly after eating it or later? Trying to determine if it could be a stomach issue or intestine(leaky gut). And when you say he sits on the couch all day, does he stim while sitting? Watch movies? Does he get irritated if you make him get up? I think what Gayle said is very good. Slow slow slow. Do you think his gut is the problem? Does he have digestion issues? Does he have OCD ? What other behaviors does he have? Has he been tested for PANDAS? Virus? Parasites? Thyroid ? Free T3 and T4? TSH? Has his B vitamin levels been checked? Minerals? Something that sticks with me is that DMG with B6 and Magnesium has been used successfully in people whose seizures are unable to be controlled with meds. Its been a while since i studied the DMG so google it and see if you can find some info relating to it and seizures. He is non verbal right ? Any words? Is he mostly quiet or does he babble or scream? Does he get giggles? Sorry if i am not remembering everything about your child, its hard for me to keep track of what peoples issues are and things they are using and symptoms and so I like to be sure. What does he choose to eat? Or does he just eat what you give him? Have you tried bypassing the gut, transdermal use of Magnesium? Have you added the Natural Salt, if so how does he react. Do you use salt? What kind? Is he taking anything else now? Trying to get a better picture :-) Cheryl > > > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > > > Thanks! > > > > > > jo > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Ooh charcoal has been tricky in the past. Luckily my son does not have any issues with textures. We used to use just the smallest amount of water that we could to mix it, open the caps and put it on a large serving spoon. We would have drinking water ready too. Sometimes it would take 2 or 3 of us to get it in him but we did it. One would have the spoon at his mouth, one would be behind him holding his head and one would plug his nose so he had to open his mouth. He never choked once and it worked every time. Then we would give him water. I hope that helps. jo > > > > > > > > I started my son on iodine a couple weeks ago and am seeing really > good > > >progress with him. > > > > > > > > My questions is though, I am seeing some stimming and was wondering if > anyone > > >thought it might be die off. I hesitate to give him charcoal since he has > > > >problems with constipation. > > > > > > > > When I backed off the dosage one day, he went back to his old just sit > on the > > >couch all day self. Lately, he has actually been playing with toys. You > can > > >see him using his brain. > > > > > > > > Thanks! > > > > > > > > jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Ooh charcoal has been tricky in the past. Luckily my son does not have any issues with textures. We used to use just the smallest amount of water that we could to mix it, open the caps and put it on a large serving spoon. We would have drinking water ready too. Sometimes it would take 2 or 3 of us to get it in him but we did it. One would have the spoon at his mouth, one would be behind him holding his head and one would plug his nose so he had to open his mouth. He never choked once and it worked every time. Then we would give him water. I hope that helps. jo > > > > > > > > I started my son on iodine a couple weeks ago and am seeing really > good > > >progress with him. > > > > > > > > My questions is though, I am seeing some stimming and was wondering if > anyone > > >thought it might be die off. I hesitate to give him charcoal since he has > > > >problems with constipation. > > > > > > > > When I backed off the dosage one day, he went back to his old just sit > on the > > >couch all day self. Lately, he has actually been playing with toys. You > can > > >see him using his brain. > > > > > > > > Thanks! > > > > > > > > jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Hi Christel, I do not feed him foods he is allergic to, the problem is, they change almost daily and so inadvertently, he does get foods he is allergic to. I have had him on both Taurine and selenium for seizures but he only gets to be on them a day or so before he start reacting to them. He is a tricky tricky boy. Thank you for your thoughts. jo > > > > > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > > > > > Thanks! > > > > > > > > jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Hi Christel, I do not feed him foods he is allergic to, the problem is, they change almost daily and so inadvertently, he does get foods he is allergic to. I have had him on both Taurine and selenium for seizures but he only gets to be on them a day or so before he start reacting to them. He is a tricky tricky boy. Thank you for your thoughts. jo > > > > > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > > > > > Thanks! > > > > > > > > jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 I know a mom (I don't know if she's on this list or another) who mixed it with a spoon of chocolate coconut milk ice cream. Don't let the look fool you, charcoal is naturally sweet. No need to respond if you don't like this advice. Take what you want and leave the rest. > > > > > Hi jo, how do you give the charcoal?...he desperately needs it. I just can't figure out how to get charcoal into this child. > > > > Soraya... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 does he tolerate b vitamins? Specifically B6? My husbands seizures are controlled by: B6, Taurine, and vitamin E. > > > > > > > > I started my son on iodine a couple weeks ago and am seeing really good progress with him. > > > > > > > > My questions is though, I am seeing some stimming and was wondering if anyone thought it might be die off. I hesitate to give him charcoal since he has problems with constipation. > > > > > > > > When I backed off the dosage one day, he went back to his old just sit on the couch all day self. Lately, he has actually been playing with toys. You can see him using his brain. > > > > > > > > Thanks! > > > > > > > > jo > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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