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,

I can't remember exactly, but I want to say when I learned of my surgery

date, I knew then, but more towards the day, they did alter it by a 1/2 hour

or something.

Dawn

Question

When did you find out what time your operation was? I won't know

until a week before and then that is only a maybe. I won't really

know until around 3:00pm the day before. That doesn't give me much

time seens I live an hour away from the hospital and if I have to be

there at 6:00 am. I will have to find a babysitter for the night and

next day. If it is an early afternoon then I will only need one for

the day.

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Guest guest

,

I can't remember exactly, but I want to say when I learned of my surgery

date, I knew then, but more towards the day, they did alter it by a 1/2 hour

or something.

Dawn

Question

When did you find out what time your operation was? I won't know

until a week before and then that is only a maybe. I won't really

know until around 3:00pm the day before. That doesn't give me much

time seens I live an hour away from the hospital and if I have to be

there at 6:00 am. I will have to find a babysitter for the night and

next day. If it is an early afternoon then I will only need one for

the day.

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  • 2 weeks later...

Hi Jane,

I know from experience, if you don't eat enough, drink the liquids, and

exercise, the weight sorta sticks a bit longer....I know it's hard eating

solids for you, but I would suggest this is the time for high protein drinks

for you, continue with the water, and exercise as much as possible. Once

you're able to eat more, you will get moving again!

Hang in there!

Dawn

question

HI everyone

as you prolly know Ihave been sorta sick now for about 6 weeks,,with the

stoma closing, 3 dilitations..and one more to come....I have lost 42 lbs

(which occured inthe first 4 weeks, I am now 7 weeks PO) I am on a dreaded

plateau...and have no idea how to get this jump started again....I can eat

small amounts of protien....but maybe not enough? not sure....any ideas? I

have just recently began to exercise..as I did not have the energy to do

anything before....thanks for any ideas....mary jane

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  • 5 weeks later...
  • 1 month later...

> the

> lslet transplant. Is this a surgery that is only done in advanced

> stages of the disease or can it be done before it gets to that

point.

> > Cheryl

Cheryl,

From everything that I have been able to research so far, I

believe that they would rather do it before your pancreas has become

too damaged. That way you have more of a chance of not becoming

diabetic because they would be able to harvest more islet cells. You

have to admit that by the time we get diagnosed a lot of us are

already having daily pain and nutrition problems. When I wrote to

Dr. Sutherland I told him about all the doctors saying there was

nothing that could be done for me. His response was wonderful. He

told me to hang on because he knew he could help me!! I am in the

process of trying to get ins. approval for the surgery. I don't feel

like there is anything else that would be worth it for me and I don't

feel like I have anything to lose (except the intractable pain).

Hope your evening goes well.

God Bless,

Duncan

krisinjuly@...

United States Chapter Rep.

Pancreatitis Association Int'l

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> the

> lslet transplant. Is this a surgery that is only done in advanced

> stages of the disease or can it be done before it gets to that

point.

> > Cheryl

Cheryl,

From everything that I have been able to research so far, I

believe that they would rather do it before your pancreas has become

too damaged. That way you have more of a chance of not becoming

diabetic because they would be able to harvest more islet cells. You

have to admit that by the time we get diagnosed a lot of us are

already having daily pain and nutrition problems. When I wrote to

Dr. Sutherland I told him about all the doctors saying there was

nothing that could be done for me. His response was wonderful. He

told me to hang on because he knew he could help me!! I am in the

process of trying to get ins. approval for the surgery. I don't feel

like there is anything else that would be worth it for me and I don't

feel like I have anything to lose (except the intractable pain).

Hope your evening goes well.

God Bless,

Duncan

krisinjuly@...

United States Chapter Rep.

Pancreatitis Association Int'l

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  • 2 weeks later...

Tom,

those symptoms are fairly similar to mine, only you can add lots of bad

gas to it and I have pain in the same spot, plus others.I have been

diagnosed with chronic pancreatitis. I also have pain in the middle just

under the rib cage. I also have pain on the left and the right side too.

My doctor told me that the middle pain is the head of the pancreas and

the side pains were the tail, which can move about, which is why it hits

both sides. There are other tests that can be done to check the pancreas

besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

(I think I misspelled that).

I also wanted to welcome you to our group. Chronic pancreatitis is hard

to diagnose, but at least the doctor isn't ignoring it as a possibility.

I'm the California State Chapter representative, so if you need

anything, please let me know. you can get ahold of me in the evenings at

hominid2@... and in the day at kimber.allen@....

Sorry I didn't get to this earlier, but I was taking the weekend off the

computer.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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Tom,

those symptoms are fairly similar to mine, only you can add lots of bad

gas to it and I have pain in the same spot, plus others.I have been

diagnosed with chronic pancreatitis. I also have pain in the middle just

under the rib cage. I also have pain on the left and the right side too.

My doctor told me that the middle pain is the head of the pancreas and

the side pains were the tail, which can move about, which is why it hits

both sides. There are other tests that can be done to check the pancreas

besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

(I think I misspelled that).

I also wanted to welcome you to our group. Chronic pancreatitis is hard

to diagnose, but at least the doctor isn't ignoring it as a possibility.

I'm the California State Chapter representative, so if you need

anything, please let me know. you can get ahold of me in the evenings at

hominid2@... and in the day at kimber.allen@....

Sorry I didn't get to this earlier, but I was taking the weekend off the

computer.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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Tom,

those symptoms are fairly similar to mine, only you can add lots of bad

gas to it and I have pain in the same spot, plus others.I have been

diagnosed with chronic pancreatitis. I also have pain in the middle just

under the rib cage. I also have pain on the left and the right side too.

My doctor told me that the middle pain is the head of the pancreas and

the side pains were the tail, which can move about, which is why it hits

both sides. There are other tests that can be done to check the pancreas

besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

(I think I misspelled that).

I also wanted to welcome you to our group. Chronic pancreatitis is hard

to diagnose, but at least the doctor isn't ignoring it as a possibility.

I'm the California State Chapter representative, so if you need

anything, please let me know. you can get ahold of me in the evenings at

hominid2@... and in the day at kimber.allen@....

Sorry I didn't get to this earlier, but I was taking the weekend off the

computer.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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Thanks much. In two days on this list serve I've gotten more information than I

have in 6 months from my doctor and other internet sites. Wish I could have

found it some time ago. You and others have given me some suggestions to take

back to the doc and will post whatever happens.

Thanks again.

Tom

Kimber wrote:

>Tom,

>those symptoms are fairly similar to mine, only you can add lots of bad

>gas to it and I have pain in the same spot, plus others.I have been

>diagnosed with chronic pancreatitis. I also have pain in the middle just

>under the rib cage. I also have pain on the left and the right side too.

>My doctor told me that the middle pain is the head of the pancreas and

>the side pains were the tail, which can move about, which is why it hits

>both sides. There are other tests that can be done to check the pancreas

>besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

>(I think I misspelled that).

>

>I also wanted to welcome you to our group. Chronic pancreatitis is hard

>to diagnose, but at least the doctor isn't ignoring it as a possibility.

>I'm the California State Chapter representative, so if you need

>anything, please let me know. you can get ahold of me in the evenings at

>hominid2@... and in the day at kimber.allen@....

>

>Sorry I didn't get to this earlier, but I was taking the weekend off the

>computer.

>Kimber

>

>--

>Kimber

>

>hominid2@...

>

>California State Chapter Representative

>

>Pancreatitis Association, International

>

>

>

__________________________________________________________________

Your favorite stores, helpful shopping tools and great gift ideas. Experience

the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

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Thanks much. In two days on this list serve I've gotten more information than I

have in 6 months from my doctor and other internet sites. Wish I could have

found it some time ago. You and others have given me some suggestions to take

back to the doc and will post whatever happens.

Thanks again.

Tom

Kimber wrote:

>Tom,

>those symptoms are fairly similar to mine, only you can add lots of bad

>gas to it and I have pain in the same spot, plus others.I have been

>diagnosed with chronic pancreatitis. I also have pain in the middle just

>under the rib cage. I also have pain on the left and the right side too.

>My doctor told me that the middle pain is the head of the pancreas and

>the side pains were the tail, which can move about, which is why it hits

>both sides. There are other tests that can be done to check the pancreas

>besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

>(I think I misspelled that).

>

>I also wanted to welcome you to our group. Chronic pancreatitis is hard

>to diagnose, but at least the doctor isn't ignoring it as a possibility.

>I'm the California State Chapter representative, so if you need

>anything, please let me know. you can get ahold of me in the evenings at

>hominid2@... and in the day at kimber.allen@....

>

>Sorry I didn't get to this earlier, but I was taking the weekend off the

>computer.

>Kimber

>

>--

>Kimber

>

>hominid2@...

>

>California State Chapter Representative

>

>Pancreatitis Association, International

>

>

>

__________________________________________________________________

Your favorite stores, helpful shopping tools and great gift ideas. Experience

the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

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Thanks much. In two days on this list serve I've gotten more information than I

have in 6 months from my doctor and other internet sites. Wish I could have

found it some time ago. You and others have given me some suggestions to take

back to the doc and will post whatever happens.

Thanks again.

Tom

Kimber wrote:

>Tom,

>those symptoms are fairly similar to mine, only you can add lots of bad

>gas to it and I have pain in the same spot, plus others.I have been

>diagnosed with chronic pancreatitis. I also have pain in the middle just

>under the rib cage. I also have pain on the left and the right side too.

>My doctor told me that the middle pain is the head of the pancreas and

>the side pains were the tail, which can move about, which is why it hits

>both sides. There are other tests that can be done to check the pancreas

>besides a catscan. An ERCP can diagnose it and so can a tripsynogen test

>(I think I misspelled that).

>

>I also wanted to welcome you to our group. Chronic pancreatitis is hard

>to diagnose, but at least the doctor isn't ignoring it as a possibility.

>I'm the California State Chapter representative, so if you need

>anything, please let me know. you can get ahold of me in the evenings at

>hominid2@... and in the day at kimber.allen@....

>

>Sorry I didn't get to this earlier, but I was taking the weekend off the

>computer.

>Kimber

>

>--

>Kimber

>

>hominid2@...

>

>California State Chapter Representative

>

>Pancreatitis Association, International

>

>

>

__________________________________________________________________

Your favorite stores, helpful shopping tools and great gift ideas. Experience

the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

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TOM -I AM ERICKA. I AM NEW TO THIS SITE ALSO,AND IT IS

A BLESSING FROM GOD TO TALK TO OTHERS WHO FEEL AS SICK

AS I.I HAVE HAD CP(IDEOPATHIC)FOR 7 YRS NOW. IT

PROGRESSIVELY GETS WORSE. CAN'T EAT ANYTHING,LIVE ON

ENSURE PLUS,PAIN MEDS,NAUSEA MEDS AND ANXIETYMEDS

ALSO.PANCREATIC ENZYMES HAVE NEVER HELPED ME. I HAVE

HAD EVERY TEST AND PROCEDURE YOU COULD IMAGINE. I HAVE

SEEN THE BEST SPECIALISTS AT UCSF. I HAVE HAD

STENTS,SPINCTEROTOMY,BILIARY MONOMETRY STUDIES

ETC........FEEL FREE TO TALK TO ME. I HAVE EVEN HAD MY

GALL BLADDER REMOVED CUZ DOC THOUGHT I HAD

GALLSTONES-NOPE.NOW I HAVE NO GALLBLADDER AND CANNOT

EAT W/O BEING DEATHLY ILL. ANYWAY-IM HERE IF YOU WANT

TO TALK. PRAYING FOR U!!!!! GOD BLESS ERICKA POPPE

EMAIL ADDRESS IS BRANSTETE@....

--- lawwoot@... wrote:

> Thanks much. In two days on this list serve I've

> gotten more information than I have in 6 months from

> my doctor and other internet sites. Wish I could

> have found it some time ago. You and others have

> given me some suggestions to take back to the doc

> and will post whatever happens.

>

> Thanks again.

> Tom

> Kimber wrote:

>

> >Tom,

> >those symptoms are fairly similar to mine, only you

> can add lots of bad

> >gas to it and I have pain in the same spot, plus

> others.I have been

> >diagnosed with chronic pancreatitis. I also have

> pain in the middle just

> >under the rib cage. I also have pain on the left

> and the right side too.

> >My doctor told me that the middle pain is the head

> of the pancreas and

> >the side pains were the tail, which can move about,

> which is why it hits

> >both sides. There are other tests that can be done

> to check the pancreas

> >besides a catscan. An ERCP can diagnose it and so

> can a tripsynogen test

> >(I think I misspelled that).

> >

> >I also wanted to welcome you to our group. Chronic

> pancreatitis is hard

> >to diagnose, but at least the doctor isn't ignoring

> it as a possibility.

> >I'm the California State Chapter representative, so

> if you need

> >anything, please let me know. you can get ahold of

> me in the evenings at

> >hominid2@... and in the day at

> kimber.allen@....

> >

> >Sorry I didn't get to this earlier, but I was

> taking the weekend off the

> >computer.

> >Kimber

> >

> >--

> >Kimber

> >

> >hominid2@...

> >

> >California State Chapter Representative

> >

> >Pancreatitis Association, International

> >

> >

> >

>

>

>

__________________________________________________________________

> Your favorite stores, helpful shopping tools and

> great gift ideas. Experience the convenience of

> buying online with Shop@Netscape!

> http://shopnow.netscape.com/

>

> Get your own FREE, personal Netscape Mail account

> today at http://webmail.netscape.com/

>

>

__________________________________________________

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TOM -I AM ERICKA. I AM NEW TO THIS SITE ALSO,AND IT IS

A BLESSING FROM GOD TO TALK TO OTHERS WHO FEEL AS SICK

AS I.I HAVE HAD CP(IDEOPATHIC)FOR 7 YRS NOW. IT

PROGRESSIVELY GETS WORSE. CAN'T EAT ANYTHING,LIVE ON

ENSURE PLUS,PAIN MEDS,NAUSEA MEDS AND ANXIETYMEDS

ALSO.PANCREATIC ENZYMES HAVE NEVER HELPED ME. I HAVE

HAD EVERY TEST AND PROCEDURE YOU COULD IMAGINE. I HAVE

SEEN THE BEST SPECIALISTS AT UCSF. I HAVE HAD

STENTS,SPINCTEROTOMY,BILIARY MONOMETRY STUDIES

ETC........FEEL FREE TO TALK TO ME. I HAVE EVEN HAD MY

GALL BLADDER REMOVED CUZ DOC THOUGHT I HAD

GALLSTONES-NOPE.NOW I HAVE NO GALLBLADDER AND CANNOT

EAT W/O BEING DEATHLY ILL. ANYWAY-IM HERE IF YOU WANT

TO TALK. PRAYING FOR U!!!!! GOD BLESS ERICKA POPPE

EMAIL ADDRESS IS BRANSTETE@....

--- lawwoot@... wrote:

> Thanks much. In two days on this list serve I've

> gotten more information than I have in 6 months from

> my doctor and other internet sites. Wish I could

> have found it some time ago. You and others have

> given me some suggestions to take back to the doc

> and will post whatever happens.

>

> Thanks again.

> Tom

> Kimber wrote:

>

> >Tom,

> >those symptoms are fairly similar to mine, only you

> can add lots of bad

> >gas to it and I have pain in the same spot, plus

> others.I have been

> >diagnosed with chronic pancreatitis. I also have

> pain in the middle just

> >under the rib cage. I also have pain on the left

> and the right side too.

> >My doctor told me that the middle pain is the head

> of the pancreas and

> >the side pains were the tail, which can move about,

> which is why it hits

> >both sides. There are other tests that can be done

> to check the pancreas

> >besides a catscan. An ERCP can diagnose it and so

> can a tripsynogen test

> >(I think I misspelled that).

> >

> >I also wanted to welcome you to our group. Chronic

> pancreatitis is hard

> >to diagnose, but at least the doctor isn't ignoring

> it as a possibility.

> >I'm the California State Chapter representative, so

> if you need

> >anything, please let me know. you can get ahold of

> me in the evenings at

> >hominid2@... and in the day at

> kimber.allen@....

> >

> >Sorry I didn't get to this earlier, but I was

> taking the weekend off the

> >computer.

> >Kimber

> >

> >--

> >Kimber

> >

> >hominid2@...

> >

> >California State Chapter Representative

> >

> >Pancreatitis Association, International

> >

> >

> >

>

>

>

__________________________________________________________________

> Your favorite stores, helpful shopping tools and

> great gift ideas. Experience the convenience of

> buying online with Shop@Netscape!

> http://shopnow.netscape.com/

>

> Get your own FREE, personal Netscape Mail account

> today at http://webmail.netscape.com/

>

>

__________________________________________________

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Tom,

do let us know. Also, if you need a referral I know a really good doctor

who deals with pancreatitis in UCSF. He diagnosed mine. Or even if your

doctor wants to pick his brain for ideas he's a good one to contact. My

current doctor is keeping in contact with him to help with my case since

he's the expert AND a doctor familiar with my case. His name is Dr.

Cello and he works at UCSF and SF General Hospital in the

Gastroenterology department. Again, if you need anything, please feel

free to contact me directly anytime, not just through this group. As

part of my duties, I am here to help YOU with anything you need, whether

it's just to talk or to find specific information, education, etc. By

the way, I'm in Vallejo, CA.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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Share on other sites

Tom,

do let us know. Also, if you need a referral I know a really good doctor

who deals with pancreatitis in UCSF. He diagnosed mine. Or even if your

doctor wants to pick his brain for ideas he's a good one to contact. My

current doctor is keeping in contact with him to help with my case since

he's the expert AND a doctor familiar with my case. His name is Dr.

Cello and he works at UCSF and SF General Hospital in the

Gastroenterology department. Again, if you need anything, please feel

free to contact me directly anytime, not just through this group. As

part of my duties, I am here to help YOU with anything you need, whether

it's just to talk or to find specific information, education, etc. By

the way, I'm in Vallejo, CA.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

Link to comment
Share on other sites

Tom,

do let us know. Also, if you need a referral I know a really good doctor

who deals with pancreatitis in UCSF. He diagnosed mine. Or even if your

doctor wants to pick his brain for ideas he's a good one to contact. My

current doctor is keeping in contact with him to help with my case since

he's the expert AND a doctor familiar with my case. His name is Dr.

Cello and he works at UCSF and SF General Hospital in the

Gastroenterology department. Again, if you need anything, please feel

free to contact me directly anytime, not just through this group. As

part of my duties, I am here to help YOU with anything you need, whether

it's just to talk or to find specific information, education, etc. By

the way, I'm in Vallejo, CA.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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ka,

I wanted to welcome you. Also, I see you said you saw every specialist

at UCSF, does that mean you are in California too,

in the SF Bay Area? I'm in Vallejo. I'm also the California state

representative, so that means I'm here to help YOU with anything you

need. I can be reached in the evenings at hominid2@... and in

the daytime (7-4pm) at kimber.allen@.... Please feel free to contact

me directly at either, not just through the group. If you need anything,

just to talk, to exchange information, request information, education,

etc., just let me know and I'll do my best to do it.

If you are in the SF Bay Area, you'll be my first member other than

myself in that Area, plus the third in Northern California. All the

other California members are in Southern California. Sorry about the

long email, but I'm excited about having someone else so near me. Let me

know where you at and if you need anything. If you're close enough so

that long distance charges don't apply, I'll give you my cellphone

number as well. I have unlimited evening and weekend hours.

I've been suffering from acute pancreatitis since 1986 and was finally

diagnosed as chronic in 1997. I have a pancreatic divisum (divided

pancreatic ducts) and they think I've been having problems off and on

since I was a kid.

Look forward to getting to know more about you.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

Link to comment
Share on other sites

ka,

I wanted to welcome you. Also, I see you said you saw every specialist

at UCSF, does that mean you are in California too,

in the SF Bay Area? I'm in Vallejo. I'm also the California state

representative, so that means I'm here to help YOU with anything you

need. I can be reached in the evenings at hominid2@... and in

the daytime (7-4pm) at kimber.allen@.... Please feel free to contact

me directly at either, not just through the group. If you need anything,

just to talk, to exchange information, request information, education,

etc., just let me know and I'll do my best to do it.

If you are in the SF Bay Area, you'll be my first member other than

myself in that Area, plus the third in Northern California. All the

other California members are in Southern California. Sorry about the

long email, but I'm excited about having someone else so near me. Let me

know where you at and if you need anything. If you're close enough so

that long distance charges don't apply, I'll give you my cellphone

number as well. I have unlimited evening and weekend hours.

I've been suffering from acute pancreatitis since 1986 and was finally

diagnosed as chronic in 1997. I have a pancreatic divisum (divided

pancreatic ducts) and they think I've been having problems off and on

since I was a kid.

Look forward to getting to know more about you.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

Link to comment
Share on other sites

ka,

I wanted to welcome you. Also, I see you said you saw every specialist

at UCSF, does that mean you are in California too,

in the SF Bay Area? I'm in Vallejo. I'm also the California state

representative, so that means I'm here to help YOU with anything you

need. I can be reached in the evenings at hominid2@... and in

the daytime (7-4pm) at kimber.allen@.... Please feel free to contact

me directly at either, not just through the group. If you need anything,

just to talk, to exchange information, request information, education,

etc., just let me know and I'll do my best to do it.

If you are in the SF Bay Area, you'll be my first member other than

myself in that Area, plus the third in Northern California. All the

other California members are in Southern California. Sorry about the

long email, but I'm excited about having someone else so near me. Let me

know where you at and if you need anything. If you're close enough so

that long distance charges don't apply, I'll give you my cellphone

number as well. I have unlimited evening and weekend hours.

I've been suffering from acute pancreatitis since 1986 and was finally

diagnosed as chronic in 1997. I have a pancreatic divisum (divided

pancreatic ducts) and they think I've been having problems off and on

since I was a kid.

Look forward to getting to know more about you.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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Tom,

glad to be of some help. Also nice to hear from someone who's familiar

with my location. Most of the CA members have been in the Southern CA

area, so it's nice to hear from someone in Northern CA. I've only been

in Vallejo for about 3 or 4 years. I used to be in San and

area before that. Vallejo's growing up slowly.

If you're looking for any information, let me know and I'll see what i

can find. I have two 3 inch binders full of tons of stuff I've gotten

off the web. You might also want to look at the Hopkin's GI

website. It's got everything on both acute pancreatitis and chronic

pancreatitis and might be of some help to the doctor too.

http://hopkins-gi.org/subspecialties/acutepancreas/diagnosis.htm

http://hopkins-gi.org/subspecialties/chronic/introduction/symptoms.htm

I've printout the whole site and stuck in in my binder and periodically

go back to it to see if anything additional has been added.

Kimber

--

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Association, International

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