Trouble with feeds - vomitting daily

[Guest guest]

My 8 month old son, Ben (Ben has CHARGE, a trach, Nissen, GTube,

severe hearing loss, small kidneys, enlarged ventricles, and urinary

trach reflux)started having vomitting issues again. (Last time it

was related to his GTube being in too far).

Ben started heaving a month ago after his daytime feeds (given via

GTube over 30 minutes over a pump)until he would finally throw up.

He would then lay in the bed super still for about 20 minutes

afterwards like he didn't feel good. After about 20 minutes, he

would then kick and play like he was ok. We have talked to many,

many doctors and everything they have suggested hasn't made a

difference. Ben is now vomitting once during his daytime feeds and

every now and then in the morning once he's almost done with his

continuous feeds.

We have tried:

1. Feeding him over an hour during the day

2. Increasing his Zantac

3. Propping him during feeds

4. Giving him nebulizer treatments every 3-4 hours

5. Switching food to Enfamil AR (Acid Reflux)

6. Feeding him less during the day

7. Checking his Nissen to make sure it is in tack

8. Chest Xrays

Has anyone gone through this? Any suggestions would be greatly

appreciated. Thank you.

Amy Russo