Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Not demented at all - had drs tell me I couldn't POSSIBLY be pregnant because of the PCOS. With both children. :-) Funny how almost anything can be " good " , from the right direction. When I first started noticing something was really messed up with me, I was having a bad " cognition " run and was terrified I had early-onset Alzheimer's. When they all went away and I figured out " MS " , I was HAPPY.... ;-) in WY " You get a wonderful view from the point of no return... " http://www.flickr.com/photos/liadains_fancies http://practical-blackwork.blogspot.com http://practicalblackwork.com Re: Spinal tap Trisha, The spinal tap is NOT conclusive, it is merely a guideline... Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 I like the “make lemonade” approach! It’s all about perspective, isn’t it? Trisha From: MSersLife [mailto:MSersLife ] On Behalf Of Thallas Sent: Sunday, January 31, 2010 4:06 PM To: MSersLife Subject: RE: 'too old " for MS? Not demented at all - had drs tell me I couldn't POSSIBLY be pregnant because of the PCOS. With both children. :-) Funny how almost anything can be " good " , from the right direction. When I first started noticing something was really messed up with me, I was having a bad " cognition " run and was terrified I had early-onset Alzheimer's. When they all went away and I figured out " MS " , I was HAPPY.... ;-) in WY " You get a wonderful view from the point of no return... " http://www.flickr.com/photos/liadains_fancies http://practical-blackwork.blogspot.com http://practicalblackwork.com Re: Spinal tap Trisha, The spinal tap is NOT conclusive, it is merely a guideline... Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 I like the “make lemonade” approach! It’s all about perspective, isn’t it? Trisha From: MSersLife [mailto:MSersLife ] On Behalf Of Thallas Sent: Sunday, January 31, 2010 4:06 PM To: MSersLife Subject: RE: 'too old " for MS? Not demented at all - had drs tell me I couldn't POSSIBLY be pregnant because of the PCOS. With both children. :-) Funny how almost anything can be " good " , from the right direction. When I first started noticing something was really messed up with me, I was having a bad " cognition " run and was terrified I had early-onset Alzheimer's. When they all went away and I figured out " MS " , I was HAPPY.... ;-) in WY " You get a wonderful view from the point of no return... " http://www.flickr.com/photos/liadains_fancies http://practical-blackwork.blogspot.com http://practicalblackwork.com Re: Spinal tap Trisha, The spinal tap is NOT conclusive, it is merely a guideline... Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Sharon, You might remember my telling everyone that my PCP told me that she doubted that I had MS (I had to tell her that I was pretty darned certain that I had it to start with).. she did add.. BUT if you do have it.. it's a MILD case... that's sort of like saying.. you have a mild case of Bubonic Plague.. isn't it?... ) Though mine was apologetic when the MRI came back showing 7 lesions plus the Optic Neuritis.. Though... if we were permitted.. I think we might could all treat our MS soooo much more effectively than most PCPs and neurologists out there.. but then WE live inside our bodies and know so very well what is happening and what helps and what doesn't... HUGS |)onna Sharon wrote: > > > The pcp who told me I was 'too old for MS' was a big jerk (I'll bet > you could guess that:). It's demented but when the brain MRI came back > showing lesions I felt such satisfaction and enjoyed telling my pcp > " did you see the mri results? " > > laughing.... > Sharon > join me on Facebook: > Sharon Mars > wobbletowalk@... > This email is a natural hand made product. The slight variations in > spelling and grammar enhance its individual character and beauty and > in no way are to be considered flaws or defects. > > > > ------------------------------------------------------------------------ > *From:* Thallas > *To:* MSersLife > *Sent:* Sun, January 31, 2010 1:43:28 PM > *Subject:* RE: Spinal tap - response and reports of beer > relaxation > > I'll probably hear the same thing - I'm 52. But I've had weird " spells " > for YEARS, and never connected it to anything. I bet lots of folks are > that > way. How does that fit with the " you're too old " theory? > > > > in WY > " You get a wonderful view from the point of no return... " > http://www.flickr.com/photos/liadains_fancies > http://practical-blackwork.blogspot.com > <http://practical-blackwork.blogspot.com%C2%A0%C2%A0%C2%A0%C2%A0> > http://practicalblackwork.com > > Re: Spinal tap > > > Trisha, > The spinal tap is NOT conclusive, it is merely a guideline... Don't > have it > done. > Regards, > Tom Bayuk > > Spinal tap > > > I'm trying to determine if it would be beneficial to undergo a spinal tap, > so I'm looking for feedback from the experts. > > I have demyelinated lesions of the central nervous system and labs show > nothing to explain them. I have extremely mild symptoms, with no damage to > the peripheral nerves. I'm 44 years old, and living in a 120 year old two > story home. I work full time - office work, so easy on the body. > > Is it in my best interests to rule in/rule out MS at this stage so that I > can plan for the future? Is the potential for side effects worth it, or > should I just figure that time marches on and the best thing any of us can > do is ready our homes for potential handicaps as we age? > > (I think I answered my question here > > Thanks! > Trisha > > PS -- I hope that you are all safe and sound and warm and dry with these > winter storms - and for those who are not, I hope it's of extremely short > duration! > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Sharon, You might remember my telling everyone that my PCP told me that she doubted that I had MS (I had to tell her that I was pretty darned certain that I had it to start with).. she did add.. BUT if you do have it.. it's a MILD case... that's sort of like saying.. you have a mild case of Bubonic Plague.. isn't it?... ) Though mine was apologetic when the MRI came back showing 7 lesions plus the Optic Neuritis.. Though... if we were permitted.. I think we might could all treat our MS soooo much more effectively than most PCPs and neurologists out there.. but then WE live inside our bodies and know so very well what is happening and what helps and what doesn't... HUGS |)onna Sharon wrote: > > > The pcp who told me I was 'too old for MS' was a big jerk (I'll bet > you could guess that:). It's demented but when the brain MRI came back > showing lesions I felt such satisfaction and enjoyed telling my pcp > " did you see the mri results? " > > laughing.... > Sharon > join me on Facebook: > Sharon Mars > wobbletowalk@... > This email is a natural hand made product. The slight variations in > spelling and grammar enhance its individual character and beauty and > in no way are to be considered flaws or defects. > > > > ------------------------------------------------------------------------ > *From:* Thallas > *To:* MSersLife > *Sent:* Sun, January 31, 2010 1:43:28 PM > *Subject:* RE: Spinal tap - response and reports of beer > relaxation > > I'll probably hear the same thing - I'm 52. But I've had weird " spells " > for YEARS, and never connected it to anything. I bet lots of folks are > that > way. How does that fit with the " you're too old " theory? > > > > in WY > " You get a wonderful view from the point of no return... " > http://www.flickr.com/photos/liadains_fancies > http://practical-blackwork.blogspot.com > <http://practical-blackwork.blogspot.com%C2%A0%C2%A0%C2%A0%C2%A0> > http://practicalblackwork.com > > Re: Spinal tap > > > Trisha, > The spinal tap is NOT conclusive, it is merely a guideline... Don't > have it > done. > Regards, > Tom Bayuk > > Spinal tap > > > I'm trying to determine if it would be beneficial to undergo a spinal tap, > so I'm looking for feedback from the experts. > > I have demyelinated lesions of the central nervous system and labs show > nothing to explain them. I have extremely mild symptoms, with no damage to > the peripheral nerves. I'm 44 years old, and living in a 120 year old two > story home. I work full time - office work, so easy on the body. > > Is it in my best interests to rule in/rule out MS at this stage so that I > can plan for the future? Is the potential for side effects worth it, or > should I just figure that time marches on and the best thing any of us can > do is ready our homes for potential handicaps as we age? > > (I think I answered my question here > > Thanks! > Trisha > > PS -- I hope that you are all safe and sound and warm and dry with these > winter storms - and for those who are not, I hope it's of extremely short > duration! > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 All I know today is everything aches. I got 3 1/2 hours of sleep the night before last and 5 hours last night, so I did get a full night's rest but it took 2 nights to do it. The good news it, though, that yesterday I did the sat at the blood pressure machine and came out with 119/34 heart rate 81. Not too bad for an old fart...who might very well be taking a nap this afternoon... ~*~Hugs~*~ ~*~Akiba~*~ -- Re: Spinal tap > > > Trisha, > The spinal tap is NOT conclusive, it is merely a guideline... Don't > have it > done. > Regards, > Tom Bayuk > > Spinal tap > > > I'm trying to determine if it would be beneficial to undergo a spinal tap, > so I'm looking for feedback from the experts. > > I have demyelinated lesions of the central nervous system and labs show > nothing to explain them. I have extremely mild symptoms, with no damage to > the peripheral nerves. I'm 44 years old, and living in a 120 year old two > story home. I work full time - office work, so easy on the body. > > Is it in my best interests to rule in/rule out MS at this stage so that I > can plan for the future? Is the potential for side effects worth it, or > should I just figure that time marches on and the best thing any of us can > do is ready our homes for potential handicaps as we age? > > (I think I answered my question here > > Thanks! > Trisha > > PS -- I hope that you are all safe and sound and warm and dry with these > winter storms - and for those who are not, I hope it's of extremely short > duration! > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Heck.. I'm ready for a nap now... LOL HUGS |)onna Akiba wrote: > > > All I know today is everything aches. I got 3 1/2 hours of sleep the > night before last and 5 hours last night, so I did get a full night's > rest but it took 2 nights to do it. The good news it, though, that > yesterday I did the sat at the blood pressure machine and came out > with 119/34 heart rate 81. Not too bad for an old fart...who might > very well be taking a nap this afternoon... > > ~*~Hugs~*~ > ~*~Akiba~*~ > /-- Re: Spinal tap > > > > > > Trisha, > > The spinal tap is NOT conclusive, it is merely a guideline... Don't > > have it > > done. > > Regards, > > Tom Bayuk > > > > Spinal tap > > > > > > I'm trying to determine if it would be beneficial to undergo a > spinal tap, > > so I'm looking for feedback from the experts. > > > > I have demyelinated lesions of the central nervous system and labs show > > nothing to explain them. I have extremely mild symptoms, with no > damage to > > the peripheral nerves. I'm 44 years old, and living in a 120 year > old two > > story home. I work full time - office work, so easy on the body. > > > > Is it in my best interests to rule in/rule out MS at this stage so > that I > > can plan for the future? Is the potential for side effects worth it, or > > should I just figure that time marches on and the best thing any of > us can > > do is ready our homes for potential handicaps as we age? > > > > (I think I answered my question here > > > > Thanks! > > Trisha > > > > PS -- I hope that you are all safe and sound and warm and dry with these > > winter storms - and for those who are not, I hope it's of extremely > short > > duration! > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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