Re: Spinal tap - response and reports of beer relaxation

[Guest guest]

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences.

My neuro mentioned the LP on the first

visit and I said NO. The only “positive” test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point.

So – I’ll await the vision

diagnosis and go from there.

Thanks again everyone!

Trisha

PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From: MSersLife [mailto:MSersLife ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallascollinscom (DOT) net>

To: MSersLife

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my " juice " to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

" You get a wonderful view from the point of no

return... "

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalblackwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences.

My neuro mentioned the LP on the first

visit and I said NO. The only “positive” test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point.

So – I’ll await the vision

diagnosis and go from there.

Thanks again everyone!

Trisha

PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From: MSersLife [mailto:MSersLife ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallascollinscom (DOT) net>

To: MSersLife

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my " juice " to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

" You get a wonderful view from the point of no

return... "

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalblackwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

My PCP doubted the neuros suggesting that my problem might be MS. The PCP said "you're too old for MS." HA! I guess I showed him, huh? lol I was 48. hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, January 31, 2010 3:55:07 AMSubject: RE: Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From:

MSersLife [mailto:

MSersLife ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

My PCP doubted the neuros suggesting that my problem might be MS. The PCP said "you're too old for MS." HA! I guess I showed him, huh? lol I was 48. hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, January 31, 2010 3:55:07 AMSubject: RE: Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From:

MSersLife [mailto:

MSersLife ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

I'll probably hear the same thing - I'm 52. But I've had weird " spells "

for YEARS, and never connected it to anything. I bet lots of folks are that

way. How does that fit with the " you're too old " theory?

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

Re: Spinal tap

 

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

 

Spinal tap

 

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

 

[Guest guest]

Good luck, Trisha. I think it has got to be MS!Love to you and to your plaques!n, the Dense; my plaques prove it, and yes,I have had optic neuritis, no permanent damage. . . To: MSersLife Sent: Sun, January 31, 2010 2:55:07 AMSubject: RE:

Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From: MSersLife@yahoogrou ps.com [mailto: MSersLife@yahoogrou ps.com ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife@yahoogrou ps.com

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

Good luck, Trisha. I think it has got to be MS!Love to you and to your plaques!n, the Dense; my plaques prove it, and yes,I have had optic neuritis, no permanent damage. . . To: MSersLife Sent: Sun, January 31, 2010 2:55:07 AMSubject: RE:

Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From: MSersLife@yahoogrou ps.com [mailto: MSersLife@yahoogrou ps.com ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife@yahoogrou ps.com

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

Some doctors will use the LP to see if you are currently

having an attack. Some things cannot be seen on an MRI.

Reilly

koala5@...

http://www.linkedin.com/in/amandareilly

http://www.flickr.com/photos/minkoala

http//canadaMS

[Guest guest]

Some doctors will use the LP to see if you are currently

having an attack. Some things cannot be seen on an MRI.

Reilly

koala5@...

http://www.linkedin.com/in/amandareilly

http://www.flickr.com/photos/minkoala

http//canadaMS

[Guest guest]

Heh. I'm thinkin' I can pretty much tell if I'm having an attack without

someone poking holes in me.... ;-) ;-) ;-)

I guess it can be very useful, though, to Drs and patients who want

every single " I " dotted and " t " crossed before a diagnosis. But is an LP

good for anything other than " yes " or " no " ? Can it help tell if you're r & r

or progressive or such?

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

RE: Spinal tap - response and reports of beer relaxation

 

Some doctors will use the LP to see if you are currently having an attack.  

Some things cannot be seen on an MRI.

 

Reilly

koala5@...

http://www.linkedin.com/in/amandareilly

http://www.flickr.com/photos/minkoala

http//canadaMS

 

 

 

 

[Guest guest]

Heh. I'm thinkin' I can pretty much tell if I'm having an attack without

someone poking holes in me.... ;-) ;-) ;-)

I guess it can be very useful, though, to Drs and patients who want

every single " I " dotted and " t " crossed before a diagnosis. But is an LP

good for anything other than " yes " or " no " ? Can it help tell if you're r & r

or progressive or such?

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

RE: Spinal tap - response and reports of beer relaxation

 

Some doctors will use the LP to see if you are currently having an attack.  

Some things cannot be seen on an MRI.

 

Reilly

koala5@...

http://www.linkedin.com/in/amandareilly

http://www.flickr.com/photos/minkoala

http//canadaMS

 

 

 

 

[Guest guest]

Heh. I'm thinkin' I can pretty much tell if I'm having an attack without

someone poking holes in me.... ;-) ;-) ;-)

I guess it can be very useful, though, to Drs and patients who want

every single " I " dotted and " t " crossed before a diagnosis. But is an LP

good for anything other than " yes " or " no " ? Can it help tell if you're r & r

or progressive or such?

in WY

" You get a wonderful view from the point of no return... "    

http://www.flickr.com/photos/liadains_fancies

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

RE: Spinal tap - response and reports of beer relaxation

 

Some doctors will use the LP to see if you are currently having an attack.  

Some things cannot be seen on an MRI.

 

Reilly

koala5@...

http://www.linkedin.com/in/amandareilly

http://www.flickr.com/photos/minkoala

http//canadaMS

 

 

 

 

[Guest guest]

One does wonder just how long one actually had itprior to diagnosis. I used to have no end of what Inow recognize as indicators of possible MS, but thatoptic neuritis cinched it. . .way back in 1956 with Dr.Roy Swank, at the U. of Oregon Med. School inPortland. At least no one told me I was "just imagining thins. I owe it all to my opthomalogist, whosaid, gently, "n, this is not something we canfix with new glasses. . . " And the rest is history.Love to you, Sharon, and to all of you,nTo: MSersLife Sent: Sun, January 31, 2010 12:39:41 PMSubject: Re: Spinal tap - response and reports of beer relaxation

My PCP doubted the neuros suggesting that my problem might be MS. The PCP said "you're too old for MS." HA! I guess I showed him, huh? lol I was 48. hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@ yahoo.comThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: Trisha <kntricksbcglobal (DOT) net>To: MSersLife@yahoogrou ps.comSent: Sun, January 31, 2010 3:55:07 AMSubject: RE: Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From:

MSersLife@yahoogrou ps.com [mailto:

MSersLife@yahoogrou ps.com ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife@yahoogrou ps.com

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

One does wonder just how long one actually had itprior to diagnosis. I used to have no end of what Inow recognize as indicators of possible MS, but thatoptic neuritis cinched it. . .way back in 1956 with Dr.Roy Swank, at the U. of Oregon Med. School inPortland. At least no one told me I was "just imagining thins. I owe it all to my opthomalogist, whosaid, gently, "n, this is not something we canfix with new glasses. . . " And the rest is history.Love to you, Sharon, and to all of you,nTo: MSersLife Sent: Sun, January 31, 2010 12:39:41 PMSubject: Re: Spinal tap - response and reports of beer relaxation

My PCP doubted the neuros suggesting that my problem might be MS. The PCP said "you're too old for MS." HA! I guess I showed him, huh? lol I was 48. hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@ yahoo.comThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: Trisha <kntricksbcglobal (DOT) net>To: MSersLife@yahoogrou ps.comSent: Sun, January 31, 2010 3:55:07 AMSubject: RE: Spinal tap - response and reports of beer relaxation

Wow! Thank you everyone – I greatly

appreciate the responses and sharing of experiences. My neuro mentioned the LP on the first

visit and I said NO. The only “positive†test I’ve had

to date is the MRI – and my GP has documented that I had numbness and

tingling on the left side of my face for a month. The neuro quoted the

book, saying that there must be two clinically documented cases of true

symptoms at least one month apart for an MS diagnosis – and, MS is

typically diagnosed in much younger women – and, I have no functional

damage, so he refuses to diagnose me. That’s why he has, again,

suggested the spinal tap. My gut tells me that he’s trying to wrap up

every test he has at his disposal and send me packing. I have an appt

this week with an opthalmalogist to see if the blurred vision is optic neuritis

– if so, that would be the second clinical documentation and would make

the LP a mute point. So – I’ll await the vision

diagnosis and go from there. Thanks again everyone! Trisha PS – and I had three tomato beers

last night to test my relaxation responses – they’re working!

And, honestly, I do believe I belong with my fellow MSers –

but my job requires that MD stamped dx to satisfy FMLA and sick pay policies.

From:

MSersLife@yahoogrou ps.com [mailto:

MSersLife@yahoogrou ps.com ] On Behalf Of cheri fenton

Sent: Friday, January 29, 2010

9:53 PM

To: MSersLife@yahoogrou ps.com

Subject: Re: Spinal tap

I had 2 done and they weren't too

bad. The worst of it was the spasms in my arm afterward

(it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of

more help...

Cheri Fenton

From:

Thallas <fathallas@collinsco m.net>

To: MSersLife@yahoogrou ps.com

Sent: Fri, January 29, 2010

6:07:58 PM

Subject: RE: Spinal tap

I pretty much decided against one, for this reason (not really

conclusive) and because I absolutely CANNOT lie still for any length of

time, especially on my back. I also have clotting problems, and would not

like all my "juice" to leak out...

But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

much entirely for more than 20 years....

in WY

"You get a wonderful view from the point of no

return..."

http://www.flickr.

com/photos/ liadains_ fancies

http://practical-

blackwork. blogspot. com

http://practicalbla ckwork.com

Re: Spinal tap

Trisha,

The spinal tap is NOT conclusive, it is merely a guideline... Don't have it

done.

Regards,

Tom Bayuk

Spinal tap

I'm trying to determine if it would be beneficial to undergo a spinal tap,

so I'm looking for feedback from the experts.

I have demyelinated lesions of the central nervous system and labs show

nothing to explain them. I have extremely mild symptoms, with no damage to

the peripheral nerves. I'm 44 years old, and living in a 120 year old two

story home. I work full time - office work, so easy on the body.

Is it in my best interests to rule in/rule out MS at this stage so that I

can plan for the future? Is the potential for side effects worth it, or

should I just figure that time marches on and the best thing any of us can

do is ready our homes for potential handicaps as we age?

(I think I answered my question here

Thanks!

Trisha

PS -- I hope that you are all safe and sound and warm and dry with these

winter storms - and for those who are not, I hope it's of extremely short

duration!

[Guest guest]

You're so right Sharon.. I wasn't diagnosed until I was 40.. but with my

intelligent first neurologist, she calculated that my medical history

showed that I'd already been dealing with the MonSter for 10 years at

least.. and just HOW many people have little things that go haywire..

they might be treated for something entirely different and none of the

doctor's seen put two and two together and come up with four???

As in.. hmmm... fingers went numb?.. oh I'll treat you for carpal

tunnel.. OH.. big toe went numb.. we'll blame that on the bone graft

surgery.. OH.. you got electric shocks running down your arm and back???

I'll treat you for a pinched nerve in your neck.. OH.. your eye hurts?..

hmm.. just eye strain.. take your nose outta da book... OH.. that arm

went completely numb and you can't use it???.. You just gotta have a

headache.. You're sure you don't have a headache??? But you just have to

have a headache... OH.. no headache.. We'll do a pregnancy test and

declare it a hysterical reaction to the pregnancy (yeah.. you could bet

that it would be a hysterical reaction to the pregnancy IF the test

would have been positive.. having had my tubes tied 10 years plus

previous to this attack!!!)..

We've got children being diagnosed now with MS.. though if you follow

the " textbook " .. it's just not possible for a child to have MS..

The really really sad part is... there just are not enough " good "

neurologists out there that will strive to get to the bottom of our

issues aka diagnosis.. (there aren't enough " House's " out there.. lol)..

and there certainly aren't enough neuro's out there that are able to

establish a good relationship with their patients.. way too many of them

have the " God " complex or just are TOOOO darned set in their ways to

change their opinions about anything from what they were taught in

medical school (there was an article in Reader's Digest recently about

just such a thing.. not willing to admit that there have been changes in

medical treatment since the dark ages.. or not willing to change their

treatment styles...)

I only have myself to blame for the lack of " good " neurological care for

the time spent (about 7.5 years) malingering with the MonSter.. because

I just didn't want to travel to Pittsburgh to have the MonSter treated..

(and just again within the past two weeks.. didn't want to make the

ambulance crew go out of their way to get me to Presbyterian or McGee in

Pittsburgh.. and my fear of taking the ONE quickly responsive and

capable ambulance crew out of service for the area... just in case

someone else might need them more than I did.. or my butt WOULD have

been in the hospital right then)..

Forgive me for the demented ravings of a mad woman on a tirade.. I'm

just in SUPER bitch mode this morning.. ( will be happy that it's

not directed at him for once.. lol)

HUGS

|)onna

Sharon wrote:

>

>

> My PCP doubted the neuros suggesting that my problem might be MS. The

> PCP said " you're too old for MS. " HA! I guess I showed him, huh? lol I

> was 48.

>

> hugs

> Sharon

> join me on Facebook:

> Sharon Mars

> wobbletowalk@...

> This email is a natural hand made product. The slight variations in

> spelling and grammar enhance its individual character and beauty and

> in no way are to be considered flaws or defects.

>

>

>

> ------------------------------------------------------------------------

> *From:* Trisha

> *To:* MSersLife

> *Sent:* Sun, January 31, 2010 3:55:07 AM

> *Subject:* RE: Spinal tap - response and reports of beer

> relaxation

>

>

>

> Wow! Thank you everyone – I greatly appreciate the responses and

> sharing of experiences.

>

> My neuro mentioned the LP on the first visit and I said NO. The only

> “positive†test I’ve had to date is the MRI – and my GP has

> documented that I had numbness and tingling on the left side of my

> face for a month. The neuro quoted the book, saying that there must be

> two clinically documented cases of true symptoms at least one month

> apart for an MS diagnosis – and, MS is typically diagnosed in much

> younger women – and, I have no functional damage, so he refuses to

> diagnose me. That’s why he has, again, suggested the spinal tap. My

> gut tells me that he’s trying to wrap up every test he has at his

> disposal and send me packing. I have an appt this week with an

> opthalmalogist to see if the blurred vision is optic neuritis – if

> so, that would be the second clinical documentation and would make the

> LP a mute point.

>

> So – I’ll await the vision diagnosis and go from there.

>

> Thanks again everyone!

>

> Trisha

>

> PS – and I had three tomato beers last night to test my relaxation

> responses – they’re working! And, honestly, I do believe I

> belong with my fellow MSers – but my job requires that MD stamped dx

> to satisfy FMLA and sick pay policies.

>

> ------------------------------------------------------------------------

>

> *From:* MSersLife [mailto: MSersLife ]

> *On Behalf Of *cheri fenton

> *Sent:* Friday, January 29, 2010 9:53 PM

> *To:* MSersLife

> *Subject:* Re: Spinal tap

>

> I had 2 done and they weren't too bad. The worst of it was the spasms

> in my arm afterward (it flopped like a dead fish). Mine was

> inconclusive. Sorry I can't be of more help...

>

> **Cheri Fenton****

>

> ------------------------------------------------------------------------

>

> *From:* Thallas <fathallas@collinsco m.net <http://m.net>>

> *To:* MSersLife@yahoogrou ps.com <http://ps.com>

> *Sent:* Fri, January 29, 2010 6:07:58 PM

> *Subject:* RE: Spinal tap

>

> I pretty much decided against one, for this reason (not really

> conclusive) and because I absolutely CANNOT lie still for any length of

> time, especially on my back. I also have clotting problems, and would not

> like all my " juice " to leak out...

>

> But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

> much entirely for more than 20 years....

>

>

>

> in WY

> " You get a wonderful view from the point of no return... "

> http://www.flickr. com/photos/ liadains_ fancies

> <http://www.flickr.com/photos/liadains_fancies>

> http://practical- blackwork. blogspot. com

> <http://practical-blackwork.blogspot.com/>

> http://practicalbla ckwork.com <http://ckwork.com>

>

> Re: Spinal tap

>

>

> Trisha,

> The spinal tap is NOT conclusive, it is merely a guideline... Don't

> have it

> done.

> Regards,

> Tom Bayuk

>

> Spinal tap

>

>

> I'm trying to determine if it would be beneficial to undergo a spinal tap,

> so I'm looking for feedback from the experts.

>

> I have demyelinated lesions of the central nervous system and labs show

> nothing to explain them. I have extremely mild symptoms, with no damage to

> the peripheral nerves. I'm 44 years old, and living in a 120 year old two

> story home. I work full time - office work, so easy on the body.

>

> Is it in my best interests to rule in/rule out MS at this stage so that I

> can plan for the future? Is the potential for side effects worth it, or

> should I just figure that time marches on and the best thing any of us can

> do is ready our homes for potential handicaps as we age?

>

> (I think I answered my question here

>

> Thanks!

> Trisha

>

> PS -- I hope that you are all safe and sound and warm and dry with these

> winter storms - and for those who are not, I hope it's of extremely short

> duration!

>

>

>

>

>

>

>

[Guest guest]

You're so right Sharon.. I wasn't diagnosed until I was 40.. but with my

intelligent first neurologist, she calculated that my medical history

showed that I'd already been dealing with the MonSter for 10 years at

least.. and just HOW many people have little things that go haywire..

they might be treated for something entirely different and none of the

doctor's seen put two and two together and come up with four???

As in.. hmmm... fingers went numb?.. oh I'll treat you for carpal

tunnel.. OH.. big toe went numb.. we'll blame that on the bone graft

surgery.. OH.. you got electric shocks running down your arm and back???

I'll treat you for a pinched nerve in your neck.. OH.. your eye hurts?..

hmm.. just eye strain.. take your nose outta da book... OH.. that arm

went completely numb and you can't use it???.. You just gotta have a

headache.. You're sure you don't have a headache??? But you just have to

have a headache... OH.. no headache.. We'll do a pregnancy test and

declare it a hysterical reaction to the pregnancy (yeah.. you could bet

that it would be a hysterical reaction to the pregnancy IF the test

would have been positive.. having had my tubes tied 10 years plus

previous to this attack!!!)..

We've got children being diagnosed now with MS.. though if you follow

the " textbook " .. it's just not possible for a child to have MS..

The really really sad part is... there just are not enough " good "

neurologists out there that will strive to get to the bottom of our

issues aka diagnosis.. (there aren't enough " House's " out there.. lol)..

and there certainly aren't enough neuro's out there that are able to

establish a good relationship with their patients.. way too many of them

have the " God " complex or just are TOOOO darned set in their ways to

change their opinions about anything from what they were taught in

medical school (there was an article in Reader's Digest recently about

just such a thing.. not willing to admit that there have been changes in

medical treatment since the dark ages.. or not willing to change their

treatment styles...)

I only have myself to blame for the lack of " good " neurological care for

the time spent (about 7.5 years) malingering with the MonSter.. because

I just didn't want to travel to Pittsburgh to have the MonSter treated..

(and just again within the past two weeks.. didn't want to make the

ambulance crew go out of their way to get me to Presbyterian or McGee in

Pittsburgh.. and my fear of taking the ONE quickly responsive and

capable ambulance crew out of service for the area... just in case

someone else might need them more than I did.. or my butt WOULD have

been in the hospital right then)..

Forgive me for the demented ravings of a mad woman on a tirade.. I'm

just in SUPER bitch mode this morning.. ( will be happy that it's

not directed at him for once.. lol)

HUGS

|)onna

Sharon wrote:

>

>

> My PCP doubted the neuros suggesting that my problem might be MS. The

> PCP said " you're too old for MS. " HA! I guess I showed him, huh? lol I

> was 48.

>

> hugs

> Sharon

> join me on Facebook:

> Sharon Mars

> wobbletowalk@...

> This email is a natural hand made product. The slight variations in

> spelling and grammar enhance its individual character and beauty and

> in no way are to be considered flaws or defects.

>

>

>

> ------------------------------------------------------------------------

> *From:* Trisha

> *To:* MSersLife

> *Sent:* Sun, January 31, 2010 3:55:07 AM

> *Subject:* RE: Spinal tap - response and reports of beer

> relaxation

>

>

>

> Wow! Thank you everyone – I greatly appreciate the responses and

> sharing of experiences.

>

> My neuro mentioned the LP on the first visit and I said NO. The only

> “positive†test I’ve had to date is the MRI – and my GP has

> documented that I had numbness and tingling on the left side of my

> face for a month. The neuro quoted the book, saying that there must be

> two clinically documented cases of true symptoms at least one month

> apart for an MS diagnosis – and, MS is typically diagnosed in much

> younger women – and, I have no functional damage, so he refuses to

> diagnose me. That’s why he has, again, suggested the spinal tap. My

> gut tells me that he’s trying to wrap up every test he has at his

> disposal and send me packing. I have an appt this week with an

> opthalmalogist to see if the blurred vision is optic neuritis – if

> so, that would be the second clinical documentation and would make the

> LP a mute point.

>

> So – I’ll await the vision diagnosis and go from there.

>

> Thanks again everyone!

>

> Trisha

>

> PS – and I had three tomato beers last night to test my relaxation

> responses – they’re working! And, honestly, I do believe I

> belong with my fellow MSers – but my job requires that MD stamped dx

> to satisfy FMLA and sick pay policies.

>

> ------------------------------------------------------------------------

>

> *From:* MSersLife [mailto: MSersLife ]

> *On Behalf Of *cheri fenton

> *Sent:* Friday, January 29, 2010 9:53 PM

> *To:* MSersLife

> *Subject:* Re: Spinal tap

>

> I had 2 done and they weren't too bad. The worst of it was the spasms

> in my arm afterward (it flopped like a dead fish). Mine was

> inconclusive. Sorry I can't be of more help...

>

> **Cheri Fenton****

>

> ------------------------------------------------------------------------

>

> *From:* Thallas <fathallas@collinsco m.net <http://m.net>>

> *To:* MSersLife@yahoogrou ps.com <http://ps.com>

> *Sent:* Fri, January 29, 2010 6:07:58 PM

> *Subject:* RE: Spinal tap

>

> I pretty much decided against one, for this reason (not really

> conclusive) and because I absolutely CANNOT lie still for any length of

> time, especially on my back. I also have clotting problems, and would not

> like all my " juice " to leak out...

>

> But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

> much entirely for more than 20 years....

>

>

>

> in WY

> " You get a wonderful view from the point of no return... "

> http://www.flickr. com/photos/ liadains_ fancies

> <http://www.flickr.com/photos/liadains_fancies>

> http://practical- blackwork. blogspot. com

> <http://practical-blackwork.blogspot.com/>

> http://practicalbla ckwork.com <http://ckwork.com>

>

> Re: Spinal tap

>

>

> Trisha,

> The spinal tap is NOT conclusive, it is merely a guideline... Don't

> have it

> done.

> Regards,

> Tom Bayuk

>

> Spinal tap

>

>

> I'm trying to determine if it would be beneficial to undergo a spinal tap,

> so I'm looking for feedback from the experts.

>

> I have demyelinated lesions of the central nervous system and labs show

> nothing to explain them. I have extremely mild symptoms, with no damage to

> the peripheral nerves. I'm 44 years old, and living in a 120 year old two

> story home. I work full time - office work, so easy on the body.

>

> Is it in my best interests to rule in/rule out MS at this stage so that I

> can plan for the future? Is the potential for side effects worth it, or

> should I just figure that time marches on and the best thing any of us can

> do is ready our homes for potential handicaps as we age?

>

> (I think I answered my question here

>

> Thanks!

> Trisha

>

> PS -- I hope that you are all safe and sound and warm and dry with these

> winter storms - and for those who are not, I hope it's of extremely short

> duration!

>

>

>

>

>

>

>

[Guest guest]

Trisha,

I'd like to know what book tells him that the clinically documented

cases of symptoms must be a month apart..

My old " meuron " used to tell me that " symptoms " had to last two days or

longer to be considered an exacerbation.. he's was so full of it.. a new

symptom is a new symptom.. which means NEW lesion somewhere.. might not

be large, might not be active for very long.. but NEW all the same.. and

the worsening of an old symptom is STILL the worsening of an old

symptom.. meaning an old active lesion is now either becoming larger or

becoming more inflammed..

And who in their right mind would ever believe that you couldn't have

two " clinically documented " in less than a month??? Certainly not

anybody who knows anything about having MS.. <grin>

Sorry.. I rant once again

HUGS

|)onna

>

> ------------------------------------------------------------------------

> *From:* Trisha

> *To:* MSersLife

> *Sent:* Sun, January 31, 2010 2:55:07 AM

> *Subject:* RE: Spinal tap - response and reports of beer

> relaxation

>

> Wow! Thank you everyone – I greatly appreciate the responses and

> sharing of experiences.

>

> My neuro mentioned the LP on the first visit and I said NO. The only

> “positive†test I’ve had to date is the MRI – and my GP has

> documented that I had numbness and tingling on the left side of my

> face for a month. The neuro quoted the book, saying that there must be

> two clinically documented cases of true symptoms at least one month

> apart for an MS diagnosis – and, MS is typically diagnosed in much

> younger women – and, I have no functional damage, so he refuses to

> diagnose me. That’s why he has, again, suggested the spinal tap. My

> gut tells me that he’s trying to wrap up every test he has at his

> disposal and send me packing. I have an appt this week with an

> opthalmalogist to see if the blurred vision is optic neuritis – if

> so, that would be the second clinical documentation and would make the

> LP a mute point.

>

> So – I’ll await the vision diagnosis and go from there.

>

> Thanks again everyone!

>

> Trisha

>

> PS – and I had three tomato beers last night to test my relaxation

> responses – they’re working! And, honestly, I do believe I

> belong with my fellow MSers – but my job requires that MD stamped dx

> to satisfy FMLA and sick pay policies.

>

> ------------------------------------------------------------------------

>

> *From:* MSersLife@yahoogrou ps.com <http://ps.com> [mailto:

> MSersLife@yahoogrou ps.com ] *On Behalf Of *cheri fenton

> *Sent:* Friday, January 29, 2010 9:53 PM

> *To:* MSersLife@yahoogrou ps.com

> *Subject:* Re: Spinal tap

>

> I had 2 done and they weren't too bad. The worst of it was the spasms

> in my arm afterward (it flopped like a dead fish). Mine was

> inconclusive. Sorry I can't be of more help...

>

> **Cheri Fenton****

>

> ------------------------------------------------------------------------

>

> *From:* Thallas <fathallas@collinsco m.net <http://m.net>>

> *To:* MSersLife@yahoogrou ps.com

> *Sent:* Fri, January 29, 2010 6:07:58 PM

> *Subject:* RE: Spinal tap

>

> I pretty much decided against one, for this reason (not really

> conclusive) and because I absolutely CANNOT lie still for any length of

> time, especially on my back. I also have clotting problems, and would not

> like all my " juice " to leak out...

>

> But that's just my opinion, and I'm a weirdo who's avoided doctors pretty

> much entirely for more than 20 years....

>

>

>

> in WY

> " You get a wonderful view from the point of no return... "

> http://www.flickr. com/photos/ liadains_ fancies

> <http://www.flickr.com/photos/liadains_fancies>

> http://practical- blackwork. blogspot. com

> <http://practical-blackwork.blogspot.com/>

> http://practicalbla ckwork.com <http://ckwork.com>

>

> Re: Spinal tap

>

>

> Trisha,

> The spinal tap is NOT conclusive, it is merely a guideline... Don't

> have it

> done.

> Regards,

> Tom Bayuk

>

> Spinal tap

>

>

> I'm trying to determine if it would be beneficial to undergo a spinal tap,

> so I'm looking for feedback from the experts.

>

> I have demyelinated lesions of the central nervous system and labs show

> nothing to explain them. I have extremely mild symptoms, with no damage to

> the peripheral nerves. I'm 44 years old, and living in a 120 year old two

> story home. I work full time - office work, so easy on the body.

>

> Is it in my best interests to rule in/rule out MS at this stage so that I

> can plan for the future? Is the potential for side effects worth it, or

> should I just figure that time marches on and the best thing any of us can

> do is ready our homes for potential handicaps as we age?

>

> (I think I answered my question here

>

> Thanks!

> Trisha

>

> PS -- I hope that you are all safe and sound and warm and dry with these

> winter storms - and for those who are not, I hope it's of extremely short

> duration!

>

>

>

>

[Guest guest]

Dear l)onna,Wow! You have really been through the wringer!It's hard to fathom all the crazy responses thatyou've had. What a bunch of dopes! You werethinking of others and not yourself in regards tothe ambulance ride. I hope your care was goodat the hospital you wound up at.I am switching back to my first and original neuro.The second one is cool and aloof and a bit tooclinical for me. She also believes I have secondaryprogressive. Dr. Decker, the one I'm switching backto believes I have RRMS. He is also a bit warmerand slightly fuzzy. I feel a bit funny and a bit guiltyat switching out of her practice--not quite certainhow to do that. I called Decker and made an appt.March 1 with him, but do I have to call the other oneto tell her that I'm leaving? Or do I merely fade away?lol. Just wondering out loud...When they send files, dothey send originals, or do they merely send a copy andkeep the originals? Anyone know?love to you Donna, and everyone here, Kate Spinal tap> >> >> > I'm trying to determine if it would be beneficial to undergo a > spinal tap,> > so I'm looking for feedback from the experts. > >> > I have demyelinated lesions of the central nervous system and > labs show> > nothing to explain them. I have extremely mild symptoms, with > no damage to> > the peripheral nerves. I'm 44 years old, and living in a 120 > year old two> > story home. I work full time - office work, so easy on the body.> >> > Is it in my best interests to rule in/rule out MS at this > stage so that I> > can plan for the future? Is the potential for side effects > worth it, or> > should I just figure that time marches on and the best thing > any of us can> > do is ready our homes for potential handicaps as we age?> >> > (I think I answered my question here > >> > Thanks!> > Trisha> >> > PS -- I hope that you are all safe and sound and warm and dry > with these> > winter storms - and for those who are not, I hope it's of > extremely short> > duration!> >> >> >> >> >> >> > > > > ------------------------------------> >

[Guest guest]

Good Morning Kate,

Well, all of those responses happened over a period of years, and not

always with the same doctor.. sooo... it was an example of the way some

things go for some people.. I didn't have an inkling when I was getting

some of those responses that I was living with the MonSter already..

Carpal Tunnel was a good possibility with all the time I was spending at

the computer... the funny one was the trip to the ER when they kept

insisting that I had a headache.. they figured stroke.. rather than MS..

the pregnancy test though.. well that particular doctor was famous for

pregnancy tests.. LOL (he did a pregnancy test and sent me home with

chest pains when I was 22, cause I was " too young " for a heart attack..

was my stomach.. the flap that keeps the food in the stomach wasn't

working...)

The hospital I went to, did a decent job.. Probably should have gone on

down to Pittsburgh to my neurologists hospital.. but I didn't want to

stay if I could help it.. and the neurologists down there would have

kept me.. But that's the difference between little community hospitals

and the big teaching hospitals..

Switching neurologists.. you HAVE to be comfortable and trust your

neurologist.. so switching back to your old neurologist.. I wouldn't

feel guilty about it.. Though the classing of your MS.. I don't think

that's totally super important either.. though it's nice to know what

type you have.. My last neurologist (the one I didn't like even a little

bit) refused to class me as Secondary Progressive.. he gave me some

goofy talk about Progressive Relapsing or Relapsing Progressive.. New

neuro.. well he said that he'd have to class it as Secondary at this

point.. I asked him to keep the " relapsing " part in there.. to keep my

insurance company happy with paying for the Copaxone.. so he made it..

Secondary Progressive with Relapsing Tendencies.. in the records...

As for the records.. I'm not sure even the neurologist has the original

of anything.. they usually get copies of reports.. and should forward

copies of their copies to the new doctor.. they have to keep your

records in their files (might be " dead " files section) for so many years

if not forever in some form.. but that's a legal thing..

HUGS

|)onna

katelloydkidz@... wrote:

>

>

> Dear l)onna,

> Wow! You have really been through the wringer!

> It's hard to fathom all the crazy responses that

> you've had. What a bunch of dopes! You were

> thinking of others and not yourself in regards to

> the ambulance ride. I hope your care was good

> at the hospital you wound up at.

> I am switching back to my first and original neuro.

> The second one is cool and aloof and a bit too

> clinical for me. She also believes I have secondary

> progressive. Dr. Decker, the one I'm switching back

> to believes I have RRMS. He is also a bit warmer

> and slightly fuzzy. I feel a bit funny and a bit guilty

> at switching out of her practice--not quite certain

> how to do that. I called Decker and made an appt.

> March 1 with him, but do I have to call the other one

> to tell her that I'm leaving? Or do I merely fade away?

> lol. Just wondering out loud...When they send files, do

> they send originals, or do they merely send a copy and

> keep the originals? Anyone know?

> love to you Donna, and everyone here, Kate

>

> Spinal tap

> > >

> > >

> > > I'm trying to determine if it would be beneficial to undergo a

> > spinal tap,

> > > so I'm looking for feedback from the experts.

> > >

> > > I have demyelinated lesions of the central nervous system and

> > labs show

> > > nothing to explain them. I have extremely mild symptoms, with

> > no damage to

> > > the peripheral nerves. I'm 44 years old, and living in a 120

> > year old two

> > > story home. I work full time - office work, so easy on the body.

> > >

> > > Is it in my best interests to rule in/rule out MS at this

> > stage so that I

> > > can plan for the future? Is the potential for side effects

> > worth it, or

> > > should I just figure that time marches on and the best thing

> > any of us can

> > > do is ready our homes for potential handicaps as we age?

> > >

> > > (I think I answered my question here

> > >

> > > Thanks!

> > > Trisha

> > >

> > > PS -- I hope that you are all safe and sound and warm and dry

> > with these

> > > winter storms - and for those who are not, I hope it's of

> > extremely short

> > > duration!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Good Morning Kate,

Well, all of those responses happened over a period of years, and not

always with the same doctor.. sooo... it was an example of the way some

things go for some people.. I didn't have an inkling when I was getting

some of those responses that I was living with the MonSter already..

Carpal Tunnel was a good possibility with all the time I was spending at

the computer... the funny one was the trip to the ER when they kept

insisting that I had a headache.. they figured stroke.. rather than MS..

the pregnancy test though.. well that particular doctor was famous for

pregnancy tests.. LOL (he did a pregnancy test and sent me home with

chest pains when I was 22, cause I was " too young " for a heart attack..

was my stomach.. the flap that keeps the food in the stomach wasn't

working...)

The hospital I went to, did a decent job.. Probably should have gone on

down to Pittsburgh to my neurologists hospital.. but I didn't want to

stay if I could help it.. and the neurologists down there would have

kept me.. But that's the difference between little community hospitals

and the big teaching hospitals..

Switching neurologists.. you HAVE to be comfortable and trust your

neurologist.. so switching back to your old neurologist.. I wouldn't

feel guilty about it.. Though the classing of your MS.. I don't think

that's totally super important either.. though it's nice to know what

type you have.. My last neurologist (the one I didn't like even a little

bit) refused to class me as Secondary Progressive.. he gave me some

goofy talk about Progressive Relapsing or Relapsing Progressive.. New

neuro.. well he said that he'd have to class it as Secondary at this

point.. I asked him to keep the " relapsing " part in there.. to keep my

insurance company happy with paying for the Copaxone.. so he made it..

Secondary Progressive with Relapsing Tendencies.. in the records...

As for the records.. I'm not sure even the neurologist has the original

of anything.. they usually get copies of reports.. and should forward

copies of their copies to the new doctor.. they have to keep your

records in their files (might be " dead " files section) for so many years

if not forever in some form.. but that's a legal thing..

HUGS

|)onna

katelloydkidz@... wrote:

>

>

> Dear l)onna,

> Wow! You have really been through the wringer!

> It's hard to fathom all the crazy responses that

> you've had. What a bunch of dopes! You were

> thinking of others and not yourself in regards to

> the ambulance ride. I hope your care was good

> at the hospital you wound up at.

> I am switching back to my first and original neuro.

> The second one is cool and aloof and a bit too

> clinical for me. She also believes I have secondary

> progressive. Dr. Decker, the one I'm switching back

> to believes I have RRMS. He is also a bit warmer

> and slightly fuzzy. I feel a bit funny and a bit guilty

> at switching out of her practice--not quite certain

> how to do that. I called Decker and made an appt.

> March 1 with him, but do I have to call the other one

> to tell her that I'm leaving? Or do I merely fade away?

> lol. Just wondering out loud...When they send files, do

> they send originals, or do they merely send a copy and

> keep the originals? Anyone know?

> love to you Donna, and everyone here, Kate

>

> Spinal tap

> > >

> > >

> > > I'm trying to determine if it would be beneficial to undergo a

> > spinal tap,

> > > so I'm looking for feedback from the experts.

> > >

> > > I have demyelinated lesions of the central nervous system and

> > labs show

> > > nothing to explain them. I have extremely mild symptoms, with

> > no damage to

> > > the peripheral nerves. I'm 44 years old, and living in a 120

> > year old two

> > > story home. I work full time - office work, so easy on the body.

> > >

> > > Is it in my best interests to rule in/rule out MS at this

> > stage so that I

> > > can plan for the future? Is the potential for side effects

> > worth it, or

> > > should I just figure that time marches on and the best thing

> > any of us can

> > > do is ready our homes for potential handicaps as we age?

> > >

> > > (I think I answered my question here

> > >

> > > Thanks!

> > > Trisha

> > >

> > > PS -- I hope that you are all safe and sound and warm and dry

> > with these

> > > winter storms - and for those who are not, I hope it's of

> > extremely short

> > > duration!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Good Morning Kate,

Well, all of those responses happened over a period of years, and not

always with the same doctor.. sooo... it was an example of the way some

things go for some people.. I didn't have an inkling when I was getting

some of those responses that I was living with the MonSter already..

Carpal Tunnel was a good possibility with all the time I was spending at

the computer... the funny one was the trip to the ER when they kept

insisting that I had a headache.. they figured stroke.. rather than MS..

the pregnancy test though.. well that particular doctor was famous for

pregnancy tests.. LOL (he did a pregnancy test and sent me home with

chest pains when I was 22, cause I was " too young " for a heart attack..

was my stomach.. the flap that keeps the food in the stomach wasn't

working...)

The hospital I went to, did a decent job.. Probably should have gone on

down to Pittsburgh to my neurologists hospital.. but I didn't want to

stay if I could help it.. and the neurologists down there would have

kept me.. But that's the difference between little community hospitals

and the big teaching hospitals..

Switching neurologists.. you HAVE to be comfortable and trust your

neurologist.. so switching back to your old neurologist.. I wouldn't

feel guilty about it.. Though the classing of your MS.. I don't think

that's totally super important either.. though it's nice to know what

type you have.. My last neurologist (the one I didn't like even a little

bit) refused to class me as Secondary Progressive.. he gave me some

goofy talk about Progressive Relapsing or Relapsing Progressive.. New

neuro.. well he said that he'd have to class it as Secondary at this

point.. I asked him to keep the " relapsing " part in there.. to keep my

insurance company happy with paying for the Copaxone.. so he made it..

Secondary Progressive with Relapsing Tendencies.. in the records...

As for the records.. I'm not sure even the neurologist has the original

of anything.. they usually get copies of reports.. and should forward

copies of their copies to the new doctor.. they have to keep your

records in their files (might be " dead " files section) for so many years

if not forever in some form.. but that's a legal thing..

HUGS

|)onna

katelloydkidz@... wrote:

>

>

> Dear l)onna,

> Wow! You have really been through the wringer!

> It's hard to fathom all the crazy responses that

> you've had. What a bunch of dopes! You were

> thinking of others and not yourself in regards to

> the ambulance ride. I hope your care was good

> at the hospital you wound up at.

> I am switching back to my first and original neuro.

> The second one is cool and aloof and a bit too

> clinical for me. She also believes I have secondary

> progressive. Dr. Decker, the one I'm switching back

> to believes I have RRMS. He is also a bit warmer

> and slightly fuzzy. I feel a bit funny and a bit guilty

> at switching out of her practice--not quite certain

> how to do that. I called Decker and made an appt.

> March 1 with him, but do I have to call the other one

> to tell her that I'm leaving? Or do I merely fade away?

> lol. Just wondering out loud...When they send files, do

> they send originals, or do they merely send a copy and

> keep the originals? Anyone know?

> love to you Donna, and everyone here, Kate

>

> Spinal tap

> > >

> > >

> > > I'm trying to determine if it would be beneficial to undergo a

> > spinal tap,

> > > so I'm looking for feedback from the experts.

> > >

> > > I have demyelinated lesions of the central nervous system and

> > labs show

> > > nothing to explain them. I have extremely mild symptoms, with

> > no damage to

> > > the peripheral nerves. I'm 44 years old, and living in a 120

> > year old two

> > > story home. I work full time - office work, so easy on the body.

> > >

> > > Is it in my best interests to rule in/rule out MS at this

> > stage so that I

> > > can plan for the future? Is the potential for side effects

> > worth it, or

> > > should I just figure that time marches on and the best thing

> > any of us can

> > > do is ready our homes for potential handicaps as we age?

> > >

> > > (I think I answered my question here

> > >

> > > Thanks!

> > > Trisha

> > >

> > > PS -- I hope that you are all safe and sound and warm and dry

> > with these

> > > winter storms - and for those who are not, I hope it's of

> > extremely short

> > > duration!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

When I was going through diagnosis my neuro wanted to know anytime I had symptoms in a new area of my body, especially if it was on the other side. Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, February 1, 2010 8:07:52 AMSubject: Re: Spinal tap - response and reports of beer relaxation

Trisha,I'd like to know what book tells him that the clinically documented cases of symptoms must be a month apart..My old "meuron" used to tell me that "symptoms" had to last two days or longer to be considered an exacerbation.. he's was so full of it.. a new symptom is a new symptom.. which means NEW lesion somewhere.. might not be large, might not be active for very long.. but NEW all the same.. and the worsening of an old symptom is STILL the worsening of an old symptom.. meaning an old active lesion is now either becoming larger or becoming more inflammed..And who in their right mind would ever believe that you couldn't have two "clinically documented" in less than a month??? Certainly not anybody who knows anything about having MS.. <grin>Sorry.. I rant once againHUGS|)onna>>

------------------------------------------------------------------------> *From:* Trisha > *To:* MSersLife > *Sent:* Sun, January 31, 2010 2:55:07 AM> *Subject:* RE: Spinal tap - response and reports of beer > relaxation>> Wow! Thank you everyone – I greatly appreciate the responses and > sharing of experiences.>> My neuro mentioned the LP on the first visit and I said NO. The only > “positive†test I’ve had to date is the MRI – and my GP has > documented that I had numbness and tingling on the left side of my > face for a month. The neuro quoted the book, saying that there must be > two clinically documented cases of true

symptoms at least one month > apart for an MS diagnosis – and, MS is typically diagnosed in much > younger women – and, I have no functional damage, so he refuses to > diagnose me. That’s why he has, again, suggested the spinal tap. My > gut tells me that he’s trying to wrap up every test he has at his > disposal and send me packing. I have an appt this week with an > opthalmalogist to see if the blurred vision is optic neuritis – if > so, that would be the second clinical documentation and would make the > LP a mute point.>> So – I’ll await the vision diagnosis and go from there.>> Thanks again everyone!>> Trisha>> PS – and I had three tomato beers last night to test my relaxation > responses – they’re working! And, honestly, I do believe I > belong with my fellow MSers – but my job requires that MD

stamped dx > to satisfy FMLA and sick pay policies.>> ------------------------------------------------------------------------>> *From:* MSersLife@yahoogrou ps.com <http://ps.com> [mailto: > MSersLife@yahoogrou ps.com ] *On Behalf Of *cheri fenton> *Sent:* Friday, January 29, 2010 9:53 PM> *To:* MSersLife@yahoogrou ps.com> *Subject:* Re: Spinal tap>> I had 2 done and they weren't too bad. The worst of it was the spasms > in my arm afterward (it flopped like a dead fish). Mine was > inconclusive. Sorry I can't be of more help...>> **Cheri Fenton****>> ------------------------------------------------------------------------>> *From:* Thallas <fathallas@collinsco m.net <http://m.net>>> *To:* MSersLife@yahoogrou ps.com> *Sent:* Fri, January 29, 2010 6:07:58 PM> *Subject:* RE: Spinal tap>> I pretty much decided against one, for this reason (not really> conclusive) and because I absolutely CANNOT lie still for any length of> time, especially on my back. I also have clotting problems, and would not> like all my "juice" to leak out...>> But that's just my opinion, and I'm a weirdo who's avoided doctors pretty> much entirely for more than 20 years....>> >> in WY> "You get a wonderful view from the point of no return..."> http://www.flickr. com/photos/ liadains_ fancies > <http://www.flickr.com/photos/liadains_fancies>> http://practical- blackwork. blogspot. com > <http://practical-blackwork.blogspot.com/>> http://practicalbla ckwork.com <http://ckwork.com>>> Re: Spinal tap>>> Trisha,> The spinal tap is NOT conclusive, it is merely a guideline... Don't > have it> done.> Regards,> Tom Bayuk>> Spinal tap>>> I'm trying to determine if it would be beneficial to undergo a spinal tap,> so I'm looking for feedback from the experts. >> I have demyelinated lesions of the central nervous system and labs show> nothing to explain them. I have extremely mild symptoms, with no damage to> the peripheral nerves. I'm 44 years old, and living in a 120 year old two> story home. I work full time - office work, so easy on the

body.>> Is it in my best interests to rule in/rule out MS at this stage so that I> can plan for the future? Is the potential for side effects worth it, or> should I just figure that time marches on and the best thing any of us can> do is ready our homes for potential handicaps as we age?>> (I think I answered my question here >> Thanks!> Trisha>> PS -- I hope that you are all safe and sound and warm and dry with these> winter storms - and for those who are not, I hope it's of extremely short> duration!>>>> ------------------------------------