Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 My son was 19 months old when my younger son was born and he was no longer nursing at the time. He was curious and wanted to try, so I let him and he never asked again after that. ~ M. ~ BestFedBaby@... Wife to Demetrios SAHMommy to Elijah (4/2/98) and (11/20/99) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi Margaret, You're not alone! Your symptoms sound very much like mine. Even the mildest warmth has been a major trigger for me the past few years and sets off intense flushing with burning and pain. Like you, I have been living in the cold, often unable to go out, and I know how miserable it is for you. The one thing that has brought me some relief is photoderm. (I'm sorry i can't recommend a photoderm clinic in the UK) The treatments haven't been a cure, but they have definitely helped reduce the severity of the flushing and burning and are the best thing I have done. Good luck with your upcoming appointment, I hope it works out for you. I have never found that oral antibiotics affect the flushing at all, but they do help my ocular symptoms. Another medication you might consider is clonidine, an anti-hypertensive drug that is often helpful in relieving some of the flushing. I find that it helps somewhat, and other group members use it with success. You may have read about the zinco cream that many in the group use. It was developed specifically for ultra -sensitive skin by Dr. Sy (www.lindasy.com) and is a physical sun block, anti-inflammatory and protectant from the elements ie heat, cold and wind. There are both tinted and untinted versions, and samples available for $2 plus shipping. Best wishes, Jen >Although I have managed until now without taking medication, albeit not very >well, I am now at the stage where I'm going to have to take more drastic >measures and hit this beast right between the eyes in order to have a life. >Because my face flares at the slightest hint of warmth, I'm unable to go >anywhere and even when I brush my teeth it brings on a flush and my skin >begins to burn. I am unable to put the heating on in the house, even a low >background heat makes my face burn. The summer was just as traumatic, only >venturing out after dark. > >I have an appointment at the London Homeopathic Clinic in December, but >unfortunately I haven't seen any positive postings regarding homeopathy and >rosacea. Has anyone had any success using this method of treatment? > >I also have an appointment at a PhotoDerm Clinic, but to be honest, I feel >terrified at the thought of a machine blasting my already sensitive skin. >Again, has anyone had any success with PhotoDerm in the UK? > >Just to round off, I also suffer with sebborrheic dermatitis and >blepharitis. > >I have learnt a lot from reading the messages on this board and I would be >grateful for any input regarding homeopathy or photoderm in the UK in >combating this debilitating condition. If neither of these work, I'm afraid >I will have to resort to taking the antibiotics. > >Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Hi Perrianne, I was wondering what type of laser you had? Taking antibiotics in Australia must be very difficult since you need to stay out of the sun when you are on them. That was the most difficult part for me when I was on them. They would help but if I had a little sun, my skin would look so much worse. Hope you plan on looking through the archives for lots of helpful hints on how to improve your skin. Take care. Fran - New to the group Hi, my name is perrianne from Australia (Melbourne). I have been diagnosed with rosacea for about 4 years. I was miss diagnosed like many others for years. I had laser treatment 6 years ago thinking it was broken capillaries,it actually seemed to help, and would consider having it done again. When i started on antibiotics i really started to notice the difference,although i would still have some outbrakes.It reduced the red nose and cheeks. After about a year of taking the tablets i had a really bad reaction, a severe case of something like hives attacked me. I was told to go of them straight away,and just use the tropical gel. I seem to have more hot flashes now.I do not know any body else with rosacea but im sure there is plenty. all the best perrianne _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. ----------------------------------------------------------------- Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html When replying, please delete all text at the end of your email that isn't necessary for your message. To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Hi Perrianne, I was wondering what type of laser you had? Taking antibiotics in Australia must be very difficult since you need to stay out of the sun when you are on them. That was the most difficult part for me when I was on them. They would help but if I had a little sun, my skin would look so much worse. Hope you plan on looking through the archives for lots of helpful hints on how to improve your skin. Take care. Fran - New to the group Hi, my name is perrianne from Australia (Melbourne). I have been diagnosed with rosacea for about 4 years. I was miss diagnosed like many others for years. I had laser treatment 6 years ago thinking it was broken capillaries,it actually seemed to help, and would consider having it done again. When i started on antibiotics i really started to notice the difference,although i would still have some outbrakes.It reduced the red nose and cheeks. After about a year of taking the tablets i had a really bad reaction, a severe case of something like hives attacked me. I was told to go of them straight away,and just use the tropical gel. I seem to have more hot flashes now.I do not know any body else with rosacea but im sure there is plenty. all the best perrianne _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. ----------------------------------------------------------------- Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html When replying, please delete all text at the end of your email that isn't necessary for your message. To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2000 Report Share Posted December 27, 2000 Hi Perrianne, I was wondering what type of laser you had? Taking antibiotics in Australia must be very difficult since you need to stay out of the sun when you are on them. That was the most difficult part for me when I was on them. They would help but if I had a little sun, my skin would look so much worse. Hope you plan on looking through the archives for lots of helpful hints on how to improve your skin. Take care. Fran - New to the group Hi, my name is perrianne from Australia (Melbourne). I have been diagnosed with rosacea for about 4 years. I was miss diagnosed like many others for years. I had laser treatment 6 years ago thinking it was broken capillaries,it actually seemed to help, and would consider having it done again. When i started on antibiotics i really started to notice the difference,although i would still have some outbrakes.It reduced the red nose and cheeks. After about a year of taking the tablets i had a really bad reaction, a severe case of something like hives attacked me. I was told to go of them straight away,and just use the tropical gel. I seem to have more hot flashes now.I do not know any body else with rosacea but im sure there is plenty. all the best perrianne _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. ----------------------------------------------------------------- Please read the list highlights thoroughly before posting to the whole group. See http://rosacea.ii.net/toc.html When replying, please delete all text at the end of your email that isn't necessary for your message. To leave the list send an email to rosacea-support-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 , Thanks for the information. I will look up this group. Dan Re: New to the Group Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 , Thanks for the information. I will look up this group. Dan Re: New to the Group Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 , Thanks for the information. I will look up this group. Dan Re: New to the Group Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 ; Actually there are TWO lists for adults and/or their caregivers. There is the "Mitoldies" list, which has become an open membership/open archives list ... and there is "AdultMito" list, to which you have to either apply for membership or be invited. It is restricted access and archives are not available ... so it is, in a sense, more aware of participant confidentiality. I have written to ask Dan to join AdultMito and certainly, if you are interested in joining us, you should write to me privately. Shepherd, List Owner AdultMito list LILQT4U1984@... wrote: Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 ; Actually there are TWO lists for adults and/or their caregivers. There is the "Mitoldies" list, which has become an open membership/open archives list ... and there is "AdultMito" list, to which you have to either apply for membership or be invited. It is restricted access and archives are not available ... so it is, in a sense, more aware of participant confidentiality. I have written to ask Dan to join AdultMito and certainly, if you are interested in joining us, you should write to me privately. Shepherd, List Owner AdultMito list LILQT4U1984@... wrote: Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 ; Actually there are TWO lists for adults and/or their caregivers. There is the "Mitoldies" list, which has become an open membership/open archives list ... and there is "AdultMito" list, to which you have to either apply for membership or be invited. It is restricted access and archives are not available ... so it is, in a sense, more aware of participant confidentiality. I have written to ask Dan to join AdultMito and certainly, if you are interested in joining us, you should write to me privately. Shepherd, List Owner AdultMito list LILQT4U1984@... wrote: Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 I too would be interested this adult-mito group as I have had symptoms since 1990. Let me know more how to get involved or sign me up please. Darla Re: New to the Group ; Actually there are TWO lists for adults and/or their caregivers. There is the "Mitoldies" list, which has become an open membership/open archives list ... and there is "AdultMito" list, to which you have to either apply for membership or be invited. It is restricted access and archives are not available ... so it is, in a sense, more aware of participant confidentiality. I have written to ask Dan to join AdultMito and certainly, if you are interested in joining us, you should write to me privately. Shepherd, List Owner AdultMito list LILQT4U1984@... wrote: Dan, Welcome to the group. There is a mito list just for adults with mito. It's called Mitoldies and is really a great group of supportive people as well. I hope you find the answers and support you are looking for. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Congrats on on your upcoming surgery Gale! There's a good bit of activity on this board and everyone's very open so I'm sure if you have issues or questions we'll all be here to help. Lap RNY April 9, 2004 348/311/140 www.carrieburns.net > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > > gale in maryland > open rny 7/19/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Congrats on on your upcoming surgery Gale! There's a good bit of activity on this board and everyone's very open so I'm sure if you have issues or questions we'll all be here to help. Lap RNY April 9, 2004 348/311/140 www.carrieburns.net > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > > gale in maryland > open rny 7/19/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Congrats on on your upcoming surgery Gale! There's a good bit of activity on this board and everyone's very open so I'm sure if you have issues or questions we'll all be here to help. Lap RNY April 9, 2004 348/311/140 www.carrieburns.net > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > > gale in maryland > open rny 7/19/04 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 As someone new to this subject, can someone tell me the different choices in surgery and why or why not to them? Or is it really up to the Doc? Do we have choices? Open/Laproscopic, etc. Thanks in advance. Ed Kemper & Delores edkemper@... > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > gale in maryland > open rny 7/19/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 As someone new to this subject, can someone tell me the different choices in surgery and why or why not to them? Or is it really up to the Doc? Do we have choices? Open/Laproscopic, etc. Thanks in advance. Ed Kemper & Delores edkemper@... > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > gale in maryland > open rny 7/19/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 In some cases you have options. But with some doctors they make the decision. Because of where I carry my weight my surgeon is doing what is called hand assisted lap. I will have a 4 inch incision that is just big enough for him to put his hand in and then have the tools to work with too. But it is usually up to the surgeon. Re: new to the group As someone new to this subject, can someone tell me the different choices in surgery and why or why not to them? Or is it really up to the Doc? Do we have choices? Open/Laproscopic, etc. Thanks in advance. Ed Kemper & Delores edkemper@... > hi, i'm new to the group and wanted to introduce myself. i'm from > maryland and am scheduled for open RNY on july 19, 2004. i've been > researching for over a year now and feel i'm making the right choice > for me. i'll probably lurk mostly until after surgery and then i'm > sure i'll have tons of questions. congrats to all who have had the > surgery and been succesful. see you on the loosing side. > gale in maryland > open rny 7/19/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 beth, You've been approved. I'm , one of the co-moderators. Please forgive us for not contacting you. This is a new process for us (requiring approval to join) & I, for one, am learning how it works. Welcome. Tell us a little about yourself. I'm 55 & have Crohn's Disease with all the things that go with it. I'm on Remicade, prednisone, 6-MP, Pentasa, & some other meds plus lots of vitamins. New to the groupHi everyone, my name is beth and I recently asked to join this group- (Kathy referred me.) I was waiting for the moderator to contact me to tell me if I was allowed to join, but I am not sure if she has my email address or how long it usually takes to be allowed to join- any help would be appreciated- Thanks- beth.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 beth, You've been approved. I'm , one of the co-moderators. Please forgive us for not contacting you. This is a new process for us (requiring approval to join) & I, for one, am learning how it works. Welcome. Tell us a little about yourself. I'm 55 & have Crohn's Disease with all the things that go with it. I'm on Remicade, prednisone, 6-MP, Pentasa, & some other meds plus lots of vitamins. New to the groupHi everyone, my name is beth and I recently asked to join this group- (Kathy referred me.) I was waiting for the moderator to contact me to tell me if I was allowed to join, but I am not sure if she has my email address or how long it usually takes to be allowed to join- any help would be appreciated- Thanks- beth.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 beth...You're joined and now sending emails to the group and you should be getting copies that are sent by the group. Welcome to our funny family....LOL....You will get a lot of information and support here and we're so glad you found us, but sorry you had too....Please tell us about yourself and your illness.....Pam....List Mama #2 New to the group Hi everyone, my name is beth and I recently asked to join this group- (Kathy referred me.) I was waiting for the moderator to contact me to tell me if I was allowed to join, but I am not sure if she has my email address or how long it usually takes to be allowed to join- any help would be appreciated- Thanks- beth.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 beth...You're joined and now sending emails to the group and you should be getting copies that are sent by the group. Welcome to our funny family....LOL....You will get a lot of information and support here and we're so glad you found us, but sorry you had too....Please tell us about yourself and your illness.....Pam....List Mama #2 New to the group Hi everyone, my name is beth and I recently asked to join this group- (Kathy referred me.) I was waiting for the moderator to contact me to tell me if I was allowed to join, but I am not sure if she has my email address or how long it usually takes to be allowed to join- any help would be appreciated- Thanks- beth.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 beth...You're joined and now sending emails to the group and you should be getting copies that are sent by the group. Welcome to our funny family....LOL....You will get a lot of information and support here and we're so glad you found us, but sorry you had too....Please tell us about yourself and your illness.....Pam....List Mama #2 New to the group Hi everyone, my name is beth and I recently asked to join this group- (Kathy referred me.) I was waiting for the moderator to contact me to tell me if I was allowed to join, but I am not sure if she has my email address or how long it usually takes to be allowed to join- any help would be appreciated- Thanks- beth.Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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