Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 right on....cool.....I like hearing he is a quack...*S* TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 right on....cool.....I like hearing he is a quack...*S* TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 right on....cool.....I like hearing he is a quack...*S* TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 that is great... hope that it will be that easy for me....*fingers crossed* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 that is great... hope that it will be that easy for me....*fingers crossed* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 that is great... hope that it will be that easy for me....*fingers crossed* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 There are a few but certainly not many. It took us a little longer to save the money, that is all. Couple years of tax returns. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 There are a few but certainly not many. It took us a little longer to save the money, that is all. Couple years of tax returns. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 There are a few but certainly not many. It took us a little longer to save the money, that is all. Couple years of tax returns. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 I read yuor posting, thats great you have a new baby. I guess from everyone that i've talked with, im the only who was lucky enough to ahve insurance pay for it. Gosh if they didnt, i'd be still waiting. In NY it costs $6600. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 I read yuor posting, thats great you have a new baby. I guess from everyone that i've talked with, im the only who was lucky enough to ahve insurance pay for it. Gosh if they didnt, i'd be still waiting. In NY it costs $6600. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 I read yuor posting, thats great you have a new baby. I guess from everyone that i've talked with, im the only who was lucky enough to ahve insurance pay for it. Gosh if they didnt, i'd be still waiting. In NY it costs $6600. (no subject) hi my name is tina and i am a new member as of 04-21-03... I was married and had three children and was w/ my husband for 11 years , we thought we were going to be together forever but he decided that he liked everyone else that .... well never mind but now I am getting remarried and I am wanting to get my tubes reversed so that I can have a baby w/ the man that i will spend the rest of my life w/ !! what are my odds? I am 29, what does this cost? I am full of questions... and need a few answers thank you.... TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 My doc says Im BP also, but I never get Happy so to speak, I just get where I feel normal, then I go down a little, then up to normal again. I dont cosider that BP. Do you? Re: (no subject) in September...I am getting married in Aug. yeah it is not great weather here in Idaho either... depression can kick someones butt.... I am actually bipolar..so I know when I am going to crash I usually get super... " happy " and well I am on my meds....and that is another thing my doc. reminded me of that i will have to get off of them again and well it is not pretty.....but well worth it in the end...TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 My doc says Im BP also, but I never get Happy so to speak, I just get where I feel normal, then I go down a little, then up to normal again. I dont cosider that BP. Do you? Re: (no subject) in September...I am getting married in Aug. yeah it is not great weather here in Idaho either... depression can kick someones butt.... I am actually bipolar..so I know when I am going to crash I usually get super... " happy " and well I am on my meds....and that is another thing my doc. reminded me of that i will have to get off of them again and well it is not pretty.....but well worth it in the end...TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 for your sake I hope that they do. Most dont is right. I guess we are just fortunate. (no subject) I live in Idaho, we have talked about the tr , and about letting my sister carry a baby for us. but i would much rather first try my luck w/ this I am going to talk to my insurance company about this I don't forsee them covering this but i hope.....TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 for your sake I hope that they do. Most dont is right. I guess we are just fortunate. (no subject) I live in Idaho, we have talked about the tr , and about letting my sister carry a baby for us. but i would much rather first try my luck w/ this I am going to talk to my insurance company about this I don't forsee them covering this but i hope.....TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 for your sake I hope that they do. Most dont is right. I guess we are just fortunate. (no subject) I live in Idaho, we have talked about the tr , and about letting my sister carry a baby for us. but i would much rather first try my luck w/ this I am going to talk to my insurance company about this I don't forsee them covering this but i hope.....TINA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 all chargers can be liek that > > 's first 1 1/2 to 2 years were like that - she was 9 lbs at 9 months > old - 13 lbs at 15 months old - very tiny and very sick. I don't know how > she made it through - she was so sick. Then, after she got a little bigger > and stronger it go better - much better - and we haven't had a " sick " > hospital stay since. > > Good luck - I hope she gets stronger soon. It is so hard watching your > child suffer. > > Lori Myers > Spouse - Trent, Children - (8), (5, CHARGE Syndrome, > Congenital Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, > Bi-lateral Choanal Atresia, Decanullated Trach, G-button, partial hearing > loss, walking as of 12/22/04!, and Emma (3) > > Dallas, Texas > > (no subject) > > > every minute of the day, im reminded of how ill chrystine is... someone > i > dont even know who asks me how old she is and then remarks on how small > she is > or why is she wearing patches on her eyes or whatever or a friend or > family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had > 2 > appointments yesterday with an occupational and physical therapist who > says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard > rattling in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 all chargers can be liek that > > 's first 1 1/2 to 2 years were like that - she was 9 lbs at 9 months > old - 13 lbs at 15 months old - very tiny and very sick. I don't know how > she made it through - she was so sick. Then, after she got a little bigger > and stronger it go better - much better - and we haven't had a " sick " > hospital stay since. > > Good luck - I hope she gets stronger soon. It is so hard watching your > child suffer. > > Lori Myers > Spouse - Trent, Children - (8), (5, CHARGE Syndrome, > Congenital Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, > Bi-lateral Choanal Atresia, Decanullated Trach, G-button, partial hearing > loss, walking as of 12/22/04!, and Emma (3) > > Dallas, Texas > > (no subject) > > > every minute of the day, im reminded of how ill chrystine is... someone > i > dont even know who asks me how old she is and then remarks on how small > she is > or why is she wearing patches on her eyes or whatever or a friend or > family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had > 2 > appointments yesterday with an occupational and physical therapist who > says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard > rattling in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 all chargers can be liek that > > 's first 1 1/2 to 2 years were like that - she was 9 lbs at 9 months > old - 13 lbs at 15 months old - very tiny and very sick. I don't know how > she made it through - she was so sick. Then, after she got a little bigger > and stronger it go better - much better - and we haven't had a " sick " > hospital stay since. > > Good luck - I hope she gets stronger soon. It is so hard watching your > child suffer. > > Lori Myers > Spouse - Trent, Children - (8), (5, CHARGE Syndrome, > Congenital Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, > Bi-lateral Choanal Atresia, Decanullated Trach, G-button, partial hearing > loss, walking as of 12/22/04!, and Emma (3) > > Dallas, Texas > > (no subject) > > > every minute of the day, im reminded of how ill chrystine is... someone > i > dont even know who asks me how old she is and then remarks on how small > she is > or why is she wearing patches on her eyes or whatever or a friend or > family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had > 2 > appointments yesterday with an occupational and physical therapist who > says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard > rattling in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Were like this all the time, i am never home longer than a couple of weeks, with pulmonary odema and pneumonias and thick green crap coming from her lungs, permanent antibiotics her whole life to date, and Amelie doesnt look remotely like she is ever going to walk, she is so floppy, i sympathise but what can we do, its a case of riding the storm and praying in a couple of years things do get better like the older charge mums say. good luck les x > every minute of the day, im reminded of how ill chrystine is... someone i > dont even know who asks me how old she is and then remarks on how small she > is > or why is she wearing patches on her eyes or whatever or a friend or family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had 2 > appointments yesterday with an occupational and physical therapist who says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard rattling > in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Were like this all the time, i am never home longer than a couple of weeks, with pulmonary odema and pneumonias and thick green crap coming from her lungs, permanent antibiotics her whole life to date, and Amelie doesnt look remotely like she is ever going to walk, she is so floppy, i sympathise but what can we do, its a case of riding the storm and praying in a couple of years things do get better like the older charge mums say. good luck les x > every minute of the day, im reminded of how ill chrystine is... someone i > dont even know who asks me how old she is and then remarks on how small she > is > or why is she wearing patches on her eyes or whatever or a friend or family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had 2 > appointments yesterday with an occupational and physical therapist who says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard rattling > in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Were like this all the time, i am never home longer than a couple of weeks, with pulmonary odema and pneumonias and thick green crap coming from her lungs, permanent antibiotics her whole life to date, and Amelie doesnt look remotely like she is ever going to walk, she is so floppy, i sympathise but what can we do, its a case of riding the storm and praying in a couple of years things do get better like the older charge mums say. good luck les x > every minute of the day, im reminded of how ill chrystine is... someone i > dont even know who asks me how old she is and then remarks on how small she > is > or why is she wearing patches on her eyes or whatever or a friend or family > member asking me how her kidney function is or when she is going back in > the > hospital or why she needs this or what is that? > i think somedays are harder than others. i feel vulnerable today. she had 2 > appointments yesterday with an occupational and physical therapist who says > she needs intensive therapy now and her pediatrician. i thought she was > making > progress and i guess its because im her biggest cheerleader. these > therapists > know nothing about charge. i spend the first 20 minutes trying to explain > it. but, i cant ever answer the question about what it means for her > future. > she is severely hypotonic, and we've been told if something doesnt change > she > might not walk. > she started showing symptoms of a cold last tuesday nite. chrystine never > gets a cold,she gets something much worse. we got her to the doctor > wednesday > and they used that machine to suction her nose out but still heard rattling > in > her chest so i needed to take her for a chest xray and bloodwork, she gets > bloodwork once or twice a week to check her kidney function and glucose, > because she is also pre-diabetic and chrystine has about 16% of her right > kidney > and none of the other working. her doc says she has pulmonary edema, this > is > the 2nd time. > my question is, are any of your children experiencing these things? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Wishing Chrystine all the best. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Wishing Chrystine all the best. Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to Quote Link to comment Share on other sites More sharing options...
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