Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 Hi everyone... I've read many of your emails and see so much in common with your children and my son. I would like to have my son see a DAN doctor. We live in Miami, Florida but I'm not sure who is the real deal. He is nine years old and his behavior is really getting out of control with stimming, breaking things, biting himself, fussy, thinks annoying another child is funny, vocal stims, giggle and then suddenly whines??The list goes on and on. He is at a three year old level developmentally. I have had him on a GFCF diet for almost 4 years because he would break out from head to toe and none of the doctors could tell me why. He has been rash free with the exception of one infraction almost two years ago and it helped a lot with language skills and some attention span but I am afraid his behaviors will get the best of him. I am now looking to start him on Applied Behavior therapy but his medicaid doesn't cover it so that is my other mission. I wonder what tests can be done that his insurance will cover to determine the levels of bacteria, viruses, fungus etc that maybe playing a role on his behavior and not sleeping? or even to see from a biomedical point what supplements he should be taking if he is deficient. Thanks for your help. I'm thankful this group is here. Lizzie Re: Not Sleeping! What to give? Reply to  We used Natural Factors 3 mg sublingual tablets. I don't think they are time release. They have a minty tasty and I used to tell Stan it was his bedtime minty. He liked the taste and thought of it as a treat. It is important to keep the room as dark as possible. No night lights, dark curtains to keep street lamp light out. Cover clocks that are illuminated. I am not sure that the melatonin by itself would have been enough. Another important factor was getting rid of his acid reflux, stomach discomfort and parasites (tapeworm). He was so badly constipated at one time, I don't think anyone could sleep when they are badly backed up and have a fire burning in their intestines. If you can tell me more about your son's situation/behaviours in general, I will be happy to tell you any similarities to my son and what I did to help him feel better. May not work the same for you, but listening to other people's similar issues and fixes is how I came to figure what would work for Stan. PS 5 HTP may also be helpful. The body will convert it to serotonin and then to melatonin as needed. We started using this recently to try and reduce hand biting and head banging.  We did give TR melatonin, did you give it to him (TR) when he woke and did he go back to sleep quickly & stay asleep? How much did you give? Thank you so much for responding, I am willing to try anything at this point,when he's awake so am I. :0( & gt; My son is not sleeping we & gt; have given melatonin it puts him to sleep quickly, however & gt; he wakes a few hours later, hyper & ready to go. Any & gt; ideas, we are doing Respen A & gt; & I think I remember no GABA. Please help us, as he is & gt; either very fussy or falls asleep in school. & gt; Thank you & gt; Nina & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt;  & gt; & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 I would order a stool test..if you can...but his behaviour sounds like bacteria in the gut, could also be parasites..and of course yeast...is he off colourings, additives, soy and milk? limit sugar intake as it feeds yeast..you may want to try a differnt diet alog with gluten free..TACA has some great resources to help you. The Dan could order tests for viral components too...often alot of this behaviour is gut related..you may also want to test for lyme with Igeneix. It would not hurt to put him on culturelle 3 times a day and olive leaf extract from douglas labs 500mg 1-3 per day..but you may see die off so go slow..you can use activated charcol...2 hrs after dosing if there is alot of die off symptoms and increase in behaviours is how you'd notice it. You may also want to explore if he has pandas. He may benefit from a course of drug therapy. Leanne To: mb12 valtrex From: goalsfourus@...Date: Sun, 20 Mar 2011 22:59:31 -0400Subject: RE: Not Sleeping! What to give? Reply to Hi everyone... I've read many of your emails and see so much in common with your children and my son. I would like to have my son see a DAN doctor. We live in Miami, Florida but I'm not sure who is the real deal. He is nine years old and his behavior is really getting out of control with stimming, breaking things, biting himself, fussy, thinks annoying another child is funny, vocal stims, giggle and then suddenly whines??The list goes on and on. He is at a three year old level developmentally. I have had him on a GFCF diet for almost 4 years because he would break out from head to toe and none of the doctors could tell me why. He has been rash free with the exception of one infraction almost two years ago and it helped a lot with language skills and some attention span but I am afraid his behaviors will get the best of him. I am now looking to start him on Applied Behavior therapy but his medicaid doesn't cover it so that is my other mission. I wonder what tests can be done that his insurance will cover to determine the levels of bacteria, viruses, fungus etc that maybe playing a role on his behavior and not sleeping? or even to see from a biomedical point what supplements he should be taking if he is deficient. Thanks for your help. I'm thankful this group is here.Lizzie Re: Not Sleeping! What to give? Reply to We used Natural Factors 3 mg sublingual tablets. I don't think they are time release. They have a minty tasty and I used to tell Stan it was his bedtime minty. He liked the taste and thought of it as a treat. It is important to keep the room as dark as possible. No night lights, dark curtains to keep street lamp light out. Cover clocks that are illuminated. I am not sure that the melatonin by itself would have been enough. Another important factor was getting rid of his acid reflux, stomach discomfort and parasites (tapeworm). He was so badly constipated at one time, I don't think anyone could sleep when they are badly backed up and have a fire burning in their intestines. If you can tell me more about your son's situation/behaviours in general, I will be happy to tell you any similarities to my son and what I did to help him feel better. May not work the same for you, but listening to other people's similar issues and fixes is how I came to figure what would work for Stan. PS 5 HTP may also be helpful. The body will convert it to serotonin and then to melatonin as needed. We started using this recently to try and reduce hand biting and head banging. We did give TR melatonin, did you give it to him (TR) when he woke and did he go back to sleep quickly & stay asleep? How much did you give? Thank you so much for responding, I am willing to try anything at this point,when he's awake so am I. :0( & gt; My son is not sleeping we & gt; have given melatonin it puts him to sleep quickly, however & gt; he wakes a few hours later, hyper & ready to go. Any & gt; ideas, we are doing Respen A & gt; & I think I remember no GABA. Please help us, as he is & gt; either very fussy or falls asleep in school. & gt; Thank you & gt; Nina & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
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