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Posted
Posted

Hi,

I just got the results back from my endo on my tests as I am hyperthyroid too.

It took them a long time to finally get it together on the diagnosis but after

all was said and done, I had the radiotherapy to render mine non-functional. The

results from last Thursday indicated that it is half way there.

I have to tell you that I was the most irritable, moody person I thought I could

ever be when my thyroid became overactive. I couldn't take anything, just the

least little thing and I jumped back at people.

Your TSH is stil suppressed, which indicates to me that you are having

hyperthyroid problems. Even though your T4 and T3 are normal doesn't always mean

that your are not hyper because to start with mine was in the normal range but

the TSH was always low, it wasn't until I had the Anti-Thyroid immune antibody

test that they REALLY told me what was going on and did something to help me. I

would suggest you get that tested as soon as possible.

As far as the Adrenels, I know that all glands are interated in some way, thus

the Endocrine system. I know the frustration about not knowing because I asked

the nurse to leave a message last Thurday when I saw the dr, but they would not

give him the message and said that it would be better to talk it over with the

dr. Well, my appt is not until Feb.20th and that is a long time to wait as I

explained to them but they still would not do anything about it, just said write

down everything you want to ask and talk it over with him. He used to call his

patients at the end of the day but he doesn't anymore, he lets his nurses take

care of all that. I will have to wait to see the answer to my question and that

is:

It was never clear to me the cause of my hyperthyroid problem and I noticed that

the last 2 times I saw him after I was diagnosised, the receipt had a code on

it, that code as I looked it up is the code for Graves disease. All I wanted to

know if I had Graves or not. My Autoimmunity is off the scale on the

Anti-thyroid antibodies, so I am almost sure it IS Graves but don't know 100%

and won't until a month and a half. I do have to go for labs in 10 days to let

him check the t4 and TSH again but he will not be seeing me, his nurse will just

call me with the results. I had lost so much weight I was hospitilized, was 81

1/2 pounds at 5' 8 " tall, have managed now to gain to 95 pounds but still

struggling.

I have difficulty swallowing and he told me that many of his hyperthyroid

patients complained of the same thing, that the muscles become weak in that area

causing it to become difficult to swallow but we shall see on that one.

I know this probably didn't help you much but I just wanted to let you know you

are not alone in your plight.

Vicky

_Group , " lillucysmama " <lilco@o...> wrote:

>

> I am 39 years old. I have had High blood pressure for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss

> of sex drive, restless, blurry vision, ittitable, forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at that

> time but, I am getting all of my results now for all of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has not

> done any Antibodies tests as of yet. And that If I feel the need to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end of

> my rope with this.......I am the kind of woman that challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4 yr.

> old!

> I'm missing out on so much like this!

>

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Guest guest

Guest guest

Posted
Posted

Hi,

I just got the results back from my endo on my tests as I am hyperthyroid too.

It took them a long time to finally get it together on the diagnosis but after

all was said and done, I had the radiotherapy to render mine non-functional. The

results from last Thursday indicated that it is half way there.

I have to tell you that I was the most irritable, moody person I thought I could

ever be when my thyroid became overactive. I couldn't take anything, just the

least little thing and I jumped back at people.

Your TSH is stil suppressed, which indicates to me that you are having

hyperthyroid problems. Even though your T4 and T3 are normal doesn't always mean

that your are not hyper because to start with mine was in the normal range but

the TSH was always low, it wasn't until I had the Anti-Thyroid immune antibody

test that they REALLY told me what was going on and did something to help me. I

would suggest you get that tested as soon as possible.

As far as the Adrenels, I know that all glands are interated in some way, thus

the Endocrine system. I know the frustration about not knowing because I asked

the nurse to leave a message last Thurday when I saw the dr, but they would not

give him the message and said that it would be better to talk it over with the

dr. Well, my appt is not until Feb.20th and that is a long time to wait as I

explained to them but they still would not do anything about it, just said write

down everything you want to ask and talk it over with him. He used to call his

patients at the end of the day but he doesn't anymore, he lets his nurses take

care of all that. I will have to wait to see the answer to my question and that

is:

It was never clear to me the cause of my hyperthyroid problem and I noticed that

the last 2 times I saw him after I was diagnosised, the receipt had a code on

it, that code as I looked it up is the code for Graves disease. All I wanted to

know if I had Graves or not. My Autoimmunity is off the scale on the

Anti-thyroid antibodies, so I am almost sure it IS Graves but don't know 100%

and won't until a month and a half. I do have to go for labs in 10 days to let

him check the t4 and TSH again but he will not be seeing me, his nurse will just

call me with the results. I had lost so much weight I was hospitilized, was 81

1/2 pounds at 5' 8 " tall, have managed now to gain to 95 pounds but still

struggling.

I have difficulty swallowing and he told me that many of his hyperthyroid

patients complained of the same thing, that the muscles become weak in that area

causing it to become difficult to swallow but we shall see on that one.

I know this probably didn't help you much but I just wanted to let you know you

are not alone in your plight.

Vicky

_Group , " lillucysmama " <lilco@o...> wrote:

>

> I am 39 years old. I have had High blood pressure for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss

> of sex drive, restless, blurry vision, ittitable, forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at that

> time but, I am getting all of my results now for all of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has not

> done any Antibodies tests as of yet. And that If I feel the need to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end of

> my rope with this.......I am the kind of woman that challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4 yr.

> old!

> I'm missing out on so much like this!

>

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Hello,

I am sorry I can not offer you any advice about your

medical condition, I am new to Hashimoto and still in

the process of educating myself about the medical

aspects of thyroid. I can, however, empathize with

the last lines of your email...the really frustrated

part. I used to ask myself, " Why do I feel crazy when

I know I am sane? " or " Why do I feel depressed when I

am not unhappy? " or " How the hell can I gain weight

from eating friggin' watermelon and swimming 4 days a

week? " or " Why does the sound of bird chirping sweetly

on my window pane piss me off royally? " My mother

asked me how I felt one day and I told her it was like

I was PMSing and smoking Crack at the same time while

the house is on fire, but all you want to do is sleep

(I don't really know what it's like to smoke Crack).

Unfortunately, this disease attacks you both

physically and emotionally, so once in awhile you got

to take a deep breath and take it for exactly what it

is. I have seen just from joining this group after

one day, the emotional aspects of this are just as

draining as the physical, so with that, I wish you the

best of luck and lots of deeep breaths.

MA

--- lillucysmama wrote:

> I am 39 years old. I have had High blood pressure

> for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago

> from My HBP not

> being properly treaded due to my choice to BF my

> youngest daughter.

> (allergic to all HBP meds That I could take during

> BF'ing)

>

> Since then I have (through hard work) lost most of

> the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause

> of HBP (April

> last year), They came accross a tumor on the

> adrinal. Saying it's

> not secreting.........also good sign....my reason

> for posting this

> is to see if any of you have heard of a connection

> with the thyroid

> and adrinal? I'm beginning to find some connections.

>

>

> About late May last year, I began to feel very

> tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the

> time, weak, Loss

> of sex drive, restless, blurry vision, ittitable,

> forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore

> muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy

> all the

> time.....

> Having GD during pregnancy and having dizzy spells,

> I thought I

> might be pregnant...........as I also began to

> vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said

> I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th

> day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized

> for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my

> levels were at that

> time but, I am getting all of my results now for all

> of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always

> on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy,

> and all of my

> horrible feelings were going away.....I thought,

> YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to

> drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but,

> she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three

> PTU pills a day,

> your numbers are off the chart " (Don't have those

> #'s yet)

>

> This is where I have been for a couple of months

> now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back

> on 22 lbs, over

> the past two months and don't understand it, Heavy

> periods, Some

> days anxious, nervous and hyper and the next, I'm

> completely

> exhausted.

> Like night and day difference.........The muscle

> aches are not as

> bad but, If I am in one spot too long, I'm so stiff

> and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an

> all around B & %

> $!

>

> I have asked her what the cause seems to

> be......graves......etc.

> and she said we'll discuss it at your next apt. And

> that she has not

> done any Antibodies tests as of yet. And that If I

> feel the need to

> have them done to call my PCP, and have them

> scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most

> recent test (last

> thurs) and she said the THS was low at 0.02, but

> that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again

> asked

> her........what does this mean? She said.......we'll

> discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking

> good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I

> have not had

> good communication and I'm seeing a new Endo on this

> week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out

> and at the end of

> my rope with this.......I am the kind of woman that

> challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

>

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't

> realize that there

> were other woman out there feeling as horrible as

> me......Please,

> Please someone, tell me that there is a light at the

> end of this

> tunnel I'm IN! I need someone to talk to that

> understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my

> own little 4 yr.

> old!

> I'm missing out on so much like this!

>

>

>

>

__________________________________________________

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hello,

I am sorry I can not offer you any advice about your

medical condition, I am new to Hashimoto and still in

the process of educating myself about the medical

aspects of thyroid. I can, however, empathize with

the last lines of your email...the really frustrated

part. I used to ask myself, " Why do I feel crazy when

I know I am sane? " or " Why do I feel depressed when I

am not unhappy? " or " How the hell can I gain weight

from eating friggin' watermelon and swimming 4 days a

week? " or " Why does the sound of bird chirping sweetly

on my window pane piss me off royally? " My mother

asked me how I felt one day and I told her it was like

I was PMSing and smoking Crack at the same time while

the house is on fire, but all you want to do is sleep

(I don't really know what it's like to smoke Crack).

Unfortunately, this disease attacks you both

physically and emotionally, so once in awhile you got

to take a deep breath and take it for exactly what it

is. I have seen just from joining this group after

one day, the emotional aspects of this are just as

draining as the physical, so with that, I wish you the

best of luck and lots of deeep breaths.

MA

--- lillucysmama wrote:

> I am 39 years old. I have had High blood pressure

> for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago

> from My HBP not

> being properly treaded due to my choice to BF my

> youngest daughter.

> (allergic to all HBP meds That I could take during

> BF'ing)

>

> Since then I have (through hard work) lost most of

> the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause

> of HBP (April

> last year), They came accross a tumor on the

> adrinal. Saying it's

> not secreting.........also good sign....my reason

> for posting this

> is to see if any of you have heard of a connection

> with the thyroid

> and adrinal? I'm beginning to find some connections.

>

>

> About late May last year, I began to feel very

> tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the

> time, weak, Loss

> of sex drive, restless, blurry vision, ittitable,

> forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore

> muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy

> all the

> time.....

> Having GD during pregnancy and having dizzy spells,

> I thought I

> might be pregnant...........as I also began to

> vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said

> I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th

> day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized

> for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my

> levels were at that

> time but, I am getting all of my results now for all

> of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always

> on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy,

> and all of my

> horrible feelings were going away.....I thought,

> YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to

> drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but,

> she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three

> PTU pills a day,

> your numbers are off the chart " (Don't have those

> #'s yet)

>

> This is where I have been for a couple of months

> now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back

> on 22 lbs, over

> the past two months and don't understand it, Heavy

> periods, Some

> days anxious, nervous and hyper and the next, I'm

> completely

> exhausted.

> Like night and day difference.........The muscle

> aches are not as

> bad but, If I am in one spot too long, I'm so stiff

> and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an

> all around B & %

> $!

>

> I have asked her what the cause seems to

> be......graves......etc.

> and she said we'll discuss it at your next apt. And

> that she has not

> done any Antibodies tests as of yet. And that If I

> feel the need to

> have them done to call my PCP, and have them

> scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most

> recent test (last

> thurs) and she said the THS was low at 0.02, but

> that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again

> asked

> her........what does this mean? She said.......we'll

> discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking

> good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I

> have not had

> good communication and I'm seeing a new Endo on this

> week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out

> and at the end of

> my rope with this.......I am the kind of woman that

> challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

>

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't

> realize that there

> were other woman out there feeling as horrible as

> me......Please,

> Please someone, tell me that there is a light at the

> end of this

> tunnel I'm IN! I need someone to talk to that

> understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my

> own little 4 yr.

> old!

> I'm missing out on so much like this!

>

>

>

>

__________________________________________________

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Guest guest

Posted
Posted

Hello,

I am sorry I can not offer you any advice about your

medical condition, I am new to Hashimoto and still in

the process of educating myself about the medical

aspects of thyroid. I can, however, empathize with

the last lines of your email...the really frustrated

part. I used to ask myself, " Why do I feel crazy when

I know I am sane? " or " Why do I feel depressed when I

am not unhappy? " or " How the hell can I gain weight

from eating friggin' watermelon and swimming 4 days a

week? " or " Why does the sound of bird chirping sweetly

on my window pane piss me off royally? " My mother

asked me how I felt one day and I told her it was like

I was PMSing and smoking Crack at the same time while

the house is on fire, but all you want to do is sleep

(I don't really know what it's like to smoke Crack).

Unfortunately, this disease attacks you both

physically and emotionally, so once in awhile you got

to take a deep breath and take it for exactly what it

is. I have seen just from joining this group after

one day, the emotional aspects of this are just as

draining as the physical, so with that, I wish you the

best of luck and lots of deeep breaths.

MA

--- lillucysmama wrote:

> I am 39 years old. I have had High blood pressure

> for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago

> from My HBP not

> being properly treaded due to my choice to BF my

> youngest daughter.

> (allergic to all HBP meds That I could take during

> BF'ing)

>

> Since then I have (through hard work) lost most of

> the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause

> of HBP (April

> last year), They came accross a tumor on the

> adrinal. Saying it's

> not secreting.........also good sign....my reason

> for posting this

> is to see if any of you have heard of a connection

> with the thyroid

> and adrinal? I'm beginning to find some connections.

>

>

> About late May last year, I began to feel very

> tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the

> time, weak, Loss

> of sex drive, restless, blurry vision, ittitable,

> forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore

> muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy

> all the

> time.....

> Having GD during pregnancy and having dizzy spells,

> I thought I

> might be pregnant...........as I also began to

> vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said

> I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th

> day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized

> for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my

> levels were at that

> time but, I am getting all of my results now for all

> of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always

> on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy,

> and all of my

> horrible feelings were going away.....I thought,

> YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to

> drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but,

> she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three

> PTU pills a day,

> your numbers are off the chart " (Don't have those

> #'s yet)

>

> This is where I have been for a couple of months

> now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back

> on 22 lbs, over

> the past two months and don't understand it, Heavy

> periods, Some

> days anxious, nervous and hyper and the next, I'm

> completely

> exhausted.

> Like night and day difference.........The muscle

> aches are not as

> bad but, If I am in one spot too long, I'm so stiff

> and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an

> all around B & %

> $!

>

> I have asked her what the cause seems to

> be......graves......etc.

> and she said we'll discuss it at your next apt. And

> that she has not

> done any Antibodies tests as of yet. And that If I

> feel the need to

> have them done to call my PCP, and have them

> scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most

> recent test (last

> thurs) and she said the THS was low at 0.02, but

> that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again

> asked

> her........what does this mean? She said.......we'll

> discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking

> good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I

> have not had

> good communication and I'm seeing a new Endo on this

> week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out

> and at the end of

> my rope with this.......I am the kind of woman that

> challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

>

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't

> realize that there

> were other woman out there feeling as horrible as

> me......Please,

> Please someone, tell me that there is a light at the

> end of this

> tunnel I'm IN! I need someone to talk to that

> understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my

> own little 4 yr.

> old!

> I'm missing out on so much like this!

>

>

>

>

__________________________________________________

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Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi....

First... what is 'GD' and what is 'BF'ing'?

Okay..... chances are you have Grave's.... BUT without antibody testing you can't be sure if it's Grave's or a hyper swing of Hashi's (Hashimoto's Thyroiditis)

It is possible to have both Grave's and Hashi's antibodies at the same time.

Treatment for hyper Hashi's and treatment for Grave's are not exactly the same.

For the tests that you've had so far, give us a list of everything you've had so far... make sure that you include the lab's ranges for them... We need to know where your levels fall in the range of the test that your lab took, except for TSH, that is a standard test and we know the range for that, it was changed over three years ago and is now .3 to 3.0.

With your next round of labs..... I'd suggest

TSH

Free T4

Free T3

thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

Ferritin

B-12

and adrenal.

*************

T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent)

************

THS 0.02,

T4 and T3 were normal, T4 being 1.0 and T3 being .123

******************

For the numbers that you've given us so far.....

Free T4 in the first one is showing too low in it's range, hypo, T3 uptake is an outdated and pretty much useless test.

In the second round if those were Total T4 and T3.. we need the ranges... if they were Free T4 and T3, the range for the Free T4, assuming it's the same as the first one, shows that the Free T4 is too low in it's range, hypo.

Oh... is BF Breast Feeding?

There is a STRONG link between messed up thyroid function (high or low) and adrenal fatigue.. so much so that adrenal function should actually be addressed before thyroid function... but most docs don't do it...

A lot of docs are clueless about this stuff... it's up to us to learn and understand it and then find a doc that is willing to work with us and not just be..... dumb

See if you can pull all your labs together.. so that we can see what the doc is testing and then we'll go from there.....

It takes some figuring out... lets get to work...

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Tue, 17 Jan 2006 02:40:50 -0000 "lillucysmama" writes:

I am 39 years old. I have had High blood pressure for about 6 years, Was diagnosed with an enlarged heart 3 years ago from My HBP not being properly treaded due to my choice to BF my youngest daughter. (allergic to all HBP meds That I could take during BF'ing) Since then I have (through hard work) lost most of the enlargement on my heart.(Good news) During a CT to check my Adrinals for possible cause of HBP (April last year), They came accross a tumor on the adrinal. Saying it's not secreting.........also good sign....my reason for posting this is to see if any of you have heard of a connection with the thyroid and adrinal? I'm beginning to find some connections. About late May last year, I began to feel very tired, breathless, (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss of sex drive, restless, blurry vision, ittitable, forgetful, noticed my wounds didn't heal as fast, itchy skin, sore muscles and joints.....all coming on fast. About the first week in June, I began to feel dizzy all the time..... Having GD during pregnancy and having dizzy spells, I thought I might be pregnant...........as I also began to vomit....but, not the case. The vomiting continued and I saw my PCP and she said I just had the flu and sent me home. The vomiting continued for 15 days and On that 15th day I began to shake uncontrollably....Vomiting constantly. I was taken to the emergency room and hospitalized for a week and Lost 35 lbs. Conculsion? Hyperthyroid.....Don't know what my levels were at that time but, I am getting all of my results now for all of the testing that has been done on me. I was sent home taking Toprol XL 100mg (I was always on 50 mg's until this for my HBP) and PTU 50 MG, 4x daily. I felt great the first few weeks, I had good energy, and all of my horrible feelings were going away.....I thought, YEAH, I got this one licked! Went for blood work and my Endo said.....I needed to drop to 1 pill a day. I thought, Wow, that's a drastic change in meds but, she's the Dr. Ok...I did and I began to feel horrible again....... levels this time......T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent) Don't know what this means.........anyway, Again another blood test and she said "go to three PTU pills a day, your numbers are off the chart" (Don't have those #'s yet) This is where I have been for a couple of months now, and I feel better in some ways but, horrible in others! The thing is, I'm gaining weight as well, Put back on 22 lbs, over the past two months and don't understand it, Heavy periods, Some days anxious, nervous and hyper and the next, I'm completely exhausted. Like night and day difference.........The muscle aches are not as bad but, If I am in one spot too long, I'm so stiff and sore, walking like an 80 year old. I feel like I'm going to snap. Angry, moody, Just an all around B & %$! I have asked her what the cause seems to be......graves......etc. and she said we'll discuss it at your next apt. And that she has not done any Antibodies tests as of yet. And that If I feel the need to have them done to call my PCP, and have them scheduled. I am doing this tomorrow. I also asked her what my levels were at my most recent test (last thurs) and she said the THS was low at 0.02, but that the T4 and T3 were normal, T4 being 1.0 and T3 being .123..........I again asked her........what does this mean? She said.......we'll discuss all of this at your next apt. I wan't to know NOW!!!!!! SO WHY? do I feel so bad? Why are my levels looking good to her and I'm feeling so horrible? At times I feel hyper and hypo at the same time. I'm just beginning to research this as My Endo and I have not had good communication and I'm seeing a new Endo on this week for a second opinion. My life is just a mess.........I'm so stressed out and at the end of my rope with this.......I am the kind of woman that challanges "the full Plate" way of life and CAN'T HANDLE anymore...! WHAT IS WRONG WIHT ME?!? I'm so sorry this was so long....I just didn't realize that there were other woman out there feeling as horrible as me......Please, Please someone, tell me that there is a light at the end of this tunnel I'm IN! I need someone to talk to that understands what I'm feeling..... I wan't to enjoy my New grandchildren as well as my own little 4 yr. old! I'm missing out on so much like this!

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi....

First... what is 'GD' and what is 'BF'ing'?

Okay..... chances are you have Grave's.... BUT without antibody testing you can't be sure if it's Grave's or a hyper swing of Hashi's (Hashimoto's Thyroiditis)

It is possible to have both Grave's and Hashi's antibodies at the same time.

Treatment for hyper Hashi's and treatment for Grave's are not exactly the same.

For the tests that you've had so far, give us a list of everything you've had so far... make sure that you include the lab's ranges for them... We need to know where your levels fall in the range of the test that your lab took, except for TSH, that is a standard test and we know the range for that, it was changed over three years ago and is now .3 to 3.0.

With your next round of labs..... I'd suggest

TSH

Free T4

Free T3

thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

Ferritin

B-12

and adrenal.

*************

T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent)

************

THS 0.02,

T4 and T3 were normal, T4 being 1.0 and T3 being .123

******************

For the numbers that you've given us so far.....

Free T4 in the first one is showing too low in it's range, hypo, T3 uptake is an outdated and pretty much useless test.

In the second round if those were Total T4 and T3.. we need the ranges... if they were Free T4 and T3, the range for the Free T4, assuming it's the same as the first one, shows that the Free T4 is too low in it's range, hypo.

Oh... is BF Breast Feeding?

There is a STRONG link between messed up thyroid function (high or low) and adrenal fatigue.. so much so that adrenal function should actually be addressed before thyroid function... but most docs don't do it...

A lot of docs are clueless about this stuff... it's up to us to learn and understand it and then find a doc that is willing to work with us and not just be..... dumb

See if you can pull all your labs together.. so that we can see what the doc is testing and then we'll go from there.....

It takes some figuring out... lets get to work...

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Tue, 17 Jan 2006 02:40:50 -0000 "lillucysmama" writes:

I am 39 years old. I have had High blood pressure for about 6 years, Was diagnosed with an enlarged heart 3 years ago from My HBP not being properly treaded due to my choice to BF my youngest daughter. (allergic to all HBP meds That I could take during BF'ing) Since then I have (through hard work) lost most of the enlargement on my heart.(Good news) During a CT to check my Adrinals for possible cause of HBP (April last year), They came accross a tumor on the adrinal. Saying it's not secreting.........also good sign....my reason for posting this is to see if any of you have heard of a connection with the thyroid and adrinal? I'm beginning to find some connections. About late May last year, I began to feel very tired, breathless, (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss of sex drive, restless, blurry vision, ittitable, forgetful, noticed my wounds didn't heal as fast, itchy skin, sore muscles and joints.....all coming on fast. About the first week in June, I began to feel dizzy all the time..... Having GD during pregnancy and having dizzy spells, I thought I might be pregnant...........as I also began to vomit....but, not the case. The vomiting continued and I saw my PCP and she said I just had the flu and sent me home. The vomiting continued for 15 days and On that 15th day I began to shake uncontrollably....Vomiting constantly. I was taken to the emergency room and hospitalized for a week and Lost 35 lbs. Conculsion? Hyperthyroid.....Don't know what my levels were at that time but, I am getting all of my results now for all of the testing that has been done on me. I was sent home taking Toprol XL 100mg (I was always on 50 mg's until this for my HBP) and PTU 50 MG, 4x daily. I felt great the first few weeks, I had good energy, and all of my horrible feelings were going away.....I thought, YEAH, I got this one licked! Went for blood work and my Endo said.....I needed to drop to 1 pill a day. I thought, Wow, that's a drastic change in meds but, she's the Dr. Ok...I did and I began to feel horrible again....... levels this time......T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent) Don't know what this means.........anyway, Again another blood test and she said "go to three PTU pills a day, your numbers are off the chart" (Don't have those #'s yet) This is where I have been for a couple of months now, and I feel better in some ways but, horrible in others! The thing is, I'm gaining weight as well, Put back on 22 lbs, over the past two months and don't understand it, Heavy periods, Some days anxious, nervous and hyper and the next, I'm completely exhausted. Like night and day difference.........The muscle aches are not as bad but, If I am in one spot too long, I'm so stiff and sore, walking like an 80 year old. I feel like I'm going to snap. Angry, moody, Just an all around B & %$! I have asked her what the cause seems to be......graves......etc. and she said we'll discuss it at your next apt. And that she has not done any Antibodies tests as of yet. And that If I feel the need to have them done to call my PCP, and have them scheduled. I am doing this tomorrow. I also asked her what my levels were at my most recent test (last thurs) and she said the THS was low at 0.02, but that the T4 and T3 were normal, T4 being 1.0 and T3 being .123..........I again asked her........what does this mean? She said.......we'll discuss all of this at your next apt. I wan't to know NOW!!!!!! SO WHY? do I feel so bad? Why are my levels looking good to her and I'm feeling so horrible? At times I feel hyper and hypo at the same time. I'm just beginning to research this as My Endo and I have not had good communication and I'm seeing a new Endo on this week for a second opinion. My life is just a mess.........I'm so stressed out and at the end of my rope with this.......I am the kind of woman that challanges "the full Plate" way of life and CAN'T HANDLE anymore...! WHAT IS WRONG WIHT ME?!? I'm so sorry this was so long....I just didn't realize that there were other woman out there feeling as horrible as me......Please, Please someone, tell me that there is a light at the end of this tunnel I'm IN! I need someone to talk to that understands what I'm feeling..... I wan't to enjoy my New grandchildren as well as my own little 4 yr. old! I'm missing out on so much like this!

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Hi....

First... what is 'GD' and what is 'BF'ing'?

Okay..... chances are you have Grave's.... BUT without antibody testing you can't be sure if it's Grave's or a hyper swing of Hashi's (Hashimoto's Thyroiditis)

It is possible to have both Grave's and Hashi's antibodies at the same time.

Treatment for hyper Hashi's and treatment for Grave's are not exactly the same.

For the tests that you've had so far, give us a list of everything you've had so far... make sure that you include the lab's ranges for them... We need to know where your levels fall in the range of the test that your lab took, except for TSH, that is a standard test and we know the range for that, it was changed over three years ago and is now .3 to 3.0.

With your next round of labs..... I'd suggest

TSH

Free T4

Free T3

thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

Ferritin

B-12

and adrenal.

*************

T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent)

************

THS 0.02,

T4 and T3 were normal, T4 being 1.0 and T3 being .123

******************

For the numbers that you've given us so far.....

Free T4 in the first one is showing too low in it's range, hypo, T3 uptake is an outdated and pretty much useless test.

In the second round if those were Total T4 and T3.. we need the ranges... if they were Free T4 and T3, the range for the Free T4, assuming it's the same as the first one, shows that the Free T4 is too low in it's range, hypo.

Oh... is BF Breast Feeding?

There is a STRONG link between messed up thyroid function (high or low) and adrenal fatigue.. so much so that adrenal function should actually be addressed before thyroid function... but most docs don't do it...

A lot of docs are clueless about this stuff... it's up to us to learn and understand it and then find a doc that is willing to work with us and not just be..... dumb

See if you can pull all your labs together.. so that we can see what the doc is testing and then we'll go from there.....

It takes some figuring out... lets get to work...

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Tue, 17 Jan 2006 02:40:50 -0000 "lillucysmama" writes:

I am 39 years old. I have had High blood pressure for about 6 years, Was diagnosed with an enlarged heart 3 years ago from My HBP not being properly treaded due to my choice to BF my youngest daughter. (allergic to all HBP meds That I could take during BF'ing) Since then I have (through hard work) lost most of the enlargement on my heart.(Good news) During a CT to check my Adrinals for possible cause of HBP (April last year), They came accross a tumor on the adrinal. Saying it's not secreting.........also good sign....my reason for posting this is to see if any of you have heard of a connection with the thyroid and adrinal? I'm beginning to find some connections. About late May last year, I began to feel very tired, breathless, (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss of sex drive, restless, blurry vision, ittitable, forgetful, noticed my wounds didn't heal as fast, itchy skin, sore muscles and joints.....all coming on fast. About the first week in June, I began to feel dizzy all the time..... Having GD during pregnancy and having dizzy spells, I thought I might be pregnant...........as I also began to vomit....but, not the case. The vomiting continued and I saw my PCP and she said I just had the flu and sent me home. The vomiting continued for 15 days and On that 15th day I began to shake uncontrollably....Vomiting constantly. I was taken to the emergency room and hospitalized for a week and Lost 35 lbs. Conculsion? Hyperthyroid.....Don't know what my levels were at that time but, I am getting all of my results now for all of the testing that has been done on me. I was sent home taking Toprol XL 100mg (I was always on 50 mg's until this for my HBP) and PTU 50 MG, 4x daily. I felt great the first few weeks, I had good energy, and all of my horrible feelings were going away.....I thought, YEAH, I got this one licked! Went for blood work and my Endo said.....I needed to drop to 1 pill a day. I thought, Wow, that's a drastic change in meds but, she's the Dr. Ok...I did and I began to feel horrible again....... levels this time......T4, Free 0.9 (0.8-1/8 ng/dl) THS....... .01 T3 UPTAKE 34.2 (27.8-40.7 percent) Don't know what this means.........anyway, Again another blood test and she said "go to three PTU pills a day, your numbers are off the chart" (Don't have those #'s yet) This is where I have been for a couple of months now, and I feel better in some ways but, horrible in others! The thing is, I'm gaining weight as well, Put back on 22 lbs, over the past two months and don't understand it, Heavy periods, Some days anxious, nervous and hyper and the next, I'm completely exhausted. Like night and day difference.........The muscle aches are not as bad but, If I am in one spot too long, I'm so stiff and sore, walking like an 80 year old. I feel like I'm going to snap. Angry, moody, Just an all around B & %$! I have asked her what the cause seems to be......graves......etc. and she said we'll discuss it at your next apt. And that she has not done any Antibodies tests as of yet. And that If I feel the need to have them done to call my PCP, and have them scheduled. I am doing this tomorrow. I also asked her what my levels were at my most recent test (last thurs) and she said the THS was low at 0.02, but that the T4 and T3 were normal, T4 being 1.0 and T3 being .123..........I again asked her........what does this mean? She said.......we'll discuss all of this at your next apt. I wan't to know NOW!!!!!! SO WHY? do I feel so bad? Why are my levels looking good to her and I'm feeling so horrible? At times I feel hyper and hypo at the same time. I'm just beginning to research this as My Endo and I have not had good communication and I'm seeing a new Endo on this week for a second opinion. My life is just a mess.........I'm so stressed out and at the end of my rope with this.......I am the kind of woman that challanges "the full Plate" way of life and CAN'T HANDLE anymore...! WHAT IS WRONG WIHT ME?!? I'm so sorry this was so long....I just didn't realize that there were other woman out there feeling as horrible as me......Please, Please someone, tell me that there is a light at the end of this tunnel I'm IN! I need someone to talk to that understands what I'm feeling..... I wan't to enjoy my New grandchildren as well as my own little 4 yr. old! I'm missing out on so much like this!

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Posted
Posted

I am glad you are seeing a new endo, hopefully you can be monitored

properly.

A few questions? You had GD during pregnancy? Did yo uhave antibody

testing done to confirm this ?

Because of Antibodies TSH can stay suppressed even with normal

thyroid function so do not let the doctor keep you at a high dose.

It sounds to me like you maybe over medicated as your Free's are on

the low side?

What dose of PTU are you taking and are you taking it three times a

day?

How long have you been on the PTU and has the doctor lowered the BP

meds when your free's dropped back into normal?

GD usually will lessen during pregnancy, the body's way of

protecting the unborn but after prgnancy it usually comes back full

force..did you or have you had folow up labs after pregnancy?

Can you post the last couple sets of labs as well as any meds you

are on including timing of meds and strength..

Kats3boys

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Posted
Posted

I am glad you are seeing a new endo, hopefully you can be monitored

properly.

A few questions? You had GD during pregnancy? Did yo uhave antibody

testing done to confirm this ?

Because of Antibodies TSH can stay suppressed even with normal

thyroid function so do not let the doctor keep you at a high dose.

It sounds to me like you maybe over medicated as your Free's are on

the low side?

What dose of PTU are you taking and are you taking it three times a

day?

How long have you been on the PTU and has the doctor lowered the BP

meds when your free's dropped back into normal?

GD usually will lessen during pregnancy, the body's way of

protecting the unborn but after prgnancy it usually comes back full

force..did you or have you had folow up labs after pregnancy?

Can you post the last couple sets of labs as well as any meds you

are on including timing of meds and strength..

Kats3boys

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Posted
Posted

I am glad you are seeing a new endo, hopefully you can be monitored

properly.

A few questions? You had GD during pregnancy? Did yo uhave antibody

testing done to confirm this ?

Because of Antibodies TSH can stay suppressed even with normal

thyroid function so do not let the doctor keep you at a high dose.

It sounds to me like you maybe over medicated as your Free's are on

the low side?

What dose of PTU are you taking and are you taking it three times a

day?

How long have you been on the PTU and has the doctor lowered the BP

meds when your free's dropped back into normal?

GD usually will lessen during pregnancy, the body's way of

protecting the unborn but after prgnancy it usually comes back full

force..did you or have you had folow up labs after pregnancy?

Can you post the last couple sets of labs as well as any meds you

are on including timing of meds and strength..

Kats3boys

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Posted
Posted

I just got that..... whooshed over my head the first time...

thanks Kat.

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Tue, 17 Jan 2006 19:11:49 -0000 "kats3boys" writes:

> First... what is 'GD' and what is 'BF'ing'?BF is breast feeding.GD is grave's Disease.

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Posted
Posted

I just got that..... whooshed over my head the first time...

thanks Kat.

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Tue, 17 Jan 2006 19:11:49 -0000 "kats3boys" writes:

> First... what is 'GD' and what is 'BF'ing'?BF is breast feeding.GD is grave's Disease.

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Posted
Posted

Vicky, Thanks so much for your response. It's nice to know that I'm

not alone in this.......Support is a wonderful thing and I'm sorry

you are going through this as well.

(((HUGS))) and thanks again.

> >

> > I am 39 years old. I have had High blood pressure for about 6

years,

> > Was diagnosed with an enlarged heart 3 years ago from My HBP not

> > being properly treaded due to my choice to BF my youngest

daughter.

> > (allergic to all HBP meds That I could take during BF'ing)

> >

> > Since then I have (through hard work) lost most of the

enlargement

> > on my heart.(Good news)

> >

> > During a CT to check my Adrinals for possible cause of HBP

(April

> > last year), They came accross a tumor on the adrinal. Saying

it's

> > not secreting.........also good sign....my reason for posting

this

> > is to see if any of you have heard of a connection with the

thyroid

> > and adrinal? I'm beginning to find some connections.

> >

> > About late May last year, I began to feel very tired,

breathless,

> > (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> > of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> > my wounds didn't heal as fast, itchy skin, sore muscles and

> > joints.....all coming on fast.

> >

> > About the first week in June, I began to feel dizzy all the

> > time.....

> > Having GD during pregnancy and having dizzy spells, I thought I

> > might be pregnant...........as I also began to vomit....but, not

the

> > case.

> >

> > The vomiting continued and I saw my PCP and she said I just had

the

> > flu and sent me home.

> > The vomiting continued for 15 days and On that 15th day I began

to

> > shake uncontrollably....Vomiting constantly.

> > I was taken to the emergency room and hospitalized for a week

and

> > Lost 35 lbs.

> >

> > Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> > time but, I am getting all of my results now for all of the

testing

> > that has been done on me.

> >

> > I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> > until this for my HBP) and PTU 50 MG, 4x daily.

> >

> > I felt great the first few weeks, I had good energy, and all of

my

> > horrible feelings were going away.....I thought, YEAH, I got

this

> > one licked!

> >

> > Went for blood work and my Endo said.....I needed to drop to 1

pill

> > a day.

> > I thought, Wow, that's a drastic change in meds but, she's the

Dr.

> >

> > Ok...I did and I began to feel horrible again.......

> >

> > levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> > THS....... .01

> > T3 UPTAKE 34.2 (27.8-40.7 percent)

> > Don't know what this means.........anyway,

> >

> > Again another blood test and she said " go to three PTU pills a

day,

> > your numbers are off the chart " (Don't have those #'s yet)

> >

> > This is where I have been for a couple of months now, and I feel

> > better in some ways but, horrible in others!

> > The thing is, I'm gaining weight as well, Put back on 22 lbs,

over

> > the past two months and don't understand it, Heavy periods, Some

> > days anxious, nervous and hyper and the next, I'm completely

> > exhausted.

> > Like night and day difference.........The muscle aches are not

as

> > bad but, If I am in one spot too long, I'm so stiff and sore,

> > walking like an 80 year old.

> >

> >

> > I feel like I'm going to snap. Angry, moody, Just an all around

B & %

> > $!

> >

> > I have asked her what the cause seems to

be......graves......etc.

> > and she said we'll discuss it at your next apt. And that she has

not

> > done any Antibodies tests as of yet. And that If I feel the need

to

> > have them done to call my PCP, and have them scheduled. I am

doing

> > this tomorrow.

> >

> >

> > I also asked her what my levels were at my most recent test

(last

> > thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> > were normal,

> > T4 being 1.0 and T3 being .123..........I again asked

> > her........what does this mean? She said.......we'll discuss all

of

> > this at your next apt.

> >

> > I wan't to know NOW!!!!!!

> >

> >

> > SO WHY? do I feel so bad? Why are my levels looking good to her

and

> > I'm feeling so horrible?

> >

> > At times I feel hyper and hypo at the same time.

> >

> > I'm just beginning to research this as My Endo and I have not

had

> > good communication and I'm seeing a new Endo on this week for a

> > second opinion.

> >

> > My life is just a mess.........I'm so stressed out and at the

end of

> > my rope with this.......I am the kind of woman that

challanges " the

> > full Plate " way of life and CAN'T HANDLE anymore...!

> > WHAT IS WRONG WIHT ME?!?

> >

> > I'm so sorry this was so long....I just didn't realize that

there

> > were other woman out there feeling as horrible as

me......Please,

> > Please someone, tell me that there is a light at the end of this

> > tunnel I'm IN! I need someone to talk to that understands what

I'm

> > feeling.....

> >

> > I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> > old!

> > I'm missing out on so much like this!

> >

>

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Posted
Posted

Vicky, Thanks so much for your response. It's nice to know that I'm

not alone in this.......Support is a wonderful thing and I'm sorry

you are going through this as well.

(((HUGS))) and thanks again.

> >

> > I am 39 years old. I have had High blood pressure for about 6

years,

> > Was diagnosed with an enlarged heart 3 years ago from My HBP not

> > being properly treaded due to my choice to BF my youngest

daughter.

> > (allergic to all HBP meds That I could take during BF'ing)

> >

> > Since then I have (through hard work) lost most of the

enlargement

> > on my heart.(Good news)

> >

> > During a CT to check my Adrinals for possible cause of HBP

(April

> > last year), They came accross a tumor on the adrinal. Saying

it's

> > not secreting.........also good sign....my reason for posting

this

> > is to see if any of you have heard of a connection with the

thyroid

> > and adrinal? I'm beginning to find some connections.

> >

> > About late May last year, I began to feel very tired,

breathless,

> > (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> > of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> > my wounds didn't heal as fast, itchy skin, sore muscles and

> > joints.....all coming on fast.

> >

> > About the first week in June, I began to feel dizzy all the

> > time.....

> > Having GD during pregnancy and having dizzy spells, I thought I

> > might be pregnant...........as I also began to vomit....but, not

the

> > case.

> >

> > The vomiting continued and I saw my PCP and she said I just had

the

> > flu and sent me home.

> > The vomiting continued for 15 days and On that 15th day I began

to

> > shake uncontrollably....Vomiting constantly.

> > I was taken to the emergency room and hospitalized for a week

and

> > Lost 35 lbs.

> >

> > Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> > time but, I am getting all of my results now for all of the

testing

> > that has been done on me.

> >

> > I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> > until this for my HBP) and PTU 50 MG, 4x daily.

> >

> > I felt great the first few weeks, I had good energy, and all of

my

> > horrible feelings were going away.....I thought, YEAH, I got

this

> > one licked!

> >

> > Went for blood work and my Endo said.....I needed to drop to 1

pill

> > a day.

> > I thought, Wow, that's a drastic change in meds but, she's the

Dr.

> >

> > Ok...I did and I began to feel horrible again.......

> >

> > levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> > THS....... .01

> > T3 UPTAKE 34.2 (27.8-40.7 percent)

> > Don't know what this means.........anyway,

> >

> > Again another blood test and she said " go to three PTU pills a

day,

> > your numbers are off the chart " (Don't have those #'s yet)

> >

> > This is where I have been for a couple of months now, and I feel

> > better in some ways but, horrible in others!

> > The thing is, I'm gaining weight as well, Put back on 22 lbs,

over

> > the past two months and don't understand it, Heavy periods, Some

> > days anxious, nervous and hyper and the next, I'm completely

> > exhausted.

> > Like night and day difference.........The muscle aches are not

as

> > bad but, If I am in one spot too long, I'm so stiff and sore,

> > walking like an 80 year old.

> >

> >

> > I feel like I'm going to snap. Angry, moody, Just an all around

B & %

> > $!

> >

> > I have asked her what the cause seems to

be......graves......etc.

> > and she said we'll discuss it at your next apt. And that she has

not

> > done any Antibodies tests as of yet. And that If I feel the need

to

> > have them done to call my PCP, and have them scheduled. I am

doing

> > this tomorrow.

> >

> >

> > I also asked her what my levels were at my most recent test

(last

> > thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> > were normal,

> > T4 being 1.0 and T3 being .123..........I again asked

> > her........what does this mean? She said.......we'll discuss all

of

> > this at your next apt.

> >

> > I wan't to know NOW!!!!!!

> >

> >

> > SO WHY? do I feel so bad? Why are my levels looking good to her

and

> > I'm feeling so horrible?

> >

> > At times I feel hyper and hypo at the same time.

> >

> > I'm just beginning to research this as My Endo and I have not

had

> > good communication and I'm seeing a new Endo on this week for a

> > second opinion.

> >

> > My life is just a mess.........I'm so stressed out and at the

end of

> > my rope with this.......I am the kind of woman that

challanges " the

> > full Plate " way of life and CAN'T HANDLE anymore...!

> > WHAT IS WRONG WIHT ME?!?

> >

> > I'm so sorry this was so long....I just didn't realize that

there

> > were other woman out there feeling as horrible as

me......Please,

> > Please someone, tell me that there is a light at the end of this

> > tunnel I'm IN! I need someone to talk to that understands what

I'm

> > feeling.....

> >

> > I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> > old!

> > I'm missing out on so much like this!

> >

>

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Posted
Posted

Vicky, Thanks so much for your response. It's nice to know that I'm

not alone in this.......Support is a wonderful thing and I'm sorry

you are going through this as well.

(((HUGS))) and thanks again.

> >

> > I am 39 years old. I have had High blood pressure for about 6

years,

> > Was diagnosed with an enlarged heart 3 years ago from My HBP not

> > being properly treaded due to my choice to BF my youngest

daughter.

> > (allergic to all HBP meds That I could take during BF'ing)

> >

> > Since then I have (through hard work) lost most of the

enlargement

> > on my heart.(Good news)

> >

> > During a CT to check my Adrinals for possible cause of HBP

(April

> > last year), They came accross a tumor on the adrinal. Saying

it's

> > not secreting.........also good sign....my reason for posting

this

> > is to see if any of you have heard of a connection with the

thyroid

> > and adrinal? I'm beginning to find some connections.

> >

> > About late May last year, I began to feel very tired,

breathless,

> > (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> > of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> > my wounds didn't heal as fast, itchy skin, sore muscles and

> > joints.....all coming on fast.

> >

> > About the first week in June, I began to feel dizzy all the

> > time.....

> > Having GD during pregnancy and having dizzy spells, I thought I

> > might be pregnant...........as I also began to vomit....but, not

the

> > case.

> >

> > The vomiting continued and I saw my PCP and she said I just had

the

> > flu and sent me home.

> > The vomiting continued for 15 days and On that 15th day I began

to

> > shake uncontrollably....Vomiting constantly.

> > I was taken to the emergency room and hospitalized for a week

and

> > Lost 35 lbs.

> >

> > Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> > time but, I am getting all of my results now for all of the

testing

> > that has been done on me.

> >

> > I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> > until this for my HBP) and PTU 50 MG, 4x daily.

> >

> > I felt great the first few weeks, I had good energy, and all of

my

> > horrible feelings were going away.....I thought, YEAH, I got

this

> > one licked!

> >

> > Went for blood work and my Endo said.....I needed to drop to 1

pill

> > a day.

> > I thought, Wow, that's a drastic change in meds but, she's the

Dr.

> >

> > Ok...I did and I began to feel horrible again.......

> >

> > levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> > THS....... .01

> > T3 UPTAKE 34.2 (27.8-40.7 percent)

> > Don't know what this means.........anyway,

> >

> > Again another blood test and she said " go to three PTU pills a

day,

> > your numbers are off the chart " (Don't have those #'s yet)

> >

> > This is where I have been for a couple of months now, and I feel

> > better in some ways but, horrible in others!

> > The thing is, I'm gaining weight as well, Put back on 22 lbs,

over

> > the past two months and don't understand it, Heavy periods, Some

> > days anxious, nervous and hyper and the next, I'm completely

> > exhausted.

> > Like night and day difference.........The muscle aches are not

as

> > bad but, If I am in one spot too long, I'm so stiff and sore,

> > walking like an 80 year old.

> >

> >

> > I feel like I'm going to snap. Angry, moody, Just an all around

B & %

> > $!

> >

> > I have asked her what the cause seems to

be......graves......etc.

> > and she said we'll discuss it at your next apt. And that she has

not

> > done any Antibodies tests as of yet. And that If I feel the need

to

> > have them done to call my PCP, and have them scheduled. I am

doing

> > this tomorrow.

> >

> >

> > I also asked her what my levels were at my most recent test

(last

> > thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> > were normal,

> > T4 being 1.0 and T3 being .123..........I again asked

> > her........what does this mean? She said.......we'll discuss all

of

> > this at your next apt.

> >

> > I wan't to know NOW!!!!!!

> >

> >

> > SO WHY? do I feel so bad? Why are my levels looking good to her

and

> > I'm feeling so horrible?

> >

> > At times I feel hyper and hypo at the same time.

> >

> > I'm just beginning to research this as My Endo and I have not

had

> > good communication and I'm seeing a new Endo on this week for a

> > second opinion.

> >

> > My life is just a mess.........I'm so stressed out and at the

end of

> > my rope with this.......I am the kind of woman that

challanges " the

> > full Plate " way of life and CAN'T HANDLE anymore...!

> > WHAT IS WRONG WIHT ME?!?

> >

> > I'm so sorry this was so long....I just didn't realize that

there

> > were other woman out there feeling as horrible as

me......Please,

> > Please someone, tell me that there is a light at the end of this

> > tunnel I'm IN! I need someone to talk to that understands what

I'm

> > feeling.....

> >

> > I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> > old!

> > I'm missing out on so much like this!

> >

>

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Posted
Posted

Yes,Yes,YES! That is me!

LOL, you just put the biggest smile on my face.......Thank you

Ann!

>

> > I am 39 years old. I have had High blood pressure

> > for about 6 years,

> > Was diagnosed with an enlarged heart 3 years ago

> > from My HBP not

> > being properly treaded due to my choice to BF my

> > youngest daughter.

> > (allergic to all HBP meds That I could take during

> > BF'ing)

> >

> > Since then I have (through hard work) lost most of

> > the enlargement

> > on my heart.(Good news)

> >

> > During a CT to check my Adrinals for possible cause

> > of HBP (April

> > last year), They came accross a tumor on the

> > adrinal. Saying it's

> > not secreting.........also good sign....my reason

> > for posting this

> > is to see if any of you have heard of a connection

> > with the thyroid

> > and adrinal? I'm beginning to find some connections.

> >

> >

> > About late May last year, I began to feel very

> > tired, breathless,

> > (just tieing my shoes laces) fatigued, Hot all the

> > time, weak, Loss

> > of sex drive, restless, blurry vision, ittitable,

> > forgetful, noticed

> > my wounds didn't heal as fast, itchy skin, sore

> > muscles and

> > joints.....all coming on fast.

> >

> > About the first week in June, I began to feel dizzy

> > all the

> > time.....

> > Having GD during pregnancy and having dizzy spells,

> > I thought I

> > might be pregnant...........as I also began to

> > vomit....but, not the

> > case.

> >

> > The vomiting continued and I saw my PCP and she said

> > I just had the

> > flu and sent me home.

> > The vomiting continued for 15 days and On that 15th

> > day I began to

> > shake uncontrollably....Vomiting constantly.

> > I was taken to the emergency room and hospitalized

> > for a week and

> > Lost 35 lbs.

> >

> > Conculsion? Hyperthyroid.....Don't know what my

> > levels were at that

> > time but, I am getting all of my results now for all

> > of the testing

> > that has been done on me.

> >

> > I was sent home taking Toprol XL 100mg (I was always

> > on 50 mg's

> > until this for my HBP) and PTU 50 MG, 4x daily.

> >

> > I felt great the first few weeks, I had good energy,

> > and all of my

> > horrible feelings were going away.....I thought,

> > YEAH, I got this

> > one licked!

> >

> > Went for blood work and my Endo said.....I needed to

> > drop to 1 pill

> > a day.

> > I thought, Wow, that's a drastic change in meds but,

> > she's the Dr.

> >

> > Ok...I did and I began to feel horrible again.......

> >

> >

> > levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> > THS....... .01

> > T3 UPTAKE 34.2 (27.8-40.7 percent)

> > Don't know what this means.........anyway,

> >

> > Again another blood test and she said " go to three

> > PTU pills a day,

> > your numbers are off the chart " (Don't have those

> > #'s yet)

> >

> > This is where I have been for a couple of months

> > now, and I feel

> > better in some ways but, horrible in others!

> > The thing is, I'm gaining weight as well, Put back

> > on 22 lbs, over

> > the past two months and don't understand it, Heavy

> > periods, Some

> > days anxious, nervous and hyper and the next, I'm

> > completely

> > exhausted.

> > Like night and day difference.........The muscle

> > aches are not as

> > bad but, If I am in one spot too long, I'm so stiff

> > and sore,

> > walking like an 80 year old.

> >

> >

> > I feel like I'm going to snap. Angry, moody, Just an

> > all around B & %

> > $!

> >

> > I have asked her what the cause seems to

> > be......graves......etc.

> > and she said we'll discuss it at your next apt. And

> > that she has not

> > done any Antibodies tests as of yet. And that If I

> > feel the need to

> > have them done to call my PCP, and have them

> > scheduled. I am doing

> > this tomorrow.

> >

> >

> > I also asked her what my levels were at my most

> > recent test (last

> > thurs) and she said the THS was low at 0.02, but

> > that the T4 and T3

> > were normal,

> > T4 being 1.0 and T3 being .123..........I again

> > asked

> > her........what does this mean? She said.......we'll

> > discuss all of

> > this at your next apt.

> >

> > I wan't to know NOW!!!!!!

> >

> >

> > SO WHY? do I feel so bad? Why are my levels looking

> > good to her and

> > I'm feeling so horrible?

> >

> > At times I feel hyper and hypo at the same time.

> >

> > I'm just beginning to research this as My Endo and I

> > have not had

> > good communication and I'm seeing a new Endo on this

> > week for a

> > second opinion.

> >

> > My life is just a mess.........I'm so stressed out

> > and at the end of

> > my rope with this.......I am the kind of woman that

> > challanges " the

> > full Plate " way of life and CAN'T HANDLE anymore...!

> >

> > WHAT IS WRONG WIHT ME?!?

> >

> > I'm so sorry this was so long....I just didn't

> > realize that there

> > were other woman out there feeling as horrible as

> > me......Please,

> > Please someone, tell me that there is a light at the

> > end of this

> > tunnel I'm IN! I need someone to talk to that

> > understands what I'm

> > feeling.....

> >

> > I wan't to enjoy my New grandchildren as well as my

> > own little 4 yr.

> > old!

> > I'm missing out on so much like this!

> >

> >

> >

> >

>

>

> __________________________________________________

>

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Posted
Posted

Yes,Yes,YES! That is me!

LOL, you just put the biggest smile on my face.......Thank you

Ann!

>

> > I am 39 years old. I have had High blood pressure

> > for about 6 years,

> > Was diagnosed with an enlarged heart 3 years ago

> > from My HBP not

> > being properly treaded due to my choice to BF my

> > youngest daughter.

> > (allergic to all HBP meds That I could take during

> > BF'ing)

> >

> > Since then I have (through hard work) lost most of

> > the enlargement

> > on my heart.(Good news)

> >

> > During a CT to check my Adrinals for possible cause

> > of HBP (April

> > last year), They came accross a tumor on the

> > adrinal. Saying it's

> > not secreting.........also good sign....my reason

> > for posting this

> > is to see if any of you have heard of a connection

> > with the thyroid

> > and adrinal? I'm beginning to find some connections.

> >

> >

> > About late May last year, I began to feel very

> > tired, breathless,

> > (just tieing my shoes laces) fatigued, Hot all the

> > time, weak, Loss

> > of sex drive, restless, blurry vision, ittitable,

> > forgetful, noticed

> > my wounds didn't heal as fast, itchy skin, sore

> > muscles and

> > joints.....all coming on fast.

> >

> > About the first week in June, I began to feel dizzy

> > all the

> > time.....

> > Having GD during pregnancy and having dizzy spells,

> > I thought I

> > might be pregnant...........as I also began to

> > vomit....but, not the

> > case.

> >

> > The vomiting continued and I saw my PCP and she said

> > I just had the

> > flu and sent me home.

> > The vomiting continued for 15 days and On that 15th

> > day I began to

> > shake uncontrollably....Vomiting constantly.

> > I was taken to the emergency room and hospitalized

> > for a week and

> > Lost 35 lbs.

> >

> > Conculsion? Hyperthyroid.....Don't know what my

> > levels were at that

> > time but, I am getting all of my results now for all

> > of the testing

> > that has been done on me.

> >

> > I was sent home taking Toprol XL 100mg (I was always

> > on 50 mg's

> > until this for my HBP) and PTU 50 MG, 4x daily.

> >

> > I felt great the first few weeks, I had good energy,

> > and all of my

> > horrible feelings were going away.....I thought,

> > YEAH, I got this

> > one licked!

> >

> > Went for blood work and my Endo said.....I needed to

> > drop to 1 pill

> > a day.

> > I thought, Wow, that's a drastic change in meds but,

> > she's the Dr.

> >

> > Ok...I did and I began to feel horrible again.......

> >

> >

> > levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> > THS....... .01

> > T3 UPTAKE 34.2 (27.8-40.7 percent)

> > Don't know what this means.........anyway,

> >

> > Again another blood test and she said " go to three

> > PTU pills a day,

> > your numbers are off the chart " (Don't have those

> > #'s yet)

> >

> > This is where I have been for a couple of months

> > now, and I feel

> > better in some ways but, horrible in others!

> > The thing is, I'm gaining weight as well, Put back

> > on 22 lbs, over

> > the past two months and don't understand it, Heavy

> > periods, Some

> > days anxious, nervous and hyper and the next, I'm

> > completely

> > exhausted.

> > Like night and day difference.........The muscle

> > aches are not as

> > bad but, If I am in one spot too long, I'm so stiff

> > and sore,

> > walking like an 80 year old.

> >

> >

> > I feel like I'm going to snap. Angry, moody, Just an

> > all around B & %

> > $!

> >

> > I have asked her what the cause seems to

> > be......graves......etc.

> > and she said we'll discuss it at your next apt. And

> > that she has not

> > done any Antibodies tests as of yet. And that If I

> > feel the need to

> > have them done to call my PCP, and have them

> > scheduled. I am doing

> > this tomorrow.

> >

> >

> > I also asked her what my levels were at my most

> > recent test (last

> > thurs) and she said the THS was low at 0.02, but

> > that the T4 and T3

> > were normal,

> > T4 being 1.0 and T3 being .123..........I again

> > asked

> > her........what does this mean? She said.......we'll

> > discuss all of

> > this at your next apt.

> >

> > I wan't to know NOW!!!!!!

> >

> >

> > SO WHY? do I feel so bad? Why are my levels looking

> > good to her and

> > I'm feeling so horrible?

> >

> > At times I feel hyper and hypo at the same time.

> >

> > I'm just beginning to research this as My Endo and I

> > have not had

> > good communication and I'm seeing a new Endo on this

> > week for a

> > second opinion.

> >

> > My life is just a mess.........I'm so stressed out

> > and at the end of

> > my rope with this.......I am the kind of woman that

> > challanges " the

> > full Plate " way of life and CAN'T HANDLE anymore...!

> >

> > WHAT IS WRONG WIHT ME?!?

> >

> > I'm so sorry this was so long....I just didn't

> > realize that there

> > were other woman out there feeling as horrible as

> > me......Please,

> > Please someone, tell me that there is a light at the

> > end of this

> > tunnel I'm IN! I need someone to talk to that

> > understands what I'm

> > feeling.....

> >

> > I wan't to enjoy my New grandchildren as well as my

> > own little 4 yr.

> > old!

> > I'm missing out on so much like this!

> >

> >

> >

> >

>

>

> __________________________________________________

>

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Posted
Posted

Thank you Topper...the second test where she said I was normal was

T4,Free 1.0 0.8-1.8 ng/dl

T3,Total 123 60/181

I was able to get my original numbers back today....when I first

began to see my endo......the numbers then were.

T4,Free 3.18 (0.60-1.60)

T3,Free 1,289 (230-420)

Thank you for the test suggetions....

and all of the great information. I'm printing it all out and saving

it for further reading...

(((HUGS)))

Lil

>

> Hi....

>

> First... what is 'GD' and what is 'BF'ing'?

>

> Okay..... chances are you have Grave's.... BUT without antibody

testing

> you can't be sure if it's Grave's or a hyper swing of Hashi's

> (Hashimoto's Thyroiditis)

>

> It is possible to have both Grave's and Hashi's antibodies at the

same

> time.

>

> Treatment for hyper Hashi's and treatment for Grave's are not

exactly the

> same.

>

> For the tests that you've had so far, give us a list of everything

you've

> had so far... make sure that you include the lab's ranges for

them... We

> need to know where your levels fall in the range of the test that

your

> lab took, except for TSH, that is a standard test and we know the

range

> for that, it was changed over three years ago and is now .3 to 3.0.

>

> With your next round of labs..... I'd suggest

> TSH

> Free T4

> Free T3

> thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

> Ferritin

> B-12

> and adrenal.

>

> *************

> T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

>

> ************

>

> THS 0.02,

> T4 and T3 were normal,

> T4 being 1.0 and T3 being .123

> ******************

>

> For the numbers that you've given us so far.....

> Free T4 in the first one is showing too low in it's range, hypo, T3

> uptake is an outdated and pretty much useless test.

> In the second round if those were Total T4 and T3.. we need the

ranges...

> if they were Free T4 and T3, the range for the Free T4, assuming

it's the

> same as the first one, shows that the Free T4 is too low in it's

range,

> hypo.

>

> Oh... is BF Breast Feeding?

>

> There is a STRONG link between messed up thyroid function (high or

low)

> and adrenal fatigue.. so much so that adrenal function should

actually be

> addressed before thyroid function... but most docs don't do it...

>

> A lot of docs are clueless about this stuff... it's up to us to

learn and

> understand it and then find a doc that is willing to work with us

and not

> just be..... dumb

>

> See if you can pull all your labs together.. so that we can see

what the

> doc is testing and then we'll go from there.....

>

> It takes some figuring out... lets get to work...

>

> Topper ()

> Yahoo IM: toppertwo

> Skype: topperlinda

>

> On Tue, 17 Jan 2006 02:40:50 -0000 " lillucysmama " <lilco@o...>

> writes:

> I am 39 years old. I have had High blood pressure for about 6

years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest

daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the

thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not

the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had

the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> time but, I am getting all of my results now for all of the

testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1

pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a

day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has

not

> done any Antibodies tests as of yet. And that If I feel the need

to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all

of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her

and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end

of

> my rope with this.......I am the kind of woman that

challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> old!

> I'm missing out on so much like this!

>

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Share on other sites
Guest guest

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Posted
Posted

Thank you Topper...the second test where she said I was normal was

T4,Free 1.0 0.8-1.8 ng/dl

T3,Total 123 60/181

I was able to get my original numbers back today....when I first

began to see my endo......the numbers then were.

T4,Free 3.18 (0.60-1.60)

T3,Free 1,289 (230-420)

Thank you for the test suggetions....

and all of the great information. I'm printing it all out and saving

it for further reading...

(((HUGS)))

Lil

>

> Hi....

>

> First... what is 'GD' and what is 'BF'ing'?

>

> Okay..... chances are you have Grave's.... BUT without antibody

testing

> you can't be sure if it's Grave's or a hyper swing of Hashi's

> (Hashimoto's Thyroiditis)

>

> It is possible to have both Grave's and Hashi's antibodies at the

same

> time.

>

> Treatment for hyper Hashi's and treatment for Grave's are not

exactly the

> same.

>

> For the tests that you've had so far, give us a list of everything

you've

> had so far... make sure that you include the lab's ranges for

them... We

> need to know where your levels fall in the range of the test that

your

> lab took, except for TSH, that is a standard test and we know the

range

> for that, it was changed over three years ago and is now .3 to 3.0.

>

> With your next round of labs..... I'd suggest

> TSH

> Free T4

> Free T3

> thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

> Ferritin

> B-12

> and adrenal.

>

> *************

> T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

>

> ************

>

> THS 0.02,

> T4 and T3 were normal,

> T4 being 1.0 and T3 being .123

> ******************

>

> For the numbers that you've given us so far.....

> Free T4 in the first one is showing too low in it's range, hypo, T3

> uptake is an outdated and pretty much useless test.

> In the second round if those were Total T4 and T3.. we need the

ranges...

> if they were Free T4 and T3, the range for the Free T4, assuming

it's the

> same as the first one, shows that the Free T4 is too low in it's

range,

> hypo.

>

> Oh... is BF Breast Feeding?

>

> There is a STRONG link between messed up thyroid function (high or

low)

> and adrenal fatigue.. so much so that adrenal function should

actually be

> addressed before thyroid function... but most docs don't do it...

>

> A lot of docs are clueless about this stuff... it's up to us to

learn and

> understand it and then find a doc that is willing to work with us

and not

> just be..... dumb

>

> See if you can pull all your labs together.. so that we can see

what the

> doc is testing and then we'll go from there.....

>

> It takes some figuring out... lets get to work...

>

> Topper ()

> Yahoo IM: toppertwo

> Skype: topperlinda

>

> On Tue, 17 Jan 2006 02:40:50 -0000 " lillucysmama " <lilco@o...>

> writes:

> I am 39 years old. I have had High blood pressure for about 6

years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest

daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the

thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not

the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had

the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> time but, I am getting all of my results now for all of the

testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1

pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a

day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has

not

> done any Antibodies tests as of yet. And that If I feel the need

to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all

of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her

and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end

of

> my rope with this.......I am the kind of woman that

challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> old!

> I'm missing out on so much like this!

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Thank you Topper...the second test where she said I was normal was

T4,Free 1.0 0.8-1.8 ng/dl

T3,Total 123 60/181

I was able to get my original numbers back today....when I first

began to see my endo......the numbers then were.

T4,Free 3.18 (0.60-1.60)

T3,Free 1,289 (230-420)

Thank you for the test suggetions....

and all of the great information. I'm printing it all out and saving

it for further reading...

(((HUGS)))

Lil

>

> Hi....

>

> First... what is 'GD' and what is 'BF'ing'?

>

> Okay..... chances are you have Grave's.... BUT without antibody

testing

> you can't be sure if it's Grave's or a hyper swing of Hashi's

> (Hashimoto's Thyroiditis)

>

> It is possible to have both Grave's and Hashi's antibodies at the

same

> time.

>

> Treatment for hyper Hashi's and treatment for Grave's are not

exactly the

> same.

>

> For the tests that you've had so far, give us a list of everything

you've

> had so far... make sure that you include the lab's ranges for

them... We

> need to know where your levels fall in the range of the test that

your

> lab took, except for TSH, that is a standard test and we know the

range

> for that, it was changed over three years ago and is now .3 to 3.0.

>

> With your next round of labs..... I'd suggest

> TSH

> Free T4

> Free T3

> thyroid antibodies ( antithyroglobulin and antithyroidperoxidase )

> Ferritin

> B-12

> and adrenal.

>

> *************

> T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

>

> ************

>

> THS 0.02,

> T4 and T3 were normal,

> T4 being 1.0 and T3 being .123

> ******************

>

> For the numbers that you've given us so far.....

> Free T4 in the first one is showing too low in it's range, hypo, T3

> uptake is an outdated and pretty much useless test.

> In the second round if those were Total T4 and T3.. we need the

ranges...

> if they were Free T4 and T3, the range for the Free T4, assuming

it's the

> same as the first one, shows that the Free T4 is too low in it's

range,

> hypo.

>

> Oh... is BF Breast Feeding?

>

> There is a STRONG link between messed up thyroid function (high or

low)

> and adrenal fatigue.. so much so that adrenal function should

actually be

> addressed before thyroid function... but most docs don't do it...

>

> A lot of docs are clueless about this stuff... it's up to us to

learn and

> understand it and then find a doc that is willing to work with us

and not

> just be..... dumb

>

> See if you can pull all your labs together.. so that we can see

what the

> doc is testing and then we'll go from there.....

>

> It takes some figuring out... lets get to work...

>

> Topper ()

> Yahoo IM: toppertwo

> Skype: topperlinda

>

> On Tue, 17 Jan 2006 02:40:50 -0000 " lillucysmama " <lilco@o...>

> writes:

> I am 39 years old. I have had High blood pressure for about 6

years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest

daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the

thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak,

Loss

> of sex drive, restless, blurry vision, ittitable, forgetful,

noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not

the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had

the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at

that

> time but, I am getting all of my results now for all of the

testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1

pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a

day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has

not

> done any Antibodies tests as of yet. And that If I feel the need

to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and

T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all

of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her

and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end

of

> my rope with this.......I am the kind of woman that

challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4

yr.

> old!

> I'm missing out on so much like this!

>

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