Re: Please Help me, VERY LONG

[Guest guest]

OOopppsss... so even my guess was wrong.....

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Wed, 18 Jan 2006 00:48:03 -0000 "lillucysmama" writes:

Sorry to confuse everyone......GD I meant Gestational Diabetes.>> > First... what is 'GD' and what is 'BF'ing'?> BF is breast feeding.> GD is grave's Disease.

[Guest guest]

OOopppsss... so even my guess was wrong.....

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Wed, 18 Jan 2006 00:48:03 -0000 "lillucysmama" writes:

Sorry to confuse everyone......GD I meant Gestational Diabetes.>> > First... what is 'GD' and what is 'BF'ing'?> BF is breast feeding.> GD is grave's Disease.

[Guest guest]

OOopppsss... so even my guess was wrong.....

Topper ()Yahoo IM: toppertwoSkype: topperlinda

On Wed, 18 Jan 2006 00:48:03 -0000 "lillucysmama" writes:

Sorry to confuse everyone......GD I meant Gestational Diabetes.>> > First... what is 'GD' and what is 'BF'ing'?> BF is breast feeding.> GD is grave's Disease.

[Guest guest]

>

> Yes, I was on insulin 10 units 4x daily....

>

> I was thinking overmedicated as well.

>

> She now has me on 50mg. of PTU 3 times a day, (150 mg) daily

>

> also on 100 mg of toprol daily....

>

> she stared me on 4 pills PTU daily at 50 mg each, dropped me to 1

> pill daily then back to 3 and this is where I am now.

>

> I actually had a follow up after my baby was born for the GD but,

> not since then. 4 years now.

>

> My latest test was thurs.....

>

> results were.

>

> TSH 0.02 0.40-5.50 mIU/L

> T4,Free 1.0 0.80-1.8 ng/dl

> T3,Free 123 60-181 ng/dl

>

> My new Endo is sending me for full antibody and CBC...this week.

> I picked up most of my old lab work and results from my hospital

> stay today......Interesting numbers...

> I'm going to give all of it to my new Endo.

>

From 4 pills to 1 pill , up to 3 pills and still on the Beta blocker?

Sorry sounds like bad management to me..

I will wait for an update from your new ENDO, but generally after

the initial hyper period 4-8 weeks the PTU is dropped to a

maintnance dose of 75mcg so 25mcg 3 times a day which si what I am

thinking you should be on..Most people can also be weaned off the

Beta Blocker after the first few months also, but I would not

suggest doing that with out seeing a cardiolgist and being properly

monitored first because of other complications you have had.

Diabetes can effect your thyroid levels and your thyroid levels can

also effect your diabetes so make sure you keep a close eye on your

sugar levels as you may need more or less insulin as your thyroid

comes closer to normal.

Having antibodies can keep your TSH suppressed even when your

thyroid levels are in normal range so ignore the TSH unless it takes

a big jump one way or the other but going by your Free's it looks

like you are swinging hypo..

Yahho has a Grave's support board and if you check them out they

will be able to go over labs, dosage etc..much better than I can.

Kats3boys

[Guest guest]

> >

> > Yes, I was on insulin 10 units 4x daily....

> >

> > I was thinking overmedicated as well.

> >

> > She now has me on 50mg. of PTU 3 times a day, (150 mg) daily

> >

> > also on 100 mg of toprol daily....

> >

> > she stared me on 4 pills PTU daily at 50 mg each, dropped me to

1

> > pill daily then back to 3 and this is where I am now.

> >

> > I actually had a follow up after my baby was born for the GD

but,

> > not since then. 4 years now.

> >

> > My latest test was thurs.....

> >

> > results were.

> >

> > TSH 0.02 0.40-5.50 mIU/L

> > T4,Free 1.0 0.80-1.8 ng/dl

> > T3,Free 123 60-181 ng/dl

> >

> > My new Endo is sending me for full antibody and CBC...this week.

> > I picked up most of my old lab work and results from my hospital

> > stay today......Interesting numbers...

> > I'm going to give all of it to my new Endo.

> >

> From 4 pills to 1 pill , up to 3 pills and still on the Beta

blocker?

> Sorry sounds like bad management to me..

> I will wait for an update from your new ENDO, but generally after

> the initial hyper period 4-8 weeks the PTU is dropped to a

> maintnance dose of 75mcg so 25mcg 3 times a day which si what I am

> thinking you should be on..Most people can also be weaned off the

> Beta Blocker after the first few months also, but I would not

> suggest doing that with out seeing a cardiolgist and being

properly

> monitored first because of other complications you have had.

> Diabetes can effect your thyroid levels and your thyroid levels

can

> also effect your diabetes so make sure you keep a close eye on

your

> sugar levels as you may need more or less insulin as your thyroid

> comes closer to normal.

> Having antibodies can keep your TSH suppressed even when your

> thyroid levels are in normal range so ignore the TSH unless it

takes

> a big jump one way or the other but going by your Free's it looks

> like you are swinging hypo..

> Yahho has a Grave's support board and if you check them out they

> will be able to go over labs, dosage etc..much better than I can.

>

> Kats3boys

>

I am looking for that board but can't find it.

Also I have been on the beta blocker for 3 years before my pregnancy

for my High blood pressure and the past 1 1/2 years for it as well.

Is that why they have not lowered the dose do you think? Because of

my HBP. I will update as soon as I know more and Thank YOU ALL!

[Guest guest]

> >

> > Yes, I was on insulin 10 units 4x daily....

> >

> > I was thinking overmedicated as well.

> >

> > She now has me on 50mg. of PTU 3 times a day, (150 mg) daily

> >

> > also on 100 mg of toprol daily....

> >

> > she stared me on 4 pills PTU daily at 50 mg each, dropped me to

1

> > pill daily then back to 3 and this is where I am now.

> >

> > I actually had a follow up after my baby was born for the GD

but,

> > not since then. 4 years now.

> >

> > My latest test was thurs.....

> >

> > results were.

> >

> > TSH 0.02 0.40-5.50 mIU/L

> > T4,Free 1.0 0.80-1.8 ng/dl

> > T3,Free 123 60-181 ng/dl

> >

> > My new Endo is sending me for full antibody and CBC...this week.

> > I picked up most of my old lab work and results from my hospital

> > stay today......Interesting numbers...

> > I'm going to give all of it to my new Endo.

> >

> From 4 pills to 1 pill , up to 3 pills and still on the Beta

blocker?

> Sorry sounds like bad management to me..

> I will wait for an update from your new ENDO, but generally after

> the initial hyper period 4-8 weeks the PTU is dropped to a

> maintnance dose of 75mcg so 25mcg 3 times a day which si what I am

> thinking you should be on..Most people can also be weaned off the

> Beta Blocker after the first few months also, but I would not

> suggest doing that with out seeing a cardiolgist and being

properly

> monitored first because of other complications you have had.

> Diabetes can effect your thyroid levels and your thyroid levels

can

> also effect your diabetes so make sure you keep a close eye on

your

> sugar levels as you may need more or less insulin as your thyroid

> comes closer to normal.

> Having antibodies can keep your TSH suppressed even when your

> thyroid levels are in normal range so ignore the TSH unless it

takes

> a big jump one way or the other but going by your Free's it looks

> like you are swinging hypo..

> Yahho has a Grave's support board and if you check them out they

> will be able to go over labs, dosage etc..much better than I can.

>

> Kats3boys

>

I am looking for that board but can't find it.

Also I have been on the beta blocker for 3 years before my pregnancy

for my High blood pressure and the past 1 1/2 years for it as well.

Is that why they have not lowered the dose do you think? Because of

my HBP. I will update as soon as I know more and Thank YOU ALL!

[Guest guest]

> >

> > Yes, I was on insulin 10 units 4x daily....

> >

> > I was thinking overmedicated as well.

> >

> > She now has me on 50mg. of PTU 3 times a day, (150 mg) daily

> >

> > also on 100 mg of toprol daily....

> >

> > she stared me on 4 pills PTU daily at 50 mg each, dropped me to

1

> > pill daily then back to 3 and this is where I am now.

> >

> > I actually had a follow up after my baby was born for the GD

but,

> > not since then. 4 years now.

> >

> > My latest test was thurs.....

> >

> > results were.

> >

> > TSH 0.02 0.40-5.50 mIU/L

> > T4,Free 1.0 0.80-1.8 ng/dl

> > T3,Free 123 60-181 ng/dl

> >

> > My new Endo is sending me for full antibody and CBC...this week.

> > I picked up most of my old lab work and results from my hospital

> > stay today......Interesting numbers...

> > I'm going to give all of it to my new Endo.

> >

> From 4 pills to 1 pill , up to 3 pills and still on the Beta

blocker?

> Sorry sounds like bad management to me..

> I will wait for an update from your new ENDO, but generally after

> the initial hyper period 4-8 weeks the PTU is dropped to a

> maintnance dose of 75mcg so 25mcg 3 times a day which si what I am

> thinking you should be on..Most people can also be weaned off the

> Beta Blocker after the first few months also, but I would not

> suggest doing that with out seeing a cardiolgist and being

properly

> monitored first because of other complications you have had.

> Diabetes can effect your thyroid levels and your thyroid levels

can

> also effect your diabetes so make sure you keep a close eye on

your

> sugar levels as you may need more or less insulin as your thyroid

> comes closer to normal.

> Having antibodies can keep your TSH suppressed even when your

> thyroid levels are in normal range so ignore the TSH unless it

takes

> a big jump one way or the other but going by your Free's it looks

> like you are swinging hypo..

> Yahho has a Grave's support board and if you check them out they

> will be able to go over labs, dosage etc..much better than I can.

>

> Kats3boys

>

I am looking for that board but can't find it.

Also I have been on the beta blocker for 3 years before my pregnancy

for my High blood pressure and the past 1 1/2 years for it as well.

Is that why they have not lowered the dose do you think? Because of

my HBP. I will update as soon as I know more and Thank YOU ALL!

[Guest guest]

You have come to the right place, where there are people who have/do feel

the way you do. Yes, there is light, but first I want to ask you----Why

didn't you go ahead and say to that doctor, instead of thinking it, " I WANT

TO KNOW NOOOOOOOOWWWWWWWW!! or you won't get even one more cent from me. "

Amazing how they expect to get paid for slapping you in the face. Just

amazing. Yes, gather those blood tests and show us the stuff. If you DON'T

live in New York state, then you can get your own testing done starting at

www.healthcheckusa.com. Free T3, Free T4, and TSH. You need a good doctor.

Please Help me, VERY LONG

> I am 39 years old. I have had High blood pressure for about 6 years,

> Was diagnosed with an enlarged heart 3 years ago from My HBP not

> being properly treaded due to my choice to BF my youngest daughter.

> (allergic to all HBP meds That I could take during BF'ing)

>

> Since then I have (through hard work) lost most of the enlargement

> on my heart.(Good news)

>

> During a CT to check my Adrinals for possible cause of HBP (April

> last year), They came accross a tumor on the adrinal. Saying it's

> not secreting.........also good sign....my reason for posting this

> is to see if any of you have heard of a connection with the thyroid

> and adrinal? I'm beginning to find some connections.

>

> About late May last year, I began to feel very tired, breathless,

> (just tieing my shoes laces) fatigued, Hot all the time, weak, Loss

> of sex drive, restless, blurry vision, ittitable, forgetful, noticed

> my wounds didn't heal as fast, itchy skin, sore muscles and

> joints.....all coming on fast.

>

> About the first week in June, I began to feel dizzy all the

> time.....

> Having GD during pregnancy and having dizzy spells, I thought I

> might be pregnant...........as I also began to vomit....but, not the

> case.

>

> The vomiting continued and I saw my PCP and she said I just had the

> flu and sent me home.

> The vomiting continued for 15 days and On that 15th day I began to

> shake uncontrollably....Vomiting constantly.

> I was taken to the emergency room and hospitalized for a week and

> Lost 35 lbs.

>

> Conculsion? Hyperthyroid.....Don't know what my levels were at that

> time but, I am getting all of my results now for all of the testing

> that has been done on me.

>

> I was sent home taking Toprol XL 100mg (I was always on 50 mg's

> until this for my HBP) and PTU 50 MG, 4x daily.

>

> I felt great the first few weeks, I had good energy, and all of my

> horrible feelings were going away.....I thought, YEAH, I got this

> one licked!

>

> Went for blood work and my Endo said.....I needed to drop to 1 pill

> a day.

> I thought, Wow, that's a drastic change in meds but, she's the Dr.

>

> Ok...I did and I began to feel horrible again.......

>

> levels this time......T4, Free 0.9 (0.8-1/8 ng/dl)

> THS....... .01

> T3 UPTAKE 34.2 (27.8-40.7 percent)

> Don't know what this means.........anyway,

>

> Again another blood test and she said " go to three PTU pills a day,

> your numbers are off the chart " (Don't have those #'s yet)

>

> This is where I have been for a couple of months now, and I feel

> better in some ways but, horrible in others!

> The thing is, I'm gaining weight as well, Put back on 22 lbs, over

> the past two months and don't understand it, Heavy periods, Some

> days anxious, nervous and hyper and the next, I'm completely

> exhausted.

> Like night and day difference.........The muscle aches are not as

> bad but, If I am in one spot too long, I'm so stiff and sore,

> walking like an 80 year old.

>

>

> I feel like I'm going to snap. Angry, moody, Just an all around B & %

> $!

>

> I have asked her what the cause seems to be......graves......etc.

> and she said we'll discuss it at your next apt. And that she has not

> done any Antibodies tests as of yet. And that If I feel the need to

> have them done to call my PCP, and have them scheduled. I am doing

> this tomorrow.

>

>

> I also asked her what my levels were at my most recent test (last

> thurs) and she said the THS was low at 0.02, but that the T4 and T3

> were normal,

> T4 being 1.0 and T3 being .123..........I again asked

> her........what does this mean? She said.......we'll discuss all of

> this at your next apt.

>

> I wan't to know NOW!!!!!!

>

>

> SO WHY? do I feel so bad? Why are my levels looking good to her and

> I'm feeling so horrible?

>

> At times I feel hyper and hypo at the same time.

>

> I'm just beginning to research this as My Endo and I have not had

> good communication and I'm seeing a new Endo on this week for a

> second opinion.

>

> My life is just a mess.........I'm so stressed out and at the end of

> my rope with this.......I am the kind of woman that challanges " the

> full Plate " way of life and CAN'T HANDLE anymore...!

> WHAT IS WRONG WIHT ME?!?

>

> I'm so sorry this was so long....I just didn't realize that there

> were other woman out there feeling as horrible as me......Please,

> Please someone, tell me that there is a light at the end of this

> tunnel I'm IN! I need someone to talk to that understands what I'm

> feeling.....

>

> I wan't to enjoy my New grandchildren as well as my own little 4 yr.

> old!

> I'm missing out on so much like this!