Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Welcome Diane :-) I am very new to this also. I have had symptoms FOREVER but am not learning how to deal with this... I look forward to getting to know you :-) Petaluma, CA Refuse to Lose!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Welcome Diane :-) I am very new to this also. I have had symptoms FOREVER but am not learning how to deal with this... I look forward to getting to know you :-) Petaluma, CA Refuse to Lose!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 I think that you will find that every one of us has something a little different from another one. There are so many different problems, medications, way of coping that we all learn from each other. I am fortunate in the fact that I am still able to travel and do some things but to do these things I have to rest a lot and take pain medication. I quit when I hit a blank wall and know that it is time to listen to my body. To me, listening to my body is one of the things that help me to cope. It seems that there is also another illness that goes with the fibro. Probably because your immune system is not working right. You have probably read about sinus problems, etc. I welcome you to our list and know that you will find that all here are very loving, caring and supportive. Please take care, Irene Co-Moderator > I'd really like to hear from others who have been dealing with FMS for long > periods of time. I'm a bit apprehensive about what the future might hold. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 MaquisMom@... wrote: > I started showing symptoms of FMS just about a year ago, right after what > seemed like the typical nasty summer virus. I'm fortunate to have a doctor > who is knowledgeable about FMS, and he suspected right from the start that > this was my problem. We've been trying different combinations of medication, > exercise, etc. For a while I was dealing with severe fatigue as well as pain, > and I asked him if I might be suffering from CFS rather than FMS. He told me > that he believes that they are basically different facets of the same > illness. Welcome, Diane. I think everyone is a little different as to what the future holds. I haven't even officially been diagnosed yet, so I can't help you there. I am curious, did you do anything to get rid of your severe fatigue or did it go away on it's own? Thanks Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 In a message dated 7/25/01 8:25:37 AM Eastern Daylight Time, catstamp@... writes: > Welcome, Diane. I think everyone is a little different as to what the > future holds. I haven't even officially been diagnosed yet, so I can't > help you there. I am curious, did you do anything to get rid of your > severe fatigue or did it go away on it's own? > > My doctor has been treating me symptom by symptom, and the first thing we tackled was the fatigue. He prescribed amitryptiline in a gradually increasing dose, and once I was sleeping better the fatigue mostly went away. For several months I had to take almost daily naps, but now I only need one if I have plans for the evening or if it's been a particularly difficult day. I've learned the hard way that my body knows what I need, even if I don't want to listen--and getting good, restful sleep seems to be what it needs most. Cheers, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 In a message dated 7/25/01 8:25:37 AM Eastern Daylight Time, catstamp@... writes: > Welcome, Diane. I think everyone is a little different as to what the > future holds. I haven't even officially been diagnosed yet, so I can't > help you there. I am curious, did you do anything to get rid of your > severe fatigue or did it go away on it's own? > > My doctor has been treating me symptom by symptom, and the first thing we tackled was the fatigue. He prescribed amitryptiline in a gradually increasing dose, and once I was sleeping better the fatigue mostly went away. For several months I had to take almost daily naps, but now I only need one if I have plans for the evening or if it's been a particularly difficult day. I've learned the hard way that my body knows what I need, even if I don't want to listen--and getting good, restful sleep seems to be what it needs most. Cheers, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2001 Report Share Posted July 25, 2001 In a message dated 7/25/01 8:25:37 AM Eastern Daylight Time, catstamp@... writes: > Welcome, Diane. I think everyone is a little different as to what the > future holds. I haven't even officially been diagnosed yet, so I can't > help you there. I am curious, did you do anything to get rid of your > severe fatigue or did it go away on it's own? > > My doctor has been treating me symptom by symptom, and the first thing we tackled was the fatigue. He prescribed amitryptiline in a gradually increasing dose, and once I was sleeping better the fatigue mostly went away. For several months I had to take almost daily naps, but now I only need one if I have plans for the evening or if it's been a particularly difficult day. I've learned the hard way that my body knows what I need, even if I don't want to listen--and getting good, restful sleep seems to be what it needs most. Cheers, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Diane writes, > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went > away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult > day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. > I take amitryptiline at night but it has not helped me with my tiredness. In fact, I wish that there was a magic pill that could give you more energy and take away the fatigue. If I take a nap in the daytime, I wake up grouchy and cannot get to sleep at night. So I rest but no napping. I think that all of us have to learn to listen to our bodies to be able to cope at all. I found that I would try to keep going but all I did was run into a blank wall and I would be down and out for several days. My husband tells me to leave the kitchen alone, that he will do it when he gets home. So why was I trying to get all of the things done including the kitchen when he could do it for me. Our for that matter, my daughter and twin granddaughters live next door and are always asking if I need help with anything or do I need something from the store. I went to the store the other day for the first time is awhile, my husband usually grocery shops and they came over to help carry things in. I have a good family here in San . I am truly blessed. Take care, Irene Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Diane writes, > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went > away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult > day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. > I take amitryptiline at night but it has not helped me with my tiredness. In fact, I wish that there was a magic pill that could give you more energy and take away the fatigue. If I take a nap in the daytime, I wake up grouchy and cannot get to sleep at night. So I rest but no napping. I think that all of us have to learn to listen to our bodies to be able to cope at all. I found that I would try to keep going but all I did was run into a blank wall and I would be down and out for several days. My husband tells me to leave the kitchen alone, that he will do it when he gets home. So why was I trying to get all of the things done including the kitchen when he could do it for me. Our for that matter, my daughter and twin granddaughters live next door and are always asking if I need help with anything or do I need something from the store. I went to the store the other day for the first time is awhile, my husband usually grocery shops and they came over to help carry things in. I have a good family here in San . I am truly blessed. Take care, Irene Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Diane writes, > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went > away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult > day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. > I take amitryptiline at night but it has not helped me with my tiredness. In fact, I wish that there was a magic pill that could give you more energy and take away the fatigue. If I take a nap in the daytime, I wake up grouchy and cannot get to sleep at night. So I rest but no napping. I think that all of us have to learn to listen to our bodies to be able to cope at all. I found that I would try to keep going but all I did was run into a blank wall and I would be down and out for several days. My husband tells me to leave the kitchen alone, that he will do it when he gets home. So why was I trying to get all of the things done including the kitchen when he could do it for me. Our for that matter, my daughter and twin granddaughters live next door and are always asking if I need help with anything or do I need something from the store. I went to the store the other day for the first time is awhile, my husband usually grocery shops and they came over to help carry things in. I have a good family here in San . I am truly blessed. Take care, Irene Co-Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 MaquisMom@... wrote: > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. Thanks, Diane, I went through a period where I had to have a nap, but that is over with. I still have a worse overall level of fatigue then I did back then. I can do less before I absolutely run out of energy. I'm not sure if I could take a nap if I tried, but then naps leave me groggy, and I have problems getting to sleep. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 MaquisMom@... wrote: > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. Thanks, Diane, I went through a period where I had to have a nap, but that is over with. I still have a worse overall level of fatigue then I did back then. I can do less before I absolutely run out of energy. I'm not sure if I could take a nap if I tried, but then naps leave me groggy, and I have problems getting to sleep. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 MaquisMom@... wrote: > My doctor has been treating me symptom by symptom, and the first thing we > tackled was the fatigue. He prescribed amitryptiline in a gradually > increasing dose, and once I was sleeping better the fatigue mostly went away. > For several months I had to take almost daily naps, but now I only need one > if I have plans for the evening or if it's been a particularly difficult day. > I've learned the hard way that my body knows what I need, even if I don't > want to listen--and getting good, restful sleep seems to be what it needs > most. Thanks, Diane, I went through a period where I had to have a nap, but that is over with. I still have a worse overall level of fatigue then I did back then. I can do less before I absolutely run out of energy. I'm not sure if I could take a nap if I tried, but then naps leave me groggy, and I have problems getting to sleep. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 patidu@... wrote: > My husband > tells me to leave the kitchen alone, that he will do it when he gets home. > So why was I trying to get all of the things done including the kitchen when > he could do it for me. I made dinner last night even though I was exhausted by the time DH came home. Somewhere in the middle of making it, I ran out of energy. DH gave me a nice stiff lecture on how he doesn't expect dinner to be waiting when he gets home. My job is to heal, if I do absolutely nothing in the way of chores, that's fine, he just wants me to rest up and get at least a little better. That's the kind of love you can't buy! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 patidu@... wrote: > My husband > tells me to leave the kitchen alone, that he will do it when he gets home. > So why was I trying to get all of the things done including the kitchen when > he could do it for me. I made dinner last night even though I was exhausted by the time DH came home. Somewhere in the middle of making it, I ran out of energy. DH gave me a nice stiff lecture on how he doesn't expect dinner to be waiting when he gets home. My job is to heal, if I do absolutely nothing in the way of chores, that's fine, he just wants me to rest up and get at least a little better. That's the kind of love you can't buy! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 patidu@... wrote: > My husband > tells me to leave the kitchen alone, that he will do it when he gets home. > So why was I trying to get all of the things done including the kitchen when > he could do it for me. I made dinner last night even though I was exhausted by the time DH came home. Somewhere in the middle of making it, I ran out of energy. DH gave me a nice stiff lecture on how he doesn't expect dinner to be waiting when he gets home. My job is to heal, if I do absolutely nothing in the way of chores, that's fine, he just wants me to rest up and get at least a little better. That's the kind of love you can't buy! Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Amen! Re: Introducing myself > > > patidu@... wrote: > > > My husband > > tells me to leave the kitchen alone, that he will do it when he gets home. > > So why was I trying to get all of the things done including the kitchen when > > he could do it for me. > > I made dinner last night even though I was exhausted by the time DH came > home. Somewhere in the middle of making it, I ran out of energy. DH > gave me a nice stiff lecture on how he doesn't expect dinner to be > waiting when he gets home. My job is to heal, if I do absolutely > nothing in the way of chores, that's fine, he just wants me to rest up > and get at least a little better. That's the kind of love you can't > buy! > > Darcy > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Amen! Re: Introducing myself > > > patidu@... wrote: > > > My husband > > tells me to leave the kitchen alone, that he will do it when he gets home. > > So why was I trying to get all of the things done including the kitchen when > > he could do it for me. > > I made dinner last night even though I was exhausted by the time DH came > home. Somewhere in the middle of making it, I ran out of energy. DH > gave me a nice stiff lecture on how he doesn't expect dinner to be > waiting when he gets home. My job is to heal, if I do absolutely > nothing in the way of chores, that's fine, he just wants me to rest up > and get at least a little better. That's the kind of love you can't > buy! > > Darcy > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 Amen! Re: Introducing myself > > > patidu@... wrote: > > > My husband > > tells me to leave the kitchen alone, that he will do it when he gets home. > > So why was I trying to get all of the things done including the kitchen when > > he could do it for me. > > I made dinner last night even though I was exhausted by the time DH came > home. Somewhere in the middle of making it, I ran out of energy. DH > gave me a nice stiff lecture on how he doesn't expect dinner to be > waiting when he gets home. My job is to heal, if I do absolutely > nothing in the way of chores, that's fine, he just wants me to rest up > and get at least a little better. That's the kind of love you can't > buy! > > Darcy > > > SEND POST TO: fibromyalgia-cfs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 In a message dated 7/24/01 7:48:48 PM Eastern Daylight Time, MaquisMom@... writes: > I'd really like to hear from others who have been dealing with FMS for long > periods of time. I'm a bit apprehensive about what the future might hold. > > Diane, Welcome to a wonderful group of people. I feel so close to this group. I guess FM is different for everyone. I was lucky also that my doctor spotted it. I have it bad. I no longer work. But like I said everyone is different. I hope that your fm stays mild. Good Luck Kathy D. Living in beautiful Western Massachusetts Married for almost 19yrs to a sweetheart Children= 17 and 15 My Rottie dog= Shelby My Cat= Spooky Hobbies= Reading, Writing, Making Arts and Crafts, gardening, trying very hard to learn this computer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 In a message dated 7/24/01 7:48:48 PM Eastern Daylight Time, MaquisMom@... writes: > I'd really like to hear from others who have been dealing with FMS for long > periods of time. I'm a bit apprehensive about what the future might hold. > > Diane, Welcome to a wonderful group of people. I feel so close to this group. I guess FM is different for everyone. I was lucky also that my doctor spotted it. I have it bad. I no longer work. But like I said everyone is different. I hope that your fm stays mild. Good Luck Kathy D. Living in beautiful Western Massachusetts Married for almost 19yrs to a sweetheart Children= 17 and 15 My Rottie dog= Shelby My Cat= Spooky Hobbies= Reading, Writing, Making Arts and Crafts, gardening, trying very hard to learn this computer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2001 Report Share Posted July 27, 2001 In a message dated 7/24/01 7:48:48 PM Eastern Daylight Time, MaquisMom@... writes: > I'd really like to hear from others who have been dealing with FMS for long > periods of time. I'm a bit apprehensive about what the future might hold. > > Diane, Welcome to a wonderful group of people. I feel so close to this group. I guess FM is different for everyone. I was lucky also that my doctor spotted it. I have it bad. I no longer work. But like I said everyone is different. I hope that your fm stays mild. Good Luck Kathy D. Living in beautiful Western Massachusetts Married for almost 19yrs to a sweetheart Children= 17 and 15 My Rottie dog= Shelby My Cat= Spooky Hobbies= Reading, Writing, Making Arts and Crafts, gardening, trying very hard to learn this computer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Pam. Welcome to the list. It is a very friendly, caring and supportive list. The mail may be a bit slow in coming as it is the weekend. I myself know nothing about natural medicines but there are some on the list that do. You will get a lot of useful information about all of the facets of fibro. Take care, Irene co-moderator Go will << my name is pam and i live in sacramento california. Boy am i bummed out. this is the 4th time now i have had to go on disability from work over the last 7yrs. Staying home and hurting and having no one to socialize with is kinda depressing. But i am working at trying to get well. Mostly with my diet, herbs and vitamin therapy, massages, biofeedback for stress reduction, walking, sunshine and possibly craniosacral therapy. Seems like i need to treat my whole person from the inside out. Anyone have any feedback on these health treatments. self care is where its at. pam >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Pam, Where in Sacramento do you live? My husband & I were born & raised there! As a matter of fact, we are coming out there for a visit next week! We live in Colorado now. We moved here 4 years ago, and love it! I've only been dealing with fibromyalgia for about 4 months now, and I agree, it's certainly not something I'd wish on my worst enemy! Are you married, and have kids? I have to say that for me, my husband is excellent. I only had one day that I thought he was upset with me because I had to call him from work to follow me home from where I was, and take me to the Dr., which took him away from work for about 3 hours. He is an Engineer for the Federal Gov't., and usually, it's not a big problem for him to take time for these things, but since we are leaving on vacation next week, he's been working on a project that has had him working 12 hour days, and he's exhausted. He's learned to know when I really don't feel well, and really tries to help, or have the kids help. Yesterday for example, he kind of surprised me. We got home from our shopping day, which we do every two weeks, and it's an all day thing. I was mentioning how I still needed to mow (we use a tractor, so it's not really manual labor!), before we leave on our trip, and he said, " Absolutely not. Our oldest son could do it! I'm tired enough, and don't need to add anything else to my list of 'to do's! " I looked at him for awhile, just to make sure he was really my husband, but he was! I have to say, it's these types of surprises that make it just a little easier to deal with this junk, as I so lovingly call it! Carol Lugg my name is pam and i live in sacramento california. Boy am i bummed out. this is the 4th time now i have had to go on disability from work over the last 7yrs. Staying home and hurting and having no one to socialize with is kinda depressing. But i am working at trying to get well. Mostly with my diet, herbs and vitamin therapy, massages, biofeedback for stress reduction, walking, sunshine and possibly craniosacral therapy. Seems like i need to treat my whole person from the inside out. Anyone have any feedback on these health treatments. self care is where its at. pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Pam, Hi this is Deana! I also live near sacramento. I live off the 99 freeway in a town called Galt. Have you heard of it? If you do not mind where are you at? Maybe we could join a support group together. I am off work and have been since october of last year. I was diagnosed in July of 1997 and work full time and lots of overtime up until last year. I am in constant pain. And have had a flare up now going on close to 2 months with migraines and all. I know it has gotten worse and I feel like it will continue. I am on ltd from work and am thinking of applying for ssi but it sounds so final. I loved my job. I was an nicu nurse at sutter memorial for 13 years and I want to go back but it does not look good. Well enough about me. good luck and write me if you want. I do not get out too much because I just do not feel good half the time. Deana On Sat, 28 Jul 2001 03:12:44 -0000 nanookmush@... writes: > my name is pam and i live in sacramento california. Boy am i bummed > out. this is the 4th time now i have had to go on disability from > work over the last 7yrs. Staying home and hurting and having no one > to socialize with is kinda depressing. But i am working at trying to > > get well. Mostly with my diet, herbs and vitamin therapy, massages, > biofeedback for stress reduction, walking, sunshine and possibly > craniosacral therapy. Seems like i need to treat my whole person > from > the inside out. Anyone have any feedback on these health treatments. > > self care is where its at. > pam > > > Quote Link to comment Share on other sites More sharing options...
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