Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Welcome Sab, > > > >My name is Alvaro, 44 years and I have IBM . Since 4 years ago. > >I live in Portugal, my treatment is IVIG only. > > > >You will enjoy the group. They give you info and advice about things you > >might not know about. > > > > > >Take care, > >Alvaro Nunes Alvaro Nunes " sabyrd75062 " <SAByrdie@hot To: OurMyositis mail.com> cc: Subject: Hello 13-11-2002 15:22 Please respond to OurMyositis Hello everyone! I am new to the group. I was recently diagnosed with dermatomyositis in August. I have had symptoms since January but they went undiagnosed. I spent over two months in the hospital and only recently returned home. My original CPK was over 20,000 and is now down in the 500 range but I still have severe pain and weakness. I am on methotrexate and prednisone. I am interested in hearing from anyone in the group about how they deal with the disease and side effects of the meds (especially edema, hair loss, telangiectasias, skin fragility, anemia, lack of mobility, pain, etc.) Thanks, SAB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Welcome Sab, > > > >My name is Alvaro, 44 years and I have IBM . Since 4 years ago. > >I live in Portugal, my treatment is IVIG only. > > > >You will enjoy the group. They give you info and advice about things you > >might not know about. > > > > > >Take care, > >Alvaro Nunes Alvaro Nunes " sabyrd75062 " <SAByrdie@hot To: OurMyositis mail.com> cc: Subject: Hello 13-11-2002 15:22 Please respond to OurMyositis Hello everyone! I am new to the group. I was recently diagnosed with dermatomyositis in August. I have had symptoms since January but they went undiagnosed. I spent over two months in the hospital and only recently returned home. My original CPK was over 20,000 and is now down in the 500 range but I still have severe pain and weakness. I am on methotrexate and prednisone. I am interested in hearing from anyone in the group about how they deal with the disease and side effects of the meds (especially edema, hair loss, telangiectasias, skin fragility, anemia, lack of mobility, pain, etc.) Thanks, SAB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Hi SAB! Welcome to the group! I am newly diagnosied as well--October 8, 2002. I am on 60 mg Prednisone and just started my methotrexate last week. I just went on disability because it is getting too hard for me to walk much less work. This group has been so supportive. I am so glad I found it! Vickie Hello everyone! I am new to the group. I was recently diagnosed with dermatomyositis in August. I have had symptoms since January but they went undiagnosed. I spent over two months in the hospital and only recently returned home. My original CPK was over 20,000 and is now down in the 500 range but I still have severe pain and weakness. I am on methotrexate and prednisone. I am interested in hearing from anyone in the group about how they deal with the disease and side effects of the meds (especially edema, hair loss, telangiectasias, skin fragility, anemia, lack of mobility, pain, etc.) Thanks, SAB Check out my website! http://www.vickieenkoff.com Rubber Stamp Special: Grab bag of 15 images for $15.00 Check my Ebay Auctions: Ebay ID: VickieEnkoff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, Let me also welcome you to our family. I'm Lem from Oklahoma. I have DM also and was DX last July 2001. My cpk's were also over 20,000, more than what they could read, or that is what I was told. I have had to take baby steps recovering. I couldn't walk and lift myself up, or even roll over. I was put on 80mg of prednisone. Now I am up and walking with a cane, use a scooter when I go out--hey everybody I can go forward now. I am now on 10mg methorexate and 7 mg. of prednisone. I also have a heart condition when the doctors put me on zocar after a heart attack, statin drug, and that seemed to cause or trigger the DM. I do not have one day without pain and take pain medication. Without it I couldn't get out of bed. The doctors told me I have alot of muscle damage with the cpks being so high and going so long without DX and treatment. This disease is different for everyone so don't compare yourself with the shape I'm in. Remember you are not your disease, you are still the same terrific person you were before you were DX. In fact I think we are all so very special and tuff in our own ways to keep going. You take care and give the meds time to work and help you. Good luck, lem > Hi SAB > Let me add my " Welcome " to the rest of them. > I'm Teddi from Oklahoma City. I have had > DM for almost 7 years. In the process of > trying to get off the prednisone and am down > to 4mg.....the lowest I have ever gotten.. > I know you will enjoy this group. Not only > is it informative.........we have got some > pretty good researchers in the group...... > but we have fun, a place to moan & whine > and a lot of love. > > > Teddi > mailto:teddifromok@w... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, Let me also welcome you to our family. I'm Lem from Oklahoma. I have DM also and was DX last July 2001. My cpk's were also over 20,000, more than what they could read, or that is what I was told. I have had to take baby steps recovering. I couldn't walk and lift myself up, or even roll over. I was put on 80mg of prednisone. Now I am up and walking with a cane, use a scooter when I go out--hey everybody I can go forward now. I am now on 10mg methorexate and 7 mg. of prednisone. I also have a heart condition when the doctors put me on zocar after a heart attack, statin drug, and that seemed to cause or trigger the DM. I do not have one day without pain and take pain medication. Without it I couldn't get out of bed. The doctors told me I have alot of muscle damage with the cpks being so high and going so long without DX and treatment. This disease is different for everyone so don't compare yourself with the shape I'm in. Remember you are not your disease, you are still the same terrific person you were before you were DX. In fact I think we are all so very special and tuff in our own ways to keep going. You take care and give the meds time to work and help you. Good luck, lem > Hi SAB > Let me add my " Welcome " to the rest of them. > I'm Teddi from Oklahoma City. I have had > DM for almost 7 years. In the process of > trying to get off the prednisone and am down > to 4mg.....the lowest I have ever gotten.. > I know you will enjoy this group. Not only > is it informative.........we have got some > pretty good researchers in the group...... > but we have fun, a place to moan & whine > and a lot of love. > > > Teddi > mailto:teddifromok@w... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, Let me also welcome you to our family. I'm Lem from Oklahoma. I have DM also and was DX last July 2001. My cpk's were also over 20,000, more than what they could read, or that is what I was told. I have had to take baby steps recovering. I couldn't walk and lift myself up, or even roll over. I was put on 80mg of prednisone. Now I am up and walking with a cane, use a scooter when I go out--hey everybody I can go forward now. I am now on 10mg methorexate and 7 mg. of prednisone. I also have a heart condition when the doctors put me on zocar after a heart attack, statin drug, and that seemed to cause or trigger the DM. I do not have one day without pain and take pain medication. Without it I couldn't get out of bed. The doctors told me I have alot of muscle damage with the cpks being so high and going so long without DX and treatment. This disease is different for everyone so don't compare yourself with the shape I'm in. Remember you are not your disease, you are still the same terrific person you were before you were DX. In fact I think we are all so very special and tuff in our own ways to keep going. You take care and give the meds time to work and help you. Good luck, lem > Hi SAB > Let me add my " Welcome " to the rest of them. > I'm Teddi from Oklahoma City. I have had > DM for almost 7 years. In the process of > trying to get off the prednisone and am down > to 4mg.....the lowest I have ever gotten.. > I know you will enjoy this group. Not only > is it informative.........we have got some > pretty good researchers in the group...... > but we have fun, a place to moan & whine > and a lot of love. > > > Teddi > mailto:teddifromok@w... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hello Lem, Thank you for the welcome and your story. It gives me hope. I still can't roll over in bed yet. I did make some improvements while in the hospital and since I have been home but they have been baby-steps. Some days I wonder if this is as good as it will get. I do notice the improvements occurring shortly after my methotrexate-day. All this equipment I have to use is disheartening as well. I get so frustrated sometimes but everyone's stories have helped me feel emotionally better anyway. You and I live very close. I hear there is a myositis support group here that meets a couple to three times a year or so. Have you ever been? Take care, SAB Re: Hello SAB Hi SAB,Let me also welcome you to our family. I'm Lem from Oklahoma. I have DM also and was DX last July 2001. My cpk's were also over 20,000, more than what they could read, or that is what I was told. I have had to take baby steps recovering. I couldn't walk and lift myself up, or even roll over. I was put on 80mg of prednisone. Now I am up and walking with a cane, use a scooter when I go out--hey everybody I can go forward now. I am now on 10mg methorexate and 7 mg. of prednisone. I also have a heart condition when the doctors put me on zocar after a heart attack, statin drug, and that seemed to cause or trigger the DM. I do not have one day without pain and take pain medication. Without it I couldn't get out of bed. The doctors told me I have alot of muscle damage with the cpks being so high and going so long without DX and treatment. This disease is different for everyone so don't compare yourself with the shape I'm in. Remember you are not your disease, you are still the same terrific person you were before you were DX. In fact I think we are all so very special and tuff in our own ways to keep going. You take care and give the meds time to work and help you. Good luck, lem > Hi SAB> Let me add my "Welcome" to the rest of them.> I'm Teddi from Oklahoma City. I have had> DM for almost 7 years. In the process of> trying to get off the prednisone and am down> to 4mg.....the lowest I have ever gotten..> I know you will enjoy this group. Not only> is it informative.........we have got some> pretty good researchers in the group......> but we have fun, a place to moan & whine> and a lot of love.> > > Teddi> mailto:teddifromok@w... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hello Lem, Thank you for the welcome and your story. It gives me hope. I still can't roll over in bed yet. I did make some improvements while in the hospital and since I have been home but they have been baby-steps. Some days I wonder if this is as good as it will get. I do notice the improvements occurring shortly after my methotrexate-day. All this equipment I have to use is disheartening as well. I get so frustrated sometimes but everyone's stories have helped me feel emotionally better anyway. You and I live very close. I hear there is a myositis support group here that meets a couple to three times a year or so. Have you ever been? Take care, SAB Re: Hello SAB Hi SAB,Let me also welcome you to our family. I'm Lem from Oklahoma. I have DM also and was DX last July 2001. My cpk's were also over 20,000, more than what they could read, or that is what I was told. I have had to take baby steps recovering. I couldn't walk and lift myself up, or even roll over. I was put on 80mg of prednisone. Now I am up and walking with a cane, use a scooter when I go out--hey everybody I can go forward now. I am now on 10mg methorexate and 7 mg. of prednisone. I also have a heart condition when the doctors put me on zocar after a heart attack, statin drug, and that seemed to cause or trigger the DM. I do not have one day without pain and take pain medication. Without it I couldn't get out of bed. The doctors told me I have alot of muscle damage with the cpks being so high and going so long without DX and treatment. This disease is different for everyone so don't compare yourself with the shape I'm in. Remember you are not your disease, you are still the same terrific person you were before you were DX. In fact I think we are all so very special and tuff in our own ways to keep going. You take care and give the meds time to work and help you. Good luck, lem > Hi SAB> Let me add my "Welcome" to the rest of them.> I'm Teddi from Oklahoma City. I have had> DM for almost 7 years. In the process of> trying to get off the prednisone and am down> to 4mg.....the lowest I have ever gotten..> I know you will enjoy this group. Not only> is it informative.........we have got some> pretty good researchers in the group......> but we have fun, a place to moan & whine> and a lot of love.> > > Teddi> mailto:teddifromok@w... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 I agree with Teddi. The best part of the conference was meeting everyone and putting names with faces. Teddi, Vicki, Candy and I had a terrific time visiting with each other. I also met some other wonderful people. We met Cheri, whose wedding Vicki and I just traveled to Vegas to see. This is a wonderful support group. I think we should try to have our own conference in Vegas next year as someone suggested if the MAA isn't already doing it!! Anyway, SAB, welcome to the group. I haven't heard your specifics. I am Zanna, 34 years young, dx 4 years ago on New Year's Eve after approx. 4 years or more of misdiagnosis. You can read my story at my website at www.polymyositis.info . This group is the best thing to happen to me since dx (my dx was the first best thing!). Without the guys on this group, I may go crazy (it would be a short trip for sure!). Anyway, welcome! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 I agree with Teddi. The best part of the conference was meeting everyone and putting names with faces. Teddi, Vicki, Candy and I had a terrific time visiting with each other. I also met some other wonderful people. We met Cheri, whose wedding Vicki and I just traveled to Vegas to see. This is a wonderful support group. I think we should try to have our own conference in Vegas next year as someone suggested if the MAA isn't already doing it!! Anyway, SAB, welcome to the group. I haven't heard your specifics. I am Zanna, 34 years young, dx 4 years ago on New Year's Eve after approx. 4 years or more of misdiagnosis. You can read my story at my website at www.polymyositis.info . This group is the best thing to happen to me since dx (my dx was the first best thing!). Without the guys on this group, I may go crazy (it would be a short trip for sure!). Anyway, welcome! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 I agree with Teddi. The best part of the conference was meeting everyone and putting names with faces. Teddi, Vicki, Candy and I had a terrific time visiting with each other. I also met some other wonderful people. We met Cheri, whose wedding Vicki and I just traveled to Vegas to see. This is a wonderful support group. I think we should try to have our own conference in Vegas next year as someone suggested if the MAA isn't already doing it!! Anyway, SAB, welcome to the group. I haven't heard your specifics. I am Zanna, 34 years young, dx 4 years ago on New Year's Eve after approx. 4 years or more of misdiagnosis. You can read my story at my website at www.polymyositis.info . This group is the best thing to happen to me since dx (my dx was the first best thing!). Without the guys on this group, I may go crazy (it would be a short trip for sure!). Anyway, welcome! Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, are you taking any PT? I took some in the hospital and then when I came home. The doctors think it would help me but my ins. co. won't pay for it. They want my wife to learn how to give me the PT. She has MS and has a harder time standing straight and walking a straight line herself. I understand how hard it is to be patient, I think this disease really helps us to learn that, if we want to or not, haha. It felt like to me I was taking baby steps at times, 1 step forward then I would fall 3 backwards but I made it and so will you. I do have muscle damage so I'm not normal but people tell me I never was. I have been able to go back to work which is frustrating. Gosh, I wish I could drive my car. But I will one of these days, baby steps first. It was really hard for me to use a wheelchair and then I would run into people that I knew and didn't know I had been sick so they were very surprised and said stupid things. You just use your equipment and do what you need to do to help yourself. I think I remember the doctors told me it takes 2-3 months to get the metho in your system before it starts helping. I have a apt. with the MDA clinic the 27th Nov. I am curious as to what they can do for me if anything. I have not been to any myositis support groups. Where are they at? Hope you are doing better today, take care, lem > > Hi SAB > > Let me add my " Welcome " to the rest of them. > > I'm Teddi from Oklahoma City. I have had > > DM for almost 7 years. In the process of > > trying to get off the prednisone and am down > > to 4mg.....the lowest I have ever gotten.. > > I know you will enjoy this group. Not only > > is it informative.........we have got some > > pretty good researchers in the group...... > > but we have fun, a place to moan & whine > > and a lot of love. > > > > > > Teddi > > mailto:teddifromok@w... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, are you taking any PT? I took some in the hospital and then when I came home. The doctors think it would help me but my ins. co. won't pay for it. They want my wife to learn how to give me the PT. She has MS and has a harder time standing straight and walking a straight line herself. I understand how hard it is to be patient, I think this disease really helps us to learn that, if we want to or not, haha. It felt like to me I was taking baby steps at times, 1 step forward then I would fall 3 backwards but I made it and so will you. I do have muscle damage so I'm not normal but people tell me I never was. I have been able to go back to work which is frustrating. Gosh, I wish I could drive my car. But I will one of these days, baby steps first. It was really hard for me to use a wheelchair and then I would run into people that I knew and didn't know I had been sick so they were very surprised and said stupid things. You just use your equipment and do what you need to do to help yourself. I think I remember the doctors told me it takes 2-3 months to get the metho in your system before it starts helping. I have a apt. with the MDA clinic the 27th Nov. I am curious as to what they can do for me if anything. I have not been to any myositis support groups. Where are they at? Hope you are doing better today, take care, lem > > Hi SAB > > Let me add my " Welcome " to the rest of them. > > I'm Teddi from Oklahoma City. I have had > > DM for almost 7 years. In the process of > > trying to get off the prednisone and am down > > to 4mg.....the lowest I have ever gotten.. > > I know you will enjoy this group. Not only > > is it informative.........we have got some > > pretty good researchers in the group...... > > but we have fun, a place to moan & whine > > and a lot of love. > > > > > > Teddi > > mailto:teddifromok@w... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Hi SAB, are you taking any PT? I took some in the hospital and then when I came home. The doctors think it would help me but my ins. co. won't pay for it. They want my wife to learn how to give me the PT. She has MS and has a harder time standing straight and walking a straight line herself. I understand how hard it is to be patient, I think this disease really helps us to learn that, if we want to or not, haha. It felt like to me I was taking baby steps at times, 1 step forward then I would fall 3 backwards but I made it and so will you. I do have muscle damage so I'm not normal but people tell me I never was. I have been able to go back to work which is frustrating. Gosh, I wish I could drive my car. But I will one of these days, baby steps first. It was really hard for me to use a wheelchair and then I would run into people that I knew and didn't know I had been sick so they were very surprised and said stupid things. You just use your equipment and do what you need to do to help yourself. I think I remember the doctors told me it takes 2-3 months to get the metho in your system before it starts helping. I have a apt. with the MDA clinic the 27th Nov. I am curious as to what they can do for me if anything. I have not been to any myositis support groups. Where are they at? Hope you are doing better today, take care, lem > > Hi SAB > > Let me add my " Welcome " to the rest of them. > > I'm Teddi from Oklahoma City. I have had > > DM for almost 7 years. In the process of > > trying to get off the prednisone and am down > > to 4mg.....the lowest I have ever gotten.. > > I know you will enjoy this group. Not only > > is it informative.........we have got some > > pretty good researchers in the group...... > > but we have fun, a place to moan & whine > > and a lot of love. > > > > > > Teddi > > mailto:teddifromok@w... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Correction, I left out the word 'not' as in I am not able to return to work, wishful thinking, *sigh* lem > > > Hi SAB > > > Let me add my " Welcome " to the rest of them. > > > I'm Teddi from Oklahoma City. I have had > > > DM for almost 7 years. In the process of > > > trying to get off the prednisone and am down > > > to 4mg.....the lowest I have ever gotten.. > > > I know you will enjoy this group. Not only > > > is it informative.........we have got some > > > pretty good researchers in the group...... > > > but we have fun, a place to moan & whine > > > and a lot of love. > > > > > > > > > Teddi > > > mailto:teddifromok@w... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Correction, I left out the word 'not' as in I am not able to return to work, wishful thinking, *sigh* lem > > > Hi SAB > > > Let me add my " Welcome " to the rest of them. > > > I'm Teddi from Oklahoma City. I have had > > > DM for almost 7 years. In the process of > > > trying to get off the prednisone and am down > > > to 4mg.....the lowest I have ever gotten.. > > > I know you will enjoy this group. Not only > > > is it informative.........we have got some > > > pretty good researchers in the group...... > > > but we have fun, a place to moan & whine > > > and a lot of love. > > > > > > > > > Teddi > > > mailto:teddifromok@w... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Correction, I left out the word 'not' as in I am not able to return to work, wishful thinking, *sigh* lem > > > Hi SAB > > > Let me add my " Welcome " to the rest of them. > > > I'm Teddi from Oklahoma City. I have had > > > DM for almost 7 years. In the process of > > > trying to get off the prednisone and am down > > > to 4mg.....the lowest I have ever gotten.. > > > I know you will enjoy this group. Not only > > > is it informative.........we have got some > > > pretty good researchers in the group...... > > > but we have fun, a place to moan & whine > > > and a lot of love. > > > > > > > > > Teddi > > > mailto:teddifromok@w... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Lem & SAB The MAA has the K I T groups which are support groups. The one for Texas & Oklahoma is held in Texas. Right now they would like to split the group and have one in Ok. but no one wants to take charge. You have to be a MAA member to join. Last year I went to the MAA convention in San Diego and was really disappointed in the lack of any real information. Seems like the answer to every question was " Well, we really don't know........ " The only good part was I got to see Vicki & Zanna in person. The price of membership has gone up this year.....I believe it is $50. I didn't rejoin. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 Lem & SAB The MAA has the K I T groups which are support groups. The one for Texas & Oklahoma is held in Texas. Right now they would like to split the group and have one in Ok. but no one wants to take charge. You have to be a MAA member to join. Last year I went to the MAA convention in San Diego and was really disappointed in the lack of any real information. Seems like the answer to every question was " Well, we really don't know........ " The only good part was I got to see Vicki & Zanna in person. The price of membership has gone up this year.....I believe it is $50. I didn't rejoin. Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 SAB I think we have all been in the place that you are right now. it does seem like we will be stuck there forever but like Lem said it's the babysteps. One of my biggest thrills was when (with the help of the walker) I was able to take a shower by myself. It was better than an Olympic gold medal!!! Thrilled my 32 yr old son too.....he was taking care of me which included bathing Mom. We got through that but I think it was harder on him than on me.....LOL Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 SAB I think we have all been in the place that you are right now. it does seem like we will be stuck there forever but like Lem said it's the babysteps. One of my biggest thrills was when (with the help of the walker) I was able to take a shower by myself. It was better than an Olympic gold medal!!! Thrilled my 32 yr old son too.....he was taking care of me which included bathing Mom. We got through that but I think it was harder on him than on me.....LOL Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 SAB I think we have all been in the place that you are right now. it does seem like we will be stuck there forever but like Lem said it's the babysteps. One of my biggest thrills was when (with the help of the walker) I was able to take a shower by myself. It was better than an Olympic gold medal!!! Thrilled my 32 yr old son too.....he was taking care of me which included bathing Mom. We got through that but I think it was harder on him than on me.....LOL Teddi mailto:teddifromok@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 SAB, Don't worry, you will be able to hold your grandchildren someday. My son was born 10 weeks early and when we brought him home I was getting very sick. He was only 5 pounds and I couldn't get out of a chair with him in my arms. I had to put him on the floor and use both my arms to get up and then pick him up. I couldn't even carry him to walk very far. I did improve and so will you. He is 4 now and nearly 40 pounds and 46 inches tall. I can carry him about 10 feet but that is only if he stands on the bed and holds me. I cannot pick him up and don't even try. I have learned to do things differently with him that I did with my daughter. He and I do a lot of coloring and computer games. My daughter and I used to walk every where and do gardening. They will still love you just as much. It isn't what you can do with them, it is what you can instill in them that counts. Where is your web page? I would love to read it. Take care, Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 SAB, Don't worry, you will be able to hold your grandchildren someday. My son was born 10 weeks early and when we brought him home I was getting very sick. He was only 5 pounds and I couldn't get out of a chair with him in my arms. I had to put him on the floor and use both my arms to get up and then pick him up. I couldn't even carry him to walk very far. I did improve and so will you. He is 4 now and nearly 40 pounds and 46 inches tall. I can carry him about 10 feet but that is only if he stands on the bed and holds me. I cannot pick him up and don't even try. I have learned to do things differently with him that I did with my daughter. He and I do a lot of coloring and computer games. My daughter and I used to walk every where and do gardening. They will still love you just as much. It isn't what you can do with them, it is what you can instill in them that counts. Where is your web page? I would love to read it. Take care, Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 SAB, Don't worry, you will be able to hold your grandchildren someday. My son was born 10 weeks early and when we brought him home I was getting very sick. He was only 5 pounds and I couldn't get out of a chair with him in my arms. I had to put him on the floor and use both my arms to get up and then pick him up. I couldn't even carry him to walk very far. I did improve and so will you. He is 4 now and nearly 40 pounds and 46 inches tall. I can carry him about 10 feet but that is only if he stands on the bed and holds me. I cannot pick him up and don't even try. I have learned to do things differently with him that I did with my daughter. He and I do a lot of coloring and computer games. My daughter and I used to walk every where and do gardening. They will still love you just as much. It isn't what you can do with them, it is what you can instill in them that counts. Where is your web page? I would love to read it. Take care, Zanna Quote Link to comment Share on other sites More sharing options...
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