Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi, I know this has been discussed here before, but since you mentioned it specifically....what's the issue with " w " sitting and why is it bad for the feet. Calvin does it sometimes also. I like the approach you are taking! By the way we also were French physiotherapy for 8 1/2 months, before finding Dr. Ponseti. > Hi Jen, > > Yes, not only do we intent to tell our , but we've already begun. > > You probably don't know our story, so I'll give you the quick version. > was born in 12/98 with bilateral clubfoot. We didn't know of the > Ponseti method until was a year old, and used the French physiotherapy > method. 18 months of therapy produced very good results cosmetically, but > was not walking well, just taking a step or two at a time. Surgery > became necessary. Dr. Chorney of NYU Hospital for Joint Diseases performed > 2 procedures on each foot in surgery on 6/21/00, and was walking well > within 3 months. He has needed no further surgery to date. He is now a > beautiful, active 4 year old who keeps me hopping!! > > We've started to tell about his journey, telling him that when he was > born, his feet had boo-boos and that Mommy and Daddy love him sooooooo much > that they and his oldest sister worked with him every night (sometimes after > he fell asleep) along with his pediatric chiropractor (who supervised his > progress a couple of times a week and Dr. Chorney (and, previously, another > doctor) to help his feet get well. We also remind him regularly not to sit > in " W " position and explained that it is not good for his feet to do that. > (I think he has heard, " , sit right! " more times than I can tell you.) > > We are making 's learning of his saga as much a natural part of his > life as the journey ifself was. When he is older, we will give him a box > that contains all of his casts and braces and a rather large looseleaf > notebook of information, his medical records, and emails from friends across > the country and Canada who prayed for him throughout his journey, his > surgery, and his recovery. > > Because both of his feet were involved, 's calves are fairly even in > size, so we don't have an issue with that. Both calves are a tad undersized > and we will continue to work with him to build up muscles in his legs as he > grows. He rides a tricycle now and his next assignment from Dr. Chorney is > to, as soon as he is well-coordinated enough, is to teach him to roller > skate to help him conquer what pigeon-toedness he still has and to > strengthen his leg muscles. We will especially encourage him in sports > that will not be high-impact because of the problems we have heard children > with a history of clubfoot can have with that. As for running, LOL, this > little guy runs all over the place. I sincerely doubt that the clubfoot > history or his calves have slowed him down at all. He's as rambunctious as > our older 4 were at the same age. > > Blessings, > Pam > > > Message: 5 > Date: Mon, 28 Apr 2003 19:59:59 -0000 > From: " stumbalina23 " <stumbalina23@y...> > Subject: What do you plan to tell your child?(more) > > Hi I was just wondering what any of you are planning to tell your > child about his or her foot/feet. > > Do you plan to make a big deal out of it, or downplay it? > > Do you plan to tell the child that their foot is smaller or their > calf is skinnier because of clubfoot, or that they might not be as > fast of a runner because of it? > > Just curious--if anyone had given it any thought. > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi, I know this has been discussed here before, but since you mentioned it specifically....what's the issue with " w " sitting and why is it bad for the feet. Calvin does it sometimes also. I like the approach you are taking! By the way we also were French physiotherapy for 8 1/2 months, before finding Dr. Ponseti. > Hi Jen, > > Yes, not only do we intent to tell our , but we've already begun. > > You probably don't know our story, so I'll give you the quick version. > was born in 12/98 with bilateral clubfoot. We didn't know of the > Ponseti method until was a year old, and used the French physiotherapy > method. 18 months of therapy produced very good results cosmetically, but > was not walking well, just taking a step or two at a time. Surgery > became necessary. Dr. Chorney of NYU Hospital for Joint Diseases performed > 2 procedures on each foot in surgery on 6/21/00, and was walking well > within 3 months. He has needed no further surgery to date. He is now a > beautiful, active 4 year old who keeps me hopping!! > > We've started to tell about his journey, telling him that when he was > born, his feet had boo-boos and that Mommy and Daddy love him sooooooo much > that they and his oldest sister worked with him every night (sometimes after > he fell asleep) along with his pediatric chiropractor (who supervised his > progress a couple of times a week and Dr. Chorney (and, previously, another > doctor) to help his feet get well. We also remind him regularly not to sit > in " W " position and explained that it is not good for his feet to do that. > (I think he has heard, " , sit right! " more times than I can tell you.) > > We are making 's learning of his saga as much a natural part of his > life as the journey ifself was. When he is older, we will give him a box > that contains all of his casts and braces and a rather large looseleaf > notebook of information, his medical records, and emails from friends across > the country and Canada who prayed for him throughout his journey, his > surgery, and his recovery. > > Because both of his feet were involved, 's calves are fairly even in > size, so we don't have an issue with that. Both calves are a tad undersized > and we will continue to work with him to build up muscles in his legs as he > grows. He rides a tricycle now and his next assignment from Dr. Chorney is > to, as soon as he is well-coordinated enough, is to teach him to roller > skate to help him conquer what pigeon-toedness he still has and to > strengthen his leg muscles. We will especially encourage him in sports > that will not be high-impact because of the problems we have heard children > with a history of clubfoot can have with that. As for running, LOL, this > little guy runs all over the place. I sincerely doubt that the clubfoot > history or his calves have slowed him down at all. He's as rambunctious as > our older 4 were at the same age. > > Blessings, > Pam > > > Message: 5 > Date: Mon, 28 Apr 2003 19:59:59 -0000 > From: " stumbalina23 " <stumbalina23@y...> > Subject: What do you plan to tell your child?(more) > > Hi I was just wondering what any of you are planning to tell your > child about his or her foot/feet. > > Do you plan to make a big deal out of it, or downplay it? > > Do you plan to tell the child that their foot is smaller or their > calf is skinnier because of clubfoot, or that they might not be as > fast of a runner because of it? > > Just curious--if anyone had given it any thought. > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Pam, It's been a very long time since I've seen your E-mails about it is nice to hear he is doing well now. This is Zachary's mother from Mass. who also goes to NYU Hospital but to Dr. Harold van Bosse and previously to Dr. Feldman. Zachary is doing well he is three years old and is starting to ride his bike too, he peddles well. We have not been back to the doctors yet this spring but are do to have a checkup soon. His pediatrican is very pleased with the process of the Ponseti Method and that Zachary's feet are doing well. His calf is much smaller one the right since that was his clubfoot. It was nice hearing your still involved here on the board. God Bless, Kathy and Family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi Pam, It's been a very long time since I've seen your E-mails about it is nice to hear he is doing well now. This is Zachary's mother from Mass. who also goes to NYU Hospital but to Dr. Harold van Bosse and previously to Dr. Feldman. Zachary is doing well he is three years old and is starting to ride his bike too, he peddles well. We have not been back to the doctors yet this spring but are do to have a checkup soon. His pediatrican is very pleased with the process of the Ponseti Method and that Zachary's feet are doing well. His calf is much smaller one the right since that was his clubfoot. It was nice hearing your still involved here on the board. God Bless, Kathy and Family Quote Link to comment Share on other sites More sharing options...
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