Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Trisha, The spinal tap is NOT conclusive, it is merely a guideline...Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Trisha, The spinal tap is NOT conclusive, it is merely a guideline...Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 No expert here, but.... This is just my opinion and I'm sure there will be others who will disagree. If you have the spinal tap and are officially diagnosed with MS you can get on one of the meds that will lower your chances of disability. More and more drs are finding that early treatment is the way to go. Again, just my 2 cents. :-) (40 yrs. diagnosed in 2007 and on Rebif) Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 My spinal tap was negative but I still got a positive MS diagnosis from my MRI and evoked potential tests. I didn’t have any side effects from the spinal tap…got to stay in bed for a day and drink Pepsi. Will your neuro give you a MS diagnosis without a spinal tap? Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Sent: Friday, January 29, 2010 4:04 PM To: MSersLife Subject: Re: Spinal tap Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me. Has your doctor suggested an LP? Sharon join me on Facebook: Sharon Mars wobbletowalk This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: kntrick <kntricksbcglobal (DOT) net> To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AM Subject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 My spinal tap was negative but I still got a positive MS diagnosis from my MRI and evoked potential tests. I didn’t have any side effects from the spinal tap…got to stay in bed for a day and drink Pepsi. Will your neuro give you a MS diagnosis without a spinal tap? Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Sent: Friday, January 29, 2010 4:04 PM To: MSersLife Subject: Re: Spinal tap Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me. Has your doctor suggested an LP? Sharon join me on Facebook: Sharon Mars wobbletowalk This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: kntrick <kntricksbcglobal (DOT) net> To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AM Subject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 My spinal tap was negative but I still got a positive MS diagnosis from my MRI and evoked potential tests. I didn’t have any side effects from the spinal tap…got to stay in bed for a day and drink Pepsi. Will your neuro give you a MS diagnosis without a spinal tap? Connie From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Sent: Friday, January 29, 2010 4:04 PM To: MSersLife Subject: Re: Spinal tap Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me. Has your doctor suggested an LP? Sharon join me on Facebook: Sharon Mars wobbletowalk This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: kntrick <kntricksbcglobal (DOT) net> To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AM Subject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Might not be conclusive, but it can also rule in/out many diseases. I'm paralyzed from T10 down..yet they can't find the lesion in that location. It's highly abnormal for someone with extablished MS to suddenly develop transverse myelitis..an LP is the best bet to see what's going on. It might be negative on one thing, but positive on an other. http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 21 Best Must-Bookmark Sites for Colouring Pages http://www.practical-homeschooling.org View my photo albums: http://www.flickr.com/photos/khaleeka/ > > Trisha, > The spinal tap is NOT conclusive, it is merely a guideline...Don't > have it done. > Regards, > Tom Bayuk > > * Spinal tap > > I'm trying to determine if it would be beneficial to undergo a > spinal tap, so I'm looking for feedback from the experts. > > I have demyelinated lesions of the central nervous system and labs > show nothing to explain them. I have extremely mild symptoms, with > no damage to the peripheral nerves. I'm 44 years old, and living > in a 120 year old two story home. I work full time - office work, > so easy on the body. > > Is it in my best interests to rule in/rule out MS at this stage so > that I can plan for the future? Is the potential for side effects > worth it, or should I just figure that time marches on and the > best thing any of us can do is ready our homes for potential > handicaps as we age? > > (I think I answered my question here > > Thanks! > Trisha > > PS -- I hope that you are all safe and sound and warm and dry with > these winter storms - and for those who are not, I hope it's of > extremely short duration! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 I pretty much decided against one, for this reason (not really conclusive) and because I absolutely CANNOT lie still for any length of time, especially on my back. I also have clotting problems, and would not like all my " juice " to leak out... But that's just my opinion, and I'm a weirdo who's avoided doctors pretty much entirely for more than 20 years.... in WY " You get a wonderful view from the point of no return... " http://www.flickr.com/photos/liadains_fancies http://practical-blackwork.blogspot.com http://practicalblackwork.com Re: Spinal tap Trisha, The spinal tap is NOT conclusive, it is merely a guideline...Don't have it done. Regards, Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body. Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age? (I think I answered my question here Thanks! Trisha PS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 I had 2 done and they weren't too bad. The worst of it was the spasms in my arm afterward (it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of more help... Cheri Fenton To: MSersLife Sent: Fri, January 29, 2010 6:07:58 PMSubject: RE: Spinal tap I pretty much decided against one, for this reason (not reallyconclusive) and because I absolutely CANNOT lie still for any length oftime, especially on my back. I also have clotting problems, and would notlike all my "juice" to leak out...But that's just my opinion, and I'm a weirdo who's avoided doctors prettymuch entirely for more than 20 years.... in WY"You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancieshttp://practical- blackwork. blogspot. com http://practicalblackwork.com-----Original Message-----From: MSersLife@yahoogrou ps.com [mailto:MSersLife@yahoogrou ps.com] On BehalfOf tbayukSent: Friday, January 29, 2010 8:07 AMTo: MSersLife@yahoogrou ps.comSubject: Re: Spinal tap Trisha,The spinal tap is NOT conclusive, it is merely a guideline... Don't have itdone.Regards,Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap,so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs shownothing to explain them. I have extremely mild symptoms, with no damage tothe peripheral nerves. I'm 44 years old, and living in a 120 year old twostory home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that Ican plan for the future? Is the potential for side effects worth it, orshould I just figure that time marches on and the best thing any of us cando is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with thesewinter storms - and for those who are not, I hope it's of extremely shortduration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 I had 2 done and they weren't too bad. The worst of it was the spasms in my arm afterward (it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of more help... Cheri Fenton To: MSersLife Sent: Fri, January 29, 2010 6:07:58 PMSubject: RE: Spinal tap I pretty much decided against one, for this reason (not reallyconclusive) and because I absolutely CANNOT lie still for any length oftime, especially on my back. I also have clotting problems, and would notlike all my "juice" to leak out...But that's just my opinion, and I'm a weirdo who's avoided doctors prettymuch entirely for more than 20 years.... in WY"You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancieshttp://practical- blackwork. blogspot. com http://practicalblackwork.com-----Original Message-----From: MSersLife@yahoogrou ps.com [mailto:MSersLife@yahoogrou ps.com] On BehalfOf tbayukSent: Friday, January 29, 2010 8:07 AMTo: MSersLife@yahoogrou ps.comSubject: Re: Spinal tap Trisha,The spinal tap is NOT conclusive, it is merely a guideline... Don't have itdone.Regards,Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap,so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs shownothing to explain them. I have extremely mild symptoms, with no damage tothe peripheral nerves. I'm 44 years old, and living in a 120 year old twostory home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that Ican plan for the future? Is the potential for side effects worth it, orshould I just figure that time marches on and the best thing any of us cando is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with thesewinter storms - and for those who are not, I hope it's of extremely shortduration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 I had 2 done and they weren't too bad. The worst of it was the spasms in my arm afterward (it flopped like a dead fish). Mine was inconclusive. Sorry I can't be of more help... Cheri Fenton To: MSersLife Sent: Fri, January 29, 2010 6:07:58 PMSubject: RE: Spinal tap I pretty much decided against one, for this reason (not reallyconclusive) and because I absolutely CANNOT lie still for any length oftime, especially on my back. I also have clotting problems, and would notlike all my "juice" to leak out...But that's just my opinion, and I'm a weirdo who's avoided doctors prettymuch entirely for more than 20 years.... in WY"You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancieshttp://practical- blackwork. blogspot. com http://practicalblackwork.com-----Original Message-----From: MSersLife@yahoogrou ps.com [mailto:MSersLife@yahoogrou ps.com] On BehalfOf tbayukSent: Friday, January 29, 2010 8:07 AMTo: MSersLife@yahoogrou ps.comSubject: Re: Spinal tap Trisha,The spinal tap is NOT conclusive, it is merely a guideline... Don't have itdone.Regards,Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap,so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs shownothing to explain them. I have extremely mild symptoms, with no damage tothe peripheral nerves. I'm 44 years old, and living in a 120 year old twostory home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that Ican plan for the future? Is the potential for side effects worth it, orshould I just figure that time marches on and the best thing any of us cando is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with thesewinter storms - and for those who are not, I hope it's of extremely shortduration! Quote Link to comment Share on other sites More sharing options...
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