Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 No expert here, but.... This is just my opinion and I'm sure there will be others who will disagree. If you have the spinal tap and are officially diagnosed with MS you can get on one of the meds that will lower your chances of disability. More and more drs are finding that early treatment is the way to go. Again, just my 2 cents. :-) (40 yrs. diagnosed in 2007 and on Rebif) Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me.Has your doctor suggested an LP? Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AMSubject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me.Has your doctor suggested an LP? Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AMSubject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Here's the thing with spinal taps (lumbar puncture)... if you are in the middle of an 'attack' you would be likely to have a positive test. But if you are going into, or out of, an 'attack' you may not have a positive test. When I had my LP that's what my neuro was concerned about because I cycling in and out of little attacks every 4 or 5 days on a rapid cycle. He was worried that we wouldn't get an accurate test. I was positive on only two bands as a result. That result was still enough for my neuro to give me the MS diagnosis, along with the other things that were going on with me.Has your doctor suggested an LP? Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, January 29, 2010 6:45:04 AMSubject: Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap, so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs show nothing to explain them. I have extremely mild symptoms, with no damage to the peripheral nerves. I'm 44 years old, and living in a 120 year old two story home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that I can plan for the future? Is the potential for side effects worth it, or should I just figure that time marches on and the best thing any of us can do is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with these winter storms - and for those who are not, I hope it's of extremely short duration!------------------------------------ Quote Link to comment Share on other sites More sharing options...
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