Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 The pcp who told me I was 'too old for MS' was a big jerk (I'll bet you could guess that:). It's demented but when the brain MRI came back showing lesions I felt such satisfaction and enjoyed telling my pcp "did you see the mri results?" laughing.... Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, January 31, 2010 1:43:28 PMSubject: RE: Spinal tap - response and reports of beer relaxation I'll probably hear the same thing - I'm 52. But I've had weird "spells"for YEARS, and never connected it to anything. I bet lots of folks are thatway. How does that fit with the "you're too old" theory? in WY"You get a wonderful view from the point of no return..." http://www.flickr.com/photos/liadains_fancieshttp://practical-blackwork.blogspot.com http://practicalblackwork.com-----Original Message-----From: MSersLife [mailto:MSersLife ] On BehalfOf SharonSent: Sunday, January 31, 2010 1:40 PMTo: MSersLife Subject: Re: Spinal tap - response and reports of beer relaxation My PCP doubted the neuros suggesting that my problem might be MS. The PCPsaid "you're too old for MS." HA! I guess I showed him, huh? lol I was48. hugs Sharonjoin me on Facebook:Sharon Mars wobbletowalk@...This email is a natural hand made product. The slight variations in spellingand grammar enhance its individual character and beauty and in no way are tobe considered flaws or defects. To: MSersLife Sent: Sun, January 31, 2010 3:55:07 AMSubject: RE: Spinal tap - response and reports of beer relaxationWow! Thank you everyone – I greatly appreciate the responses and sharing ofexperiences. My neuro mentioned the LP on the first visit and I said NO. The only“positive†test I’ve had to date is the MRI – and my GP has documented thatI had numbness and tingling on the left side of my face for a month. Theneuro quoted the book, saying that there must be two clinically documentedcases of true symptoms at least one month apart for an MS diagnosis – and,MS is typically diagnosed in much younger women – and, I have no functionaldamage, so he refuses to diagnose me. That’s why he has, again, suggestedthe spinal tap. My gut tells me that he’s trying to wrap up every test hehas at his disposal and send me packing. I have an appt this week with anopthalmalogist to see if the blurred vision is optic neuritis – if so, thatwould be the second clinical documentation and would make the LP a mutepoint. So – I’ll await the vision diagnosis and go from there. Thanks again everyone!TrishaPS – and I had three tomato beers last night to test my relaxation responses– they’re working! And, honestly, I do believe I belong with my fellowMSers – but my job requires that MD stamped dx to satisfy FMLA and sick paypolicies. From: MSersLife [mailto: MSersLife ] OnBehalf Of cheri fentonSent: Friday, January 29, 2010 9:53 PMTo: MSersLife Subject: Re: Spinal tap I had 2 done and they weren't too bad. The worst of it was the spasms in myarm afterward (it flopped like a dead fish). Mine was inconclusive. Sorry Ican't be of more help... Cheri Fenton From: Thallas <fathallas@collinsco m.net>To: MSersLife@yahoogrou ps.comSent: Fri, January 29, 2010 6:07:58 PMSubject: RE: Spinal tap I pretty much decided against one, for this reason (not reallyconclusive) and because I absolutely CANNOT lie still for any length oftime, especially on my back. I also have clotting problems, and would notlike all my "juice" to leak out...But that's just my opinion, and I'm a weirdo who's avoided doctors prettymuch entirely for more than 20 years.... in WY"You get a wonderful view from the point of no return..." http://www.flickr. com/photos/ liadains_ fancieshttp://practical- blackwork. blogspot. com http://practicalbla ckwork.com Re: Spinal tap Trisha,The spinal tap is NOT conclusive, it is merely a guideline... Don't have itdone.Regards,Tom Bayuk Spinal tap I'm trying to determine if it would be beneficial to undergo a spinal tap,so I'm looking for feedback from the experts. :)I have demyelinated lesions of the central nervous system and labs shownothing to explain them. I have extremely mild symptoms, with no damage tothe peripheral nerves. I'm 44 years old, and living in a 120 year old twostory home. I work full time - office work, so easy on the body.Is it in my best interests to rule in/rule out MS at this stage so that Ican plan for the future? Is the potential for side effects worth it, orshould I just figure that time marches on and the best thing any of us cando is ready our homes for potential handicaps as we age?(I think I answered my question here ;)Thanks!TrishaPS -- I hope that you are all safe and sound and warm and dry with thesewinter storms - and for those who are not, I hope it's of extremely shortduration! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.