Re: how to cope in a world not built for us

[Guest guest]

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryDate: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately. On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote: Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!-- AutismOnTheGo.com

[Guest guest]

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryDate: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately. On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote: Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!-- AutismOnTheGo.com

[Guest guest]

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them. Sent on the Now Network™ from my Sprint® BlackBerryFrom: m_bandrea@...Date: Mon, 1 Feb 2010 19:01:39 +0000To: <sList >Subject: Re: how to cope in a world not built for us

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryFrom: Hawk <hjhawkgmail>Date: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately. On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote: Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!-- AutismOnTheGo.com

[Guest guest]

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them. Sent on the Now Network™ from my Sprint® BlackBerryFrom: m_bandrea@...Date: Mon, 1 Feb 2010 19:01:39 +0000To: <sList >Subject: Re: how to cope in a world not built for us

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryFrom: Hawk <hjhawkgmail>Date: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately. On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote: Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!-- AutismOnTheGo.com

[Guest guest]

Gee,I'm so glad I am able to learn from all of your experiences, bc. as negative or positive these are, I will know what to do or at least what to expect when I'm in a situation like that!!! Thanks for sharing!!!!Mónica

[Guest guest]

Gee,I'm so glad I am able to learn from all of your experiences, bc. as negative or positive these are, I will know what to do or at least what to expect when I'm in a situation like that!!! Thanks for sharing!!!!Mónica

[Guest guest]

I just loved your story and was very impressed with how calmly you handled it. I hope I can handle a situation like that so graciouslyThank youSent from my iPhone

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them. Sent on the Now Network™ from my Sprint® BlackBerryFrom: m_bandrea

Date: Mon, 1 Feb 2010 19:01:39 +0000To: <sList >Subject: Re: how to cope in a world not built for us

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryFrom: Hawk <hjhawkgmail>

Date: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us

I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately.

On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote:

Â

Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!

-- AutismOnTheGo.com

[Guest guest]

I just loved your story and was very impressed with how calmly you handled it. I hope I can handle a situation like that so graciouslyThank youSent from my iPhone

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them. Sent on the Now Network™ from my Sprint® BlackBerryFrom: m_bandrea

Date: Mon, 1 Feb 2010 19:01:39 +0000To: <sList >Subject: Re: how to cope in a world not built for us

I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining. When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.Sent from my Verizon Wireless BlackBerryFrom: Hawk <hjhawkgmail>

Date: Mon, 1 Feb 2010 12:12:45 -0500To: <sList >Subject: Re: how to cope in a world not built for us

I would rather advertise that my son has autism, than deal with the police being called and reports to DCF. When a child is no longer a little child, no longer cute and their behavior way out of proportion for their age, you must do something to keep them safe. I have less fear of a predator as my son is with me 24/7 than I do of the police being called and responding to my son inappropriately.

On Mon, Feb 1, 2010 at 1:13 AM, M T C <cammarata01> wrote:

Â

Some parents have mentioned that advertising that their child has autism in public may make their child more vulnerable to predators. Something to think about I guess- as if we don't have enough!

-- AutismOnTheGo.com

[Guest guest]

It's people like the person described below that made me give up trying to

explain autism to a stranger while I try and deal with a meltdown. People like

will never " get it. "

The appropriate way to deal with negative behavior, whether it be fron an NT

adult or an autistic child is the same:

Ignore it.

Anything else just reinforces negative behavior.

Steve

>

> I'm a nanny to a child on the spectrum. One day we were at a store and the

fire alarm went off for a couple of seconds. " My " little boy had a melt. There

were people watching but there was this one lady who grab my arm and told me

" control your son, if you can't control him out in public we should stay home " .

I tried to explain to her that he autism and she told me that wasn't an excuse

at all. And that instead of coming up with excuse I should take a look at " my "

parents skills. All I wanted to do was hit her. After that I don't bother

explaining.

>

> When he is having a melt down, hugging works. Or tickle him. Or have him

behind me or under a sweater. Or leaving.

[Guest guest]

It's people like the person described below that made me give up trying to

explain autism to a stranger while I try and deal with a meltdown. People like

will never " get it. "

The appropriate way to deal with negative behavior, whether it be fron an NT

adult or an autistic child is the same:

Ignore it.

Anything else just reinforces negative behavior.

Steve

>

> I'm a nanny to a child on the spectrum. One day we were at a store and the

fire alarm went off for a couple of seconds. " My " little boy had a melt. There

were people watching but there was this one lady who grab my arm and told me

" control your son, if you can't control him out in public we should stay home " .

I tried to explain to her that he autism and she told me that wasn't an excuse

at all. And that instead of coming up with excuse I should take a look at " my "

parents skills. All I wanted to do was hit her. After that I don't bother

explaining.

>

> When he is having a melt down, hugging works. Or tickle him. Or have him

behind me or under a sweater. Or leaving.

[Guest guest]

Date: February 1, 2010 8:33:58 PM ESTTo: sList Subject: Re: how to cope in a world not built for usI don't believe in God, but I believe they are here to teach.All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.Sent on the Now Network˙ from my Sprint® BlackBerry

[Guest guest]

Date: February 1, 2010 8:33:58 PM ESTTo: sList Subject: Re: how to cope in a world not built for usI don't believe in God, but I believe they are here to teach.All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.Sent on the Now Network˙ from my Sprint® BlackBerry

[Guest guest]

Date: February 1, 2010 8:33:58 PM ESTTo: sList Subject: Re: how to cope in a world not built for usI don't believe in God, but I believe they are here to teach.All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.Sent on the Now Network˙ from my Sprint® BlackBerry

[Guest guest]

One great thing about America is we're all entitled to our opinion. We can use just about anything to spread awareness.. generally when I give out a pamphlet on A.S.D. it's not during a 'meltdown' it's when someone stares rudely at why ' ny ' is playing oddly with something, not talking 'right' in their sense anyway, or something such as that. I think that ignoring ignorance is a smart thing to do when it's bothering you to a point of not being able to concentrate on what you're doing that's important. When someone looks at one of my 'kids' that I'm directly working with now on a daily basis... as they inappropriately do something that the 'staring party' thinks they shouldn't do.. or thinks that we're bad parents

etc... handing them a pamphlet with a smile and saying " have a nice day ' ... is worth the time it takes. Now if the child is melting down.. it's time to remove them from the situation and I agree to not give them a second thought 'at that time'.. If I knew who it was.. they would still get the smile, pamphlet, and 'have a nice day' . No reason to be rude is there ?' E. , Sr. Nationwide Spec. Ed. Advocate/AdviserThe Office of Special Education Advocacy, Inc. " O.S.E.A. " Founder, The Office of Advocacy for Autistic Children, est.1996NOTE: OFFICE has MOVED TO CALIF...Hm/office #(530)605-3548You can also reach my Sr. Advocate and Business Manager at the Home Office # aboveCELL # *best way to reach me is by cell**BAN Illegal Restraint, Seclusion, and Arrest of Dev. Disabled** JOIN US AT: http://groups.yahoo.com/group/EveryoneUnited4DisabilityReform/ http://groups.yahoo.com/group/ParentsUnitedforSpecialEd/This electronic mail message and any attached files contain information intended for the exclusive use of the individual or entity to whom it is addressed and may contain information that is proprietary, privileged, confidential, and/or exempt from disclosure under the Electronic Communications Privacy Act, (18 U.S.C. §§ 2510-2521.)To:

sList Sent: Mon, February 1, 2010 1:48:59 PMSubject: Re: how to cope in a world not built for us

It's people like the person described below that made me give up trying to explain autism to a stranger while I try and deal with a meltdown. People like will never "get it."

The appropriate way to deal with negative behavior, whether it be fron an NT adult or an autistic child is the same:

Ignore it.

Anything else just reinforces negative behavior.

Steve

>

> I'm a nanny to a child on the spectrum. One day we were at a store and the fire alarm went off for a couple of seconds. "My" little boy had a melt. There were people watching but there was this one lady who grab my arm and told me "control your son, if you can't control him out in public we should stay home". I tried to explain to her that he autism and she told me that wasn't an excuse at all. And that instead of coming up with excuse I should take a look at "my" parents skills. All I wanted to do was hit her. After that I don't bother explaining.

>

> When he is having a melt down, hugging works. Or tickle him. Or have him behind me or under a sweater. Or leaving.

[Guest guest]

You made me think of something , thank you . Now the ultimate way of showing them awareness would be to just extend my left forearm... the inside has a 3" x 4" tattoo of the ' Puzzle ' logo.... along with " Autism ' in script below... I guess that could be a 'silent' way of showing them... although the other arm with the 14" very detailed tatt of the last Nascar S.W. tour car I drove before I ended my career racing with a 'bang' somewhat takes away from that. Now I could always go around with a long sleeve shirt.. one sleeve up.. one sleeve down... Peace to all... E. , Sr. Nationwide Spec. Ed. Advocate/AdviserThe Office of Special Education Advocacy, Inc. " O.S.E.A. " Founder, The Office of Advocacy for Autistic Children, est.1996NOTE: OFFICE has MOVED TO CALIF...Hm/office #(530)605-3548You can also reach my Sr. Advocate and Business Manager at the Home Office # aboveCELL # *best way to reach

me is by cell**BAN Illegal Restraint, Seclusion, and Arrest of Dev. Disabled** JOIN US AT: http://groups.yahoo.com/group/EveryoneUnited4DisabilityReform/ http://groups.yahoo.com/group/ParentsUnitedforSpecialEd/This electronic mail message and any attached files contain information intended for the exclusive use of the individual or entity to whom it is addressed and may contain information that is proprietary, privileged, confidential, and/or exempt from disclosure under the Electronic Communications Privacy Act, (18 U.S.C. §§ 2510-2521.)To: sList Sent: Mon, February 1, 2010 3:21:26 AMSubject: Re: how to cope in a world not built for us

I agree with this suggestion. Any time my son and I are traveling he wears some kind of autism awareness shirt. We also have bumper stickers on the car as many of our meltdowns are in the parking lot. It makes it so much easier in the middle of a meltdown. Also since my son has a service dog, it is easily noticeable that he has a disability and autism. Most of the time, we no longer get snide remarks, but offers for assistance.

On Sun, Jan 31, 2010 at 8:34 PM, Heifferon <gary00001msn (DOT) com> wrote:

Hi e,

I can remember a parent saying that she was tired of explaining

that her son had autism. My suggestion is every time you take your son out in

public wear an autism t-shirt. If they can do simple addition they will make

the connection between your son and the t-shirt.

Then if they approach you and have questions they already know the problem. I

think this might also eliminate the need to explain things. It will

automatically tell them a little bit about the problem.

In fact I would encourage any parent who takes their child out

into the public to wear an autism t-shirt. In this way you really don't have to

try and explain why your son is acting that way. Then if you get questions it

will be about your son and autism. If they don't ask questions they will still

know why the atypical behavior.

-- AutismOnTheGo. com

[Guest guest]

I second that Carly.

From: Steinman

Sent: Tuesday, February 02, 2010 9:27 AM

To: sList

Subject: RE: how to cope in a world not built for us

I agree with you Carly.

From: sList [mailto:sList ] On Behalf Of Carly SaxSent: Monday, February 01, 2010 8:41 PMTo: sList Subject: Re: how to cope in a world not built for us

From: Carly Sax <carlysaxme>

Date: February 1, 2010 8:33:58 PM EST

To: sList

Subject: Re: how to cope in a world not built for us

I don't believe in God, but I believe they are here to teach.

On Feb 1, 2010, at 3:00 PM, avrvp wrote:

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.

Sent on the Now Networkÿ from my Sprint® BlackBerry

[Guest guest]

I second that Carly.

From: Steinman

Sent: Tuesday, February 02, 2010 9:27 AM

To: sList

Subject: RE: how to cope in a world not built for us

I agree with you Carly.

From: sList [mailto:sList ] On Behalf Of Carly SaxSent: Monday, February 01, 2010 8:41 PMTo: sList Subject: Re: how to cope in a world not built for us

From: Carly Sax <carlysaxme>

Date: February 1, 2010 8:33:58 PM EST

To: sList

Subject: Re: how to cope in a world not built for us

I don't believe in God, but I believe they are here to teach.

On Feb 1, 2010, at 3:00 PM, avrvp wrote:

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.

Sent on the Now Networkÿ from my Sprint® BlackBerry

[Guest guest]

I second that Carly.

From: Steinman

Sent: Tuesday, February 02, 2010 9:27 AM

To: sList

Subject: RE: how to cope in a world not built for us

I agree with you Carly.

From: sList [mailto:sList ] On Behalf Of Carly SaxSent: Monday, February 01, 2010 8:41 PMTo: sList Subject: Re: how to cope in a world not built for us

From: Carly Sax <carlysaxme>

Date: February 1, 2010 8:33:58 PM EST

To: sList

Subject: Re: how to cope in a world not built for us

I don't believe in God, but I believe they are here to teach.

On Feb 1, 2010, at 3:00 PM, avrvp wrote:

All I have learned or better yet, been conditioned to do, by people who are not blessed with our type of children, is to #1, pray for those people who don't know any better #2 tell them that my child is a special needs child.I had an incident once @ a boutique in the mall. I was @ the register waiting in line to pay. My son, who has CP accidentally bumped into a lady. Almost instantly, she snapped @ my son said..."You'd better be more careful say sorry!"...I felt the blood in my body burn up into my head said to the woman that he had CP he has issues with his balance. It was as if though I had poured a gallon of cold water on her head because after she paid walked outside the store, she waited for us apologized profusely said she believed in God actually told my son she loved him...Go figure!!!I think that day was a day she will never forget nor will she ever, hopefully, jump to judgement as quickly again.God has blessed us all with these pure souls I think they teach us so much more than we can ever teach them.

Sent on the Now Networkÿ from my Sprint® BlackBerry

[Guest guest]

Hello Group

Amazing how people are when they can't understand or are unable to relate. I always wanted to make a bumper sticker which said" You don't know someone with Autism. You will soon" 1/94 in boys and 1/100 in general is what they are saying now.

If you haven't noticed the world is in need of change. Not so much us as parents, who need to change our kids in order to adapt to this cruel world. Autism is such a vague diagnosis and there is a battle of coping within all parents with this diagnosis. For example my son is low functioning and I have heard in the past another parent talk about her child not being that autistic. Not that Autistic! What does that mean? You either are or your not. The point is we are all bias and sad to say, we do it to each other.

The battle shouldn't be with each other as parents. The fact is if any one is reading my post please realize that everyone is in need of services and certain funding is going more towards one and not the other. Though we all will suffer in the long run. So when your kid has a melt down in public area next time. Just tell the person who is completely ignorant that your doing the best you can with the circumstances. Don't tell them that your son has autism. We don't regard everyone living in century village as demented. As parents we are all doing our best.

= ' ' = Thanks for reading-- AutismOnTheGo. com

[Guest guest]

Hello Group

Amazing how people are when they can't understand or are unable to relate. I always wanted to make a bumper sticker which said" You don't know someone with Autism. You will soon" 1/94 in boys and 1/100 in general is what they are saying now.

If you haven't noticed the world is in need of change. Not so much us as parents, who need to change our kids in order to adapt to this cruel world. Autism is such a vague diagnosis and there is a battle of coping within all parents with this diagnosis. For example my son is low functioning and I have heard in the past another parent talk about her child not being that autistic. Not that Autistic! What does that mean? You either are or your not. The point is we are all bias and sad to say, we do it to each other.

The battle shouldn't be with each other as parents. The fact is if any one is reading my post please realize that everyone is in need of services and certain funding is going more towards one and not the other. Though we all will suffer in the long run. So when your kid has a melt down in public area next time. Just tell the person who is completely ignorant that your doing the best you can with the circumstances. Don't tell them that your son has autism. We don't regard everyone living in century village as demented. As parents we are all doing our best.

= ' ' = Thanks for reading-- AutismOnTheGo. com

[Guest guest]

I think this loop could go on forever with our opinions on what we should do in case of a melt down in public.. how we should handle it. I believe we all know the best way for our own situation. For me as an Advocate it's important to me that I not only handle the situation... I also inform... which is why I hand out the pamphlets. I'm not going to let one of the children which are now my 'nieces and nephews' in this adoptive house melt away while I'm handing something to someone.. but it's those strange stares.. the people that talk under their breath.. I feel that they need to understand ....and if the best I can do is give them something to read quickly and as well smile and tell them to have a good day... I've defeated the 'spirit' of negativity about

it.. and hopefully taught somebody something useful. If they elect to throw it away.. so be it... if they elect to read it and learn.. it's one more person that understands. Many may feel we shouldn't say our child has this or has that... but with the rapid increase in Autism (Keep in mind in 1996 when I started advocating nationwide the rate of prevalence was 5 in 10,000) I feel that all should know what it is.. Thats just my own thought/opinion.. everyone is entitled to their own Peace to all, E. , Sr. Nationwide Spec. Ed. Advocate/AdviserThe Office of Special Education Advocacy, Inc. " O.S.E.A. " Founder, The Office of Advocacy for Autistic Children, est.1996NOTE: OFFICE has MOVED TO CALIF...Hm/office #(530)605-3548You can also reach my Sr. Advocate and Business Manager at the Home Office # aboveCELL # *best way to reach me is by cell**BAN Illegal Restraint, Seclusion, and Arrest of Dev. Disabled** JOIN US AT: http://groups.yahoo.com/group/EveryoneUnited4DisabilityReform/ http://groups.yahoo.com/group/ParentsUnitedforSpecialEd/This electronic mail message and any attached files contain information intended for the exclusive use of the individual or entity to whom it is addressed and may contain information that is proprietary, privileged, confidential, and/or exempt from disclosure under the Electronic Communications Privacy Act, (18 U.S.C. §§ 2510-2521.)To: sList Sent: Tue, February 2, 2010 11:31:13 AMSubject: Re: how to cope in a world not built for us

Hello Group

Amazing how people are when they can't understand or are unable to relate. I always wanted to make a bumper sticker which said" You don't know someone with Autism. You will soon" 1/94 in boys and 1/100 in general is what they are saying now.

If you haven't noticed the world is in need of change. Not so much us as parents, who need to change our kids in order to adapt to this cruel world. Autism is such a vague diagnosis and there is a battle of coping within all parents with this diagnosis. For example my son is low functioning and I have heard in the past another parent talk about her child not being that autistic. Not that Autistic! What does that mean? You either are or your not. The point is we are all bias and sad to say, we do it to each other.

The battle shouldn't be with each other as parents. The fact is if any one is reading my post please realize that everyone is in need of services and certain funding is going more towards one and not the other. Though we all will suffer in the long run. So when your kid has a melt down in public area next time. Just tell the person who is completely ignorant that your doing the best you can with the circumstances. Don't tell them that your son has autism. We don't regard everyone living in century village as demented. As parents we are all doing our best.

= ' ' = Thanks for reading-- AutismOnTheGo. com

[Guest guest]

I think this loop could go on forever with our opinions on what we should do in case of a melt down in public.. how we should handle it. I believe we all know the best way for our own situation. For me as an Advocate it's important to me that I not only handle the situation... I also inform... which is why I hand out the pamphlets. I'm not going to let one of the children which are now my 'nieces and nephews' in this adoptive house melt away while I'm handing something to someone.. but it's those strange stares.. the people that talk under their breath.. I feel that they need to understand ....and if the best I can do is give them something to read quickly and as well smile and tell them to have a good day... I've defeated the 'spirit' of negativity about

it.. and hopefully taught somebody something useful. If they elect to throw it away.. so be it... if they elect to read it and learn.. it's one more person that understands. Many may feel we shouldn't say our child has this or has that... but with the rapid increase in Autism (Keep in mind in 1996 when I started advocating nationwide the rate of prevalence was 5 in 10,000) I feel that all should know what it is.. Thats just my own thought/opinion.. everyone is entitled to their own Peace to all, E. , Sr. Nationwide Spec. Ed. Advocate/AdviserThe Office of Special Education Advocacy, Inc. " O.S.E.A. " Founder, The Office of Advocacy for Autistic Children, est.1996NOTE: OFFICE has MOVED TO CALIF...Hm/office #(530)605-3548You can also reach my Sr. Advocate and Business Manager at the Home Office # aboveCELL # *best way to reach me is by cell**BAN Illegal Restraint, Seclusion, and Arrest of Dev. Disabled** JOIN US AT: http://groups.yahoo.com/group/EveryoneUnited4DisabilityReform/ http://groups.yahoo.com/group/ParentsUnitedforSpecialEd/This electronic mail message and any attached files contain information intended for the exclusive use of the individual or entity to whom it is addressed and may contain information that is proprietary, privileged, confidential, and/or exempt from disclosure under the Electronic Communications Privacy Act, (18 U.S.C. §§ 2510-2521.)To: sList Sent: Tue, February 2, 2010 11:31:13 AMSubject: Re: how to cope in a world not built for us

Hello Group

Amazing how people are when they can't understand or are unable to relate. I always wanted to make a bumper sticker which said" You don't know someone with Autism. You will soon" 1/94 in boys and 1/100 in general is what they are saying now.

If you haven't noticed the world is in need of change. Not so much us as parents, who need to change our kids in order to adapt to this cruel world. Autism is such a vague diagnosis and there is a battle of coping within all parents with this diagnosis. For example my son is low functioning and I have heard in the past another parent talk about her child not being that autistic. Not that Autistic! What does that mean? You either are or your not. The point is we are all bias and sad to say, we do it to each other.

The battle shouldn't be with each other as parents. The fact is if any one is reading my post please realize that everyone is in need of services and certain funding is going more towards one and not the other. Though we all will suffer in the long run. So when your kid has a melt down in public area next time. Just tell the person who is completely ignorant that your doing the best you can with the circumstances. Don't tell them that your son has autism. We don't regard everyone living in century village as demented. As parents we are all doing our best.

= ' ' = Thanks for reading-- AutismOnTheGo. com