Re: Ken's evaluation @ Baylor

[Guest guest]

Barb, we second what Deb in VA said...it seems like it takes forever to get

listen, then WHAM, things start moving so fast you feel you are sinking...you

all are in our thoughts and prayers!!

Bobby & Anne

________________________________

[Guest guest]

Hey Barb,

Personally, I'm happy to hear Ken's surgeon say " soon " . Granted, how does

one put that into context. " Soon " to me is within 4 weeks. Soon to him

may mean 6 months or 1 year.

Its normal to be apprehensive. My parents were very much against me

getting a tx so soon. They wanted me to get a second opinion, etc. They

didn't fully understand the disease, or didn't want too, but they were

certain I should wait. I wanted to get it over with so that I could get

on with my life. Aside from complications of tx, I figured I really only

had to worry about two things - rejection and recurrence. I felt like I

knew my odds. Continuing to live with the disease had too many scenarios -

neither of which I liked. I wanted to take my chances. Not to mention,

having the tx earlier allowed me to recoup that much faster.

Glad to hear the eval went well, aside from the Hep meeting, and hope the

actual news of Ken being listed is a mere formality.

Darin

[Guest guest]

Thanks

to UNOS, I found out that as of June 9, Baylor has 6 people with AB blood

listed.

4 are listed “inactive”,

1 has a MELD score lower then Ken’s,

1 has a MELD score higher then Ken’s. So *IF*

Ken is

listed and *IF* everything stays

the same, Ken will be

#2 on the AB list…..Now that’s scary!

Barb a nervous wreck

in Texas

[Guest guest]

Thanks

to UNOS, I found out that as of June 9, Baylor has 6 people with AB blood

listed.

4 are listed “inactive”,

1 has a MELD score lower then Ken’s,

1 has a MELD score higher then Ken’s. So *IF*

Ken is

listed and *IF* everything stays

the same, Ken will be

#2 on the AB list…..Now that’s scary!

Barb a nervous wreck

in Texas

[Guest guest]

Barb-

First Congrats on the new steps towards Ken's tx. I

wish Ken, you and TJ the best of luck. I will keep

your family in my prayers!

in Texas

Brother, , 29, UC & PSC

[Guest guest]

Barb-

First Congrats on the new steps towards Ken's tx. I

wish Ken, you and TJ the best of luck. I will keep

your family in my prayers!

in Texas

Brother, , 29, UC & PSC

[Guest guest]

Dear Barb,Godspeed Ken through this process, I'll be thinking of you and your family.LeeBarb-First Congrats on the new steps towards Ken's tx. Iwish Ken, you and TJ the best of luck. I will keepyour family in my prayers! in TexasBrother, , 29, UC & PSC. 

[Guest guest]

Dear Barb,Godspeed Ken through this process, I'll be thinking of you and your family.LeeBarb-First Congrats on the new steps towards Ken's tx. Iwish Ken, you and TJ the best of luck. I will keepyour family in my prayers! in TexasBrother, , 29, UC & PSC. 

[Guest guest]

Dear Barb -- many positive thoughts going your way. You're an

example of strength and support. Only the best to you and Ken!

DianeC

[Guest guest]

Dear Barb -- many positive thoughts going your way. You're an

example of strength and support. Only the best to you and Ken!

DianeC

[Guest guest]

Barb,

If it makes you feel any better, please remember that all of us PSCers are thinking about you and praying for Ken. You constantly are a wonderful source of help for all of us, so now it's our turn to back you up. Here's hoping that Ken will be listed soon, get the call, and travel the transplant road as smoothly as possible. How lucky he is to have you as his mom!!!!

Ricky

RE: Re: Ken's evaluation @ Baylor

So *IF* Ken is listed and *IF* everything stays the same, Ken will be #2 on the AB list…..Now that’s scary!

Barb a nervous wreck in Texas

[Guest guest]

Barb,

If it makes you feel any better, please remember that all of us PSCers are thinking about you and praying for Ken. You constantly are a wonderful source of help for all of us, so now it's our turn to back you up. Here's hoping that Ken will be listed soon, get the call, and travel the transplant road as smoothly as possible. How lucky he is to have you as his mom!!!!

Ricky

RE: Re: Ken's evaluation @ Baylor

So *IF* Ken is listed and *IF* everything stays the same, Ken will be #2 on the AB list…..Now that’s scary!

Barb a nervous wreck in Texas

[Guest guest]

Barb, I haven't been keeping up with this site much lately, but had a

moment and saw your post... Wow, your mind is whirling with the

posibilities, I can tell. I am glad the tc ctr told him to bump up his

protein, just the surgery alone takes so much of the bodies resources,

that he will need to be in the best shape he can be. The diet thing

never worked to control Deb's HE, so guess it wasn't a hard choice for

her. We will keep you in our thoughts....in the coming days.

Kate in Seattle

Deb is 5mo post tx and we are going on vacation!!!

[Guest guest]

Barb, I haven't been keeping up with this site much lately, but had a

moment and saw your post... Wow, your mind is whirling with the

posibilities, I can tell. I am glad the tc ctr told him to bump up his

protein, just the surgery alone takes so much of the bodies resources,

that he will need to be in the best shape he can be. The diet thing

never worked to control Deb's HE, so guess it wasn't a hard choice for

her. We will keep you in our thoughts....in the coming days.

Kate in Seattle

Deb is 5mo post tx and we are going on vacation!!!