Re: 's CT followup and our decision- Deborah B

[Guest guest]

Frances, I am 's mom (Sorca). That is a good question. My

post was a little confusing. She said that he is seeing good

results with the repo in the back, but there is still quite a slope

on the top of his head. She was saying that since he has responded

well to repo in such a short time, that his head is really malleable

still and will see quick correction in the band. I think that

would have supported our choice if we wanted to continue repo, but

my ped said that we would really have the best results if we banded

between months 4-6. To tell you the truth, the repo is very hard! I

feel that instead of enjoying my baby, I am always concerned with

how I hold him- how others hold him. I was at a party on Saturday

and the way his head was looked so flat to me and I was

wondering....I wonder if other people are looking at him

wondering, " what is up with that kid's head " . I know it sounds

silly. is ADORABLE, but I think that in the long run, I will

be happier that I did all I could. Why did your husband think

was not informed?

> > > Well, we took (3 months this week) to CT for another

> follow

> > up

> > > today. She said she can really see great results from the

> repo. I

> > > asked her to take measurements and she said that he has 11 mm

of

> > > asymmetry. I asked her what she would do and I begged her to

be

> > > honest with me. She thinks that since has responded to

> repo

> > so

> > > well, he will really do well in a band. I told her that I was

> > > concerned that the slope of his head did not seem to be

> improving

> > with

> > > repo, but that the ear assymetry and the flatness in the back

is

> > > getting a lot better. She said that she thinks a band will

help

> > the

> > > whole head to round out. Sooooo, we made a casting appointment

> for

> > > 7/12 (we are going on vacation for 2 weeks on Friday and they

> > couldn't

> > > do the cast this week). Then, he will come in for his fitting

> on

> > > 7/22. He will be 4 months on 7/23. She thinks he will only

> need

> > it

> > > for about 6 weeks. I think we are doing the right thing. I

> would

> > > hate to always wonder, what if.... The neurologist might be

mad

> at

> > me

> > > when I go for the follow up. He did not think there was a

> need.

> > > Soooo, soon, I will have a doc banded baby. Did I do the

right

> > > thing?

>

>

>

>

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