Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Heidi, It's so nice to hear from you. Don't ever not pop in because you think we'll be mad at you!!! No way!!! All of us have different schedules and things going on in our lives, and can't possibly keep up when they work. Don't worry about deleting messages. If you want to read them when you have time, our new archives are in a very good format. Just go to the archives and all the messages are there. Your life sound wonderful. Congratulations on your upcoming wedding. I think it is great that you are making your dress. I used to do a lot of sewing, but for some reason unknown to me, I don't do it anymore. I made all my kids clothes until they got to the age where it wasn't cool LOL! I have material to make drapes, but it is still in the bag and has been there for 2 years. Maybe if I didn't spend so much time on the internet, I would do more sewing. I need an internet anonymous! It is great to hear that the mtx is working for you. I may be starting it soon, and need to hear any news! Glad the orthotics help you. a ----- Original Message ----- From: Heidi Reinhardt <hreinhardt@...> < onelist> Sent: Wednesday, March 22, 2000 5:58 PM Subject: [ ] Greetings > From: Heidi Reinhardt <hreinhardt@...> > > Hi everyone. I want to welcome all of the newcomers. Its been so long > since I've posted that I'm feeling more like a newcomer ! Some of you, > have no idea who the heck I am... well just to give a quick intro, I'm > 25 (soon to be 26, but feel like I'm ancient some days ) and have > sero-negative RA that was diagnosed 3 1/2 years ago. I love to read, > eat chocolate and play with my " other best friend " - my dog Bandit > > Sorry its been so long, work is good as is home life. I've actually > been keeping a more normal schedule, well normal for a regular person, > i.e. work during the day, sleep during the night, etc. Being at work > during the day though, doesn't give me too much time to keep up with my > mail. I have over 1000 unread messages from the RA support list alone > ! But I miss you all sooooo much, that I had to drop in and say hello. > > Some of you may remember that I was going to PT for my feet and hips. > Well, I had orthotics made, and they are the bestest thing to happen in > a long while. Now I'm just finishing up some OT to get some more > specific exercises to strengthen my hands, and more info, ideas on joint > protection. I've been feeling quite a lot better too. I do have some > bad days, but seem to be dealing with them pretty well. Jeff has > continued to be very supportive and understanding. > > Speaking of Jeff, we're actually getting into finally making our wedding > plans. We've found the place for the reception, a really cozy chalet > that is actually the local fire dept., but has a beautiful upstairs > hall. Its all hardwood, with a huge stone fireplace. I'm just waiting > to hear back from the church about if our date is available. We've > decided on November of this year (and we plan on using the fireplace at > the hall), so it'll be here sooner than I think. I'm already in the > process of making my dress. > > I have a rheumy appt. tomorrow, so hopefully we'll start weaning done > some of my meds again. The MTX shot seems to be doing the trick for me, > along with the Celexa, and Celebrex. Last time I went she wanted to cut > back my azulfidine, but was hesitant to with the crappie weather, and > its effect on me. > > I hope everyone is alright. I saw a message from Fly, and since I > haven't seen her name in a while, I thought maybe I could sneak back in > and say hello, without too many people being mad at my lack of keeping > in touch. > > I'm hoping to be able to read all of the posts, and don't want to just > do a mass delete, but I will, if it will mean getting caught up, so I > can continue to keep up. > > Take care. Best wishes. > > Heidi > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2120/4/_/478567/_/953766312/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Thanks a for the encouragement. I always try to skim over the articles you send in, at least so I don't miss something really important, and I am always very appreciative of the time you take to do it. Keep the material for a rainy day, when your pc is not cooperating, but by all means to go finding an internet anonymous group, we'd be lost if you were ever reformed ! As for the MTX, I just wanted to remind you about my nausea when I first started on it in the oral form. You suggested the shot, and for me that was definitely the way to go. Plus its only once a week, and its not another pill ! I hope if you have to go back on it, you'll have as much success as I am having. Heidi a wrote: > From: " a " <aA@...> > > Heidi, > It's so nice to hear from you. Don't ever not pop in because you > think > we'll be mad at you!!! No way!!! All of us have different schedules > and > things going on in our lives, and can't possibly keep up when they > work. > Don't worry about deleting messages. If you want to read them when > you have > time, our new archives are in a very good format. Just go to the > archives > and all the messages are there. > > Your life sound wonderful. Congratulations on your upcoming wedding. > I think it is great that you are making your dress. I used to do a > lot of > sewing, but for some reason unknown to me, I don't do it anymore. > I made all my kids clothes until they got to the age where it wasn't > cool > LOL! I have material to make drapes, but it is still in the bag and > has > been there for 2 years. Maybe if I didn't spend so much time on the > internet, I would do more sewing. I need an internet anonymous! > > It is great to hear that the mtx is working for you. I may be > starting it > soon, and need to hear any news! Glad the orthotics help you. > > a > > > ----- Original Message ----- > From: Heidi Reinhardt <hreinhardt@...> > < onelist> > Sent: Wednesday, March 22, 2000 5:58 PM > Subject: [ ] Greetings > > > > From: Heidi Reinhardt <hreinhardt@...> > > > > Hi everyone. I want to welcome all of the newcomers. Its been so > long > > since I've posted that I'm feeling more like a newcomer ! Some of > you, > > have no idea who the heck I am... well just to give a quick intro, > I'm > > 25 (soon to be 26, but feel like I'm ancient some days ) and have > > sero-negative RA that was diagnosed 3 1/2 years ago. I love to > read, > > eat chocolate and play with my " other best friend " - my dog Bandit > > > > > Sorry its been so long, work is good as is home life. I've actually > > > been keeping a more normal schedule, well normal for a regular > person, > > i.e. work during the day, sleep during the night, etc. Being at > work > > during the day though, doesn't give me too much time to keep up with > my > > mail. I have over 1000 unread messages from the RA support list > alone > > ! But I miss you all sooooo much, that I had to drop in and say > hello. > > > > Some of you may remember that I was going to PT for my feet and > hips. > > Well, I had orthotics made, and they are the bestest thing to happen > in > > a long while. Now I'm just finishing up some OT to get some more > > specific exercises to strengthen my hands, and more info, ideas on > joint > > protection. I've been feeling quite a lot better too. I do have > some > > bad days, but seem to be dealing with them pretty well. Jeff has > > continued to be very supportive and understanding. > > > > Speaking of Jeff, we're actually getting into finally making our > wedding > > plans. We've found the place for the reception, a really cozy > chalet > > that is actually the local fire dept., but has a beautiful upstairs > > hall. Its all hardwood, with a huge stone fireplace. I'm just > waiting > > to hear back from the church about if our date is available. We've > > decided on November of this year (and we plan on using the fireplace > at > > the hall), so it'll be here sooner than I think. I'm already in the > > > process of making my dress. > > > > I have a rheumy appt. tomorrow, so hopefully we'll start weaning > done > > some of my meds again. The MTX shot seems to be doing the trick for > me, > > along with the Celexa, and Celebrex. Last time I went she wanted to > cut > > back my azulfidine, but was hesitant to with the crappie weather, > and > > its effect on me. > > > > I hope everyone is alright. I saw a message from Fly, and since I > > haven't seen her name in a while, I thought maybe I could sneak back > in > > and say hello, without too many people being mad at my lack of > keeping > > in touch. > > > > I'm hoping to be able to read all of the posts, and don't want to > just > > do a mass delete, but I will, if it will mean getting caught up, so > I > > can continue to keep up. > > > > Take care. Best wishes. > > > > Heidi > > > > > > > ------------------------------------------------------------------------ > > > DON'T HATE YOUR RATE! > > Get a NextCard Visa, in 30 seconds! Get rates as low as > > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > 1/2120/4/_/478567/_/953766312/ > > > ------------------------------------------------------------------------ > > > > > URL to change your membership options: > /group/ > > RA-support website: http://www.rasupport.webprovider.com/ > > Our chat room: www.delphi.com/RheumatoidArth1/start > > > > ----------------------------------------------------------------------- > > ----------------------------------------------------------------------- > URL to change your membership options: > /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Heidi, So YOU're the one getting married! Congrats! You may ride in on my wings anytime you want! Things sound like they're going well. I'm envious of you making your gown, though. I made my gown,(first time around) and did a lot of sewing for Bridal Lane, making matching flower girl's dresses to match the bride's maids. Those were the days. Then, 3 years ago, my youngest daughter was to get married and wanted me to make her gown. I had to say no because of my hands. I bought her a wonderfully unique gown which is hanging in my mother's CLEAN closet. My daughter called off the wedding. That's ok. I told her, " Next time, we're ready! " LOL I still have my first wedding gown which is now almost 28 years old. I will never part with it. There is nothing like a self-made gown. You're going to have to post a picture of you in it when the big day comes around. Fly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Heidi, I was on the oral several years ago and couldn't tolerate it. I will definitely take the injections. Thanks for the encouragement. At this point, I have to stop this progression. Enbrel is helping the inflammation, but it is still on the move. If my sed rate is high when I go back next month, I am definitely adding it. I'm truly an addict, but will never reform from this group a ----- Original Message ----- From: Heidi Reinhardt <hreinhardt@...> < onelist> Sent: Wednesday, March 22, 2000 7:22 PM Subject: Re: [ ] Greetings > From: Heidi Reinhardt <hreinhardt@...> > > Thanks a for the encouragement. I always try to skim over the > articles you send in, at least so I don't miss something really > important, and I am always very appreciative of the time you take to do > it. Keep the material for a rainy day, when your pc is not cooperating, > but by all means to go finding an internet anonymous group, we'd be lost > if you were ever reformed ! > As for the MTX, I just wanted to remind you about my nausea when I first > started on it in the oral form. You suggested the shot, and for me that > was definitely the way to go. Plus its only once a week, and its not > another pill ! I hope if you have to go back on it, you'll have as much > success as I am having. > > Heidi > > a wrote: > > > From: " a " <aA@...> > > > > Heidi, > > It's so nice to hear from you. Don't ever not pop in because you > > think > > we'll be mad at you!!! No way!!! All of us have different schedules > > and > > things going on in our lives, and can't possibly keep up when they > > work. > > Don't worry about deleting messages. If you want to read them when > > you have > > time, our new archives are in a very good format. Just go to the > > archives > > and all the messages are there. > > > > Your life sound wonderful. Congratulations on your upcoming wedding. > > I think it is great that you are making your dress. I used to do a > > lot of > > sewing, but for some reason unknown to me, I don't do it anymore. > > I made all my kids clothes until they got to the age where it wasn't > > cool > > LOL! I have material to make drapes, but it is still in the bag and > > has > > been there for 2 years. Maybe if I didn't spend so much time on the > > internet, I would do more sewing. I need an internet anonymous! > > > > It is great to hear that the mtx is working for you. I may be > > starting it > > soon, and need to hear any news! Glad the orthotics help you. > > > > a > > > > > > ----- Original Message ----- > > From: Heidi Reinhardt <hreinhardt@...> > > < onelist> > > Sent: Wednesday, March 22, 2000 5:58 PM > > Subject: [ ] Greetings > > > > > > > From: Heidi Reinhardt <hreinhardt@...> > > > > > > Hi everyone. I want to welcome all of the newcomers. Its been so > > long > > > since I've posted that I'm feeling more like a newcomer ! Some of > > you, > > > have no idea who the heck I am... well just to give a quick intro, > > I'm > > > 25 (soon to be 26, but feel like I'm ancient some days ) and have > > > sero-negative RA that was diagnosed 3 1/2 years ago. I love to > > read, > > > eat chocolate and play with my " other best friend " - my dog Bandit > > > > > > > > Sorry its been so long, work is good as is home life. I've actually > > > > > been keeping a more normal schedule, well normal for a regular > > person, > > > i.e. work during the day, sleep during the night, etc. Being at > > work > > > during the day though, doesn't give me too much time to keep up with > > my > > > mail. I have over 1000 unread messages from the RA support list > > alone > > > ! But I miss you all sooooo much, that I had to drop in and say > > hello. > > > > > > Some of you may remember that I was going to PT for my feet and > > hips. > > > Well, I had orthotics made, and they are the bestest thing to happen > > in > > > a long while. Now I'm just finishing up some OT to get some more > > > specific exercises to strengthen my hands, and more info, ideas on > > joint > > > protection. I've been feeling quite a lot better too. I do have > > some > > > bad days, but seem to be dealing with them pretty well. Jeff has > > > continued to be very supportive and understanding. > > > > > > Speaking of Jeff, we're actually getting into finally making our > > wedding > > > plans. We've found the place for the reception, a really cozy > > chalet > > > that is actually the local fire dept., but has a beautiful upstairs > > > hall. Its all hardwood, with a huge stone fireplace. I'm just > > waiting > > > to hear back from the church about if our date is available. We've > > > decided on November of this year (and we plan on using the fireplace > > at > > > the hall), so it'll be here sooner than I think. I'm already in the > > > > > process of making my dress. > > > > > > I have a rheumy appt. tomorrow, so hopefully we'll start weaning > > done > > > some of my meds again. The MTX shot seems to be doing the trick for > > me, > > > along with the Celexa, and Celebrex. Last time I went she wanted to > > cut > > > back my azulfidine, but was hesitant to with the crappie weather, > > and > > > its effect on me. > > > > > > I hope everyone is alright. I saw a message from Fly, and since I > > > haven't seen her name in a while, I thought maybe I could sneak back > > in > > > and say hello, without too many people being mad at my lack of > > keeping > > > in touch. > > > > > > I'm hoping to be able to read all of the posts, and don't want to > > just > > > do a mass delete, but I will, if it will mean getting caught up, so > > I > > > can continue to keep up. > > > > > > Take care. Best wishes. > > > > > > Heidi > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > DON'T HATE YOUR RATE! > > > Get a NextCard Visa, in 30 seconds! Get rates as low as > > > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > > > Apply NOW! > > > 1/2120/4/_/478567/_/953766312/ > > > > > ------------------------------------------------------------------------ > > > > > > > > URL to change your membership options: > > /group/ > > > RA-support website: http://www.rasupport.webprovider.com/ > > > Our chat room: www.delphi.com/RheumatoidArth1/start > > > > > > > ----------------------------------------------------------------------- > > > > ----------------------------------------------------------------------- > > URL to change your membership options: > > /group/ > > RA-support website: http://www.rasupport.webprovider.com/ > > Our chat room: www.delphi.com/RheumatoidArth1/start > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2000 Report Share Posted March 23, 2000 Heidi, We are glad to hear from you and we do understand when life pulls you in many directions Thanks for sharing your wedding plans with us - we will look forward to hearing more. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 I have just started using LDN and can't say I notice anything yet - but I have primary Progressive MS and wonder if anyone out there has the same and is using LDN and are having good results? Forbes Newman Calgary Alberta Canada -----Original Message----- From: tasmaid2003 [mailto:mcusack@...] Sent: Thursday, April 10, 2003 10:34 PM low dose naltrexone Subject: [low dose naltrexone] greetings I am pleased to post here after taking LDN for 2.5 years. I took my research downloads to my neuro and GP as well as the pharmacist when I first wanted to use the LDN as part of my protocol. The pharmacist couldn't make the compound himself so got a recipe from Dupont in liquid form which my husband and I make up at home. It costs $170aus. to buy the 50mg tablets which we grind down with 2mil simple syrup and 48 mil purified water which gives 50 mil liquid of which I take 4.5 mil per night. It makes it a cheap therapy since there are 30 pills per bottle. If I was a drug addict or alcoholic though, I could get the pills for $3.50. My PCP actually rang the Government dep which controls pharmaceutical benefits to see if I could be eligible but alas since the Naltrexone was being used out of mainstream I had to pay its full price. I'm not complaining. I have never had an adverse reaction and have slept like a log from the first sip. This from a person who was sent to a sleep study(polysomnology) unit for the lack of it. All I can say is " I love my endorphins! " I generally have a smile on my face and yes I have MS. Anyway, I'm glad to be here and send a greeting to all fellow users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 I thought I'd share my thoughts regarding Dr. Bihari and his fees. Other's experiences may be quite different . . I realize that the first reaction to Dr. Bihari's initial consultation fee seems extremely high. I know my initial reaction was WOW! But, I went back to check some of the charges that I incurred when I met with neurologists for the first time. My first consultation with a neurologist at the Cleveland Clinic was over $400 (10 years ago) and I think my meeting with him was 1 hour. I remember meeting with a neurogist before that who basically told me that my issues with balance were in my mind, and he charged me $200 for that 20 minute visit. It certainly helps that insurance covered a percentage of those charges and it's unfortunate that some insurance companies (like mine) will not cover Dr. Birhari's services or the medication. Maybe other neurologists don't charge as much as the Clinic - I don't really know - but compared to my experiences, he might be on the high side, but fairly comparable, at least for an intial consultation. My " phone consultion " with Dr. Bihari was almost 2 hours and he was so kind and empathetic. It didn't seem like 2 hours! He shared a great deal of information and was concerned that he answered all my questions. He never made me feel like he had spent too much time with me. Another nice thing is knowing that I can call his office with questions and know that I can get an answer from someone with his level of experience with the medication. Hopefully, the cost won't discourage someone from considering Dr. Bihari IF you can't find another doctor to prescribe LDN. -----Original Message----- From: Newman, Forbes 'tasmaid2003'; low dose naltrexone Sent: 4/12/03 6:01 PM Subject: RE: [low dose naltrexone] greetings I have just started using LDN and can't say I notice anything yet - but I have primary Progressive MS and wonder if anyone out there has the same and is using LDN and are having good results? Forbes Newman Calgary Alberta Canada -----Original Message----- From: tasmaid2003 [mailto:mcusack@...] Sent: Thursday, April 10, 2003 10:34 PM low dose naltrexone Subject: [low dose naltrexone] greetings I am pleased to post here after taking LDN for 2.5 years. I took my research downloads to my neuro and GP as well as the pharmacist when I first wanted to use the LDN as part of my protocol. The pharmacist couldn't make the compound himself so got a recipe from Dupont in liquid form which my husband and I make up at home. It costs $170aus. to buy the 50mg tablets which we grind down with 2mil simple syrup and 48 mil purified water which gives 50 mil liquid of which I take 4.5 mil per night. It makes it a cheap therapy since there are 30 pills per bottle. If I was a drug addict or alcoholic though, I could get the pills for $3.50. My PCP actually rang the Government dep which controls pharmaceutical benefits to see if I could be eligible but alas since the Naltrexone was being used out of mainstream I had to pay its full price. I'm not complaining. I have never had an adverse reaction and have slept like a log from the first sip. This from a person who was sent to a sleep study(polysomnology) unit for the lack of it. All I can say is " I love my endorphins! " I generally have a smile on my face and yes I have MS. Anyway, I'm glad to be here and send a greeting to all fellow users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 ear Humanity Healing members, My name is Rev. Yonny Y and I have been a friend of RAK on myspace for some time now. I look forward to working with you all and I send you my love and wish you all to know that I constantly send healing around this globe for anyone to take of and share. I do not force my healing upon anyone I do however share that power with everyone and if they need the healing and want the healing it will always be there for them. Prayer means work and we have a lot of work to do to heal this sanctuary called earth. One day soon we will take power and instead of sending bombs and soldiers to foreign land we will send doctors and medicine, teachers and books, but we must do the work. Love, Peace and Justice Rev Yonny Y Church of the Peoples Humanism The Humanist Campaign Revolutionary Party of Christ<a href="http://www.myspace.com/jonnywhy" target="_blank"><img src="http://x.myspace.com/Promo/myspace_4.jpg" border="0" alt="" /><br/><img src="" border="0" alt="" /><br/><font size="1" face="Verdana, Arial, Helvetica, sans-serif">Check me out!</font></a> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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