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Re: Taste after I-131 dose

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Hi, Christy -

Isn't that the pits? We FINALLY get off the LID and are all ready to

enjoy our favorite foods, and YUCK!!!

It should pass soon. Mine lasted about a week (it was more a salty

taste to everything). While I recall one person saying that it took

about 6 months for hers to return, for most people it returns

gradually over several weeks to a month.

Hang in there - that pizza will taste good again!!

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

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Hi, Christy -

Isn't that the pits? We FINALLY get off the LID and are all ready to

enjoy our favorite foods, and YUCK!!!

It should pass soon. Mine lasted about a week (it was more a salty

taste to everything). While I recall one person saying that it took

about 6 months for hers to return, for most people it returns

gradually over several weeks to a month.

Hang in there - that pizza will taste good again!!

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

Link to comment
Share on other sites

Hi, Christy -

Isn't that the pits? We FINALLY get off the LID and are all ready to

enjoy our favorite foods, and YUCK!!!

It should pass soon. Mine lasted about a week (it was more a salty

taste to everything). While I recall one person saying that it took

about 6 months for hers to return, for most people it returns

gradually over several weeks to a month.

Hang in there - that pizza will taste good again!!

Cheers,

Alisa

2/15/2002: Nodule found during bad sore throat

2/27/2002: FNA - suspicious for pap

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap encapsulated in 2.5 x 2 x 1.6 cm nodule,

Hashimotos discovered

5/28/2002: TBS (2 mCi dose on 5/24) and 100 mCi RAI

6/6/2002: TBS - No sign of mets

Currently - TSH 0.06, 140mcg Levoxyl

Age: 48 Location: near Seattle WA

Please feel free to email me privately anytime

Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

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Share on other sites

Hi Christy:

You have already gotten one good response, but will add mine so you

will know you are not alone with this experience. i too " no taste "

following RAI, when i could finally eat regular food, i joked with a

friend of mine, given my extreme tiredness, i might as well eat the

cheapest TV dinners available, since everything tasted like cardboard

anyway. Save the " good " stuff for when i could enjoy it again. :-)

As i recall it took a couple months for mine to come back.

When yours do, indulge in your very favorite food!

Are you doing ok otherwise? Keep hanging in there, it should get

better soon!

Sharon

TT june 2001 papillary stage 3

RAI july 2001 177 mcs

am going hypo right now for 1st follow up scan

Liberty/KC metro area

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods

taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

Link to comment
Share on other sites

Hi Christy:

You have already gotten one good response, but will add mine so you

will know you are not alone with this experience. i too " no taste "

following RAI, when i could finally eat regular food, i joked with a

friend of mine, given my extreme tiredness, i might as well eat the

cheapest TV dinners available, since everything tasted like cardboard

anyway. Save the " good " stuff for when i could enjoy it again. :-)

As i recall it took a couple months for mine to come back.

When yours do, indulge in your very favorite food!

Are you doing ok otherwise? Keep hanging in there, it should get

better soon!

Sharon

TT june 2001 papillary stage 3

RAI july 2001 177 mcs

am going hypo right now for 1st follow up scan

Liberty/KC metro area

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods

taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

Link to comment
Share on other sites

Hi Christy:

You have already gotten one good response, but will add mine so you

will know you are not alone with this experience. i too " no taste "

following RAI, when i could finally eat regular food, i joked with a

friend of mine, given my extreme tiredness, i might as well eat the

cheapest TV dinners available, since everything tasted like cardboard

anyway. Save the " good " stuff for when i could enjoy it again. :-)

As i recall it took a couple months for mine to come back.

When yours do, indulge in your very favorite food!

Are you doing ok otherwise? Keep hanging in there, it should get

better soon!

Sharon

TT june 2001 papillary stage 3

RAI july 2001 177 mcs

am going hypo right now for 1st follow up scan

Liberty/KC metro area

> I am currently experiencing problems with my taste buds after

> receiving 150mCi of RAI treatment on August 29th. How long can I

> expect this to last for? At the moment, pizza and other foods

taste

> metallic. My calcium tablets that I take taste chalky, too.

>

> Christy

> tt 7/17/02

> RAI 150mCi 8/29/02

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Christy wrote:

> ps...has anyone experienced chapped lips, especially at the corners

> of your lips. Also, I seem to be drooling more often than ever

> before. And, I had some problems with upset stomach over the last

> week. I wonder if this is also related to post-RAI treatment.

Alisa has already confirmed that chapped lips and dry skin are part

of the hypo experience.

Upset stomach is a hypo symptom, too.

Nausea & indigestion are not uncommon hypo symptoms - your entire

metabolism has slowed down, including digestion. Eating small meals might

help. Also, ginger in any form is recommended for nausea (ginger ale,

ginger tea, ginger snaps, ginger candy). Digestive enzymes and/or antacids

may help, too.

As for drooling ... that's the first time, I think, that someone has

complained about that.

It may be that your salivary glands are working a bit overtime, perhaps

encouraged by your doing all the right post-RAI things (drinking lots of

water, sucking sour candies, etc.).

It may be inconvenient, but it's a good thing, and should help you avoid

the salivary gland problems that some suffer after treatment. I imagine

it's possible, too, that if your lips are extremely chapped, they may not

be sealing shut as snugly as lips tend to do. It should all settle down

pretty quickly.

Good luck -

NYC

TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02;

current TSH ~.06 on .225 levothyroxine

>

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Christy wrote:

> ps...has anyone experienced chapped lips, especially at the corners

> of your lips. Also, I seem to be drooling more often than ever

> before. And, I had some problems with upset stomach over the last

> week. I wonder if this is also related to post-RAI treatment.

Alisa has already confirmed that chapped lips and dry skin are part

of the hypo experience.

Upset stomach is a hypo symptom, too.

Nausea & indigestion are not uncommon hypo symptoms - your entire

metabolism has slowed down, including digestion. Eating small meals might

help. Also, ginger in any form is recommended for nausea (ginger ale,

ginger tea, ginger snaps, ginger candy). Digestive enzymes and/or antacids

may help, too.

As for drooling ... that's the first time, I think, that someone has

complained about that.

It may be that your salivary glands are working a bit overtime, perhaps

encouraged by your doing all the right post-RAI things (drinking lots of

water, sucking sour candies, etc.).

It may be inconvenient, but it's a good thing, and should help you avoid

the salivary gland problems that some suffer after treatment. I imagine

it's possible, too, that if your lips are extremely chapped, they may not

be sealing shut as snugly as lips tend to do. It should all settle down

pretty quickly.

Good luck -

NYC

TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02;

current TSH ~.06 on .225 levothyroxine

>

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Share on other sites

Christy wrote:

> ps...has anyone experienced chapped lips, especially at the corners

> of your lips. Also, I seem to be drooling more often than ever

> before. And, I had some problems with upset stomach over the last

> week. I wonder if this is also related to post-RAI treatment.

Alisa has already confirmed that chapped lips and dry skin are part

of the hypo experience.

Upset stomach is a hypo symptom, too.

Nausea & indigestion are not uncommon hypo symptoms - your entire

metabolism has slowed down, including digestion. Eating small meals might

help. Also, ginger in any form is recommended for nausea (ginger ale,

ginger tea, ginger snaps, ginger candy). Digestive enzymes and/or antacids

may help, too.

As for drooling ... that's the first time, I think, that someone has

complained about that.

It may be that your salivary glands are working a bit overtime, perhaps

encouraged by your doing all the right post-RAI things (drinking lots of

water, sucking sour candies, etc.).

It may be inconvenient, but it's a good thing, and should help you avoid

the salivary gland problems that some suffer after treatment. I imagine

it's possible, too, that if your lips are extremely chapped, they may not

be sealing shut as snugly as lips tend to do. It should all settle down

pretty quickly.

Good luck -

NYC

TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02;

current TSH ~.06 on .225 levothyroxine

>

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