Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Jill, My heart goes out to you. I tried Prednisone a few years ago, and I didn't do well on it at all, so I completely understand. I hope it gets better for you and does its job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Jill, My heart goes out to you. I tried Prednisone a few years ago, and I didn't do well on it at all, so I completely understand. I hope it gets better for you and does its job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I think that's pretty common with prednisone. I had to take oral prednisone for a week, a couple of times - once for asthma, and another time after I had a serious allergic reaction to an ACE inhibitor. That was about 8 years ago, but I do recall it made me feel pretty jittery. Pierre Re: Pardon my whine, but Prednisone sucks! > Thank you , I thought I was nuts, I feel like I could have a > panic attack I'm so anxious, and normally that is not my personality. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I think that's pretty common with prednisone. I had to take oral prednisone for a week, a couple of times - once for asthma, and another time after I had a serious allergic reaction to an ACE inhibitor. That was about 8 years ago, but I do recall it made me feel pretty jittery. Pierre Re: Pardon my whine, but Prednisone sucks! > Thank you , I thought I was nuts, I feel like I could have a > panic attack I'm so anxious, and normally that is not my personality. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hey Jill, The secret is to place each pill on the center of your tongue then wash down with a ton of water without letting it touch anyother place in your mouth. Yes they do taste horrid. Taking them after you eat or mid meal seems to help with the stomach upset. I was also very anxious when I first started taking the pred. My heart would race at night and I could only sleep for about 5 hours at a time. I would nap during the day for about an hour to keep myself from falling over later in the afternoon. It took about a month for the anxiety stuff to level off and for me to stop jumping at every little noise. Like said it is very important to take it at the same time every day and to be weaned off it slowly. It's a nasty little drug but it does work wonders for some of us. So far it's brought my protein level down from a +3 to 0.5 in about 5 months. For me the side effects are worth that alone. Amy Pardon my whine, but Prednisone sucks! > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hey Jill, The secret is to place each pill on the center of your tongue then wash down with a ton of water without letting it touch anyother place in your mouth. Yes they do taste horrid. Taking them after you eat or mid meal seems to help with the stomach upset. I was also very anxious when I first started taking the pred. My heart would race at night and I could only sleep for about 5 hours at a time. I would nap during the day for about an hour to keep myself from falling over later in the afternoon. It took about a month for the anxiety stuff to level off and for me to stop jumping at every little noise. Like said it is very important to take it at the same time every day and to be weaned off it slowly. It's a nasty little drug but it does work wonders for some of us. So far it's brought my protein level down from a +3 to 0.5 in about 5 months. For me the side effects are worth that alone. Amy Pardon my whine, but Prednisone sucks! > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hey Jill, The secret is to place each pill on the center of your tongue then wash down with a ton of water without letting it touch anyother place in your mouth. Yes they do taste horrid. Taking them after you eat or mid meal seems to help with the stomach upset. I was also very anxious when I first started taking the pred. My heart would race at night and I could only sleep for about 5 hours at a time. I would nap during the day for about an hour to keep myself from falling over later in the afternoon. It took about a month for the anxiety stuff to level off and for me to stop jumping at every little noise. Like said it is very important to take it at the same time every day and to be weaned off it slowly. It's a nasty little drug but it does work wonders for some of us. So far it's brought my protein level down from a +3 to 0.5 in about 5 months. For me the side effects are worth that alone. Amy Pardon my whine, but Prednisone sucks! > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 They need to put a 5 second coating over the prednisone. I noticed that it desolves the second it hits your tongue and it took me 3 tries the first time to get them all down. I have had a lot of heart burn since starting the prednisone last Friday but no upset tummy. I can't take it at night or I feel like a fire breathing dragon. I have noticed some anxiety and depression but I don't really blame the prednisone for that. I have also noticed that I have a salt craving like I've never had in my life. Good luck with the insurance co, my co won't give an inch on some things. I'm supposed to be on an acid reducer for my reflux but it's almost $100 for a 30 day supply and since it's not covered I sit and chew a lot of rolaids. My boyfriend says he's " trading me in for a less crabby one " , I hope she knows how to do my laundry. I figure he knew I had this 6 and a half years when we met, he chooses to put up with me. (Now that's either stupidity or love.) BRANDY > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi, Here's a solution for the taste problem. complained a lot about the taste of pred so I picked up the empty gelatin capsules from the health food store. Three 60 mg pred tablets fit snugly into the emply gelatin capsule. That instant dissolving effect sounded awful. Fortunately, at least that much is easy to deal with! Good luck. Cy Re: Pardon my whine, but Prednisone sucks! > They need to put a 5 second coating over the prednisone. I noticed > that it desolves the second it hits your tongue and it took me 3 > tries the first time to get them all down. I have had a lot of heart > burn since starting the prednisone last Friday but no upset tummy. I > can't take it at night or I feel like a fire breathing dragon. I > have noticed some anxiety and depression but I don't really blame the > prednisone for that. I have also noticed that I have a salt craving > like I've never had in my life. > > Good luck with the insurance co, my co won't give an inch on some > things. I'm supposed to be on an acid reducer for my reflux but it's > almost $100 for a 30 day supply and since it's not covered I sit and > chew a lot of rolaids. > > My boyfriend says he's " trading me in for a less crabby one " , I hope > she knows how to do my laundry. I figure he knew I had this 6 and a > half years when we met, he chooses to put up with me. (Now that's > either stupidity or love.) > > BRANDY > > > > I started my prednisone and first off it tastes horrible, secondly, > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > told to try and take one in the morning and one at night. I also > > seem to be very " anxious " every little noise makes me jump, is that > > from the Prednisone? I am normally a relaxed person. One other > > vent, I was supposed to start my cortizone shots almost 3 weeks > ago, > > but my insurance company is dragging their feet. Isn't that > > horrible, they will pay for a transplant, but have issues when it > > comes to helping avoid one! Okay, enough complaining today. It > > must be the prednisone making me crabby :-) > > > > I hope everyone has a great day. > > > > Jill > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi, Here's a solution for the taste problem. complained a lot about the taste of pred so I picked up the empty gelatin capsules from the health food store. Three 60 mg pred tablets fit snugly into the emply gelatin capsule. That instant dissolving effect sounded awful. Fortunately, at least that much is easy to deal with! Good luck. Cy Re: Pardon my whine, but Prednisone sucks! > They need to put a 5 second coating over the prednisone. I noticed > that it desolves the second it hits your tongue and it took me 3 > tries the first time to get them all down. I have had a lot of heart > burn since starting the prednisone last Friday but no upset tummy. I > can't take it at night or I feel like a fire breathing dragon. I > have noticed some anxiety and depression but I don't really blame the > prednisone for that. I have also noticed that I have a salt craving > like I've never had in my life. > > Good luck with the insurance co, my co won't give an inch on some > things. I'm supposed to be on an acid reducer for my reflux but it's > almost $100 for a 30 day supply and since it's not covered I sit and > chew a lot of rolaids. > > My boyfriend says he's " trading me in for a less crabby one " , I hope > she knows how to do my laundry. I figure he knew I had this 6 and a > half years when we met, he chooses to put up with me. (Now that's > either stupidity or love.) > > BRANDY > > > > I started my prednisone and first off it tastes horrible, secondly, > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > told to try and take one in the morning and one at night. I also > > seem to be very " anxious " every little noise makes me jump, is that > > from the Prednisone? I am normally a relaxed person. One other > > vent, I was supposed to start my cortizone shots almost 3 weeks > ago, > > but my insurance company is dragging their feet. Isn't that > > horrible, they will pay for a transplant, but have issues when it > > comes to helping avoid one! Okay, enough complaining today. It > > must be the prednisone making me crabby :-) > > > > I hope everyone has a great day. > > > > Jill > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi, Here's a solution for the taste problem. complained a lot about the taste of pred so I picked up the empty gelatin capsules from the health food store. Three 60 mg pred tablets fit snugly into the emply gelatin capsule. That instant dissolving effect sounded awful. Fortunately, at least that much is easy to deal with! Good luck. Cy Re: Pardon my whine, but Prednisone sucks! > They need to put a 5 second coating over the prednisone. I noticed > that it desolves the second it hits your tongue and it took me 3 > tries the first time to get them all down. I have had a lot of heart > burn since starting the prednisone last Friday but no upset tummy. I > can't take it at night or I feel like a fire breathing dragon. I > have noticed some anxiety and depression but I don't really blame the > prednisone for that. I have also noticed that I have a salt craving > like I've never had in my life. > > Good luck with the insurance co, my co won't give an inch on some > things. I'm supposed to be on an acid reducer for my reflux but it's > almost $100 for a 30 day supply and since it's not covered I sit and > chew a lot of rolaids. > > My boyfriend says he's " trading me in for a less crabby one " , I hope > she knows how to do my laundry. I figure he knew I had this 6 and a > half years when we met, he chooses to put up with me. (Now that's > either stupidity or love.) > > BRANDY > > > > I started my prednisone and first off it tastes horrible, secondly, > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > told to try and take one in the morning and one at night. I also > > seem to be very " anxious " every little noise makes me jump, is that > > from the Prednisone? I am normally a relaxed person. One other > > vent, I was supposed to start my cortizone shots almost 3 weeks > ago, > > but my insurance company is dragging their feet. Isn't that > > horrible, they will pay for a transplant, but have issues when it > > comes to helping avoid one! Okay, enough complaining today. It > > must be the prednisone making me crabby :-) > > > > I hope everyone has a great day. > > > > Jill > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Cy that is a great idea. They even make capsules for vegetarians out of vegetable starch...I have some empty ones here that I use for herbals. I think I might start using them with my pred. ) Thanks for the great tip! Amy Re: Pardon my whine, but Prednisone sucks! > > > > They need to put a 5 second coating over the prednisone. I noticed > > that it desolves the second it hits your tongue and it took me 3 > > tries the first time to get them all down. I have had a lot of heart > > burn since starting the prednisone last Friday but no upset tummy. I > > can't take it at night or I feel like a fire breathing dragon. I > > have noticed some anxiety and depression but I don't really blame the > > prednisone for that. I have also noticed that I have a salt craving > > like I've never had in my life. > > > > Good luck with the insurance co, my co won't give an inch on some > > things. I'm supposed to be on an acid reducer for my reflux but it's > > almost $100 for a 30 day supply and since it's not covered I sit and > > chew a lot of rolaids. > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > she knows how to do my laundry. I figure he knew I had this 6 and a > > half years when we met, he chooses to put up with me. (Now that's > > either stupidity or love.) > > > > BRANDY > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > told to try and take one in the morning and one at night. I also > > > seem to be very " anxious " every little noise makes me jump, is that > > > from the Prednisone? I am normally a relaxed person. One other > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > ago, > > > but my insurance company is dragging their feet. Isn't that > > > horrible, they will pay for a transplant, but have issues when it > > > comes to helping avoid one! Okay, enough complaining today. It > > > must be the prednisone making me crabby :-) > > > > > > I hope everyone has a great day. > > > > > > Jill > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Cy that is a great idea. They even make capsules for vegetarians out of vegetable starch...I have some empty ones here that I use for herbals. I think I might start using them with my pred. ) Thanks for the great tip! Amy Re: Pardon my whine, but Prednisone sucks! > > > > They need to put a 5 second coating over the prednisone. I noticed > > that it desolves the second it hits your tongue and it took me 3 > > tries the first time to get them all down. I have had a lot of heart > > burn since starting the prednisone last Friday but no upset tummy. I > > can't take it at night or I feel like a fire breathing dragon. I > > have noticed some anxiety and depression but I don't really blame the > > prednisone for that. I have also noticed that I have a salt craving > > like I've never had in my life. > > > > Good luck with the insurance co, my co won't give an inch on some > > things. I'm supposed to be on an acid reducer for my reflux but it's > > almost $100 for a 30 day supply and since it's not covered I sit and > > chew a lot of rolaids. > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > she knows how to do my laundry. I figure he knew I had this 6 and a > > half years when we met, he chooses to put up with me. (Now that's > > either stupidity or love.) > > > > BRANDY > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > told to try and take one in the morning and one at night. I also > > > seem to be very " anxious " every little noise makes me jump, is that > > > from the Prednisone? I am normally a relaxed person. One other > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > ago, > > > but my insurance company is dragging their feet. Isn't that > > > horrible, they will pay for a transplant, but have issues when it > > > comes to helping avoid one! Okay, enough complaining today. It > > > must be the prednisone making me crabby :-) > > > > > > I hope everyone has a great day. > > > > > > Jill > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Cy that is a great idea. They even make capsules for vegetarians out of vegetable starch...I have some empty ones here that I use for herbals. I think I might start using them with my pred. ) Thanks for the great tip! Amy Re: Pardon my whine, but Prednisone sucks! > > > > They need to put a 5 second coating over the prednisone. I noticed > > that it desolves the second it hits your tongue and it took me 3 > > tries the first time to get them all down. I have had a lot of heart > > burn since starting the prednisone last Friday but no upset tummy. I > > can't take it at night or I feel like a fire breathing dragon. I > > have noticed some anxiety and depression but I don't really blame the > > prednisone for that. I have also noticed that I have a salt craving > > like I've never had in my life. > > > > Good luck with the insurance co, my co won't give an inch on some > > things. I'm supposed to be on an acid reducer for my reflux but it's > > almost $100 for a 30 day supply and since it's not covered I sit and > > chew a lot of rolaids. > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > she knows how to do my laundry. I figure he knew I had this 6 and a > > half years when we met, he chooses to put up with me. (Now that's > > either stupidity or love.) > > > > BRANDY > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > told to try and take one in the morning and one at night. I also > > > seem to be very " anxious " every little noise makes me jump, is that > > > from the Prednisone? I am normally a relaxed person. One other > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > ago, > > > but my insurance company is dragging their feet. Isn't that > > > horrible, they will pay for a transplant, but have issues when it > > > comes to helping avoid one! Okay, enough complaining today. It > > > must be the prednisone making me crabby :-) > > > > > > I hope everyone has a great day. > > > > > > Jill > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Thanks Amy. Even the renal world needs a Martha ! BTW, what happened with that flare up of yours? I've been away from my email for an embarrassingly long time and there's no way I can catch up on the backload - last I heard you had an unexplained flareup. Did that subside? Is everything OK? Cy Re: Pardon my whine, but Prednisone sucks! > > > > > > > They need to put a 5 second coating over the prednisone. I noticed > > > that it desolves the second it hits your tongue and it took me 3 > > > tries the first time to get them all down. I have had a lot of heart > > > burn since starting the prednisone last Friday but no upset tummy. I > > > can't take it at night or I feel like a fire breathing dragon. I > > > have noticed some anxiety and depression but I don't really blame the > > > prednisone for that. I have also noticed that I have a salt craving > > > like I've never had in my life. > > > > > > Good luck with the insurance co, my co won't give an inch on some > > > things. I'm supposed to be on an acid reducer for my reflux but it's > > > almost $100 for a 30 day supply and since it's not covered I sit and > > > chew a lot of rolaids. > > > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > > she knows how to do my laundry. I figure he knew I had this 6 and a > > > half years when we met, he chooses to put up with me. (Now that's > > > either stupidity or love.) > > > > > > BRANDY > > > > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > > told to try and take one in the morning and one at night. I also > > > > seem to be very " anxious " every little noise makes me jump, is that > > > > from the Prednisone? I am normally a relaxed person. One other > > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > > ago, > > > > but my insurance company is dragging their feet. Isn't that > > > > horrible, they will pay for a transplant, but have issues when it > > > > comes to helping avoid one! Okay, enough complaining today. It > > > > must be the prednisone making me crabby :-) > > > > > > > > I hope everyone has a great day. > > > > > > > > Jill > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Thanks Amy. Even the renal world needs a Martha ! BTW, what happened with that flare up of yours? I've been away from my email for an embarrassingly long time and there's no way I can catch up on the backload - last I heard you had an unexplained flareup. Did that subside? Is everything OK? Cy Re: Pardon my whine, but Prednisone sucks! > > > > > > > They need to put a 5 second coating over the prednisone. I noticed > > > that it desolves the second it hits your tongue and it took me 3 > > > tries the first time to get them all down. I have had a lot of heart > > > burn since starting the prednisone last Friday but no upset tummy. I > > > can't take it at night or I feel like a fire breathing dragon. I > > > have noticed some anxiety and depression but I don't really blame the > > > prednisone for that. I have also noticed that I have a salt craving > > > like I've never had in my life. > > > > > > Good luck with the insurance co, my co won't give an inch on some > > > things. I'm supposed to be on an acid reducer for my reflux but it's > > > almost $100 for a 30 day supply and since it's not covered I sit and > > > chew a lot of rolaids. > > > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > > she knows how to do my laundry. I figure he knew I had this 6 and a > > > half years when we met, he chooses to put up with me. (Now that's > > > either stupidity or love.) > > > > > > BRANDY > > > > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > > told to try and take one in the morning and one at night. I also > > > > seem to be very " anxious " every little noise makes me jump, is that > > > > from the Prednisone? I am normally a relaxed person. One other > > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > > ago, > > > > but my insurance company is dragging their feet. Isn't that > > > > horrible, they will pay for a transplant, but have issues when it > > > > comes to helping avoid one! Okay, enough complaining today. It > > > > must be the prednisone making me crabby :-) > > > > > > > > I hope everyone has a great day. > > > > > > > > Jill > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Thanks Amy. Even the renal world needs a Martha ! BTW, what happened with that flare up of yours? I've been away from my email for an embarrassingly long time and there's no way I can catch up on the backload - last I heard you had an unexplained flareup. Did that subside? Is everything OK? Cy Re: Pardon my whine, but Prednisone sucks! > > > > > > > They need to put a 5 second coating over the prednisone. I noticed > > > that it desolves the second it hits your tongue and it took me 3 > > > tries the first time to get them all down. I have had a lot of heart > > > burn since starting the prednisone last Friday but no upset tummy. I > > > can't take it at night or I feel like a fire breathing dragon. I > > > have noticed some anxiety and depression but I don't really blame the > > > prednisone for that. I have also noticed that I have a salt craving > > > like I've never had in my life. > > > > > > Good luck with the insurance co, my co won't give an inch on some > > > things. I'm supposed to be on an acid reducer for my reflux but it's > > > almost $100 for a 30 day supply and since it's not covered I sit and > > > chew a lot of rolaids. > > > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > > she knows how to do my laundry. I figure he knew I had this 6 and a > > > half years when we met, he chooses to put up with me. (Now that's > > > either stupidity or love.) > > > > > > BRANDY > > > > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > > told to try and take one in the morning and one at night. I also > > > > seem to be very " anxious " every little noise makes me jump, is that > > > > from the Prednisone? I am normally a relaxed person. One other > > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > > ago, > > > > but my insurance company is dragging their feet. Isn't that > > > > horrible, they will pay for a transplant, but have issues when it > > > > comes to helping avoid one! Okay, enough complaining today. It > > > > must be the prednisone making me crabby :-) > > > > > > > > I hope everyone has a great day. > > > > > > > > Jill > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi Jill, I'm sorry the prednisone side effects have affected you in this way. I did hear that the anxiety and nervousness was a side effect of prednisone. I have been ok so far (i've been taking it for 2 wks), just that my face is filling out somewhat. I've been doing an hour long walk everyday now as well as dancing 3 times a week. I hope that things will get better for you, sometimes the side effects will go away after you get used to the prednisone. Sophia > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi Jill, I'm sorry the prednisone side effects have affected you in this way. I did hear that the anxiety and nervousness was a side effect of prednisone. I have been ok so far (i've been taking it for 2 wks), just that my face is filling out somewhat. I've been doing an hour long walk everyday now as well as dancing 3 times a week. I hope that things will get better for you, sometimes the side effects will go away after you get used to the prednisone. Sophia > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi Jill, I'm sorry the prednisone side effects have affected you in this way. I did hear that the anxiety and nervousness was a side effect of prednisone. I have been ok so far (i've been taking it for 2 wks), just that my face is filling out somewhat. I've been doing an hour long walk everyday now as well as dancing 3 times a week. I hope that things will get better for you, sometimes the side effects will go away after you get used to the prednisone. Sophia > I started my prednisone and first off it tastes horrible, secondly, > it made my stomach so upset I couldn't eat for 4 days. Now I am > told to try and take one in the morning and one at night. I also > seem to be very " anxious " every little noise makes me jump, is that > from the Prednisone? I am normally a relaxed person. One other > vent, I was supposed to start my cortizone shots almost 3 weeks ago, > but my insurance company is dragging their feet. Isn't that > horrible, they will pay for a transplant, but have issues when it > comes to helping avoid one! Okay, enough complaining today. It > must be the prednisone making me crabby :-) > > I hope everyone has a great day. > > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I was as high as a kite on Prednisone for about a couple of weeks when taking it for the first time - I flew round the house doing housework but it soon settled down and I am back to my normal calm self now. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I was as high as a kite on Prednisone for about a couple of weeks when taking it for the first time - I flew round the house doing housework but it soon settled down and I am back to my normal calm self now. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I was as high as a kite on Prednisone for about a couple of weeks when taking it for the first time - I flew round the house doing housework but it soon settled down and I am back to my normal calm self now. Jeanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Thanks Connie! Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear from you again. Cy Connie Sink wrote: That is a great tip to share with the group. I've seen them in bulk at the health food store and if I recall they're not even very expensive. Thanks Cy I'll keep that in mind! Connie Re: Re: Pardon my whine, but Prednisone sucks! Cy that is a great idea. They even make capsules for vegetarians out of vegetable starch...I have some empty ones here that I use for herbals. I think I might start using them with my pred. ) Thanks for the great tip! Amy Re: Pardon my whine, but Prednisone sucks! > > > > They need to put a 5 second coating over the prednisone. I noticed > > that it desolves the second it hits your tongue and it took me 3 > > tries the first time to get them all down. I have had a lot of heart > > burn since starting the prednisone last Friday but no upset tummy. I > > can't take it at night or I feel like a fire breathing dragon. I > > have noticed some anxiety and depression but I don't really blame the > > prednisone for that. I have also noticed that I have a salt craving > > like I've never had in my life. > > > > Good luck with the insurance co, my co won't give an inch on some > > things. I'm supposed to be on an acid reducer for my reflux but it's > > almost $100 for a 30 day supply and since it's not covered I sit and > > chew a lot of rolaids. > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > she knows how to do my laundry. I figure he knew I had this 6 and a > > half years when we met, he chooses to put up with me. (Now that's > > either stupidity or love.) > > > > BRANDY > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > told to try and take one in the morning and one at night. I also > > > seem to be very " anxious " every little noise makes me jump, is that > > > from the Prednisone? I am normally a relaxed person. One other > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > ago, > > > but my insurance company is dragging their feet. Isn't that > > > horrible, they will pay for a transplant, but have issues when it > > > comes to helping avoid one! Okay, enough complaining today. It > > > must be the prednisone making me crabby :-) > > > > > > I hope everyone has a great day. > > > > > > Jill > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Thanks Connie! Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear from you again. Cy Connie Sink wrote: That is a great tip to share with the group. I've seen them in bulk at the health food store and if I recall they're not even very expensive. Thanks Cy I'll keep that in mind! Connie Re: Re: Pardon my whine, but Prednisone sucks! Cy that is a great idea. They even make capsules for vegetarians out of vegetable starch...I have some empty ones here that I use for herbals. I think I might start using them with my pred. ) Thanks for the great tip! Amy Re: Pardon my whine, but Prednisone sucks! > > > > They need to put a 5 second coating over the prednisone. I noticed > > that it desolves the second it hits your tongue and it took me 3 > > tries the first time to get them all down. I have had a lot of heart > > burn since starting the prednisone last Friday but no upset tummy. I > > can't take it at night or I feel like a fire breathing dragon. I > > have noticed some anxiety and depression but I don't really blame the > > prednisone for that. I have also noticed that I have a salt craving > > like I've never had in my life. > > > > Good luck with the insurance co, my co won't give an inch on some > > things. I'm supposed to be on an acid reducer for my reflux but it's > > almost $100 for a 30 day supply and since it's not covered I sit and > > chew a lot of rolaids. > > > > My boyfriend says he's " trading me in for a less crabby one " , I hope > > she knows how to do my laundry. I figure he knew I had this 6 and a > > half years when we met, he chooses to put up with me. (Now that's > > either stupidity or love.) > > > > BRANDY > > > > > > > I started my prednisone and first off it tastes horrible, secondly, > > > it made my stomach so upset I couldn't eat for 4 days. Now I am > > > told to try and take one in the morning and one at night. I also > > > seem to be very " anxious " every little noise makes me jump, is that > > > from the Prednisone? I am normally a relaxed person. One other > > > vent, I was supposed to start my cortizone shots almost 3 weeks > > ago, > > > but my insurance company is dragging their feet. Isn't that > > > horrible, they will pay for a transplant, but have issues when it > > > comes to helping avoid one! Okay, enough complaining today. It > > > must be the prednisone making me crabby :-) > > > > > > I hope everyone has a great day. > > > > > > Jill > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > Quote Link to comment Share on other sites More sharing options...
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