Re: Louise - Helmet without Proper Assesment?

August 7, 2005

Hi Louise. I live about 40 minutes southwest of Boston. I saw Dr.

at MGH and Dr. at Children's. You saw Dr. too

right? Basically, when I saw Dr. we tried that molding cup

thing for a brief time, but then my daughter got too active for it.

I went for a consult at Cranial Tech in CT and decided to do the

band. They were going to cast her for us that day since we drove so

far but they needed a script first. I called Dr. office and

the secretary said he was in surgery but she said he wrote in his

notes that we would try the molding cup for a couple of months then

we would decide about the helmet. From that note, she faxed a

prescription to CT, but it was for a helmet from NOPCO so they

wouldn't take it. I then called my pediatrician who was on vacation

and begged a nurse to get an okay from a covering pediatrician for

the script. So, I'm not sure I would have gotten one if it wasn't

for all that confusion and begging.

Can you switch peds or tell your ped or Dr. that you are not

comfortable not treating your child. I know Dr. told me that

he did not believe heads rounded out on their own...if that's his

belief, why wouldn't he be up for correcting it? Keep me posted and

good luck.

Teri

> > Hello,

> >

> > I'm new to the group but came across it in trying to do my own

> > research on positional plagiocephaly. Our son, ,

developed

> a

> > flat spot on one side of his head within his first couple

months (he

> > was born on January 1 of this year). We've " kept an eye on it "

> along

> > with our pediatrician, but she never felt the need to do more

than

> > suggest repositioning (which we tried). His ears were a little

> uneven

> > for a time and his forhead had a little bulge (both of those

seem

> > normal now) but we never noticed any facial asymetry and we

don't

> > think there are any issues with his neck.

> >

> > Now that he is seven months the flat spot looks better but it

is

> still

> > there. We decided we wanted to have some sort of specilaist

look at

> > him to tell us if it will go away with time, if it is too minor

to

> > worry about, or if we should try a helmet. So we asked our

> > pediatrician for a referal. She called us back and said that

it

> would

> > take two months to get an appointment so she went ahead and

made an

> > appointment for to get a helmet.

> >

> > We are uncomfortable deciding to get a helmet without anyone

seeing

> > him other than our pediatrician. We don't really feel she has

very

> > much info/training with plagiocephaly. So we are torn between

going

> > ahead with the helmet and waiting to try and get an appointment

with

> > some sort of specialist in the upcoming weeks or months.

> >

> > We would appreciate if anyone from this group has any insight

to

> share

> > from their own experiences. Also, we are in the Detroit area

but

> wil

> > be taking a vacation to Iowa City (where the University of Iowa

> > hosital is). Does anyone know of a specialist who can make a

proper

> > assesment in these areas? Thanks!

> >

> > Peace,

> >

>

> For more plagio info

August 7, 2005