Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Jody -- Please do!! Isn't that horrifying? Re: RAI > , > Could I have permission to copy/paste this to another board I go to? This is > fascinating and reaffirms that way to many doctors thoughout this country > are taking either an uneducated or lazy approach to the use of RAI in the > lack of safety practices and safety instructions being given to humans > having RAI who are, in some cases, are not even being told to stay away from > people, flush extra, etc etc. etc. > > Jody > > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Jody -- Please do!! Isn't that horrifying? Re: RAI > , > Could I have permission to copy/paste this to another board I go to? This is > fascinating and reaffirms that way to many doctors thoughout this country > are taking either an uneducated or lazy approach to the use of RAI in the > lack of safety practices and safety instructions being given to humans > having RAI who are, in some cases, are not even being told to stay away from > people, flush extra, etc etc. etc. > > Jody > > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Jody -- Please do!! Isn't that horrifying? Re: RAI > , > Could I have permission to copy/paste this to another board I go to? This is > fascinating and reaffirms that way to many doctors thoughout this country > are taking either an uneducated or lazy approach to the use of RAI in the > lack of safety practices and safety instructions being given to humans > having RAI who are, in some cases, are not even being told to stay away from > people, flush extra, etc etc. etc. > > Jody > > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , Could I have permission to copy/paste this to another board I go to? This is fascinating and reaffirms that way to many doctors thoughout this country are taking either an uneducated or lazy approach to the use of RAI in the lack of safety practices and safety instructions being given to humans having RAI who are, in some cases, are not even being told to stay away from people, flush extra, etc etc. etc. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , Could I have permission to copy/paste this to another board I go to? This is fascinating and reaffirms that way to many doctors thoughout this country are taking either an uneducated or lazy approach to the use of RAI in the lack of safety practices and safety instructions being given to humans having RAI who are, in some cases, are not even being told to stay away from people, flush extra, etc etc. etc. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi - It was even worse when I had RAI in '87. They sent me home and only told me to avoid being around pregnant women and infants for a while. I was in college at the time and went to school the next day, slept with my husband the night I had RAI and wasn't told anything about utensils and toilets. My husband seems to be alright but I never have been after that. After the initial increased hyperthyroidism, I didn't do too badly for the 1st couple of years but after that...... RAI has been one of the top regrets in my life. The pain I could tolerate. One thing that bothered me a lot more was the mental change from going untreated for hypothyroidism so long. I have to socialize with a lot of very bright people and I can no longer hear the first part of what they're saying and it takes me a long time to comprehend what they're talking about. It's embarassing so I avoid these social situations if at all possible. Many of them know of my problems though and just wait. Those people are wonderful and I can carry on with them just fine. In fact, it's funny then. But by far the worst is this unexplained infertility (I don't have an autoimmune component to it which is the cause of infertility in Graves' patients, so technically, I'm in remission). It's been both heartbreaking and incredibly expensive. The good thing though is that my husband always tells the people that he diagnoses with Graves' all the risks that accompany RAI, whereas, most doctors leave that out. Take care, > Hi all, > > I had a interesting conversation with one of my yoga students who is a vet. She told me that when they treat hyperthyroidism in cats, Minnesota law (one of the strictest in the country) requires that they keep the cats isolated in their office until they register only ordinary background radiation. > > I asked how long this was, thinking a few days. > > THREE TO FOUR WEEKS!! > > My vet friend was astounded to learn that human beings are sent home immediately and simply told to isolate themselves for three days. She said that it's commonly assumed among vets that the radioactive iodine is indeed somehow mutating or affecting other organs on some level and that there dangers with the radiation. In cats, she said, that seems like an acceptable risk. As for people, she said that she would never consider RAI for herself. > > Really, this does give one pause. > > B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi - It was even worse when I had RAI in '87. They sent me home and only told me to avoid being around pregnant women and infants for a while. I was in college at the time and went to school the next day, slept with my husband the night I had RAI and wasn't told anything about utensils and toilets. My husband seems to be alright but I never have been after that. After the initial increased hyperthyroidism, I didn't do too badly for the 1st couple of years but after that...... RAI has been one of the top regrets in my life. The pain I could tolerate. One thing that bothered me a lot more was the mental change from going untreated for hypothyroidism so long. I have to socialize with a lot of very bright people and I can no longer hear the first part of what they're saying and it takes me a long time to comprehend what they're talking about. It's embarassing so I avoid these social situations if at all possible. Many of them know of my problems though and just wait. Those people are wonderful and I can carry on with them just fine. In fact, it's funny then. But by far the worst is this unexplained infertility (I don't have an autoimmune component to it which is the cause of infertility in Graves' patients, so technically, I'm in remission). It's been both heartbreaking and incredibly expensive. The good thing though is that my husband always tells the people that he diagnoses with Graves' all the risks that accompany RAI, whereas, most doctors leave that out. Take care, > Hi all, > > I had a interesting conversation with one of my yoga students who is a vet. She told me that when they treat hyperthyroidism in cats, Minnesota law (one of the strictest in the country) requires that they keep the cats isolated in their office until they register only ordinary background radiation. > > I asked how long this was, thinking a few days. > > THREE TO FOUR WEEKS!! > > My vet friend was astounded to learn that human beings are sent home immediately and simply told to isolate themselves for three days. She said that it's commonly assumed among vets that the radioactive iodine is indeed somehow mutating or affecting other organs on some level and that there dangers with the radiation. In cats, she said, that seems like an acceptable risk. As for people, she said that she would never consider RAI for herself. > > Really, this does give one pause. > > B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi - It was even worse when I had RAI in '87. They sent me home and only told me to avoid being around pregnant women and infants for a while. I was in college at the time and went to school the next day, slept with my husband the night I had RAI and wasn't told anything about utensils and toilets. My husband seems to be alright but I never have been after that. After the initial increased hyperthyroidism, I didn't do too badly for the 1st couple of years but after that...... RAI has been one of the top regrets in my life. The pain I could tolerate. One thing that bothered me a lot more was the mental change from going untreated for hypothyroidism so long. I have to socialize with a lot of very bright people and I can no longer hear the first part of what they're saying and it takes me a long time to comprehend what they're talking about. It's embarassing so I avoid these social situations if at all possible. Many of them know of my problems though and just wait. Those people are wonderful and I can carry on with them just fine. In fact, it's funny then. But by far the worst is this unexplained infertility (I don't have an autoimmune component to it which is the cause of infertility in Graves' patients, so technically, I'm in remission). It's been both heartbreaking and incredibly expensive. The good thing though is that my husband always tells the people that he diagnoses with Graves' all the risks that accompany RAI, whereas, most doctors leave that out. Take care, > Hi all, > > I had a interesting conversation with one of my yoga students who is a vet. She told me that when they treat hyperthyroidism in cats, Minnesota law (one of the strictest in the country) requires that they keep the cats isolated in their office until they register only ordinary background radiation. > > I asked how long this was, thinking a few days. > > THREE TO FOUR WEEKS!! > > My vet friend was astounded to learn that human beings are sent home immediately and simply told to isolate themselves for three days. She said that it's commonly assumed among vets that the radioactive iodine is indeed somehow mutating or affecting other organs on some level and that there dangers with the radiation. In cats, she said, that seems like an acceptable risk. As for people, she said that she would never consider RAI for herself. > > Really, this does give one pause. > > B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Horrifying is exactly the word I thought of when I read this! , did your friend mention anything about how the dosage of RAI that they give to cats compares with that for people? I would assume that since cats are so much smaller that they would be getting a smaller dose than would be given humans, but I would have no idea. Unbelievable! Re: RAI >Jody -- Please do!! Isn't that horrifying? > > > Re: RAI > > >> , >> Could I have permission to copy/paste this to another board I go to? This >is >> fascinating and reaffirms that way to many doctors thoughout this country >> are taking either an uneducated or lazy approach to the use of RAI in the >> lack of safety practices and safety instructions being given to humans >> having RAI who are, in some cases, are not even being told to stay away >from >> people, flush extra, etc etc. etc. >> >> Jody >> >> >> >> _________________________________________________________________ >> MSN Photos is the easiest way to share and print your photos: >> http://photos.msn.com/support/worldwide.aspx >> >> >> >> ------------------------------------- >> The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >> Please consult your doctor before changing or trying new treatments. >> ---------------------------------------- >> DISCLAIMER >> >> Advertisments placed on this yahoo groups list does not have the >endorsement of >> the listowner. I have no input as to what ads are attached to emails. >> ------------------------------------------------------------------------- - >------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Horrifying is exactly the word I thought of when I read this! , did your friend mention anything about how the dosage of RAI that they give to cats compares with that for people? I would assume that since cats are so much smaller that they would be getting a smaller dose than would be given humans, but I would have no idea. Unbelievable! Re: RAI >Jody -- Please do!! Isn't that horrifying? > > > Re: RAI > > >> , >> Could I have permission to copy/paste this to another board I go to? This >is >> fascinating and reaffirms that way to many doctors thoughout this country >> are taking either an uneducated or lazy approach to the use of RAI in the >> lack of safety practices and safety instructions being given to humans >> having RAI who are, in some cases, are not even being told to stay away >from >> people, flush extra, etc etc. etc. >> >> Jody >> >> >> >> _________________________________________________________________ >> MSN Photos is the easiest way to share and print your photos: >> http://photos.msn.com/support/worldwide.aspx >> >> >> >> ------------------------------------- >> The Graves' list is intended for informational purposes only and is not >intended to replace expert medical care. >> Please consult your doctor before changing or trying new treatments. >> ---------------------------------------- >> DISCLAIMER >> >> Advertisments placed on this yahoo groups list does not have the >endorsement of >> the listowner. I have no input as to what ads are attached to emails. >> ------------------------------------------------------------------------- - >------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , It is appalling to think that doctors who treat our beloved 4 legged family members know so much more precaution wise dealing with radiation than do the doctors that treat so many other people. Thanks ...am posting it on mediboard if you want to come visit there too Url is http://www.mediboard.com/cgi-local/ubbcgi/forumdisplay.cgi?action=topics & number=\ 1 _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , It is appalling to think that doctors who treat our beloved 4 legged family members know so much more precaution wise dealing with radiation than do the doctors that treat so many other people. Thanks ...am posting it on mediboard if you want to come visit there too Url is http://www.mediboard.com/cgi-local/ubbcgi/forumdisplay.cgi?action=topics & number=\ 1 _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , It is appalling to think that doctors who treat our beloved 4 legged family members know so much more precaution wise dealing with radiation than do the doctors that treat so many other people. Thanks ...am posting it on mediboard if you want to come visit there too Url is http://www.mediboard.com/cgi-local/ubbcgi/forumdisplay.cgi?action=topics & number=\ 1 _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Interesting question on dosage for animals than for humans...they probably are given a much smaller dose, and still it takes about 4 weeks to be safe around people again...amazing, simply amazing! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Interesting question on dosage for animals than for humans...they probably are given a much smaller dose, and still it takes about 4 weeks to be safe around people again...amazing, simply amazing! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi , I proved just how radioactive we are after RAI by contamininating the nuclear chemistry department in the lab where I worked. We thought we had some major instrument failure and couldn't figure out what was going on til we realized it was me. I couldn't even walk in the door without setting off the RAI counter. Once my levels went down we did RAI readings of my urine to tell when I could work in that department again. It was about 6 weeks before my urine levels came down. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi , I proved just how radioactive we are after RAI by contamininating the nuclear chemistry department in the lab where I worked. We thought we had some major instrument failure and couldn't figure out what was going on til we realized it was me. I couldn't even walk in the door without setting off the RAI counter. Once my levels went down we did RAI readings of my urine to tell when I could work in that department again. It was about 6 weeks before my urine levels came down. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 hi jody/ALL M here again askin for help...sorry for I really am still confused and depressed up to now and it seems nothing works inspite of the things I have been doin lately to make me feel better and following some of the advices from the ATOMIC GROUP. I have tried supplements, reading infos about TD, lowered my thyroid meds but i still feel achy all over and my brain won't function right. School started just yesterday and today is my first day of clinical (btw: I am in a Nursing Program) I am afraid that I won't be able to function. Just today, i haven't started my clinical yet but I already m feeling exhausted just driving 30 mins to school. You and are the only people I know who can help me for I know Both of you have been there and had GRAVES and RAI before. I was surfing the net a while ago and I found this interesting site about how to protect us against radioactivity including RAI!...Do you think it's true that kelp, sunflower seeds, and pectin can help us (who already had RAI) get rid of the radioactive iodine in our body? My sister in law had RAI before ( I followed her advice to have RAI, my big big mistake) and she said that she took kelp instead of thyroid meds for many years...She seems fine and healthy and never had problem with muscle aches/brain fog or anything. Here's the site: http://www.heart7.net/mcf/rad_8.htm Please tell me your opinion about it. Thanks again so much, Chie > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi Chie, >>>M here again asking for help...sorry for I really am still confused and >>>depressed up to now and it seems nothing works in spite of the things I >>>have been doing lately to make me feel better and following some of the >>>advices from the ATOMIC GROUP. Don't ever apologize for asking for help and information, you are trying to get some quality back in your life. >>>I have tried supplements, reading infos about TD, lowered my thyroid meds >>>but i still feel achy all over and my brain won't function right.<<< Okay, this really concerns me!!! Why did you lower your thyroid meds? That will make all of your hypo symptoms so much worse I know we talked about your replacements, and that you are using 5mcg. of cytomel and we talked about splitting one of the doses and taking it at a different time of day. Splitting the T3 supplements seems to work much better for us than taking them all at once. I went back and reread post exchanges in the archives, and I know you started with a new doctor who didn't think cytomel was necessary and was a fan of synthroid. I hope you are not still with him! Go to http://thyroid.about.com/library/weekly/bldoc1.htm And see if you can find a doctor that is recommended by other patients, who will work with you on syptoms, open to T3 or Armour, who will run the free T3 and Free T4 tests. It took me firing 2 endos and a primary before finding my current endo...and I found her on this site. I drive 2 hours to see her and I see her 2/4 times a year, depending on what I am doing. Right now it is more often because of my eyes. I know so many of us have a problem with how doctors treat us, we get angry, frustrated and on and on...but the bottom line is that *we* must be proactive in our treatment, that if we need to doctor hop to find one who will *listen* and work *with* us, then that is what we have to do...the bottom line is that we NEED our doctors to monitor us, order labs (the ones we want) and prescribe for us, so we may as well keep searching until we find *the* one we can work together with. They are out there, we just have to find them. I know where you are at Chie, I was left hypo, with doctors that wouldn't listen, never took my symptoms seriously and continued down that hypoHell highway for over 4 years...the worse we feel hypo, the harder it is to motivate ourselves to search for a doctor who knows their stuff, it is just too darned hard! When I hit rock bottom, I *finally* started learning about this disease, finding a support group, then finding this support group, it took great determination on my part to keep searching for a doctor I could trust, respect and work with...though I HATE the drive to see her, my life is worth it, she has helped me get quality back in my life and that makes all the difference. Trust me whan I tell you, I could come up with one reason after another to NOT have to make this 2 hour drive, especially when I was hypO...but I know that making this drive when I have to is what has made me feel so much better...this doctor is a treasure, and she is NOT allowed to ever retired til I am old and dead ;-) Good thing she is younger than I am. >>>School started just yesterday and today is my first day of clinical (btw: >>>I am in a Nursing Program) I am afraid that I won't be able to function. >>>Just today, i haven't started my clinical yet but I already m feeling >>>exhausted just driving 30 mins to school.<<< I think maybe you need to consider getting a withdrawal from school for now Chie...your not up to all of the added pressure and stress. Stress makes our symptoms so much worse. I know you don't want to hear this, but if you took the withdrawal, they can not give you a failing grade, and taking the time off to really work hard at finding a doctor who will work WITH you and you start feeling better will make all the difference when you go back. I feel your desparation in trying to succede in finishing up your classes and working in a proffession that you want...but let me ask you a question... As long as you are feeling the way you do, and if you got through your classes, found a nursing job...would YOU want to be treated by YOU in the shape you are in? I'm sorry my friend, but I wouldn't want you to be my nurse right now...though once you are on track with your graves, I would LOVE to have you be my nurse, you are a caring and wonderful person...about everyone else...for now you have to take that care and give it to yourself. >>>You and are the only people I know who can help me for I know Both >>>of you have been there and had GRAVES and RAI before.<<< Chie, We can't help you alone I wish we could! We can only keep supporting you, give you suggestions of what has worked for us and the number one thing that has put quality back in our lives was continuing the search for a doctor who would listen, take us seriously and work with us based on symtoms. You have to be the first person to help yourself in doing this. We can give you the encouragement, help suggest labs you need run, but only a good doctor can prescribe, run those labs and talk and listen to you and only a doctor and you can put the quality back in your life together. Our cynicism over doctors is with doctors like you have been seeing, like my first 2 doctors, or doctors who who give RAI to children and young women...I don't like them...but I love my doc, I love the fact that others in this group have found good docs and they do exist. You have some thinking to do and decision to make, school, finding a doctor. Removing stress is essential in helping you do this. >>>My sister in law had RAI before ( I followed her advice to have RAI, my >>>big big mistake) and she said that she took kelp instead of thyroid meds >>>for many years...She seems fine and healthy and never had problem with >>>muscle aches/brain fog or anything.<<< Don't beat yourself up over following her advice...we have both done RAI, and we can't undo it no matter what...so now we search to feel as good as we can. I can't comment on the kelp because I don't know anything about it. I, personally don't take anything high in iodine. If I do have too much of it, I get that old hyper buzz for a day or two and I don't like it much. >>>Here's the site: http://www.heart7.net/mcf/rad_8.htm Please tell me your opinion about it.<<< I went here and read this, it is interesting, but the one thing that bothers me a LOT is that this person didn't name the doctors, it was 'this doctor' *another doctor*, a doctor in Mexico, ... when I see this stuff it doesn't make sense...if these *doctors* believed this, why have they chosen not to support it with their names? I am a big proponent of being responsible for what I say or do and always add my name to things...I have found over the years that people who don't, are really not who they appear to be, not really sure or don't really believe what is being said, or what they have said has been taken out of context...so tread cautiously. I hope I haven't said anything to make you more upset, Chie. I really do understand where you are at right now and I do care, but bottom line is you have priorities to set so that you can have the care you need to feel better...and only you can do this...I, along with everyone else in this group can be here to listen as you go through this time so don't give up on us, and especially don't give up on yourself. *HUGZ* for you, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Chie - I don't think an answer can be any better than what Jody has just said. About the only thing I could think to add what the observation that for a lot of us here, the diagnosis of GD was kind of a " wake up " call to re-evaluate our lives and eliminate some of the stresses in them. A call to take time and figure out exactly what you're doing and what you should be doing. The most important thing is to get yourself better first, pretty much everything else can wait until that is taken care of. Good luck and whatever you decide to do, make sure it is right for _you_. Re: RAI >Hi Chie, >>>>M here again asking for help...sorry for I really am still confused and >>>>depressed up to now and it seems nothing works in spite of the things I >>>>have been doing lately to make me feel better and following some of the >>>>advices from the ATOMIC GROUP. > >Don't ever apologize for asking for help and information, you are trying to >get some quality back in your life. > >>>>I have tried supplements, reading infos about TD, lowered my thyroid meds >>>>but i still feel achy all over and my brain won't function right.<<< > >Okay, this really concerns me!!! Why did you lower your thyroid meds? That >will make all of your hypo symptoms so much worse I know we talked about >your replacements, and that you are using 5mcg. of cytomel and we talked >about splitting one of the doses and taking it at a different time of day. >Splitting the T3 supplements seems to work much better for us than taking >them all at once. > >I went back and reread post exchanges in the archives, and I know you >started with a new doctor who didn't think cytomel was necessary and was a >fan of synthroid. I hope you are not still with him! Go to > >http://thyroid.about.com/library/weekly/bldoc1.htm > >And see if you can find a doctor that is recommended by other patients, who >will work with you on syptoms, open to T3 or Armour, who will run the free >T3 and Free T4 tests. It took me firing 2 endos and a primary before >finding my current endo...and I found her on this site. I drive 2 hours to >see her and I see her 2/4 times a year, depending on what I am doing. Right >now it is more often because of my eyes. > >I know so many of us have a problem with how doctors treat us, we get angry, >frustrated and on and on...but the bottom line is that *we* must be >proactive in our treatment, that if we need to doctor hop to find one who >will *listen* and work *with* us, then that is what we have to do...the >bottom line is that we NEED our doctors to monitor us, order labs (the ones >we want) and prescribe for us, so we may as well keep searching until we >find *the* one we can work together with. They are out there, we just have >to find them. > >I know where you are at Chie, I was left hypo, with doctors that wouldn't >listen, never took my symptoms seriously and continued down that hypoHell >highway for over 4 years...the worse we feel hypo, the harder it is to >motivate ourselves to search for a doctor who knows their stuff, it is just >too darned hard! When I hit rock bottom, I *finally* started learning about >this disease, finding a support group, then finding this support group, it >took great determination on my part to keep searching for a doctor I could >trust, respect and work with...though I HATE the drive to see her, my life >is worth it, she has helped me get quality back in my life and that makes >all the difference. Trust me whan I tell you, I could come up with one >reason after another to NOT have to make this 2 hour drive, especially when >I was hypO...but I know that making this drive when I have to is what has >made me feel so much better...this doctor is a treasure, and she is NOT >allowed to ever retired til I am old and dead ;-) Good thing she is younger >than I am. > >>>>School started just yesterday and today is my first day of clinical (btw: >>>>I am in a Nursing Program) I am afraid that I won't be able to function. >>>>Just today, i haven't started my clinical yet but I already m feeling >>>>exhausted just driving 30 mins to school.<<< > >I think maybe you need to consider getting a withdrawal from school for now >Chie...your not up to all of the added pressure and stress. Stress makes >our symptoms so much worse. I know you don't want to hear this, but if you >took the withdrawal, they can not give you a failing grade, and taking the >time off to really work hard at finding a doctor who will work WITH you and >you start feeling better will make all the difference when you go back. I >feel your desparation in trying to succede in finishing up your classes and >working in a proffession that you want...but let me ask you a question... > >As long as you are feeling the way you do, and if you got through your >classes, found a nursing job...would YOU want to be treated by YOU in the >shape you are in? I'm sorry my friend, but I wouldn't want you to be my >nurse right now...though once you are on track with your graves, I would >LOVE to have you be my nurse, you are a caring and wonderful person...about >everyone else...for now you have to take that care and give it to yourself. > >>>>You and are the only people I know who can help me for I know Both >>>>of you have been there and had GRAVES and RAI before.<<< > >Chie, We can't help you alone I wish we could! We can only keep >supporting you, give you suggestions of what has worked for us and the >number one thing that has put quality back in our lives was continuing the >search for a doctor who would listen, take us seriously and work with us >based on symtoms. You have to be the first person to help yourself in doing >this. We can give you the encouragement, help suggest labs you need run, >but only a good doctor can prescribe, run those labs and talk and listen to >you and only a doctor and you can put the quality back in your life >together. Our cynicism over doctors is with doctors like you have been >seeing, like my first 2 doctors, or doctors who who give RAI to children and >young women...I don't like them...but I love my doc, I love the fact that >others in this group have found good docs and they do exist. > >You have some thinking to do and decision to make, school, finding a doctor. > Removing stress is essential in helping you do this. > >>>>My sister in law had RAI before ( I followed her advice to have RAI, my >>>>big big mistake) and she said that she took kelp instead of thyroid meds >>>>for many years...She seems fine and healthy and never had problem with >>>>muscle aches/brain fog or anything.<<< > >Don't beat yourself up over following her advice...we have both done RAI, >and we can't undo it no matter what...so now we search to feel as good as we >can. I can't comment on the kelp because I don't know anything about it. >I, personally don't take anything high in iodine. If I do have too much of >it, I get that old hyper buzz for a day or two and I don't like it much. > >>>>Here's the site: http://www.heart7.net/mcf/rad_8.htm >Please tell me your opinion about it.<<< > >I went here and read this, it is interesting, but the one thing that bothers >me a LOT is that this person didn't name the doctors, it was 'this doctor' >*another doctor*, a doctor in Mexico, ... when I see this stuff it doesn't >make sense...if these *doctors* believed this, why have they chosen not to >support it with their names? I am a big proponent of being responsible for >what I say or do and always add my name to things...I have found over the >years that people who don't, are really not who they appear to be, not >really sure or don't really believe what is being said, or what they have >said has been taken out of context...so tread cautiously. > >I hope I haven't said anything to make you more upset, Chie. I really do >understand where you are at right now and I do care, but bottom line is you >have priorities to set so that you can have the care you need to feel >better...and only you can do this...I, along with everyone else in this >group can be here to listen as you go through this time so don't give up on >us, and especially don't give up on yourself. >*HUGZ* for you, >Jody > > > > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Chie - I don't think an answer can be any better than what Jody has just said. About the only thing I could think to add what the observation that for a lot of us here, the diagnosis of GD was kind of a " wake up " call to re-evaluate our lives and eliminate some of the stresses in them. A call to take time and figure out exactly what you're doing and what you should be doing. The most important thing is to get yourself better first, pretty much everything else can wait until that is taken care of. Good luck and whatever you decide to do, make sure it is right for _you_. Re: RAI >Hi Chie, >>>>M here again asking for help...sorry for I really am still confused and >>>>depressed up to now and it seems nothing works in spite of the things I >>>>have been doing lately to make me feel better and following some of the >>>>advices from the ATOMIC GROUP. > >Don't ever apologize for asking for help and information, you are trying to >get some quality back in your life. > >>>>I have tried supplements, reading infos about TD, lowered my thyroid meds >>>>but i still feel achy all over and my brain won't function right.<<< > >Okay, this really concerns me!!! Why did you lower your thyroid meds? That >will make all of your hypo symptoms so much worse I know we talked about >your replacements, and that you are using 5mcg. of cytomel and we talked >about splitting one of the doses and taking it at a different time of day. >Splitting the T3 supplements seems to work much better for us than taking >them all at once. > >I went back and reread post exchanges in the archives, and I know you >started with a new doctor who didn't think cytomel was necessary and was a >fan of synthroid. I hope you are not still with him! Go to > >http://thyroid.about.com/library/weekly/bldoc1.htm > >And see if you can find a doctor that is recommended by other patients, who >will work with you on syptoms, open to T3 or Armour, who will run the free >T3 and Free T4 tests. It took me firing 2 endos and a primary before >finding my current endo...and I found her on this site. I drive 2 hours to >see her and I see her 2/4 times a year, depending on what I am doing. Right >now it is more often because of my eyes. > >I know so many of us have a problem with how doctors treat us, we get angry, >frustrated and on and on...but the bottom line is that *we* must be >proactive in our treatment, that if we need to doctor hop to find one who >will *listen* and work *with* us, then that is what we have to do...the >bottom line is that we NEED our doctors to monitor us, order labs (the ones >we want) and prescribe for us, so we may as well keep searching until we >find *the* one we can work together with. They are out there, we just have >to find them. > >I know where you are at Chie, I was left hypo, with doctors that wouldn't >listen, never took my symptoms seriously and continued down that hypoHell >highway for over 4 years...the worse we feel hypo, the harder it is to >motivate ourselves to search for a doctor who knows their stuff, it is just >too darned hard! When I hit rock bottom, I *finally* started learning about >this disease, finding a support group, then finding this support group, it >took great determination on my part to keep searching for a doctor I could >trust, respect and work with...though I HATE the drive to see her, my life >is worth it, she has helped me get quality back in my life and that makes >all the difference. Trust me whan I tell you, I could come up with one >reason after another to NOT have to make this 2 hour drive, especially when >I was hypO...but I know that making this drive when I have to is what has >made me feel so much better...this doctor is a treasure, and she is NOT >allowed to ever retired til I am old and dead ;-) Good thing she is younger >than I am. > >>>>School started just yesterday and today is my first day of clinical (btw: >>>>I am in a Nursing Program) I am afraid that I won't be able to function. >>>>Just today, i haven't started my clinical yet but I already m feeling >>>>exhausted just driving 30 mins to school.<<< > >I think maybe you need to consider getting a withdrawal from school for now >Chie...your not up to all of the added pressure and stress. Stress makes >our symptoms so much worse. I know you don't want to hear this, but if you >took the withdrawal, they can not give you a failing grade, and taking the >time off to really work hard at finding a doctor who will work WITH you and >you start feeling better will make all the difference when you go back. I >feel your desparation in trying to succede in finishing up your classes and >working in a proffession that you want...but let me ask you a question... > >As long as you are feeling the way you do, and if you got through your >classes, found a nursing job...would YOU want to be treated by YOU in the >shape you are in? I'm sorry my friend, but I wouldn't want you to be my >nurse right now...though once you are on track with your graves, I would >LOVE to have you be my nurse, you are a caring and wonderful person...about >everyone else...for now you have to take that care and give it to yourself. > >>>>You and are the only people I know who can help me for I know Both >>>>of you have been there and had GRAVES and RAI before.<<< > >Chie, We can't help you alone I wish we could! We can only keep >supporting you, give you suggestions of what has worked for us and the >number one thing that has put quality back in our lives was continuing the >search for a doctor who would listen, take us seriously and work with us >based on symtoms. You have to be the first person to help yourself in doing >this. We can give you the encouragement, help suggest labs you need run, >but only a good doctor can prescribe, run those labs and talk and listen to >you and only a doctor and you can put the quality back in your life >together. Our cynicism over doctors is with doctors like you have been >seeing, like my first 2 doctors, or doctors who who give RAI to children and >young women...I don't like them...but I love my doc, I love the fact that >others in this group have found good docs and they do exist. > >You have some thinking to do and decision to make, school, finding a doctor. > Removing stress is essential in helping you do this. > >>>>My sister in law had RAI before ( I followed her advice to have RAI, my >>>>big big mistake) and she said that she took kelp instead of thyroid meds >>>>for many years...She seems fine and healthy and never had problem with >>>>muscle aches/brain fog or anything.<<< > >Don't beat yourself up over following her advice...we have both done RAI, >and we can't undo it no matter what...so now we search to feel as good as we >can. I can't comment on the kelp because I don't know anything about it. >I, personally don't take anything high in iodine. If I do have too much of >it, I get that old hyper buzz for a day or two and I don't like it much. > >>>>Here's the site: http://www.heart7.net/mcf/rad_8.htm >Please tell me your opinion about it.<<< > >I went here and read this, it is interesting, but the one thing that bothers >me a LOT is that this person didn't name the doctors, it was 'this doctor' >*another doctor*, a doctor in Mexico, ... when I see this stuff it doesn't >make sense...if these *doctors* believed this, why have they chosen not to >support it with their names? I am a big proponent of being responsible for >what I say or do and always add my name to things...I have found over the >years that people who don't, are really not who they appear to be, not >really sure or don't really believe what is being said, or what they have >said has been taken out of context...so tread cautiously. > >I hope I haven't said anything to make you more upset, Chie. I really do >understand where you are at right now and I do care, but bottom line is you >have priorities to set so that you can have the care you need to feel >better...and only you can do this...I, along with everyone else in this >group can be here to listen as you go through this time so don't give up on >us, and especially don't give up on yourself. >*HUGZ* for you, >Jody > > > > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Chie - I don't think an answer can be any better than what Jody has just said. About the only thing I could think to add what the observation that for a lot of us here, the diagnosis of GD was kind of a " wake up " call to re-evaluate our lives and eliminate some of the stresses in them. A call to take time and figure out exactly what you're doing and what you should be doing. The most important thing is to get yourself better first, pretty much everything else can wait until that is taken care of. Good luck and whatever you decide to do, make sure it is right for _you_. Re: RAI >Hi Chie, >>>>M here again asking for help...sorry for I really am still confused and >>>>depressed up to now and it seems nothing works in spite of the things I >>>>have been doing lately to make me feel better and following some of the >>>>advices from the ATOMIC GROUP. > >Don't ever apologize for asking for help and information, you are trying to >get some quality back in your life. > >>>>I have tried supplements, reading infos about TD, lowered my thyroid meds >>>>but i still feel achy all over and my brain won't function right.<<< > >Okay, this really concerns me!!! Why did you lower your thyroid meds? That >will make all of your hypo symptoms so much worse I know we talked about >your replacements, and that you are using 5mcg. of cytomel and we talked >about splitting one of the doses and taking it at a different time of day. >Splitting the T3 supplements seems to work much better for us than taking >them all at once. > >I went back and reread post exchanges in the archives, and I know you >started with a new doctor who didn't think cytomel was necessary and was a >fan of synthroid. I hope you are not still with him! Go to > >http://thyroid.about.com/library/weekly/bldoc1.htm > >And see if you can find a doctor that is recommended by other patients, who >will work with you on syptoms, open to T3 or Armour, who will run the free >T3 and Free T4 tests. It took me firing 2 endos and a primary before >finding my current endo...and I found her on this site. I drive 2 hours to >see her and I see her 2/4 times a year, depending on what I am doing. Right >now it is more often because of my eyes. > >I know so many of us have a problem with how doctors treat us, we get angry, >frustrated and on and on...but the bottom line is that *we* must be >proactive in our treatment, that if we need to doctor hop to find one who >will *listen* and work *with* us, then that is what we have to do...the >bottom line is that we NEED our doctors to monitor us, order labs (the ones >we want) and prescribe for us, so we may as well keep searching until we >find *the* one we can work together with. They are out there, we just have >to find them. > >I know where you are at Chie, I was left hypo, with doctors that wouldn't >listen, never took my symptoms seriously and continued down that hypoHell >highway for over 4 years...the worse we feel hypo, the harder it is to >motivate ourselves to search for a doctor who knows their stuff, it is just >too darned hard! When I hit rock bottom, I *finally* started learning about >this disease, finding a support group, then finding this support group, it >took great determination on my part to keep searching for a doctor I could >trust, respect and work with...though I HATE the drive to see her, my life >is worth it, she has helped me get quality back in my life and that makes >all the difference. Trust me whan I tell you, I could come up with one >reason after another to NOT have to make this 2 hour drive, especially when >I was hypO...but I know that making this drive when I have to is what has >made me feel so much better...this doctor is a treasure, and she is NOT >allowed to ever retired til I am old and dead ;-) Good thing she is younger >than I am. > >>>>School started just yesterday and today is my first day of clinical (btw: >>>>I am in a Nursing Program) I am afraid that I won't be able to function. >>>>Just today, i haven't started my clinical yet but I already m feeling >>>>exhausted just driving 30 mins to school.<<< > >I think maybe you need to consider getting a withdrawal from school for now >Chie...your not up to all of the added pressure and stress. Stress makes >our symptoms so much worse. I know you don't want to hear this, but if you >took the withdrawal, they can not give you a failing grade, and taking the >time off to really work hard at finding a doctor who will work WITH you and >you start feeling better will make all the difference when you go back. I >feel your desparation in trying to succede in finishing up your classes and >working in a proffession that you want...but let me ask you a question... > >As long as you are feeling the way you do, and if you got through your >classes, found a nursing job...would YOU want to be treated by YOU in the >shape you are in? I'm sorry my friend, but I wouldn't want you to be my >nurse right now...though once you are on track with your graves, I would >LOVE to have you be my nurse, you are a caring and wonderful person...about >everyone else...for now you have to take that care and give it to yourself. > >>>>You and are the only people I know who can help me for I know Both >>>>of you have been there and had GRAVES and RAI before.<<< > >Chie, We can't help you alone I wish we could! We can only keep >supporting you, give you suggestions of what has worked for us and the >number one thing that has put quality back in our lives was continuing the >search for a doctor who would listen, take us seriously and work with us >based on symtoms. You have to be the first person to help yourself in doing >this. We can give you the encouragement, help suggest labs you need run, >but only a good doctor can prescribe, run those labs and talk and listen to >you and only a doctor and you can put the quality back in your life >together. Our cynicism over doctors is with doctors like you have been >seeing, like my first 2 doctors, or doctors who who give RAI to children and >young women...I don't like them...but I love my doc, I love the fact that >others in this group have found good docs and they do exist. > >You have some thinking to do and decision to make, school, finding a doctor. > Removing stress is essential in helping you do this. > >>>>My sister in law had RAI before ( I followed her advice to have RAI, my >>>>big big mistake) and she said that she took kelp instead of thyroid meds >>>>for many years...She seems fine and healthy and never had problem with >>>>muscle aches/brain fog or anything.<<< > >Don't beat yourself up over following her advice...we have both done RAI, >and we can't undo it no matter what...so now we search to feel as good as we >can. I can't comment on the kelp because I don't know anything about it. >I, personally don't take anything high in iodine. If I do have too much of >it, I get that old hyper buzz for a day or two and I don't like it much. > >>>>Here's the site: http://www.heart7.net/mcf/rad_8.htm >Please tell me your opinion about it.<<< > >I went here and read this, it is interesting, but the one thing that bothers >me a LOT is that this person didn't name the doctors, it was 'this doctor' >*another doctor*, a doctor in Mexico, ... when I see this stuff it doesn't >make sense...if these *doctors* believed this, why have they chosen not to >support it with their names? I am a big proponent of being responsible for >what I say or do and always add my name to things...I have found over the >years that people who don't, are really not who they appear to be, not >really sure or don't really believe what is being said, or what they have >said has been taken out of context...so tread cautiously. > >I hope I haven't said anything to make you more upset, Chie. I really do >understand where you are at right now and I do care, but bottom line is you >have priorities to set so that you can have the care you need to feel >better...and only you can do this...I, along with everyone else in this >group can be here to listen as you go through this time so don't give up on >us, and especially don't give up on yourself. >*HUGZ* for you, >Jody > > > > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi Chie I am new to GD and can't really comment on anything as I am just a beginner. But your story is one I wish I had an answer for. Would just like to say I am thinking of you and wish you all the best in your search for peace and well being. Take care Sue At 01:37 PM 22/02/2002 -0600, you wrote: > Chie - > > I don't think an answer can be any better than what Jody has > jussaid. > About the only thing I could think to add what the observation >that for a > " " call to > re-evaluate our lives and eliminate some of the >stresses in them. A call to > take time and figure out exactly what you're >doing and what you should be > doing. The most important thing is to get >yourself better first, pretty much > everything else can wait until that is >taken care of. Good luck and whatever > you decide to do, make sure it is >right for _you_. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi Chie I am new to GD and can't really comment on anything as I am just a beginner. But your story is one I wish I had an answer for. Would just like to say I am thinking of you and wish you all the best in your search for peace and well being. Take care Sue At 01:37 PM 22/02/2002 -0600, you wrote: > Chie - > > I don't think an answer can be any better than what Jody has > jussaid. > About the only thing I could think to add what the observation >that for a > " " call to > re-evaluate our lives and eliminate some of the >stresses in them. A call to > take time and figure out exactly what you're >doing and what you should be > doing. The most important thing is to get >yourself better first, pretty much > everything else can wait until that is >taken care of. Good luck and whatever > you decide to do, make sure it is >right for _you_. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi Chie I am new to GD and can't really comment on anything as I am just a beginner. But your story is one I wish I had an answer for. Would just like to say I am thinking of you and wish you all the best in your search for peace and well being. Take care Sue At 01:37 PM 22/02/2002 -0600, you wrote: > Chie - > > I don't think an answer can be any better than what Jody has > jussaid. > About the only thing I could think to add what the observation >that for a > " " call to > re-evaluate our lives and eliminate some of the >stresses in them. A call to > take time and figure out exactly what you're >doing and what you should be > doing. The most important thing is to get >yourself better first, pretty much > everything else can wait until that is >taken care of. Good luck and whatever > you decide to do, make sure it is >right for _you_. > > Quote Link to comment Share on other sites More sharing options...
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