Re: Twitching, twinges, weird eye sensations...etc.

[Guest guest]

OH MY GOD I am so glad someone has brought up this

twinge thing.

I was just diagnosed with pap car, on 8/13/02. my

tumor is only 1cm (there is another small one, 3mm on

the same lobe). It had taken me 8 MONTHS to be

diagnosed. In January, I started having all sorts of

really weird and funny symptoms. I was healthy and

living a full life before then (full time career,

night school for mba, mom to 2 toddlers). One day I

just got very " dizzy " for the lack of a better word.

I also started having these twinges and twitches when

I sleep. I noticed that these twinges and twitches

were especially bad when I am " light sleeping " , i.e.

when I am just coming out of a sleep. My muscles also

started getting weak when I would reach up for a mug

in the cabinet. I would also have numbing sensations

behind my eyes. Just a bunch of weird things I have

never experienced before. When my palms started

feelign clammy, that was really when i got freaked

out.

Long story short, my GP kept telling me it was nothing

and that it was stress and in my head. By April, I

was slightly better with the " dizzies " but was left

with this constant state of fuzzy headed feeling, like

I'm not quite awake. I also started noticing a lump

in the throat feeling when i swallow, around April.

Went back to the GP and complained and BEGGED to have

more thorough tests done. By this time, my mom, aunt,

uncle, whom all have thyroid function problems told me

that my symptoms sound very much thyroid related. Not

knowing where to start (didn't know what an endo was

at that tim), I went to another GP. This GP agreed

that my thyroid function seems to be off so he

referred me to the endo. By the time I saw the endo,

it was already July. He agreed that my symptoms

sounds thyroid related but thought I was heading

towards Hashimto's. BUT, all the function tests came

back normal with my Calcium slightly raised. He then

ran the TG and it was very elevated. This made the

endo nervous because he did not believe that my 2

little nodules could raise my Tg so much (135). So off

to the Ultrasound FNA. The rest is history.

My point is this. Every doctor and everything I read

about thyca tells me that I am not suppose to have

these symptoms. But I know it as clear as day that I

have a lot of thyroid related symptoms. As of today,

ALL of my blood tests are NORMAL, including my

calcium, EXCEPT for the Tg. However, I continue to be

debilitated by my fuzzy, foggy mind and my " twingies "

(that's what my husband calls them). The twinges are

the MOST creepy thing I've ever felt and they are hard

to describe. It's gotten to the point where I just

don't nap anymore because I hate that feeling.

Sorry for the long story but I am just convinced that

just because the blood tests don't show anything, it

doesn't mean we are not suffering. We have CANCER in

THE central hormone regulaing organ of our body. Just

think of this ramification. I think ANY symptom is

possible with this disease and they don't have to make

sense.

I gave up trying to correlate my symptoms to my lab

results because I don't feel validated and it scares

me even more then I already am. For the past 8

months, I have not gotten any validation from my

doctors (until I got to the endo). I think I mentioned

this before but even now, they all tell me that " this

little nodule should not be causing any syptoms " .

Well, you know what? Should not, would not, I 've

heard them all. The one dam fact that remains is I am

going to have surgery on the 5th because I have

nothing else going on in my body other then this

CANCER!!! hows that for lab values?????

Als, lab values are usually a reference range. That

said, I also remind myself everyday that everyone is

dfferent. For example, I am only 5 feet and 95 lbs.

Maybe the dam values for everyone else needs be

tweeked just a bit for me. Maybe my little nodule

that's suppose to be " too small " is just sitting on

the wrong spot.

I'm so sorry that my anguish is coming through on this

email to you. I just am so scared when i think about

how I let this dam thing fester in me for 8 months

before it was caught and this scares me. I don't give

a flying flip about them telling me that this is " slow

growth or the " good cancer " . Fact remains that it's

cancer and if it's not taken care of, it would

eventually kill me. Heck, it's already killed off a

pretty good portion of my life for the past 8 months.

Thanks to all for listening. Surgery is coming up

soon and I am really starting to flip out. SEE, I had

to finally fess up about the way I'm feeling....just

like you all who are on this emotional roller coaster

called thyca!

pap ca. dx 8/13/00

tt 9/5/02

hypo symptoms since 1//02 (Yep!)

--- papsydoo2000 wrote:

> Hi. I had TT completed on 7/25. I am awaiting my

> scan, which is

> scheduled for 9/11.(I hope that can only mean good

> things for all of

> us). In any event, I am on LID and no medication,

> except Caltrate

> 600. (One a day). My calcium levels have been

> monitored weekly and my

> calcium level is fine.(8.8) My question is this:

> When I am lying in

> bed, I feel twitching in different parts of my body.

> It is minor but

> it worries me. It feeds into my fear about the

> cancer

> being " everywhere. " Has anyone experienced this

> twitching even with

> normal calcium levels?

> Thank you,

> n

>

> tt:7/25

> dx: pap (0.4cm)

>

>

__________________________________________________

[Guest guest]

OH MY GOD I am so glad someone has brought up this

twinge thing.

I was just diagnosed with pap car, on 8/13/02. my

tumor is only 1cm (there is another small one, 3mm on

the same lobe). It had taken me 8 MONTHS to be

diagnosed. In January, I started having all sorts of

really weird and funny symptoms. I was healthy and

living a full life before then (full time career,

night school for mba, mom to 2 toddlers). One day I

just got very " dizzy " for the lack of a better word.

I also started having these twinges and twitches when

I sleep. I noticed that these twinges and twitches

were especially bad when I am " light sleeping " , i.e.

when I am just coming out of a sleep. My muscles also

started getting weak when I would reach up for a mug

in the cabinet. I would also have numbing sensations

behind my eyes. Just a bunch of weird things I have

never experienced before. When my palms started

feelign clammy, that was really when i got freaked

out.

Long story short, my GP kept telling me it was nothing

and that it was stress and in my head. By April, I

was slightly better with the " dizzies " but was left

with this constant state of fuzzy headed feeling, like

I'm not quite awake. I also started noticing a lump

in the throat feeling when i swallow, around April.

Went back to the GP and complained and BEGGED to have

more thorough tests done. By this time, my mom, aunt,

uncle, whom all have thyroid function problems told me

that my symptoms sound very much thyroid related. Not

knowing where to start (didn't know what an endo was

at that tim), I went to another GP. This GP agreed

that my thyroid function seems to be off so he

referred me to the endo. By the time I saw the endo,

it was already July. He agreed that my symptoms

sounds thyroid related but thought I was heading

towards Hashimto's. BUT, all the function tests came

back normal with my Calcium slightly raised. He then

ran the TG and it was very elevated. This made the

endo nervous because he did not believe that my 2

little nodules could raise my Tg so much (135). So off

to the Ultrasound FNA. The rest is history.

My point is this. Every doctor and everything I read

about thyca tells me that I am not suppose to have

these symptoms. But I know it as clear as day that I

have a lot of thyroid related symptoms. As of today,

ALL of my blood tests are NORMAL, including my

calcium, EXCEPT for the Tg. However, I continue to be

debilitated by my fuzzy, foggy mind and my " twingies "

(that's what my husband calls them). The twinges are

the MOST creepy thing I've ever felt and they are hard

to describe. It's gotten to the point where I just

don't nap anymore because I hate that feeling.

Sorry for the long story but I am just convinced that

just because the blood tests don't show anything, it

doesn't mean we are not suffering. We have CANCER in

THE central hormone regulaing organ of our body. Just

think of this ramification. I think ANY symptom is

possible with this disease and they don't have to make

sense.

I gave up trying to correlate my symptoms to my lab

results because I don't feel validated and it scares

me even more then I already am. For the past 8

months, I have not gotten any validation from my

doctors (until I got to the endo). I think I mentioned

this before but even now, they all tell me that " this

little nodule should not be causing any syptoms " .

Well, you know what? Should not, would not, I 've

heard them all. The one dam fact that remains is I am

going to have surgery on the 5th because I have

nothing else going on in my body other then this

CANCER!!! hows that for lab values?????

Als, lab values are usually a reference range. That

said, I also remind myself everyday that everyone is

dfferent. For example, I am only 5 feet and 95 lbs.

Maybe the dam values for everyone else needs be

tweeked just a bit for me. Maybe my little nodule

that's suppose to be " too small " is just sitting on

the wrong spot.

I'm so sorry that my anguish is coming through on this

email to you. I just am so scared when i think about

how I let this dam thing fester in me for 8 months

before it was caught and this scares me. I don't give

a flying flip about them telling me that this is " slow

growth or the " good cancer " . Fact remains that it's

cancer and if it's not taken care of, it would

eventually kill me. Heck, it's already killed off a

pretty good portion of my life for the past 8 months.

Thanks to all for listening. Surgery is coming up

soon and I am really starting to flip out. SEE, I had

to finally fess up about the way I'm feeling....just

like you all who are on this emotional roller coaster

called thyca!

pap ca. dx 8/13/00

tt 9/5/02

hypo symptoms since 1//02 (Yep!)

--- papsydoo2000 wrote:

> Hi. I had TT completed on 7/25. I am awaiting my

> scan, which is

> scheduled for 9/11.(I hope that can only mean good

> things for all of

> us). In any event, I am on LID and no medication,

> except Caltrate

> 600. (One a day). My calcium levels have been

> monitored weekly and my

> calcium level is fine.(8.8) My question is this:

> When I am lying in

> bed, I feel twitching in different parts of my body.

> It is minor but

> it worries me. It feeds into my fear about the

> cancer

> being " everywhere. " Has anyone experienced this

> twitching even with

> normal calcium levels?

> Thank you,

> n

>

> tt:7/25

> dx: pap (0.4cm)

>

>

__________________________________________________

[Guest guest]

OH MY GOD I am so glad someone has brought up this

twinge thing.

I was just diagnosed with pap car, on 8/13/02. my

tumor is only 1cm (there is another small one, 3mm on

the same lobe). It had taken me 8 MONTHS to be

diagnosed. In January, I started having all sorts of

really weird and funny symptoms. I was healthy and

living a full life before then (full time career,

night school for mba, mom to 2 toddlers). One day I

just got very " dizzy " for the lack of a better word.

I also started having these twinges and twitches when

I sleep. I noticed that these twinges and twitches

were especially bad when I am " light sleeping " , i.e.

when I am just coming out of a sleep. My muscles also

started getting weak when I would reach up for a mug

in the cabinet. I would also have numbing sensations

behind my eyes. Just a bunch of weird things I have

never experienced before. When my palms started

feelign clammy, that was really when i got freaked

out.

Long story short, my GP kept telling me it was nothing

and that it was stress and in my head. By April, I

was slightly better with the " dizzies " but was left

with this constant state of fuzzy headed feeling, like

I'm not quite awake. I also started noticing a lump

in the throat feeling when i swallow, around April.

Went back to the GP and complained and BEGGED to have

more thorough tests done. By this time, my mom, aunt,

uncle, whom all have thyroid function problems told me

that my symptoms sound very much thyroid related. Not

knowing where to start (didn't know what an endo was

at that tim), I went to another GP. This GP agreed

that my thyroid function seems to be off so he

referred me to the endo. By the time I saw the endo,

it was already July. He agreed that my symptoms

sounds thyroid related but thought I was heading

towards Hashimto's. BUT, all the function tests came

back normal with my Calcium slightly raised. He then

ran the TG and it was very elevated. This made the

endo nervous because he did not believe that my 2

little nodules could raise my Tg so much (135). So off

to the Ultrasound FNA. The rest is history.

My point is this. Every doctor and everything I read

about thyca tells me that I am not suppose to have

these symptoms. But I know it as clear as day that I

have a lot of thyroid related symptoms. As of today,

ALL of my blood tests are NORMAL, including my

calcium, EXCEPT for the Tg. However, I continue to be

debilitated by my fuzzy, foggy mind and my " twingies "

(that's what my husband calls them). The twinges are

the MOST creepy thing I've ever felt and they are hard

to describe. It's gotten to the point where I just

don't nap anymore because I hate that feeling.

Sorry for the long story but I am just convinced that

just because the blood tests don't show anything, it

doesn't mean we are not suffering. We have CANCER in

THE central hormone regulaing organ of our body. Just

think of this ramification. I think ANY symptom is

possible with this disease and they don't have to make

sense.

I gave up trying to correlate my symptoms to my lab

results because I don't feel validated and it scares

me even more then I already am. For the past 8

months, I have not gotten any validation from my

doctors (until I got to the endo). I think I mentioned

this before but even now, they all tell me that " this

little nodule should not be causing any syptoms " .

Well, you know what? Should not, would not, I 've

heard them all. The one dam fact that remains is I am

going to have surgery on the 5th because I have

nothing else going on in my body other then this

CANCER!!! hows that for lab values?????

Als, lab values are usually a reference range. That

said, I also remind myself everyday that everyone is

dfferent. For example, I am only 5 feet and 95 lbs.

Maybe the dam values for everyone else needs be

tweeked just a bit for me. Maybe my little nodule

that's suppose to be " too small " is just sitting on

the wrong spot.

I'm so sorry that my anguish is coming through on this

email to you. I just am so scared when i think about

how I let this dam thing fester in me for 8 months

before it was caught and this scares me. I don't give

a flying flip about them telling me that this is " slow

growth or the " good cancer " . Fact remains that it's

cancer and if it's not taken care of, it would

eventually kill me. Heck, it's already killed off a

pretty good portion of my life for the past 8 months.

Thanks to all for listening. Surgery is coming up

soon and I am really starting to flip out. SEE, I had

to finally fess up about the way I'm feeling....just

like you all who are on this emotional roller coaster

called thyca!

pap ca. dx 8/13/00

tt 9/5/02

hypo symptoms since 1//02 (Yep!)

--- papsydoo2000 wrote:

> Hi. I had TT completed on 7/25. I am awaiting my

> scan, which is

> scheduled for 9/11.(I hope that can only mean good

> things for all of

> us). In any event, I am on LID and no medication,

> except Caltrate

> 600. (One a day). My calcium levels have been

> monitored weekly and my

> calcium level is fine.(8.8) My question is this:

> When I am lying in

> bed, I feel twitching in different parts of my body.

> It is minor but

> it worries me. It feeds into my fear about the

> cancer

> being " everywhere. " Has anyone experienced this

> twitching even with

> normal calcium levels?

> Thank you,

> n

>

> tt:7/25

> dx: pap (0.4cm)

>

>

__________________________________________________

[Guest guest]

, your list of symptoms makes me wonder if even before surgery your

parathyroid glands have been affected by the cancer. Just hang in, if you

have made it thru the last eight hellish months, you can make it thru

anything. Just make sure they monitor your calcium after surgery, before

they send you home.

Good Luck,

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH

[Guest guest]

, your list of symptoms makes me wonder if even before surgery your

parathyroid glands have been affected by the cancer. Just hang in, if you

have made it thru the last eight hellish months, you can make it thru

anything. Just make sure they monitor your calcium after surgery, before

they send you home.

Good Luck,

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH

[Guest guest]

, your list of symptoms makes me wonder if even before surgery your

parathyroid glands have been affected by the cancer. Just hang in, if you

have made it thru the last eight hellish months, you can make it thru

anything. Just make sure they monitor your calcium after surgery, before

they send you home.

Good Luck,

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH

[Guest guest]

Oh yes, , I have experienced the twingies. Your written description

moves me.

For years I have told doctors of a muscle spasm that happens occasionally in

my neck, left side - where the cancer is - and not one of my doctors have

given a moment's attention to it.

That sensation is not present since the TT, however it's only been 4 weeks.

Also I had a very painful swallowing experience many times in the past year,

in the same place as the spasm site, and the foods still seem to accumulate

just above the surgical site and cause a very painful swallowing experience.

I never know when that will happen, as it is occasional, but feels like I am

being choked and may actually collapse.

Thank you from the bottom of my heart for the lines:

I am just convinced that

> just because the blood tests don't show anything, it

> doesn't mean we are not suffering. We have CANCER in

> THE central hormone regulaing organ of our body. Just

> think of this ramification. I think ANY symptom is

> possible with this disease and they don't have to make

> sense.

You have beautifully expressed my feelings. Of course you are scared, when

you are the pathfinder and the doctors and lab folk are tagging along.

I frequently feel like muscle cramps are coming with the next breath. This

week I bought Calcitrate and take it 3 - 4 X/day and I feel better in every

way. I have even doubled my present exercise regime, which is small due to

the overwhelming complications from my TT experience. But I do feel

physically stronger.

Yesterday I took my friend and my old Bosnian neighbor who she tends to the

beach, just 2 miles away, in my car. We only strolled down to the water,

took some photographs, and sat on a log to breath the smell of the ocean

(actually Puget Sound).

I'm looking forward to resuming my former walking pattern on a great path

along the shore.

Thank you, thank you, ,

--

Reclaiming myself, insha'allah,

Munira,

CHILDHOOD RADIATION from face to chest

3/15/02 PET SCAN neg for breast cancer mets - showed thyroid

5/31/02 ULTRASOUND - 10mmX9mmX7mm left nodule

6/7/02 ULTRASOUND FNA pap?

8/2/02 TT papillary in left and isthmus & much inflammatory tissue from

radiation

= 5 hr surgery; 1 parathyroid and benign lymph node removed

[Guest guest]

Oh yes, , I have experienced the twingies. Your written description

moves me.

For years I have told doctors of a muscle spasm that happens occasionally in

my neck, left side - where the cancer is - and not one of my doctors have

given a moment's attention to it.

That sensation is not present since the TT, however it's only been 4 weeks.

Also I had a very painful swallowing experience many times in the past year,

in the same place as the spasm site, and the foods still seem to accumulate

just above the surgical site and cause a very painful swallowing experience.

I never know when that will happen, as it is occasional, but feels like I am

being choked and may actually collapse.

Thank you from the bottom of my heart for the lines:

I am just convinced that

> just because the blood tests don't show anything, it

> doesn't mean we are not suffering. We have CANCER in

> THE central hormone regulaing organ of our body. Just

> think of this ramification. I think ANY symptom is

> possible with this disease and they don't have to make

> sense.

You have beautifully expressed my feelings. Of course you are scared, when

you are the pathfinder and the doctors and lab folk are tagging along.

I frequently feel like muscle cramps are coming with the next breath. This

week I bought Calcitrate and take it 3 - 4 X/day and I feel better in every

way. I have even doubled my present exercise regime, which is small due to

the overwhelming complications from my TT experience. But I do feel

physically stronger.

Yesterday I took my friend and my old Bosnian neighbor who she tends to the

beach, just 2 miles away, in my car. We only strolled down to the water,

took some photographs, and sat on a log to breath the smell of the ocean

(actually Puget Sound).

I'm looking forward to resuming my former walking pattern on a great path

along the shore.

Thank you, thank you, ,

--

Reclaiming myself, insha'allah,

Munira,

CHILDHOOD RADIATION from face to chest

3/15/02 PET SCAN neg for breast cancer mets - showed thyroid

5/31/02 ULTRASOUND - 10mmX9mmX7mm left nodule

6/7/02 ULTRASOUND FNA pap?

8/2/02 TT papillary in left and isthmus & much inflammatory tissue from

radiation

= 5 hr surgery; 1 parathyroid and benign lymph node removed

[Guest guest]

Oh yes, , I have experienced the twingies. Your written description

moves me.

For years I have told doctors of a muscle spasm that happens occasionally in

my neck, left side - where the cancer is - and not one of my doctors have

given a moment's attention to it.

That sensation is not present since the TT, however it's only been 4 weeks.

Also I had a very painful swallowing experience many times in the past year,

in the same place as the spasm site, and the foods still seem to accumulate

just above the surgical site and cause a very painful swallowing experience.

I never know when that will happen, as it is occasional, but feels like I am

being choked and may actually collapse.

Thank you from the bottom of my heart for the lines:

I am just convinced that

> just because the blood tests don't show anything, it

> doesn't mean we are not suffering. We have CANCER in

> THE central hormone regulaing organ of our body. Just

> think of this ramification. I think ANY symptom is

> possible with this disease and they don't have to make

> sense.

You have beautifully expressed my feelings. Of course you are scared, when

you are the pathfinder and the doctors and lab folk are tagging along.

I frequently feel like muscle cramps are coming with the next breath. This

week I bought Calcitrate and take it 3 - 4 X/day and I feel better in every

way. I have even doubled my present exercise regime, which is small due to

the overwhelming complications from my TT experience. But I do feel

physically stronger.

Yesterday I took my friend and my old Bosnian neighbor who she tends to the

beach, just 2 miles away, in my car. We only strolled down to the water,

took some photographs, and sat on a log to breath the smell of the ocean

(actually Puget Sound).

I'm looking forward to resuming my former walking pattern on a great path

along the shore.

Thank you, thank you, ,

--

Reclaiming myself, insha'allah,

Munira,

CHILDHOOD RADIATION from face to chest

3/15/02 PET SCAN neg for breast cancer mets - showed thyroid

5/31/02 ULTRASOUND - 10mmX9mmX7mm left nodule

6/7/02 ULTRASOUND FNA pap?

8/2/02 TT papillary in left and isthmus & much inflammatory tissue from

radiation

= 5 hr surgery; 1 parathyroid and benign lymph node removed

[Guest guest]

One of the things with cancer, any cancer, is that the tumor takes over the

blood supply meant to go elsewhere. Many times the reason for loss of para

function from TT is an interruption of the blood supply to the glands. Like

mine, still in there, just not working. The surgeon said I had a goiterous

mass, and to do a path they had to do 25 decalcifications at $78 each.

(None of it allowed by Blue Cross)

I am sure it was hard to get out, particularly with calcified scar tissue

everywhere, so who knows what kind of disruption was created.

Anyway, the point is - finally - that if your cancer is interfering with the

blood supply to the paras, you could have less, maybe far less, than full

function.

One of the new drugs created to combat cancer attacks the tumor's ability to

usurp the blood cells and incorporate them into the tumor.

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH

[Guest guest]

One of the things with cancer, any cancer, is that the tumor takes over the

blood supply meant to go elsewhere. Many times the reason for loss of para

function from TT is an interruption of the blood supply to the glands. Like

mine, still in there, just not working. The surgeon said I had a goiterous

mass, and to do a path they had to do 25 decalcifications at $78 each.

(None of it allowed by Blue Cross)

I am sure it was hard to get out, particularly with calcified scar tissue

everywhere, so who knows what kind of disruption was created.

Anyway, the point is - finally - that if your cancer is interfering with the

blood supply to the paras, you could have less, maybe far less, than full

function.

One of the new drugs created to combat cancer attacks the tumor's ability to

usurp the blood cells and incorporate them into the tumor.

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH

[Guest guest]

One of the things with cancer, any cancer, is that the tumor takes over the

blood supply meant to go elsewhere. Many times the reason for loss of para

function from TT is an interruption of the blood supply to the glands. Like

mine, still in there, just not working. The surgeon said I had a goiterous

mass, and to do a path they had to do 25 decalcifications at $78 each.

(None of it allowed by Blue Cross)

I am sure it was hard to get out, particularly with calcified scar tissue

everywhere, so who knows what kind of disruption was created.

Anyway, the point is - finally - that if your cancer is interfering with the

blood supply to the paras, you could have less, maybe far less, than full

function.

One of the new drugs created to combat cancer attacks the tumor's ability to

usurp the blood cells and incorporate them into the tumor.

Helen, TT 2/02

RAI 4/02

Scan 5/02

hPTH