Re: RAI or ATD withdrawal?

[Guest guest]

OMG !

Why are they even doing this on babies and children?!?!?! I recently read

about a 2 year old baby being set up for RAI This is just plain

criminal...

and how stupid are they to blame this on the withdrawal of ATD's when if

they had waited until they got him euthroid before doing the RAI (if that

was a must) then thyroid storm probably would not have happened!

Even my first endo (who was a twit) said my numbers had to fall at least

into the normal range before doing the RAI to prevent further thyroid storm.

This makes me want to throw up. We have to find some way to STOP THIS!@!!

Is there anyway you can send me the full article privately? I can't get

into read the whole thing. Did the little guy survive?

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

OMG !

Why are they even doing this on babies and children?!?!?! I recently read

about a 2 year old baby being set up for RAI This is just plain

criminal...

and how stupid are they to blame this on the withdrawal of ATD's when if

they had waited until they got him euthroid before doing the RAI (if that

was a must) then thyroid storm probably would not have happened!

Even my first endo (who was a twit) said my numbers had to fall at least

into the normal range before doing the RAI to prevent further thyroid storm.

This makes me want to throw up. We have to find some way to STOP THIS!@!!

Is there anyway you can send me the full article privately? I can't get

into read the whole thing. Did the little guy survive?

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Jody-

Shame on me! I don't have the entire article and I was really upset when I

saw the abstract. Normally, I reserve judgement until I see the entire

article. Abstracts only give you a general overview.

Quite an emotional day for me. But still I don't see how they could

possibly attribute the thyroid storm to withdrawal of ATDs (although

technically the child would have been much less likely to go into storm

while on them) rather than RAI since it happened after RAI. And RAI is

known to cause an increase in thyroid stimulating antibodies which is what

causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in thyroid

hormone production. Now, if the child would have gone into storm after the

withdrawal of ATDs and before RAI, it would have been a different matter.

But that's not what happened.

As it is, I don't see how they could possibly tell which caused it.

Take care,

> OMG !

> Why are they even doing this on babies and children?!?!?! I recently read

> about a 2 year old baby being set up for RAI This is just plain

> criminal...

>

> and how stupid are they to blame this on the withdrawal of ATD's when if

> they had waited until they got him euthroid before doing the RAI (if that

> was a must) then thyroid storm probably would not have happened!

>

> Even my first endo (who was a twit) said my numbers had to fall at least

> into the normal range before doing the RAI to prevent further thyroid

storm.

> This makes me want to throw up. We have to find some way to STOP

THIS!@!!

>

> Is there anyway you can send me the full article privately? I can't get

> into read the whole thing. Did the little guy survive?

> Jody

[Guest guest]

I forgot the most important part! RAI is known to cause thyroid hormone

dumping as thyroid cells die. The sudden change in status can definitely

bring on thyroid storm.

Take care,

> Hi Jody-

>

> Shame on me! I don't have the entire article and I was really upset when

I

> saw the abstract. Normally, I reserve judgement until I see the entire

> article. Abstracts only give you a general overview.

>

> Quite an emotional day for me. But still I don't see how they could

> possibly attribute the thyroid storm to withdrawal of ATDs (although

> technically the child would have been much less likely to go into storm

> while on them) rather than RAI since it happened after RAI. And RAI is

> known to cause an increase in thyroid stimulating antibodies which is what

> causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in thyroid

> hormone production. Now, if the child would have gone into storm after

the

> withdrawal of ATDs and before RAI, it would have been a different matter.

> But that's not what happened.

>

> As it is, I don't see how they could possibly tell which caused it.

>

> Take care,

>

>

[Guest guest]

,

Should we add this to the top 20 and make it 21?

Terry

>

> Reply-To: graves_support

> Date: Fri, 22 Feb 2002 07:43:49 -0800

> To: <graves_support >

> Subject: Re: RAI or ATD withdrawal?

>

> I forgot the most important part! RAI is known to cause thyroid hormone

> dumping as thyroid cells die. The sudden change in status can definitely

> bring on thyroid storm.

>

> Take care,

>

>

>

>> Hi Jody-

>>

>> Shame on me! I don't have the entire article and I was really upset when

> I

>> saw the abstract. Normally, I reserve judgement until I see the entire

>> article. Abstracts only give you a general overview.

>>

>> Quite an emotional day for me. But still I don't see how they could

>> possibly attribute the thyroid storm to withdrawal of ATDs (although

>> technically the child would have been much less likely to go into storm

>> while on them) rather than RAI since it happened after RAI. And RAI is

>> known to cause an increase in thyroid stimulating antibodies which is what

>> causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in thyroid

>> hormone production. Now, if the child would have gone into storm after

> the

>> withdrawal of ATDs and before RAI, it would have been a different matter.

>> But that's not what happened.

>>

>> As it is, I don't see how they could possibly tell which caused it.

>>

>> Take care,

>>

>>

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

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>

[Guest guest]

,

Sorry to hear this time did not work. I was sure keeping you in my thoughts.

It is great

to hear the optimistic tone in your voice. Somehow this seems like an important

factor in

the whole thing. Keep up the great work. :-)

And the abstract......unbelievable how this will be recorded in their

statistics !

Another example of why we have trouble finding facts to back up what we know.

-Pam-

[Guest guest]

Hi ,

>>>I forgot the most important part! RAI is known to cause thyroid hormone

>>>dumping as thyroid cells die. The sudden change in status can definitely

>>>bring on thyroid storm.<<<

We know this, some doctors may remember this, but the stories I have been

hearing a lot lately, especially with newly diagnosed graves people are

scary...they are not being given ATD's, only beta blockers and being rushed

into RAI...this puts them at such a huge risk for thyroid storm...and I am

not joking when I say I have heard it a LOT lately. Probably 10 times in

the last 2/3 weeks from different people. It makes me sick

Is there any way of getting this full article? I really want to know if

that little guy survived it or if they murdered him with their actions.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi ,

>>>I forgot the most important part! RAI is known to cause thyroid hormone

>>>dumping as thyroid cells die. The sudden change in status can definitely

>>>bring on thyroid storm.<<<

We know this, some doctors may remember this, but the stories I have been

hearing a lot lately, especially with newly diagnosed graves people are

scary...they are not being given ATD's, only beta blockers and being rushed

into RAI...this puts them at such a huge risk for thyroid storm...and I am

not joking when I say I have heard it a LOT lately. Probably 10 times in

the last 2/3 weeks from different people. It makes me sick

Is there any way of getting this full article? I really want to know if

that little guy survived it or if they murdered him with their actions.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Sue,

I thought the same thing. My doc (not endo) said, give it a few weeks to a

couple of months and you will be feeling fine... Well, after giving me to an

endo, because my levels were way high, I have been hyper, hypo and now hyper

again. I am just looking for a break.. sigh... but this groups is so

wonderful and supportive. I just like to read all the posts and know for a

fact that I -We are not alone in all of this crazy mess. I hope you find that

you will be feeling better soon. Take care

TTYL

[Guest guest]

Hi Jody

I have been reading all the posts and most are over my head. I just wanted

to ask about HYPO. Is this state only brought on after RAI? If my Neo

Mercazole works, should I stablise and be back to normal? I am starting to

worry here.

Sue

[Guest guest]

Hi Jody

I have been reading all the posts and most are over my head. I just wanted

to ask about HYPO. Is this state only brought on after RAI? If my Neo

Mercazole works, should I stablise and be back to normal? I am starting to

worry here.

Sue

[Guest guest]

Hi Jody

I have been reading all the posts and most are over my head. I just wanted

to ask about HYPO. Is this state only brought on after RAI? If my Neo

Mercazole works, should I stablise and be back to normal? I am starting to

worry here.

Sue

[Guest guest]

Hey ,

As one of those people that Jody is referring to I would really like that

article as well. I would also like to see some group that is trying to set

minimum standards of care. This shouldn't be allowed to happen to anyone else.

Who knows better than we do, who have gone into thyroid storms unprepared and

ignorant.

Laurel

Re: RAI or ATD withdrawal?

Hi ,

>>>I forgot the most important part! RAI is known to cause thyroid hormone

>>>dumping as thyroid cells die. The sudden change in status can definitely

>>>bring on thyroid storm.<<<

We know this, some doctors may remember this, but the stories I have been

hearing a lot lately, especially with newly diagnosed graves people are

scary...they are not being given ATD's, only beta blockers and being rushed

into RAI...this puts them at such a huge risk for thyroid storm...and I am

not joking when I say I have heard it a LOT lately. Probably 10 times in

the last 2/3 weeks from different people. It makes me sick

Is there any way of getting this full article? I really want to know if

that little guy survived it or if they murdered him with their actions.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Hey ,

As one of those people that Jody is referring to I would really like that

article as well. I would also like to see some group that is trying to set

minimum standards of care. This shouldn't be allowed to happen to anyone else.

Who knows better than we do, who have gone into thyroid storms unprepared and

ignorant.

Laurel

Re: RAI or ATD withdrawal?

Hi ,

>>>I forgot the most important part! RAI is known to cause thyroid hormone

>>>dumping as thyroid cells die. The sudden change in status can definitely

>>>bring on thyroid storm.<<<

We know this, some doctors may remember this, but the stories I have been

hearing a lot lately, especially with newly diagnosed graves people are

scary...they are not being given ATD's, only beta blockers and being rushed

into RAI...this puts them at such a huge risk for thyroid storm...and I am

not joking when I say I have heard it a LOT lately. Probably 10 times in

the last 2/3 weeks from different people. It makes me sick

Is there any way of getting this full article? I really want to know if

that little guy survived it or if they murdered him with their actions.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Hey ,

As one of those people that Jody is referring to I would really like that

article as well. I would also like to see some group that is trying to set

minimum standards of care. This shouldn't be allowed to happen to anyone else.

Who knows better than we do, who have gone into thyroid storms unprepared and

ignorant.

Laurel

Re: RAI or ATD withdrawal?

Hi ,

>>>I forgot the most important part! RAI is known to cause thyroid hormone

>>>dumping as thyroid cells die. The sudden change in status can definitely

>>>bring on thyroid storm.<<<

We know this, some doctors may remember this, but the stories I have been

hearing a lot lately, especially with newly diagnosed graves people are

scary...they are not being given ATD's, only beta blockers and being rushed

into RAI...this puts them at such a huge risk for thyroid storm...and I am

not joking when I say I have heard it a LOT lately. Probably 10 times in

the last 2/3 weeks from different people. It makes me sick

Is there any way of getting this full article? I really want to know if

that little guy survived it or if they murdered him with their actions.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Hi Sue,

No, RAI isn't the only thing that can bring on hypo. GD burning itself out

can bring it on, being on ATD's and not having the proper monitoring will

bring it on and surgery, without the proper monitoring and thyroid

replacement hormone will bring it on. That is why it is essential to keep a

copy of the extended symptoms list in sight somewhere at home and when you

begin to feel yucky, check it out, if you have any of the symptoms on the

list, call your doctor and request labs immediately, tell him/her you are

feeling hypo, then it will be time to cut back your ATD's...for those of us

with ablated thyroids, which continue to die for years afterwards, it will

be time for an increase in our thyroid hormones.

Stress for me, will make me feel hypo, so will lack of sleep or doing the

junk food diet for a day. Our own thyroids know how much hormone we need

and can generate that for us, but when we are on ATD's or hormone

replacement, then we have to rely on meds.

I hope this helps some. As for the stuff you are reading being over your

head for now...don't worry about that, I remember my first time here and

reading all of the posts in the archives (which were around 2,000 then, not

so many as now) and thinking, " My God, I will never learn this, I am out of

my league with these very intelligent women, and they will all think I am

stupid if I ask questions and still don't understand the answer " ...and that

is the honest truth...but when I went back to college, I took a course

called Master Student, good course to prepare when one has been out of

school for a long time, but one of the lessons in there was 'be willing to

be the fool' , in other words, throw out those questions, nothing is dumb or

stupid, only if it goes left unanswered.

I have brought up some way out there topics and questions in my time, and

will some more in the future...you'll see ;-) When you don't understand

something, throw it out to the group, everyone in this group is caring,

supportive and wonderful and no one will think anything about someone not

understanding and needing the 'laymans' term of explanation (that always

works better for me too!) And by your asking it, you will probably be

getting the same questioned answered for many other people, those that don't

post yet, or those that are new, so it does help all of us.

One other thing, when you ask a question, if it doesn't get answered right

away, chances are that no one knows the answer, it does not mean it is being

ignored. So if you don't get an answer the first time, flag that post and

ask it again

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi Jody

I thought this was going to be easy. <sigh> I thought that I would take

ATD and in 4 to 6 weeks I would feel like my old self again. Does that

actually happen or is that just a dream?

I don't think I realise the size of this thing.

I thank you all for your time and especially for the help. I'm glad you

said I could ask questions because I am very guilty of asking too many

questions. Just like a little child, keep asking until its right in MY

head. <grin>

Sue

At 04:35 PM 22/02/2002 -0500, you wrote:

> Hi Sue,

> GD burning itself out

> can bring it on, being on ATD's and

>not ving the proper monitoring will

> bring it on and surgery, without the

>proper monitoring and thyroid

> That is why it is essential to keep a

>

>copy of the extended symptoms list in sight somewhere at home and when you

>

> begin to feel yucky, check it out, if you have any of the symptoms on

>the

> list, call your doctor and request labs immediately, tell him/her

>you are

> feeling hypo, then it will be time to cut back your ATD's...for

>those of us

> with ablated thyroids, which continue to die for years

>afterwards, it will

> be time for an increase in our thyroid hormones.

>

> Stress for me, will make me feel hypo, so will lack of sleep or doing the

> Our own thyroids know how much hormone we need

> and can generate that for us, but when we are on ATD's or hormone

> replacement, then we have to rely on meds.

>

> As for the stuff you are reading being over your

> head for now...don't worry about that, I remember my first time here and

> reading all of the posts in the archives (which were around 2,000 then, not

> " My God, I will never learn this, I am out of

> my league with these very intelligent women, and they will all think I am

> " ...and that

> is the honest truth...but when I went back to college, I took a course

> called Master Student, good course to prepare when one has been out of

> school for a long time, but one of the lessons in there was 'be willing to

> be the fool' , in other words, throw out those questions, nothing is dumb

or

> stupid, only if it goes left unanswered.

>

> I have brought up some way out there topics and questions in my time, and

> When you don't understand

> something, throw it out to the group, everyone in this group is caring,

> supportive and wonderful and no one will think anything about someone not

> understanding and needing the 'laymans' term of explanation (that always

> works better for me too!) And by your asking it, you will probably be

> getting the same questioned answered for many other people, those that

don't

> post yet, or those that are new, so it does help all of us.

>

> One other thing, when you ask a question, if it doesn't get answered right

> away, chances are that no one knows the answer, it does not mean it is

being

> ignored. So if you don't get an answer the first time, flag that post and

> ask it again

> Jody

[Guest guest]

Hi Jody

I thought this was going to be easy. <sigh> I thought that I would take

ATD and in 4 to 6 weeks I would feel like my old self again. Does that

actually happen or is that just a dream?

I don't think I realise the size of this thing.

I thank you all for your time and especially for the help. I'm glad you

said I could ask questions because I am very guilty of asking too many

questions. Just like a little child, keep asking until its right in MY

head. <grin>

Sue

At 04:35 PM 22/02/2002 -0500, you wrote:

> Hi Sue,

> GD burning itself out

> can bring it on, being on ATD's and

>not ving the proper monitoring will

> bring it on and surgery, without the

>proper monitoring and thyroid

> That is why it is essential to keep a

>

>copy of the extended symptoms list in sight somewhere at home and when you

>

> begin to feel yucky, check it out, if you have any of the symptoms on

>the

> list, call your doctor and request labs immediately, tell him/her

>you are

> feeling hypo, then it will be time to cut back your ATD's...for

>those of us

> with ablated thyroids, which continue to die for years

>afterwards, it will

> be time for an increase in our thyroid hormones.

>

> Stress for me, will make me feel hypo, so will lack of sleep or doing the

> Our own thyroids know how much hormone we need

> and can generate that for us, but when we are on ATD's or hormone

> replacement, then we have to rely on meds.

>

> As for the stuff you are reading being over your

> head for now...don't worry about that, I remember my first time here and

> reading all of the posts in the archives (which were around 2,000 then, not

> " My God, I will never learn this, I am out of

> my league with these very intelligent women, and they will all think I am

> " ...and that

> is the honest truth...but when I went back to college, I took a course

> called Master Student, good course to prepare when one has been out of

> school for a long time, but one of the lessons in there was 'be willing to

> be the fool' , in other words, throw out those questions, nothing is dumb

or

> stupid, only if it goes left unanswered.

>

> I have brought up some way out there topics and questions in my time, and

> When you don't understand

> something, throw it out to the group, everyone in this group is caring,

> supportive and wonderful and no one will think anything about someone not

> understanding and needing the 'laymans' term of explanation (that always

> works better for me too!) And by your asking it, you will probably be

> getting the same questioned answered for many other people, those that

don't

> post yet, or those that are new, so it does help all of us.

>

> One other thing, when you ask a question, if it doesn't get answered right

> away, chances are that no one knows the answer, it does not mean it is

being

> ignored. So if you don't get an answer the first time, flag that post and

> ask it again

> Jody

[Guest guest]

Hi Jody

I thought this was going to be easy. <sigh> I thought that I would take

ATD and in 4 to 6 weeks I would feel like my old self again. Does that

actually happen or is that just a dream?

I don't think I realise the size of this thing.

I thank you all for your time and especially for the help. I'm glad you

said I could ask questions because I am very guilty of asking too many

questions. Just like a little child, keep asking until its right in MY

head. <grin>

Sue

At 04:35 PM 22/02/2002 -0500, you wrote:

> Hi Sue,

> GD burning itself out

> can bring it on, being on ATD's and

>not ving the proper monitoring will

> bring it on and surgery, without the

>proper monitoring and thyroid

> That is why it is essential to keep a

>

>copy of the extended symptoms list in sight somewhere at home and when you

>

> begin to feel yucky, check it out, if you have any of the symptoms on

>the

> list, call your doctor and request labs immediately, tell him/her

>you are

> feeling hypo, then it will be time to cut back your ATD's...for

>those of us

> with ablated thyroids, which continue to die for years

>afterwards, it will

> be time for an increase in our thyroid hormones.

>

> Stress for me, will make me feel hypo, so will lack of sleep or doing the

> Our own thyroids know how much hormone we need

> and can generate that for us, but when we are on ATD's or hormone

> replacement, then we have to rely on meds.

>

> As for the stuff you are reading being over your

> head for now...don't worry about that, I remember my first time here and

> reading all of the posts in the archives (which were around 2,000 then, not

> " My God, I will never learn this, I am out of

> my league with these very intelligent women, and they will all think I am

> " ...and that

> is the honest truth...but when I went back to college, I took a course

> called Master Student, good course to prepare when one has been out of

> school for a long time, but one of the lessons in there was 'be willing to

> be the fool' , in other words, throw out those questions, nothing is dumb

or

> stupid, only if it goes left unanswered.

>

> I have brought up some way out there topics and questions in my time, and

> When you don't understand

> something, throw it out to the group, everyone in this group is caring,

> supportive and wonderful and no one will think anything about someone not

> understanding and needing the 'laymans' term of explanation (that always

> works better for me too!) And by your asking it, you will probably be

> getting the same questioned answered for many other people, those that

don't

> post yet, or those that are new, so it does help all of us.

>

> One other thing, when you ask a question, if it doesn't get answered right

> away, chances are that no one knows the answer, it does not mean it is

being

> ignored. So if you don't get an answer the first time, flag that post and

> ask it again

> Jody

[Guest guest]

Hi Sue,

>>>I thought this was going to be easy. <sigh> I thought that I would take

>>>ATD and in 4 to 6 weeks I would feel like my old self again. Does that

>>>actually happen or is that just a dream?<<<

Don't be discouraged that this is going to take time Sue. You will begin

feeling better, and your mind will be working better in a bit. But nothing

is quick about Graves...the more you learn, the more prepared you are, the

quicker you will be to jump on top of things when they show up to prevent

things from getting out of control.

Graves is for life, even when in remission, their are chances that it can

come back...I think when you obtain remission and wean off of the atd's

slowly, the greater the chance of it lasting. Keeping up on your labs, and

knowing signs of it's return early (should that happen) things will not get

so out of hand. Lifestyle changes are a must for us, reducing stress,

better diets, knowing our disease all count. Being proactive and learning

is the greatest gift you can give yourself as you travel this journey.

>>>I don't think I realise the size of this thing.<<<

It is much bigger in size when we are first diagnosed, but as we learn and

as we feel better, that overwhelming feeling will go away. That doesn't mean

that frustration won't set in from time to time, but you will never feel as

afraid or lost as you do right now.

>>>I thank you all for your time and especially for the help. I'm glad you

>>>said I could ask questions because I am very guilty of asking too many

>>>questions. Just like a little child, keep asking until its right in MY

>>>head.<<<

Your welcome I have been at this for 2 years now, and I still learn,

sometimes I learn more from the newly diagnosed as they share their stories,

treatments and frustrations. It was 2 years ago this month that I found

this group and what they have given me is beyond discription. Now I try to

give back, even a little bit to help others on this journey so it is not

quite so bad.

You keep asking questions

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Sue,

>>>I thought this was going to be easy. <sigh> I thought that I would take

>>>ATD and in 4 to 6 weeks I would feel like my old self again. Does that

>>>actually happen or is that just a dream?<<<

Don't be discouraged that this is going to take time Sue. You will begin

feeling better, and your mind will be working better in a bit. But nothing

is quick about Graves...the more you learn, the more prepared you are, the

quicker you will be to jump on top of things when they show up to prevent

things from getting out of control.

Graves is for life, even when in remission, their are chances that it can

come back...I think when you obtain remission and wean off of the atd's

slowly, the greater the chance of it lasting. Keeping up on your labs, and

knowing signs of it's return early (should that happen) things will not get

so out of hand. Lifestyle changes are a must for us, reducing stress,

better diets, knowing our disease all count. Being proactive and learning

is the greatest gift you can give yourself as you travel this journey.

>>>I don't think I realise the size of this thing.<<<

It is much bigger in size when we are first diagnosed, but as we learn and

as we feel better, that overwhelming feeling will go away. That doesn't mean

that frustration won't set in from time to time, but you will never feel as

afraid or lost as you do right now.

>>>I thank you all for your time and especially for the help. I'm glad you

>>>said I could ask questions because I am very guilty of asking too many

>>>questions. Just like a little child, keep asking until its right in MY

>>>head.<<<

Your welcome I have been at this for 2 years now, and I still learn,

sometimes I learn more from the newly diagnosed as they share their stories,

treatments and frustrations. It was 2 years ago this month that I found

this group and what they have given me is beyond discription. Now I try to

give back, even a little bit to help others on this journey so it is not

quite so bad.

You keep asking questions

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi Sue,

>>>I thought this was going to be easy. <sigh> I thought that I would take

>>>ATD and in 4 to 6 weeks I would feel like my old self again. Does that

>>>actually happen or is that just a dream?<<<

Don't be discouraged that this is going to take time Sue. You will begin

feeling better, and your mind will be working better in a bit. But nothing

is quick about Graves...the more you learn, the more prepared you are, the

quicker you will be to jump on top of things when they show up to prevent

things from getting out of control.

Graves is for life, even when in remission, their are chances that it can

come back...I think when you obtain remission and wean off of the atd's

slowly, the greater the chance of it lasting. Keeping up on your labs, and

knowing signs of it's return early (should that happen) things will not get

so out of hand. Lifestyle changes are a must for us, reducing stress,

better diets, knowing our disease all count. Being proactive and learning

is the greatest gift you can give yourself as you travel this journey.

>>>I don't think I realise the size of this thing.<<<

It is much bigger in size when we are first diagnosed, but as we learn and

as we feel better, that overwhelming feeling will go away. That doesn't mean

that frustration won't set in from time to time, but you will never feel as

afraid or lost as you do right now.

>>>I thank you all for your time and especially for the help. I'm glad you

>>>said I could ask questions because I am very guilty of asking too many

>>>questions. Just like a little child, keep asking until its right in MY

>>>head.<<<

Your welcome I have been at this for 2 years now, and I still learn,

sometimes I learn more from the newly diagnosed as they share their stories,

treatments and frustrations. It was 2 years ago this month that I found

this group and what they have given me is beyond discription. Now I try to

give back, even a little bit to help others on this journey so it is not

quite so bad.

You keep asking questions

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hopefully Terry, anyone who prescribes RAI knows that. But go ahead and add

it. At least they will know that we know it too.

It doesn't happen often but, lordy, I was discussing it with my husband (who

also didn't read the article) and he couldn't figure out how they could

possibly separate out the variables either.

Take care,

Re: RAI or ATD withdrawal?

> >

> > I forgot the most important part! RAI is known to cause thyroid hormone

> > dumping as thyroid cells die. The sudden change in status can

definitely

> > bring on thyroid storm.

> >

> > Take care,

> >

> >

> >

> >> Hi Jody-

> >>

> >> Shame on me! I don't have the entire article and I was really upset

when

> > I

> >> saw the abstract. Normally, I reserve judgement until I see the entire

> >> article. Abstracts only give you a general overview.

> >>

> >> Quite an emotional day for me. But still I don't see how they could

> >> possibly attribute the thyroid storm to withdrawal of ATDs (although

> >> technically the child would have been much less likely to go into storm

> >> while on them) rather than RAI since it happened after RAI. And RAI is

> >> known to cause an increase in thyroid stimulating antibodies which is

what

> >> causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in

thyroid

> >> hormone production. Now, if the child would have gone into storm after

> > the

> >> withdrawal of ATDs and before RAI, it would have been a different

matter.

> >> But that's not what happened.

> >>

> >> As it is, I don't see how they could possibly tell which caused it.

> >>

> >> Take care,

> >>

> >>

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list does not have the

endorsement

> > of

> > the listowner. I have no input as to what ads are attached to emails.

>

> --------------------------------------------------------------------------

----

> > --------

> >

> >

[Guest guest]

Hopefully Terry, anyone who prescribes RAI knows that. But go ahead and add

it. At least they will know that we know it too.

It doesn't happen often but, lordy, I was discussing it with my husband (who

also didn't read the article) and he couldn't figure out how they could

possibly separate out the variables either.

Take care,

Re: RAI or ATD withdrawal?

> >

> > I forgot the most important part! RAI is known to cause thyroid hormone

> > dumping as thyroid cells die. The sudden change in status can

definitely

> > bring on thyroid storm.

> >

> > Take care,

> >

> >

> >

> >> Hi Jody-

> >>

> >> Shame on me! I don't have the entire article and I was really upset

when

> > I

> >> saw the abstract. Normally, I reserve judgement until I see the entire

> >> article. Abstracts only give you a general overview.

> >>

> >> Quite an emotional day for me. But still I don't see how they could

> >> possibly attribute the thyroid storm to withdrawal of ATDs (although

> >> technically the child would have been much less likely to go into storm

> >> while on them) rather than RAI since it happened after RAI. And RAI is

> >> known to cause an increase in thyroid stimulating antibodies which is

what

> >> causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in

thyroid

> >> hormone production. Now, if the child would have gone into storm after

> > the

> >> withdrawal of ATDs and before RAI, it would have been a different

matter.

> >> But that's not what happened.

> >>

> >> As it is, I don't see how they could possibly tell which caused it.

> >>

> >> Take care,

> >>

> >>

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list does not have the

endorsement

> > of

> > the listowner. I have no input as to what ads are attached to emails.

>

> --------------------------------------------------------------------------

----

> > --------

> >

> >

[Guest guest]

Hopefully Terry, anyone who prescribes RAI knows that. But go ahead and add

it. At least they will know that we know it too.

It doesn't happen often but, lordy, I was discussing it with my husband (who

also didn't read the article) and he couldn't figure out how they could

possibly separate out the variables either.

Take care,

Re: RAI or ATD withdrawal?

> >

> > I forgot the most important part! RAI is known to cause thyroid hormone

> > dumping as thyroid cells die. The sudden change in status can

definitely

> > bring on thyroid storm.

> >

> > Take care,

> >

> >

> >

> >> Hi Jody-

> >>

> >> Shame on me! I don't have the entire article and I was really upset

when

> > I

> >> saw the abstract. Normally, I reserve judgement until I see the entire

> >> article. Abstracts only give you a general overview.

> >>

> >> Quite an emotional day for me. But still I don't see how they could

> >> possibly attribute the thyroid storm to withdrawal of ATDs (although

> >> technically the child would have been much less likely to go into storm

> >> while on them) rather than RAI since it happened after RAI. And RAI is

> >> known to cause an increase in thyroid stimulating antibodies which is

what

> >> causes Graves' hyperthyroidism, whereas, ATDs cause a decrease in

thyroid

> >> hormone production. Now, if the child would have gone into storm after

> > the

> >> withdrawal of ATDs and before RAI, it would have been a different

matter.

> >> But that's not what happened.

> >>

> >> As it is, I don't see how they could possibly tell which caused it.

> >>

> >> Take care,

> >>

> >>

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> > intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list does not have the

endorsement

> > of

> > the listowner. I have no input as to what ads are attached to emails.

>

> --------------------------------------------------------------------------

----

> > --------

> >

> >