Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 When our daughter was diagnosed with PSC out in Denver, the doctor there noticed she had a red spot on her hand and said that was an indication of scarring on the liver. This morning I noticed she has a new one on the other hand. Does anyone know if this means her PSC is progressing? (mother to Lynna Grace 7 years (PSC 04/06) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 , Please describe the red spot on her hands a bit more. The back of my hands has looked bruised since my transplant, 4 years ago. It started when I needed to get blood draws from my hands because the veins in my arms are too scared to use. The bruises from that just stayed. The Drs. just say that is what sometimes happens, especially when the skin there is thin, as mine is. When I work with kids they often ask what is wrong with my hands. I try to make up stories about how I was cutting a tree down and it fell on my hands, or the fish I caught was so big, it started to bite me so I threw it back etc. There is no pain, just discoloration. Maybe a dermatologist could remove it, just like they take off tatoos, or port wine birth marks. Take Care MizKit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 , Please describe the red spot on her hands a bit more. The back of my hands has looked bruised since my transplant, 4 years ago. It started when I needed to get blood draws from my hands because the veins in my arms are too scared to use. The bruises from that just stayed. The Drs. just say that is what sometimes happens, especially when the skin there is thin, as mine is. When I work with kids they often ask what is wrong with my hands. I try to make up stories about how I was cutting a tree down and it fell on my hands, or the fish I caught was so big, it started to bite me so I threw it back etc. There is no pain, just discoloration. Maybe a dermatologist could remove it, just like they take off tatoos, or port wine birth marks. Take Care MizKit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Good morning and thank you for your reply - the two that are on her hands (actually one on the thumb and one on a finger) - they are just tiny red spots about the size of small black ant. When you push on it or spread the skin the spot disappears then when you let go they reappear. Like I said before when we first saw the doctor out in Denver he was looking Lynna Grace and saw the marking on her hand and informed us that was a sign of liver scarring. And that was confirmed after they did the biopsy, MRCP and ERCP and confirmed she had PSC. I mentioned it to the doctors here in Florida where we live and they really didn't say much about it. Now that she is getting another one I am just a bit concerned as if her PSC is progressing. Thank You, (mother of Lynna Grace PSC 04/06) cmp12305@... wrote: , Please describe the red spot on her hands a bit more. The back of my hands has looked bruised since my transplant, 4 years ago. It started when I needed to get blood draws from my hands because the veins in my arms are too scared to use. The bruises from that just stayed. The Drs. just say that is what sometimes happens, especially when the skin there is thin, as mine is. When I work with kids they often ask what is wrong with my hands. I try to make up stories about how I was cutting a tree down and it fell on my hands, or the fish I caught was so big, it started to bite me so I threw it back etc. There is no pain, just discoloration. Maybe a dermatologist could remove it, just like they take off tatoos, or port wine birth marks. Take Care MizKit Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Good morning and thank you for your reply - the two that are on her hands (actually one on the thumb and one on a finger) - they are just tiny red spots about the size of small black ant. When you push on it or spread the skin the spot disappears then when you let go they reappear. Like I said before when we first saw the doctor out in Denver he was looking Lynna Grace and saw the marking on her hand and informed us that was a sign of liver scarring. And that was confirmed after they did the biopsy, MRCP and ERCP and confirmed she had PSC. I mentioned it to the doctors here in Florida where we live and they really didn't say much about it. Now that she is getting another one I am just a bit concerned as if her PSC is progressing. Thank You, (mother of Lynna Grace PSC 04/06) cmp12305@... wrote: , Please describe the red spot on her hands a bit more. The back of my hands has looked bruised since my transplant, 4 years ago. It started when I needed to get blood draws from my hands because the veins in my arms are too scared to use. The bruises from that just stayed. The Drs. just say that is what sometimes happens, especially when the skin there is thin, as mine is. When I work with kids they often ask what is wrong with my hands. I try to make up stories about how I was cutting a tree down and it fell on my hands, or the fish I caught was so big, it started to bite me so I threw it back etc. There is no pain, just discoloration. Maybe a dermatologist could remove it, just like they take off tatoos, or port wine birth marks. Take Care MizKit Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Good morning and thank you for your reply - the two that are on her hands (actually one on the thumb and one on a finger) - they are just tiny red spots about the size of small black ant. When you push on it or spread the skin the spot disappears then when you let go they reappear. Like I said before when we first saw the doctor out in Denver he was looking Lynna Grace and saw the marking on her hand and informed us that was a sign of liver scarring. And that was confirmed after they did the biopsy, MRCP and ERCP and confirmed she had PSC. I mentioned it to the doctors here in Florida where we live and they really didn't say much about it. Now that she is getting another one I am just a bit concerned as if her PSC is progressing. Thank You, (mother of Lynna Grace PSC 04/06) cmp12305@... wrote: , Please describe the red spot on her hands a bit more. The back of my hands has looked bruised since my transplant, 4 years ago. It started when I needed to get blood draws from my hands because the veins in my arms are too scared to use. The bruises from that just stayed. The Drs. just say that is what sometimes happens, especially when the skin there is thin, as mine is. When I work with kids they often ask what is wrong with my hands. I try to make up stories about how I was cutting a tree down and it fell on my hands, or the fish I caught was so big, it started to bite me so I threw it back etc. There is no pain, just discoloration. Maybe a dermatologist could remove it, just like they take off tatoos, or port wine birth marks. Take Care MizKit Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 -----Original Message----- the two that are on her hands (actually one on the thumb and one on a finger) - they are just tiny red spots about the size of small black ant. They might be spider angiomas. Ken has them all over – fairly benign, should go away after transplant. Check these two pages and see if anything looks familiar. http://images.google.com/images?svnum=50 & hl=en & newwindow=1 & sa=X & oi=spell & resnum=1 & ct=result & cd=1 & q=spider+angioma & spell=1 HTH Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 -----Original Message----- I looked at the photos and that is exactly what they look like. For Ken did they get worse and/or more as his PSC progressed? They didn’t get worse, there may be a few more, but it’s really no big deal and most people (except moms J) don’t even see them. Here is a page that tells you all about them. http://www.emedicine.com/derm/topic293.htm I’m very happy to be able to help PSC Partners (in this small way) by mailing out the brochures. The new brochures are flying out of here and so far I’ve mailed out 652 of them! Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 -----Original Message----- I looked at the photos and that is exactly what they look like. For Ken did they get worse and/or more as his PSC progressed? They didn’t get worse, there may be a few more, but it’s really no big deal and most people (except moms J) don’t even see them. Here is a page that tells you all about them. http://www.emedicine.com/derm/topic293.htm I’m very happy to be able to help PSC Partners (in this small way) by mailing out the brochures. The new brochures are flying out of here and so far I’ve mailed out 652 of them! Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas Quote Link to comment Share on other sites More sharing options...
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