Re: RAI,PTU low white count

[Guest guest]

Hello, Val,

I don't have an answer for you with regard to the lowered white count, but I

do have a similar question. My daughter showed a decrease in her WBC after 2

1/2 weeks on PTU. The doctors admitted it might be Graves itself, but

wouldn't talk about the fact my daughter had just gotten over a nasty flu

running through our family. They thought it was PTU and wanted to take her

off. We readily agreed and they said to wait two weeks.

It's been two weeks and today we see a new endo (the others were pushing for

RAI immediately) and this is my question: Is two weeks enough time to see a

difference? I don't want to have unnecessary blood work done if it's too

soon.

Any experience with this greatly appreciated. And this group is great!

Pam

In a message dated 2/19/2002 7:23:30 PM Central Standard Time,

valkyrie@... writes:

> Also does anyone here have further info on the side effects of PTU, if

> my WBC is low and my body is not producing enough bone marrow, is it

> permanant? I have been completely off PTU for 2 weeks now.

>

> Phew. I'm done

>

> Val

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hello, Val,

I don't have an answer for you with regard to the lowered white count, but I

do have a similar question. My daughter showed a decrease in her WBC after 2

1/2 weeks on PTU. The doctors admitted it might be Graves itself, but

wouldn't talk about the fact my daughter had just gotten over a nasty flu

running through our family. They thought it was PTU and wanted to take her

off. We readily agreed and they said to wait two weeks.

It's been two weeks and today we see a new endo (the others were pushing for

RAI immediately) and this is my question: Is two weeks enough time to see a

difference? I don't want to have unnecessary blood work done if it's too

soon.

Any experience with this greatly appreciated. And this group is great!

Pam

In a message dated 2/19/2002 7:23:30 PM Central Standard Time,

valkyrie@... writes:

> Also does anyone here have further info on the side effects of PTU, if

> my WBC is low and my body is not producing enough bone marrow, is it

> permanant? I have been completely off PTU for 2 weeks now.

>

> Phew. I'm done

>

> Val

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hello, Val,

I don't have an answer for you with regard to the lowered white count, but I

do have a similar question. My daughter showed a decrease in her WBC after 2

1/2 weeks on PTU. The doctors admitted it might be Graves itself, but

wouldn't talk about the fact my daughter had just gotten over a nasty flu

running through our family. They thought it was PTU and wanted to take her

off. We readily agreed and they said to wait two weeks.

It's been two weeks and today we see a new endo (the others were pushing for

RAI immediately) and this is my question: Is two weeks enough time to see a

difference? I don't want to have unnecessary blood work done if it's too

soon.

Any experience with this greatly appreciated. And this group is great!

Pam

In a message dated 2/19/2002 7:23:30 PM Central Standard Time,

valkyrie@... writes:

> Also does anyone here have further info on the side effects of PTU, if

> my WBC is low and my body is not producing enough bone marrow, is it

> permanant? I have been completely off PTU for 2 weeks now.

>

> Phew. I'm done

>

> Val

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hi Pam -

It may very well be too early to see much difference yet. Quoting from The

Book (aka Graves' Disease, A Practical Guide),

" ATDs are very (at least 90 percent) effective in controlling the symptoms

of GD. However, the effects aren't immediate. Although new thyroid synthesis

is inhibited when ATDs are initiated, the thyroid gland still has a large

store of thyroid hormone. Until these hormone stores are depleted, the

effects of ATDs are limited. This is considered the latent period. It

duration depends on the amount of stored hormone, its rate of release, and

the patient's innate response to the ATD, with larger initial ATD doses

decreasing the latent period. In general, euthyroidism is achieved within

about six weeks. "

So, bottom line, if she's not euthyroid yet, no big surprise. Two weeks

might be enough to show some improvement, depending on how high her levels

were before, but probably not enough for the levels to be normal range yet.

And if the doc wants to push you for RAI again, tell him you'd like to wait

some more for the ATD to do its job. If the doc's worried that the WBC cell

count is indicative of a reaction to the PTU, you can request to try

Tapazole, the other ATD. Most times if people have a reaction to one ATD,

they are able to tolerate the other.

Hope this helps. Good luck with the new endo!

Re: RAI,PTU low white count

>Hello, Val,

>

>I don't have an answer for you with regard to the lowered white count, but

I

>do have a similar question. My daughter showed a decrease in her WBC after

2

>1/2 weeks on PTU. The doctors admitted it might be Graves itself, but

>wouldn't talk about the fact my daughter had just gotten over a nasty flu

>running through our family. They thought it was PTU and wanted to take her

>off. We readily agreed and they said to wait two weeks.

>

>It's been two weeks and today we see a new endo (the others were pushing

for

>RAI immediately) and this is my question: Is two weeks enough time to see

a

>difference? I don't want to have unnecessary blood work done if it's too

>soon.

>

>Any experience with this greatly appreciated. And this group is great!

>

>Pam

>

>In a message dated 2/19/2002 7:23:30 PM Central Standard Time,

>valkyrie@... writes:

>

>

>> Also does anyone here have further info on the side effects of PTU, if

>> my WBC is low and my body is not producing enough bone marrow, is it

>> permanant? I have been completely off PTU for 2 weeks now.

>>

>> Phew. I'm done

>>

>> Val

>

>

>I want to be the kind of friend Jesus would call, at the end of the day,

just

>to talk about nothing.-Wayne

>

>

>

[Guest guest]

Hi, ,

The new endo was very good. Understanding, great manner with my daughter,

and not pushing for RAI. He called today to put her on Tapazole, and we hope

she doesn't react to this negatively. I've posted a message regarding the

difference between Graves' and Hyperthyroidism, since I'm not clear yet on

the differences, and they are now saying our daughter has gone into

hyperthyroidism.

We're also taking our daughter to a facility that focuses on the whole body,

the whole person, and approaches things nutritionally. We're hoping this

will be a help.

Thanks for the input.

Oh, and I understand there are least two other " Pams " out there. Since I'm

here for my daughter, I'll sign off now as Amy's Pam. :-)

In a message dated 2/20/2002 1:32:38 PM Central Standard Time,

mlbuck@... writes:

> So, bottom line, if she's not euthyroid yet, no big surprise. Two weeks

> might be enough to show some improvement, depending on how high her levels

> were before, but probably not enough for the levels to be normal range yet.

> And if the doc wants to push you for RAI again, tell him you'd like to wait

> some more for the ATD to do its job. If the doc's worried that the WBC cell

> count is indicative of a reaction to the PTU, you can request to try

> Tapazole, the other ATD. Most times if people have a reaction to one ATD,

> they are able to tolerate the other.

>

> Hope this helps. Good luck with the new endo!

>

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hi, ,

The new endo was very good. Understanding, great manner with my daughter,

and not pushing for RAI. He called today to put her on Tapazole, and we hope

she doesn't react to this negatively. I've posted a message regarding the

difference between Graves' and Hyperthyroidism, since I'm not clear yet on

the differences, and they are now saying our daughter has gone into

hyperthyroidism.

We're also taking our daughter to a facility that focuses on the whole body,

the whole person, and approaches things nutritionally. We're hoping this

will be a help.

Thanks for the input.

Oh, and I understand there are least two other " Pams " out there. Since I'm

here for my daughter, I'll sign off now as Amy's Pam. :-)

In a message dated 2/20/2002 1:32:38 PM Central Standard Time,

mlbuck@... writes:

> So, bottom line, if she's not euthyroid yet, no big surprise. Two weeks

> might be enough to show some improvement, depending on how high her levels

> were before, but probably not enough for the levels to be normal range yet.

> And if the doc wants to push you for RAI again, tell him you'd like to wait

> some more for the ATD to do its job. If the doc's worried that the WBC cell

> count is indicative of a reaction to the PTU, you can request to try

> Tapazole, the other ATD. Most times if people have a reaction to one ATD,

> they are able to tolerate the other.

>

> Hope this helps. Good luck with the new endo!

>

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hi, ,

The new endo was very good. Understanding, great manner with my daughter,

and not pushing for RAI. He called today to put her on Tapazole, and we hope

she doesn't react to this negatively. I've posted a message regarding the

difference between Graves' and Hyperthyroidism, since I'm not clear yet on

the differences, and they are now saying our daughter has gone into

hyperthyroidism.

We're also taking our daughter to a facility that focuses on the whole body,

the whole person, and approaches things nutritionally. We're hoping this

will be a help.

Thanks for the input.

Oh, and I understand there are least two other " Pams " out there. Since I'm

here for my daughter, I'll sign off now as Amy's Pam. :-)

In a message dated 2/20/2002 1:32:38 PM Central Standard Time,

mlbuck@... writes:

> So, bottom line, if she's not euthyroid yet, no big surprise. Two weeks

> might be enough to show some improvement, depending on how high her levels

> were before, but probably not enough for the levels to be normal range yet.

> And if the doc wants to push you for RAI again, tell him you'd like to wait

> some more for the ATD to do its job. If the doc's worried that the WBC cell

> count is indicative of a reaction to the PTU, you can request to try

> Tapazole, the other ATD. Most times if people have a reaction to one ATD,

> they are able to tolerate the other.

>

> Hope this helps. Good luck with the new endo!

>

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

[Guest guest]

Hi Amy's Mom,

If she should have a reaction to TAP, the doctor can try her with PTU. When

we react to one of the drugs negatively, we can usually use the other one.

On rare occassions some people can not take either. I also think, in the

archives from over a year ago, there was a discussion on this, and that

sometimes it is the fillers in the TAP or PTU that people react too also.

Jody

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