Re: stuck like this forever

[Guest guest]

Haylee, I hate to hear that you've had this trouble with the STARbands

and with your Dr.s not being very compassionate about this subject!

I'm glad to see that you contacted CT because they could still band

him at his age....it's not too late. Yes the correction might be a

little slower now that he's a little older, but you will still see

some improvements at his age. I wish you all the best!! BIG HUGS TO YOU!

Lacy

Waydon DOCgrad

> > > >

> > > > We've hit another brick wall today. I feel so horrible. My

> son

> > is

> > > > 13 months old and had 2 bad fitting STARbands. He still has a

> > flat

> > > > spot, a big bump above his ear misaligned ears and what I

> would

> > > > consider to be pretty bad facial assymetry. He also still has

> a

> > > > preference to look only one way, has a little tilt and walks

> > around

> > > > with his sholders hunched. We had an appointment with a

> > neurosurgeon

> > > > today. He said he would consider it a mild case and said that

> > he

> > > > would be surprised if anyone would even notice. When I said

> that

> > > > stangers notice it and say things about it he said he was

> really

> > > > surprised because its not that bad compared to the other kids

> he

> > has

> > > > seen. Is he saying I was lying. He said he thinks my son

> looks

> > like

> > > > a cute little boy. Obviously the ped has told him just to

> > reassure

> > > > us. He told me to pretend that this never happened and my son

> > will

> > > > never notice. I said it looks really bad in the mirror but he

> > > > didn't care. He was anti helmet anti repo and said it didn't

> > matter

> > > > what we did that it was going to be the way it was going to

> be.

> > I

> > > > feel so bad. I should have gotten a 2nd opinion back when he

> > was 2

> > > > months old and we saw the flat spot and neck problems. Now my

> > son

> > > > is going to be stuck like this forever and it is all my

> fault.

> > I

> > > > don't beleive him that it's mild. The plastic surgeon

> diagnosed

> > it

> > > > as moderate to sever and it hasn't changed that much since

> > then. I

> > > > wish there was a standard measurement that they used so we

> could

> > > > know for sure how bad it is. I think it is pretty bad.

> > > >

> > > > Haylee

> > > >

> > >

> >

>

[Guest guest]

Haylee, lots of luck to you and I too am happy you contacted CT, they

will be able to offer you advice. Lots of luck and keep us posted.

Please don't be mad at yourself, your a great mommy who has been

trying to help her baby, you unfortunatly have come into contact with

some really unhelpful specialists. Take care of yourself through

this all. Debbie and Brielle (9mos repo) Nj

> > > > >

> > > > > We've hit another brick wall today. I feel so horrible.

My

> > son

> > > is

> > > > > 13 months old and had 2 bad fitting STARbands. He still

has a

> > > flat

> > > > > spot, a big bump above his ear misaligned ears and what I

> > would

> > > > > consider to be pretty bad facial assymetry. He also still

has

> > a

> > > > > preference to look only one way, has a little tilt and

walks

> > > around

> > > > > with his sholders hunched. We had an appointment with a

> > > neurosurgeon

> > > > > today. He said he would consider it a mild case and said

that

> > > he

> > > > > would be surprised if anyone would even notice. When I said

> > that

> > > > > stangers notice it and say things about it he said he was

> > really

> > > > > surprised because its not that bad compared to the other

kids

> > he

> > > has

> > > > > seen. Is he saying I was lying. He said he thinks my son

> > looks

> > > like

> > > > > a cute little boy. Obviously the ped has told him just to

> > > reassure

> > > > > us. He told me to pretend that this never happened and my

son

> > > will

> > > > > never notice. I said it looks really bad in the mirror but

he

> > > > > didn't care. He was anti helmet anti repo and said it

didn't

> > > matter

> > > > > what we did that it was going to be the way it was going to

> > be.

> > > I

> > > > > feel so bad. I should have gotten a 2nd opinion back when

he

> > > was 2

> > > > > months old and we saw the flat spot and neck problems. Now

my

> > > son

> > > > > is going to be stuck like this forever and it is all my

> > fault.

> > > I

> > > > > don't beleive him that it's mild. The plastic surgeon

> > diagnosed

> > > it

> > > > > as moderate to sever and it hasn't changed that much since

> > > then. I

> > > > > wish there was a standard measurement that they used so we

> > could

> > > > > know for sure how bad it is. I think it is pretty bad.

> > > > >

> > > > > Haylee

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Haylee, lots of luck to you and I too am happy you contacted CT, they

will be able to offer you advice. Lots of luck and keep us posted.

Please don't be mad at yourself, your a great mommy who has been

trying to help her baby, you unfortunatly have come into contact with

some really unhelpful specialists. Take care of yourself through

this all. Debbie and Brielle (9mos repo) Nj

> > > > >

> > > > > We've hit another brick wall today. I feel so horrible.

My

> > son

> > > is

> > > > > 13 months old and had 2 bad fitting STARbands. He still

has a

> > > flat

> > > > > spot, a big bump above his ear misaligned ears and what I

> > would

> > > > > consider to be pretty bad facial assymetry. He also still

has

> > a

> > > > > preference to look only one way, has a little tilt and

walks

> > > around

> > > > > with his sholders hunched. We had an appointment with a

> > > neurosurgeon

> > > > > today. He said he would consider it a mild case and said

that

> > > he

> > > > > would be surprised if anyone would even notice. When I said

> > that

> > > > > stangers notice it and say things about it he said he was

> > really

> > > > > surprised because its not that bad compared to the other

kids

> > he

> > > has

> > > > > seen. Is he saying I was lying. He said he thinks my son

> > looks

> > > like

> > > > > a cute little boy. Obviously the ped has told him just to

> > > reassure

> > > > > us. He told me to pretend that this never happened and my

son

> > > will

> > > > > never notice. I said it looks really bad in the mirror but

he

> > > > > didn't care. He was anti helmet anti repo and said it

didn't

> > > matter

> > > > > what we did that it was going to be the way it was going to

> > be.

> > > I

> > > > > feel so bad. I should have gotten a 2nd opinion back when

he

> > > was 2

> > > > > months old and we saw the flat spot and neck problems. Now

my

> > > son

> > > > > is going to be stuck like this forever and it is all my

> > fault.

> > > I

> > > > > don't beleive him that it's mild. The plastic surgeon

> > diagnosed

> > > it

> > > > > as moderate to sever and it hasn't changed that much since

> > > then. I

> > > > > wish there was a standard measurement that they used so we

> > could

> > > > > know for sure how bad it is. I think it is pretty bad.

> > > > >

> > > > > Haylee

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Haylee,

{{{HUGS}}} I'm so sorry you've had problems with the starbands. It

seems like you fought just to get them - good for you. The neuro

may be compeltely serious when he tells you he usually sees worse.

It could be that peds don't refer until the child is obviously

severe and if your son is moderate he would look great in

comparison. 13 months is not too old for a new band but it is

older. CT bands babies up to 24 months (but they have to start in

band by 18 months). Have you posted pictures? We've seen a lot of

babies and may be able to give you our opinions on severity. Have

you looked through the photos and maybe found one that looks like

your son?

Good luck and keep us posted.

Kiersten, 4 months, repo & tort

na, 2 yrs, DOC Grad 2/2004 and tort resolved

www.thefilyaws.com/plagio/plagio.html

> > >

> > > We've hit another brick wall today. I feel so horrible. My

son

> is

> > > 13 months old and had 2 bad fitting STARbands. He still has a

> flat

> > > spot, a big bump above his ear misaligned ears and what I

would

> > > consider to be pretty bad facial assymetry. He also still has

a

> > > preference to look only one way, has a little tilt and walks

> around

> > > with his sholders hunched. We had an appointment with a

> neurosurgeon

> > > today. He said he would consider it a mild case and said that

> he

> > > would be surprised if anyone would even notice. When I said

that

> > > stangers notice it and say things about it he said he was

really

> > > surprised because its not that bad compared to the other kids

he

> has

> > > seen. Is he saying I was lying. He said he thinks my son

looks

> like

> > > a cute little boy. Obviously the ped has told him just to

> reassure

> > > us. He told me to pretend that this never happened and my son

> will

> > > never notice. I said it looks really bad in the mirror but he

> > > didn't care. He was anti helmet anti repo and said it didn't

> matter

> > > what we did that it was going to be the way it was going to

be.

> I

> > > feel so bad. I should have gotten a 2nd opinion back when he

> was 2

> > > months old and we saw the flat spot and neck problems. Now my

> son

> > > is going to be stuck like this forever and it is all my

fault.

> I

> > > don't beleive him that it's mild. The plastic surgeon

diagnosed

> it

> > > as moderate to sever and it hasn't changed that much since

> then. I

> > > wish there was a standard measurement that they used so we

could

> > > know for sure how bad it is. I think it is pretty bad.

> > >

> > > Haylee

> > >

> >

>

[Guest guest]

Haylee,

{{{HUGS}}} I'm so sorry you've had problems with the starbands. It

seems like you fought just to get them - good for you. The neuro

may be compeltely serious when he tells you he usually sees worse.

It could be that peds don't refer until the child is obviously

severe and if your son is moderate he would look great in

comparison. 13 months is not too old for a new band but it is

older. CT bands babies up to 24 months (but they have to start in

band by 18 months). Have you posted pictures? We've seen a lot of

babies and may be able to give you our opinions on severity. Have

you looked through the photos and maybe found one that looks like

your son?

Good luck and keep us posted.

Kiersten, 4 months, repo & tort

na, 2 yrs, DOC Grad 2/2004 and tort resolved

www.thefilyaws.com/plagio/plagio.html

> > >

> > > We've hit another brick wall today. I feel so horrible. My

son

> is

> > > 13 months old and had 2 bad fitting STARbands. He still has a

> flat

> > > spot, a big bump above his ear misaligned ears and what I

would

> > > consider to be pretty bad facial assymetry. He also still has

a

> > > preference to look only one way, has a little tilt and walks

> around

> > > with his sholders hunched. We had an appointment with a

> neurosurgeon

> > > today. He said he would consider it a mild case and said that

> he

> > > would be surprised if anyone would even notice. When I said

that

> > > stangers notice it and say things about it he said he was

really

> > > surprised because its not that bad compared to the other kids

he

> has

> > > seen. Is he saying I was lying. He said he thinks my son

looks

> like

> > > a cute little boy. Obviously the ped has told him just to

> reassure

> > > us. He told me to pretend that this never happened and my son

> will

> > > never notice. I said it looks really bad in the mirror but he

> > > didn't care. He was anti helmet anti repo and said it didn't

> matter

> > > what we did that it was going to be the way it was going to

be.

> I

> > > feel so bad. I should have gotten a 2nd opinion back when he

> was 2

> > > months old and we saw the flat spot and neck problems. Now my

> son

> > > is going to be stuck like this forever and it is all my

fault.

> I

> > > don't beleive him that it's mild. The plastic surgeon

diagnosed

> it

> > > as moderate to sever and it hasn't changed that much since

> then. I

> > > wish there was a standard measurement that they used so we

could

> > > know for sure how bad it is. I think it is pretty bad.

> > >

> > > Haylee

> > >

> >

>