what about adult with plagiocephaly?

[Guest guest]

Hi:

I just recently realized that my facial

and head asymmetry was caused by positional plagiocephaly (mainly back

sleeping, and I recall my mom mentioned that she let me spent extensive time on

the bed in the first three months of my life because she was too busy then). It’s

sad that at that time few people were aware of this problem so it’s never

treated. So now I am adult living with this distress caused mainly by facial

asymmetry. (the head asymmetry is less noticeable and easier to hide with

longer hair). So my question is: do any of you know any treatment for adults

living under the shadow of plagiocephaly? Is there some kind of plastic surgery

that might help? I did lot of searches on google but it seems plagiocephaly is

only discussed in the context of infants, there are not much information about

adults who suffer from the consequence of plagiocephaly.

Thanks,

Guotao

[Guest guest]

Hi:

I just recently realized that my facial

and head asymmetry was caused by positional plagiocephaly (mainly back

sleeping, and I recall my mom mentioned that she let me spent extensive time on

the bed in the first three months of my life because she was too busy then). It’s

sad that at that time few people were aware of this problem so it’s never

treated. So now I am adult living with this distress caused mainly by facial

asymmetry. (the head asymmetry is less noticeable and easier to hide with

longer hair). So my question is: do any of you know any treatment for adults

living under the shadow of plagiocephaly? Is there some kind of plastic surgery

that might help? I did lot of searches on google but it seems plagiocephaly is

only discussed in the context of infants, there are not much information about

adults who suffer from the consequence of plagiocephaly.

Thanks,

Guotao

[Guest guest]

Guotao,

Have you posted on the OlderPlag group on ? They are a group

for parents whose babies' plagio went untreated. I don't know if

they have any adult members with plagio, but maybe someone would

respond with what they know if you posted there.

I'm not aware of any treatment options after the age of 2, except

for cranial vault surgery, and I personally don't know the max age

for that procedure.

A very long time ago we did have an adult man post here at the group

who had plagio. He spoke of having some sort of implant in the

flattened area of the back of his head to give it a more rounded

appearance. Later he posted that he had to have it removed owing to

complications. I don't have any further info on that, and he didn't

post about addressing any facial asymmetry with plastic surgery.

Not too long ago, I came across a news article about a new procedure

that was used to correct facial asymmetry, the jaw in particular,

but I can't for the life of me remember what the article said. The

news item had a striking before and after picture of a corrected

jaw. It caught my eye because many in the group do wonder what

options are open to the older child/adult with remaining plagio.

I conducted a quick internet search, and came across a couple of

terms that might help. Hemifacial microsomia is a condition where

one side of the face is smaller than the other. There may be

treatment options for that condition that could also be a

possibility for you. One relatively new treatment I found mentioned

was something called distraction osteogenesis, where the bone is

distracted to allow additional growth to occur in that space, thus

creating a new shape. Articles made mention that this procedure

could be used in adults, although it would take longer. You could

try and search that term to see what you find.

Here is a recent study concerning facial asymmetry correction:

Correction of facial asymmetry with multiplanar mandible

distraction: a one-year follow-up study. (Jan 2004)

Multiplanar mandibular distraction is an effective treatment for

correcting facial asymmetry in young children. The 1-year follow-up

revealed that the new sagittal jaw relation and mandibular body

length were stable, and the achieved occlusal interdigitation was

well maintained. However, the ramus height and chin deviation

demonstrated some relapse.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=14697076 & dopt=Abstract

I did find a lot of plastic surgery sites that do mention cheek/chin

implants that would be used in situations where there is " misshapen

jaws or facial asymmetry due to a congenital abnormality or a

serious illness or injury. "

I wish I could be of more help to you. I'm sure as the Back to

Sleep generation approaches adulthood, there will be more people in

a similar situation as yourself.

Good luck, and please let us know what you find out!

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " Guotao Luan " <gluan@c...>

wrote:

> Hi:

>

>

>

> I just recently realized that my facial and head asymmetry was

caused by

> positional plagiocephaly (mainly back sleeping, and I recall my mom

> mentioned that she let me spent extensive time on the bed in the

first three

> months of my life because she was too busy then). It's sad that at

that time

> few people were aware of this problem so it's never treated. So

now I am

> adult living with this distress caused mainly by facial asymmetry.

(the head

> asymmetry is less noticeable and easier to hide with longer hair).

So my

> question is: do any of you know any treatment for adults living

under the

> shadow of plagiocephaly? Is there some kind of plastic surgery

that might

> help? I did lot of searches on google but it seems plagiocephaly

is only

> discussed in the context of infants, there are not much

information about

> adults who suffer from the consequence of plagiocephaly.

>

>

>

>

>

> Thanks,

>

> Guotao

[Guest guest]

Guotao,

Have you posted on the OlderPlag group on ? They are a group

for parents whose babies' plagio went untreated. I don't know if

they have any adult members with plagio, but maybe someone would

respond with what they know if you posted there.

I'm not aware of any treatment options after the age of 2, except

for cranial vault surgery, and I personally don't know the max age

for that procedure.

A very long time ago we did have an adult man post here at the group

who had plagio. He spoke of having some sort of implant in the

flattened area of the back of his head to give it a more rounded

appearance. Later he posted that he had to have it removed owing to

complications. I don't have any further info on that, and he didn't

post about addressing any facial asymmetry with plastic surgery.

Not too long ago, I came across a news article about a new procedure

that was used to correct facial asymmetry, the jaw in particular,

but I can't for the life of me remember what the article said. The

news item had a striking before and after picture of a corrected

jaw. It caught my eye because many in the group do wonder what

options are open to the older child/adult with remaining plagio.

I conducted a quick internet search, and came across a couple of

terms that might help. Hemifacial microsomia is a condition where

one side of the face is smaller than the other. There may be

treatment options for that condition that could also be a

possibility for you. One relatively new treatment I found mentioned

was something called distraction osteogenesis, where the bone is

distracted to allow additional growth to occur in that space, thus

creating a new shape. Articles made mention that this procedure

could be used in adults, although it would take longer. You could

try and search that term to see what you find.

Here is a recent study concerning facial asymmetry correction:

Correction of facial asymmetry with multiplanar mandible

distraction: a one-year follow-up study. (Jan 2004)

Multiplanar mandibular distraction is an effective treatment for

correcting facial asymmetry in young children. The 1-year follow-up

revealed that the new sagittal jaw relation and mandibular body

length were stable, and the achieved occlusal interdigitation was

well maintained. However, the ramus height and chin deviation

demonstrated some relapse.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=14697076 & dopt=Abstract

I did find a lot of plastic surgery sites that do mention cheek/chin

implants that would be used in situations where there is " misshapen

jaws or facial asymmetry due to a congenital abnormality or a

serious illness or injury. "

I wish I could be of more help to you. I'm sure as the Back to

Sleep generation approaches adulthood, there will be more people in

a similar situation as yourself.

Good luck, and please let us know what you find out!

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " Guotao Luan " <gluan@c...>

wrote:

> Hi:

>

>

>

> I just recently realized that my facial and head asymmetry was

caused by

> positional plagiocephaly (mainly back sleeping, and I recall my mom

> mentioned that she let me spent extensive time on the bed in the

first three

> months of my life because she was too busy then). It's sad that at

that time

> few people were aware of this problem so it's never treated. So

now I am

> adult living with this distress caused mainly by facial asymmetry.

(the head

> asymmetry is less noticeable and easier to hide with longer hair).

So my

> question is: do any of you know any treatment for adults living

under the

> shadow of plagiocephaly? Is there some kind of plastic surgery

that might

> help? I did lot of searches on google but it seems plagiocephaly

is only

> discussed in the context of infants, there are not much

information about

> adults who suffer from the consequence of plagiocephaly.

>

>

>

>

>

> Thanks,

>

> Guotao