THROW IN THE TOWEL ?

[Guest guest]

As one well into the second decade with FM, and been on one year DMSA

single 100 mg. prior every 5 days plus cilantro and also dosage of ALA

(about two years ago) for another claimed benefit (repair preipherial

neuropothy)and now completed 9 Andy's cycles of DMSA, ALA with last

doseage up at 33mg each plus continuing cilantro (which helps me with

sideeffects) - I

experience the following: starting Saturday morn about 9PM and doing

every 3 hours during the day and 4 hours at night: feel a bit more

brain comfy right until i stop Monday afternoon, unless a bad night's

sleep - then gradually tail off more so in energy and brain pain

restart, with

the worse starting by Wed. late afternoon and Thursday unbearable and

pick up some energy on Friday to get ready to start again on Saturday -

SO OVERALL I DO NOT KNOW WHETHER I AM ANY AHEAD OF THE GAME AFTER THE

NINE WEEKS - evidence seems to be that i am not as i am more hermit -

I AM ASKING MYSELF IS IT TIME TO THROW IN THE TOWEL (am i fooling

myself again?) as i do not see much evidence of definite recovery by

those on the thread. Plus the idea that with other socalled cures in

the past and the packaged answer - " you took many years developing

this problem to where it is therefor must spend many years of my

protocal to get better " and before you know it year's have past and

nothing has really happened but lost time energy hope etc. Common

sense keeps telling me if a protocal works it should start working

pretty soon after inception even if on a very gradual but discernable

manner. Input would be appreciated. Blessings. Ron.

[Guest guest]

Ron,

You have my sympathies - and I feel your frustration. Check the

links or files section (can't remember which) for Andy's comments.

They are all neatly indexed by topic. Whoever did that deserves

major kudos as I am constantly referring to it. Anyway, Andy

explains when you should start seeing results - also, he says many

people THINK they have mercury poisoning when in fact they have

copper poisoning. Have you looked into this? I have and I may just

be suffering from it. Anyway, you're right - it is not necessary to

stay with a protocal for years before you see results. Just how

long you do stay is debatable. There are people on the salt/c forum

for Lyme that are not seeing real improvements for 12 to 13 months.

But once they pass that point, major improvements are experienced.

Best of luck,

Val

> As one well into the second decade with FM, and been on one year

DMSA

> single 100 mg. prior every 5 days plus cilantro and also dosage of

ALA

> (about two years ago) for another claimed benefit (repair

preipherial

> neuropothy)and now completed 9 Andy's cycles of DMSA, ALA with

last

> doseage up at 33mg each plus continuing cilantro (which helps me

with

> sideeffects) - I

> experience the following: starting Saturday morn about 9PM and

doing

> every 3 hours during the day and 4 hours at night: feel a bit

more

> brain comfy right until i stop Monday afternoon, unless a bad

night's

> sleep - then gradually tail off more so in energy and brain pain

> restart, with

> the worse starting by Wed. late afternoon and Thursday unbearable

and

> pick up some energy on Friday to get ready to start again on

Saturday -

> SO OVERALL I DO NOT KNOW WHETHER I AM ANY AHEAD OF THE GAME AFTER

THE

> NINE WEEKS - evidence seems to be that i am not as i am more

hermit -

> I AM ASKING MYSELF IS IT TIME TO THROW IN THE TOWEL (am i fooling

> myself again?) as i do not see much evidence of definite recovery

by

> those on the thread. Plus the idea that with other socalled cures

in

> the past and the packaged answer - " you took many years developing

> this problem to where it is therefor must spend many years of my

> protocal to get better " and before you know it year's have past

and

> nothing has really happened but lost time energy hope etc. Common

> sense keeps telling me if a protocal works it should start working

> pretty soon after inception even if on a very gradual but

discernable

> manner. Input would be appreciated. Blessings. Ron.

>

[Guest guest]

>

> As one well into the second decade with FM, and

been on one year DMSA

> single 100 mg. prior every 5 days plus cilantro and also dosage of ALA

> (about two years ago)

The above are protocols that will make a poisoned person much worse.

for another claimed benefit (repair preipherial

> neuropothy)and

now completed 9 Andy's cycles of DMSA, ALA with last

> doseage up at 33mg each plus continuing cilantro

The cilantro is not part of Andy's protocol, so you aren't following

Andy's protocol. There is not enough known about cilantro to know how

to use it properly. Anyone using it is risking serious regression.

(which helps me with

> sideeffects) - I

> experience the following: starting Saturday morn about 9PM and doing

> every 3 hours during the day and 4 hours at night: feel a bit more

> brain comfy right until i stop Monday afternoon, unless a bad night's

> sleep - then gradually tail off more so in energy and brain pain

> restart, with

> the worse starting by Wed. late afternoon and Thursday unbearable and

> pick up some energy on Friday to get ready to start again on Saturday -

> SO OVERALL I DO NOT KNOW WHETHER I AM ANY AHEAD OF THE GAME AFTER THE

> NINE WEEKS -

I would sure stop the cilantro if I was you.

Recently TK has posted general chelation recommendations and placed

the same in the file section. It would likely help if you went

through that file and other files and links of this group.

evidence seems to be that i am not as i am more hermit -

> I AM ASKING MYSELF IS IT TIME TO THROW IN THE TOWEL (am i fooling

> myself again?) as i do not see much evidence of definite recovery by

> those on the thread. Plus the idea that with other socalled cures in

> the past and the packaged answer - " you took many years developing

> this problem to where it is therefor must spend many years of my

> protocal to get better " and before you know it year's have past and

> nothing has really happened but lost time energy hope etc.

Common

> sense keeps telling me if a protocal works it should start working

> pretty soon after inception even if on a very gradual but discernable

> manner.

Andy's protocol does start working soon after inception. Most often

people who are having trouble are not following his protocol, using

doses of chelators that are too high for them, not taking adequate

supplementation, or not addressing problems (that are all described in

his " Amalgam Illness " book.

I have been following Andy's protocol with DMPS for about a year now.

My mercury problems have been steadily improving. I don't expect to

get better for a long time because my problems are quite serious. I

had to change my diet, include several supplements and medications.

Everything that I am doing is in Andy's book, but it took a long time

for me to put it all together.

We are all here to help.

J

Input would be appreciated. Blessings. Ron.

>

[Guest guest]

>

> As one well into the second decade with FM, and

been on one year DMSA

> single 100 mg. prior every 5 days plus cilantro and also dosage of ALA

> (about two years ago)

The above are protocols that will make a poisoned person much worse.

for another claimed benefit (repair preipherial

> neuropothy)and

now completed 9 Andy's cycles of DMSA, ALA with last

> doseage up at 33mg each plus continuing cilantro

The cilantro is not part of Andy's protocol, so you aren't following

Andy's protocol. There is not enough known about cilantro to know how

to use it properly. Anyone using it is risking serious regression.

(which helps me with

> sideeffects) - I

> experience the following: starting Saturday morn about 9PM and doing

> every 3 hours during the day and 4 hours at night: feel a bit more

> brain comfy right until i stop Monday afternoon, unless a bad night's

> sleep - then gradually tail off more so in energy and brain pain

> restart, with

> the worse starting by Wed. late afternoon and Thursday unbearable and

> pick up some energy on Friday to get ready to start again on Saturday -

> SO OVERALL I DO NOT KNOW WHETHER I AM ANY AHEAD OF THE GAME AFTER THE

> NINE WEEKS -

I would sure stop the cilantro if I was you.

Recently TK has posted general chelation recommendations and placed

the same in the file section. It would likely help if you went

through that file and other files and links of this group.

evidence seems to be that i am not as i am more hermit -

> I AM ASKING MYSELF IS IT TIME TO THROW IN THE TOWEL (am i fooling

> myself again?) as i do not see much evidence of definite recovery by

> those on the thread. Plus the idea that with other socalled cures in

> the past and the packaged answer - " you took many years developing

> this problem to where it is therefor must spend many years of my

> protocal to get better " and before you know it year's have past and

> nothing has really happened but lost time energy hope etc.

Common

> sense keeps telling me if a protocal works it should start working

> pretty soon after inception even if on a very gradual but discernable

> manner.

Andy's protocol does start working soon after inception. Most often

people who are having trouble are not following his protocol, using

doses of chelators that are too high for them, not taking adequate

supplementation, or not addressing problems (that are all described in

his " Amalgam Illness " book.

I have been following Andy's protocol with DMPS for about a year now.

My mercury problems have been steadily improving. I don't expect to

get better for a long time because my problems are quite serious. I

had to change my diet, include several supplements and medications.

Everything that I am doing is in Andy's book, but it took a long time

for me to put it all together.

We are all here to help.

J

Input would be appreciated. Blessings. Ron.

>