Re: 's CT followup and our decision- Deborah B/Frances/sorca

June 22, 2005

Hi, I see Sorca you got that cleared up. I was actually wondering

the same thing because is so young. Frances, I'm Debbie

Brielles mom, we too saw and both my mother and I were not

impressed! In one breath she said Brielle was borderline and in the

next she said Brielle needed a band. Never once did she mention

repo. I called her the following week and she talked about Brielles

facial asymetry in her eyes, nose and mouth and that is why she felt

Brielle was moderate. Well, look at her photos under Brielle B her

face is not asymetrical. Yes, her ears were an issue and in the past

weeks since June 1st we have seen lots of improvement in them from

repo, PT, and CST. Repo is so hard and is not for everyone. I was

wondering why your husband wasn't impressed with . My mother

actually said she felt that she was pushing the band and scared me

with all the TMJ, ear, swallowing, speech etc. problems that Brielle

might/would have if we didn't do this. I just felt that she was

quick to band. Sorca, she really didn't answer your question about

how long she had been doing this. Alittle bit her, in other states

could actually be only a few months. Good luck to you and I know

will do great. It is a tough decision, one that none of us

should go through. Keep us posted. Debbie

> > > > Well, we took (3 months this week) to CT for another

> > follow

> > > up

> > > > today. She said she can really see great results from the

> > repo. I

> > > > asked her to take measurements and she said that he has 11 mm

> of

> > > > asymmetry. I asked her what she would do and I begged her to

> be

> > > > honest with me. She thinks that since has responded

to

> > repo

> > > so

> > > > well, he will really do well in a band. I told her that I

was

> > > > concerned that the slope of his head did not seem to be

> > improving

> > > with

> > > > repo, but that the ear assymetry and the flatness in the back

> is

> > > > getting a lot better. She said that she thinks a band will

> help

> > > the

> > > > whole head to round out. Sooooo, we made a casting

appointment

> > for

> > > > 7/12 (we are going on vacation for 2 weeks on Friday and they

> > > couldn't

> > > > do the cast this week). Then, he will come in for his

fitting

> > on

> > > > 7/22. He will be 4 months on 7/23. She thinks he will only

> > need

> > > it

> > > > for about 6 weeks. I think we are doing the right thing. I

> > would

> > > > hate to always wonder, what if.... The neurologist might be

> mad

> > at

> > > me

> > > > when I go for the follow up. He did not think there was a

> > need.

> > > > Soooo, soon, I will have a doc banded baby. Did I do the

> right

> > > > thing?

> >

> > For more plagio info

June 22, 2005