Re: New here. My son is almost 5 with untreated plagio

[Guest guest]

Niki,

Welcome to the group, we're happy to have you. I'm sorry to hear of

your son's difficulties. How exactly is your son delayed?

>

> Well very long story short. My son is almost 5 (apr 8) and has

> untreated plagiocephaly due to severe torticollis. I am here mostly for

> support because he has learning disabilities that no one can diagnose.

> I'm just heart broken, wondering if anyone else is going thru this. The

> dr did not do a doc band/helmet. nothing. we even had to do our own

> physical therapy for his torticollis. for all i know we messed him up.

> the dr didn't see the plagio until 2 months of age. he's almost 5 like

> i said and his head is still deformed. he did see a neuro at 7 mon and

> he said he didn't have ear or facial deformity so he was ok. i'm still

> not convinced this is all just cosmetic. any input? anywho, thanks for

> having me here.

> Niki in Arizona.

>

[Guest guest]

Niki,

Welcome to the group, we're happy to have you. I'm sorry to hear of

your son's difficulties. How exactly is your son delayed?

>

> Well very long story short. My son is almost 5 (apr 8) and has

> untreated plagiocephaly due to severe torticollis. I am here mostly for

> support because he has learning disabilities that no one can diagnose.

> I'm just heart broken, wondering if anyone else is going thru this. The

> dr did not do a doc band/helmet. nothing. we even had to do our own

> physical therapy for his torticollis. for all i know we messed him up.

> the dr didn't see the plagio until 2 months of age. he's almost 5 like

> i said and his head is still deformed. he did see a neuro at 7 mon and

> he said he didn't have ear or facial deformity so he was ok. i'm still

> not convinced this is all just cosmetic. any input? anywho, thanks for

> having me here.

> Niki in Arizona.

>