Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Well, searching the net has not been too helpful to me so I thought i would turn to my trusty group of answer providers - thanks in advance to all who respond. I think I may have Hypo edema. It has been 2.5 hrs since I woke up and I still have slight creases (no longer the welts which lasted 2 hrs) from sleep wrinkles! Also - my eyes feel very funny and my urine output in the morning is now less then it uss is (gets better as the day wears on). Can someone tell me what to expect with this? Also - if it is causing my weight gain is it easier weight to lose then fat weight gain? Background info that may help you answer my questions: >>I have been drinking tons of water as I am VERY thirsty >>Have been on LID about 12 days now >>I have been craving salt so I added quite a bit to my food yesterday. My #1 Non-LID craving is for potato chips - because I want that salt! >>I have also gained weight (about 4 lbs) >> the only exercise I find I am capable of is a slow walk but I am walking, walking, walking as it tends to help me fight the fatigue. >>This is day 15 off cytomel >> my diet is a lot of fruit (watermelon, peaches, grapes, bananas); asparagus, zucchini, cauliflower, date nut bread (1 slice in morning); either grilled chicken breast/steak/pork tenderloin - no more then 4-5 oz a day - spread out over lunch/dinner; tomatoes; cucumber, red pepper, lettuce; 1 tsp LID chocolate sauce a day, couple of dried apricots (not every day); a few nuts; 1 cup of coffee with 1.5 sugars and almond nut milk; the odd handful of plain pasta elbows (not every day); popcorn - fresh popped - a small bowl every other night; two small pieces of biscotti; Any advice/comments/stories re my symptoms and what I can expect would be appreciated. Thanks Joan Weston, FL 07/18/02 - FNA results - PAP 08/12/02 - TT - final results – PAP of the left upper pole of the thyroid, Classic Type, 1.6 cm x 1.4 cm.;confined to Thyroid Gland:no capsular /extrathyroidal extension or vascular invasion noted. 09/07/02 - stopped cytomel 09/11/02 - started LID 09/20/02 - First TSH test - no results as yet Planning on 09/24/02-RAI(100 mCl ordered).In hosp as req by FLA law. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Hi Joan, I am right there with you - off cytomel since 9/9, on LID since Monday of this past week. I am scheduled for tracer on 10/7; body scan on 10/9, RAI on 10/15/02 - this is my 1 and a half year scan, cervical mets appear to be present. I had a colon resection in April of this year - in hospital stays a week each in Jan and Feb, so I missed my one year scan. I had a TT on 1/28/01 (Pap Ca, both lobes), clean body scan with no RAI 6/2001; raised nodes and elevated TG found on annual with endo. All that being said: I am starting to be unable to read as the fluid buildup in my eyes is changing my sight. I, too, have edema - and I am trying to watch the (non-iodized) salt. I am craving salt too. I could sleep all day right about now, but I try to get up and move around (I also have fibromyalgia). My urine output is less as well - I drink all the water I can get in me. When this is all over, I can tell you - as I went through it last year - you will lose the water weight. Real weight gain is just like any other weight gain. You would think on the very healthy (not balanced but healthy enough) LID with the small portions we shouldnot gain too much actual weight. And last year I think I remember (hypo memory) that when the water weight left I had actually lost a few pounds. My prayer lately is: God, if you can't make me thin, make all my friends fat! :) The bottom line is to get all the water into you that you can, and watch the salt intake. There is a time coming when it will turn around. This is just what they call hypo hell. I am there with you. take care of your self - stay in touch...this is a great place for answers, and for support. ~Sus > Well, searching the net has not been too helpful to me so I thought i > would turn to my trusty group of answer providers - thanks in advance > to all who respond. > > I think I may have Hypo edema. It has been 2.5 hrs since I woke up > and I still have slight creases (no longer the welts which lasted 2 > hrs) from sleep wrinkles! Also - my eyes feel very funny and my > urine output in the morning is now less then it uss is (gets better > as the day wears on). > > Can someone tell me what to expect with this? Also - if it is > causing my weight gain is it easier weight to lose then fat weight > gain? > > Background info that may help you answer my questions: > >>I have been drinking tons of water as I am VERY thirsty > >>Have been on LID about 12 days now > >>I have been craving salt so I added quite a bit to my food > yesterday. My #1 Non-LID craving is for potato chips - because I > want that salt! > >>I have also gained weight (about 4 lbs) > >> the only exercise I find I am capable of is a slow walk but I am > walking, walking, walking as it tends to help me fight the fatigue. > >>This is day 15 off cytomel > >> my diet is a lot of fruit (watermelon, peaches, grapes, bananas); > asparagus, zucchini, cauliflower, date nut bread (1 slice in > morning); either grilled chicken breast/steak/pork tenderloin - no > more then 4-5 oz a day - spread out over lunch/dinner; tomatoes; > cucumber, red pepper, lettuce; 1 tsp LID chocolate sauce a day, > couple of dried apricots (not every day); a few nuts; 1 cup of coffee > with 1.5 sugars and almond nut milk; the odd handful of plain pasta > elbows (not every day); popcorn - fresh popped - a small bowl every > other night; two small pieces of biscotti; > > Any advice/comments/stories re my symptoms and what I can expect > would be appreciated. > > Thanks > Joan > Weston, FL > 07/18/02 - FNA results - PAP > 08/12/02 - TT - final results – PAP of the left upper pole of the > thyroid, Classic Type, 1.6 cm x 1.4 cm.;confined to Thyroid Gland:no > capsular /extrathyroidal extension or vascular invasion noted. > 09/07/02 - stopped cytomel > 09/11/02 - started LID > 09/20/02 - First TSH test - no results as yet > Planning on 09/24/02-RAI(100 mCl ordered).In hosp as req by FLA law. Quote Link to comment Share on other sites More sharing options...
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