SchaferAutismReport: Frontline Cites Parent Activists and Internet for Vaccine Scare

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Subject: Frontline Cites Parent Activists and Internet for Vaccine Scare

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" Correlations Point To Environmental, Vaccine Link To Autism In U.S.,

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NEWS

Frontline Cites Parent Activists and Internet for Vaccine Scare

Frontline website interview: J.B. Handley

photo:

Frontline

is.gd/bNHlG

A businessman whose son was diagnosed with

autism, Handley co-founded with his wife the Web site Generation Rescue. It's

an autism advocacy site and has been highly effective in organizing a

community of parents concerned about an autism-vaccine link. This is the

edited transcript of an interview conducted on Jan. 29, 2010.

Editor's note: when critics in the media,

and also in the Frontline report " The Vaccine War " , complain about

alleged misinformation somewhere vaguely on the internet about vaccines and

autism feeding the public, it is the websites Handley founded, Generation

Rescue www.generationrescue.org/

, and the Age of Autism www.ageofautism.com/,

to which they are most likely referring. –LS.

How did your life change when you

discovered your son had autism? Everything changed from the day it happened.

It was an immediate nightmare. It was 30 days of six, seven, eight hours of

nonstop crying by both me and my wife. It was the painful realization that my

son may not have the kind of life that I expected for him. And once the grief

had passed just enough to get up off the floor, it was a mandate to do

whatever I could do with the rest of my life to give him the best possible

life.

How old was he when this happened? He

was just under 2 years old.

How did you discover this? People

sometimes talk about how these kids are diagnosed today at much higher rates,

that we just have a more narrow filter, that parents are more paranoid.

You don't miss this. This wasn't something

that was hard to figure out. The child stopped talking. He stopped

socializing. He started doing extremely unusual behaviors that no other kid

was doing -- running on walls, turning his eyes to the side, spinning around

in circles, laughing for no reason. I mean, we watched our son decline into

something we'd never seen before, and it didn't take us long, especially with

the Internet, to go quickly look up some of these behaviors.

Did you know anything about autism at that

time? I didn't know the first thing about autism. I'd seen Rain Man like

a lot of other people had, but when my wife first brought up the word, I knew

that was something we didn't want for our son. But no, I didn't know the

first thing about it.

How did you educate yourself? My wife and I

both, from the day we had concerns about Jamison, we were on the Web trying

to understand what is wrong with our son. We got absolutely no help from the

local pediatrician who told us everything would be fine and he would come

around. But literally spending 20 minutes doing an evaluation, we knew we had

a serious, serious problem on our hands. He was hitting every single metric

for autism.

What was the medical dogma about autism in

terms of the cause? It was very

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In This Issue:

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•

•

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•

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NEWS

Frontline Cites Parent Activists and Internet for Vaccine Scare

Frontline's " The Vaccine War " Misses Half the Story

RESEARCH

Loss of Acquired Skills Linked to Increased Risk for Autism, Poorer

Developmental Outcomes

PEOPLE

Stanley I. Greenspan, 68; Expert On Infant Development, Autism

Odgren Convicted Of First-Degree Murder, Faces Life Imprisonment

Autistic Man Missing From Santa Cruz, Calif. Found Dead At Marina Beach

Police Wait As Suspect, 2 Shot Recover

Father Kills Son, Self In Maine

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