Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi Pam, Congratulations on your success. You've worked hard to figure things out and take charge and learned a lot about the good and bad sides of medical care. Unfortunately, so many doctors are so attuned to preventing hyper symptoms that they inadvertently keep us hypo and neglect to recognize hypo symptoms. It's wonderful that you're sharing your story. Many people are going to benefit from your experience. Best to you, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Oh Elaine, Sob, sob...Hug, hug......:-) You have no idea how much you have helped me figure all this out. I could have wasted many more years, and ended on the street with a shopping cart, had you not appeared in my life. Dramatic ? Yes! But that is how I feel. I will not let you down and disappear...there are so many others back where I was. My challenge now, will be to not get booted for spamming as I continue to post links to suit101. elsewhere. -Pam- who awoke even better this AM with that one little less 1/4 pill only yesterday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Oh Elaine, Sob, sob...Hug, hug......:-) You have no idea how much you have helped me figure all this out. I could have wasted many more years, and ended on the street with a shopping cart, had you not appeared in my life. Dramatic ? Yes! But that is how I feel. I will not let you down and disappear...there are so many others back where I was. My challenge now, will be to not get booted for spamming as I continue to post links to suit101. elsewhere. -Pam- who awoke even better this AM with that one little less 1/4 pill only yesterday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Oh Elaine, Sob, sob...Hug, hug......:-) You have no idea how much you have helped me figure all this out. I could have wasted many more years, and ended on the street with a shopping cart, had you not appeared in my life. Dramatic ? Yes! But that is how I feel. I will not let you down and disappear...there are so many others back where I was. My challenge now, will be to not get booted for spamming as I continue to post links to suit101. elsewhere. -Pam- who awoke even better this AM with that one little less 1/4 pill only yesterday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi Pam, That's not spamming since I don't make money on any of my web sites or get paid for hits to my articles. That's just sharing info so feel free to share the URLs to suite 101 and to pages on my web site. I should write an article on your success story if you want to email me the details. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi Pam, That's not spamming since I don't make money on any of my web sites or get paid for hits to my articles. That's just sharing info so feel free to share the URLs to suite 101 and to pages on my web site. I should write an article on your success story if you want to email me the details. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi Pam, That's not spamming since I don't make money on any of my web sites or get paid for hits to my articles. That's just sharing info so feel free to share the URLs to suite 101 and to pages on my web site. I should write an article on your success story if you want to email me the details. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Congratulations, Pam! I'm so happy for you! It's great that you are feeling better after such a long time and able to take control of your health! Keep it up - you're inspiring to some of us newbies! recent success >Terry and All, > I know that you are one of the great folks here that have given me the confidence to do >this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went >along. But the first time reduced alone, I saw such a difference. This visit, he comes in. >looks at my newest labs, a month old and too low, and says.....you are doing >great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, >based on my own notes over the years and cleared with him some time back. We had agreed on >a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. >But I do not see anything changing as far as doctors orders. <sigh> This new blood work, >showing too low, is accompanied with a note that says I do not have to increase my dose ! >Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted >that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, >he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus >. Well, if he thought that was a problem, don't you think it might have occurred to him >some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned >anger. >Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I >checked around, and he has a very good reputation in the medical community, they say I am >lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being >too low....this comes as a shock to me. I really did not know how bad I felt. I have saved >the money for the rheumitologist (sp?) three times now, and cried every time as the car >broke .(and that was after 6 mo. of researching which one to go to...don't have the money >to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain >killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought >that I had done well at that time, but now the 'life' is back. My mind is coming back. I >had almost come to accept that part of it was gone. I spent one whole doctor visit, >discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to >speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then >spring for the TSI. >I think this makes the most sense, considering the cost. Gheezzz, it has taken me two >months to figure that out for sure. Well, this disease has taught me patience. And no, I >was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I >would have to give up, how many more concessions I would need to make, and how to remain a >pleasant person to be around, both for myself and others. The last few days, I am starting >to think of the possibilities instead. Do I want to get back into one of my past jobs, >when I am better, or is there a new direction due. Finally...possibilities. I know at the >very least I will never feel worse than I do now. The last three mornings, I was glad to >wake up. And I do not believe this is my old three day syndrome. It seems different >somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill >I need right now , I have many to choose from) LOL I can think in five to six hour >increments now, instead of six week at a time, and hope, that I am going the right >direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different >groups, and I am so grateful for them all. > -Pam- > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Congratulations, Pam! I'm so happy for you! It's great that you are feeling better after such a long time and able to take control of your health! Keep it up - you're inspiring to some of us newbies! recent success >Terry and All, > I know that you are one of the great folks here that have given me the confidence to do >this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went >along. But the first time reduced alone, I saw such a difference. This visit, he comes in. >looks at my newest labs, a month old and too low, and says.....you are doing >great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, >based on my own notes over the years and cleared with him some time back. We had agreed on >a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. >But I do not see anything changing as far as doctors orders. <sigh> This new blood work, >showing too low, is accompanied with a note that says I do not have to increase my dose ! >Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted >that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, >he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus >. Well, if he thought that was a problem, don't you think it might have occurred to him >some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned >anger. >Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I >checked around, and he has a very good reputation in the medical community, they say I am >lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being >too low....this comes as a shock to me. I really did not know how bad I felt. I have saved >the money for the rheumitologist (sp?) three times now, and cried every time as the car >broke .(and that was after 6 mo. of researching which one to go to...don't have the money >to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain >killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought >that I had done well at that time, but now the 'life' is back. My mind is coming back. I >had almost come to accept that part of it was gone. I spent one whole doctor visit, >discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to >speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then >spring for the TSI. >I think this makes the most sense, considering the cost. Gheezzz, it has taken me two >months to figure that out for sure. Well, this disease has taught me patience. And no, I >was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I >would have to give up, how many more concessions I would need to make, and how to remain a >pleasant person to be around, both for myself and others. The last few days, I am starting >to think of the possibilities instead. Do I want to get back into one of my past jobs, >when I am better, or is there a new direction due. Finally...possibilities. I know at the >very least I will never feel worse than I do now. The last three mornings, I was glad to >wake up. And I do not believe this is my old three day syndrome. It seems different >somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill >I need right now , I have many to choose from) LOL I can think in five to six hour >increments now, instead of six week at a time, and hope, that I am going the right >direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different >groups, and I am so grateful for them all. > -Pam- > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Congratulations, Pam! I'm so happy for you! It's great that you are feeling better after such a long time and able to take control of your health! Keep it up - you're inspiring to some of us newbies! recent success >Terry and All, > I know that you are one of the great folks here that have given me the confidence to do >this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went >along. But the first time reduced alone, I saw such a difference. This visit, he comes in. >looks at my newest labs, a month old and too low, and says.....you are doing >great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, >based on my own notes over the years and cleared with him some time back. We had agreed on >a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. >But I do not see anything changing as far as doctors orders. <sigh> This new blood work, >showing too low, is accompanied with a note that says I do not have to increase my dose ! >Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted >that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, >he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus >. Well, if he thought that was a problem, don't you think it might have occurred to him >some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned >anger. >Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I >checked around, and he has a very good reputation in the medical community, they say I am >lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being >too low....this comes as a shock to me. I really did not know how bad I felt. I have saved >the money for the rheumitologist (sp?) three times now, and cried every time as the car >broke .(and that was after 6 mo. of researching which one to go to...don't have the money >to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain >killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought >that I had done well at that time, but now the 'life' is back. My mind is coming back. I >had almost come to accept that part of it was gone. I spent one whole doctor visit, >discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to >speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then >spring for the TSI. >I think this makes the most sense, considering the cost. Gheezzz, it has taken me two >months to figure that out for sure. Well, this disease has taught me patience. And no, I >was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I >would have to give up, how many more concessions I would need to make, and how to remain a >pleasant person to be around, both for myself and others. The last few days, I am starting >to think of the possibilities instead. Do I want to get back into one of my past jobs, >when I am better, or is there a new direction due. Finally...possibilities. I know at the >very least I will never feel worse than I do now. The last three mornings, I was glad to >wake up. And I do not believe this is my old three day syndrome. It seems different >somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill >I need right now , I have many to choose from) LOL I can think in five to six hour >increments now, instead of six week at a time, and hope, that I am going the right >direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different >groups, and I am so grateful for them all. > -Pam- > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 You're an inspiration! I'm glad to hear you're doing well. It seems to me they wanted to keep anyone they can on some kind of medication because that will include MORE office visits, blood work etc.. I'm not always convinced they are trying to help the patient but rather trying to help themselves to your wallet. Society has also been being conditioned to believe that " oh, you've got a problem " ... " okay here's a pill " . This is one of the reasons I'm looking more towards diet and supplements. Regards, > Terry and All, > I know that you are one of the great folks here that have given me the confidence to do > this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went > along. But the first time reduced alone, I saw such a difference. This visit, he comes in. > looks at my newest labs, a month old and too low, and says.....you are doing > great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, > based on my own notes over the years and cleared with him some time back. We had agreed on > a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. > But I do not see anything changing as far as doctors orders. <sigh> This new blood work, > showing too low, is accompanied with a note that says I do not have to increase my dose ! > Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted > that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, > he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus > . Well, if he thought that was a problem, don't you think it might have occurred to him > some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned > anger. > Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I > checked around, and he has a very good reputation in the medical community, they say I am > lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being > too low....this comes as a shock to me. I really did not know how bad I felt. I have saved > the money for the rheumitologist (sp?) three times now, and cried every time as the car > broke .(and that was after 6 mo. of researching which one to go to...don't have the money > to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain > killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought > that I had done well at that time, but now the 'life' is back. My mind is coming back. I > had almost come to accept that part of it was gone. I spent one whole doctor visit, > discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to > speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then > spring for the TSI. > I think this makes the most sense, considering the cost. Gheezzz, it has taken me two > months to figure that out for sure. Well, this disease has taught me patience. And no, I > was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I > would have to give up, how many more concessions I would need to make, and how to remain a > pleasant person to be around, both for myself and others. The last few days, I am starting > to think of the possibilities instead. Do I want to get back into one of my past jobs, > when I am better, or is there a new direction due. Finally...possibilities. I know at the > very least I will never feel worse than I do now. The last three mornings, I was glad to > wake up. And I do not believe this is my old three day syndrome. It seems different > somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill > I need right now , I have many to choose from) LOL I can think in five to six hour > increments now, instead of six week at a time, and hope, that I am going the right > direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different > groups, and I am so grateful for them all. > -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 You're an inspiration! I'm glad to hear you're doing well. It seems to me they wanted to keep anyone they can on some kind of medication because that will include MORE office visits, blood work etc.. I'm not always convinced they are trying to help the patient but rather trying to help themselves to your wallet. Society has also been being conditioned to believe that " oh, you've got a problem " ... " okay here's a pill " . This is one of the reasons I'm looking more towards diet and supplements. Regards, > Terry and All, > I know that you are one of the great folks here that have given me the confidence to do > this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went > along. But the first time reduced alone, I saw such a difference. This visit, he comes in. > looks at my newest labs, a month old and too low, and says.....you are doing > great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, > based on my own notes over the years and cleared with him some time back. We had agreed on > a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. > But I do not see anything changing as far as doctors orders. <sigh> This new blood work, > showing too low, is accompanied with a note that says I do not have to increase my dose ! > Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted > that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, > he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus > . Well, if he thought that was a problem, don't you think it might have occurred to him > some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned > anger. > Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I > checked around, and he has a very good reputation in the medical community, they say I am > lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being > too low....this comes as a shock to me. I really did not know how bad I felt. I have saved > the money for the rheumitologist (sp?) three times now, and cried every time as the car > broke .(and that was after 6 mo. of researching which one to go to...don't have the money > to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain > killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought > that I had done well at that time, but now the 'life' is back. My mind is coming back. I > had almost come to accept that part of it was gone. I spent one whole doctor visit, > discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to > speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then > spring for the TSI. > I think this makes the most sense, considering the cost. Gheezzz, it has taken me two > months to figure that out for sure. Well, this disease has taught me patience. And no, I > was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I > would have to give up, how many more concessions I would need to make, and how to remain a > pleasant person to be around, both for myself and others. The last few days, I am starting > to think of the possibilities instead. Do I want to get back into one of my past jobs, > when I am better, or is there a new direction due. Finally...possibilities. I know at the > very least I will never feel worse than I do now. The last three mornings, I was glad to > wake up. And I do not believe this is my old three day syndrome. It seems different > somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill > I need right now , I have many to choose from) LOL I can think in five to six hour > increments now, instead of six week at a time, and hope, that I am going the right > direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different > groups, and I am so grateful for them all. > -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Dear Pam Thank you for sharing with us over the past few weeks. I have really enjoyed your posts - especially this one. You have done so well, it is inspiring. Sometimes it is hard to keep 'battling on' but when I come here and read what others have been able to achieve, the 'moment' pass and all seems possible. Thanks again and congratulations. Cheers Caroline Pam wrote: > Terry and All, > I know that you are one of the great folks here that have given me the confidence to do > this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went > along. But the first time reduced alone, I saw such a difference. This visit, he comes in. > looks at my newest labs, a month old and too low, and says.....you are doing > great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, > based on my own notes over the years and cleared with him some time back. We had agreed on > a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. > But I do not see anything changing as far as doctors orders. <sigh> This new blood work, > showing too low, is accompanied with a note that says I do not have to increase my dose ! > Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted > that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, > he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus > . Well, if he thought that was a problem, don't you think it might have occurred to him > some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned > anger. > Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I > checked around, and he has a very good reputation in the medical community, they say I am > lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being > too low....this comes as a shock to me. I really did not know how bad I felt. I have saved > the money for the rheumitologist (sp?) three times now, and cried every time as the car > broke .(and that was after 6 mo. of researching which one to go to...don't have the money > to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain > killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought > that I had done well at that time, but now the 'life' is back. My mind is coming back. I > had almost come to accept that part of it was gone. I spent one whole doctor visit, > discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to > speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then > spring for the TSI. > I think this makes the most sense, considering the cost. Gheezzz, it has taken me two > months to figure that out for sure. Well, this disease has taught me patience. And no, I > was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I > would have to give up, how many more concessions I would need to make, and how to remain a > pleasant person to be around, both for myself and others. The last few days, I am starting > to think of the possibilities instead. Do I want to get back into one of my past jobs, > when I am better, or is there a new direction due. Finally...possibilities. I know at the > very least I will never feel worse than I do now. The last three mornings, I was glad to > wake up. And I do not believe this is my old three day syndrome. It seems different > somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill > I need right now , I have many to choose from) LOL I can think in five to six hour > increments now, instead of six week at a time, and hope, that I am going the right > direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different > groups, and I am so grateful for them all. > -Pam- > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > --------------------------------------------------------------------------------\ ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Dear Pam Thank you for sharing with us over the past few weeks. I have really enjoyed your posts - especially this one. You have done so well, it is inspiring. Sometimes it is hard to keep 'battling on' but when I come here and read what others have been able to achieve, the 'moment' pass and all seems possible. Thanks again and congratulations. Cheers Caroline Pam wrote: > Terry and All, > I know that you are one of the great folks here that have given me the confidence to do > this. Yippee ! > He just seems to want to keep me over medicated. I felt so bad in the past, I went > along. But the first time reduced alone, I saw such a difference. This visit, he comes in. > looks at my newest labs, a month old and too low, and says.....you are doing > great.....this is perfect. Guess what I said ? Made him go back to my original conclusion, > based on my own notes over the years and cleared with him some time back. We had agreed on > a # goal for my FT4.... Now I get a whole new look on his face as he admits his mistake. > But I do not see anything changing as far as doctors orders. <sigh> This new blood work, > showing too low, is accompanied with a note that says I do not have to increase my dose ! > Excuse Me !!! > > And why for three years of complaining of horrible, to the bone pain, has he insisted > that my dose is good and the problem is not thyroid...it's arthritis. Now this last visit, > he tells me I have two weeks, and we may have to switch to Tap, because of possible lupus > . Well, if he thought that was a problem, don't you think it might have occurred to him > some time in the last three years of pain and loss of work for me !!! > > For crying out loud ! Apparently my trauma and fear has turned into good old fashioned > anger. > Is this one of the stages.?? > The truly sad thing is this doctor is one of the best around here, and we have a lot. I > checked around, and he has a very good reputation in the medical community, they say I am > lucky to get him. And he will listen to me, and will work within my budget. > > So now, that I am just starting to see the light of day, after over three years of being > too low....this comes as a shock to me. I really did not know how bad I felt. I have saved > the money for the rheumitologist (sp?) three times now, and cried every time as the car > broke .(and that was after 6 mo. of researching which one to go to...don't have the money > to waste on the wrong guy) > So if the car had not broke, I would have spent the rest of my life doped up on pain > killers and depressed. > > How in the world to other people manage, if they don't find a wonderful group like this? > > I am a whole new person, from the one that was, only a few short months ago. I thought > that I had done well at that time, but now the 'life' is back. My mind is coming back. I > had almost come to accept that part of it was gone. I spent one whole doctor visit, > discussing this fear. conclusion...use it or lose it.....but I couldn't make it work up to > speed. > > So , a quarter pill at a time......this is so exciting. > I have decided that when I am sure it is time to quit then completely, I will then > spring for the TSI. > I think this makes the most sense, considering the cost. Gheezzz, it has taken me two > months to figure that out for sure. Well, this disease has taught me patience. And no, I > was not blessed with this skill before. > > In the very recent past, I spent a lot of time, worrying about how many more things I > would have to give up, how many more concessions I would need to make, and how to remain a > pleasant person to be around, both for myself and others. The last few days, I am starting > to think of the possibilities instead. Do I want to get back into one of my past jobs, > when I am better, or is there a new direction due. Finally...possibilities. I know at the > very least I will never feel worse than I do now. The last three mornings, I was glad to > wake up. And I do not believe this is my old three day syndrome. It seems different > somehow. Because I am in charge now.( as I stand there deciding how big of a quarter pill > I need right now , I have many to choose from) LOL I can think in five to six hour > increments now, instead of six week at a time, and hope, that I am going the right > direction, because if wrong, I will feel worse for two to probably three months. > > This has taken a long time, and I have so many great people along the way, in different > groups, and I am so grateful for them all. > -Pam- > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > --------------------------------------------------------------------------------\ ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Dear Pam, Congrats! on your recent success. Glad things are going well. This group does make a difference I've found that out. It helps just knowing that you aren't the only one with this disease. Debbie R. <*;*> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Dear Pam, Congrats! on your recent success. Glad things are going well. This group does make a difference I've found that out. It helps just knowing that you aren't the only one with this disease. Debbie R. <*;*> Quote Link to comment Share on other sites More sharing options...
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