Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Barb, Yes I got your note. I've been meaning to write you back when I could sit down and concentrate. I cannot believe Kathe lost her husband too. Did you ever receive anything back from signing the guest book? I can't imagine not only her loss, but the other children as well losing a brother and father so close together. I wonder if Kathe stayed in New Orleans. I've been keeping up with Ken's progress toward evaluation. Kinda scarey I'm sure. I've gotten an appointment in July with a doctor in Atlanta that seems to be a PSC guru...his name is Dr. Norman Gitlin. After talking to 's GI doctor he admitted that he really didn't know a lot about PSC, and it would not hurt his feelings one bit if we transferred to someone that knew more. Did I tell you we will be moving to Ft.Bliss TX next March. It's in El Paso. How close is that to you? I'm not terribly thrilled about the location, but the good news is the airport is right across the road from the installation....I'm charging everything on AMEX to rack up those frequent flyer miles. Thanks for the info Barb. You are amazing how you find things and stay on top of everything. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Barb, Yes I got your note. I've been meaning to write you back when I could sit down and concentrate. I cannot believe Kathe lost her husband too. Did you ever receive anything back from signing the guest book? I can't imagine not only her loss, but the other children as well losing a brother and father so close together. I wonder if Kathe stayed in New Orleans. I've been keeping up with Ken's progress toward evaluation. Kinda scarey I'm sure. I've gotten an appointment in July with a doctor in Atlanta that seems to be a PSC guru...his name is Dr. Norman Gitlin. After talking to 's GI doctor he admitted that he really didn't know a lot about PSC, and it would not hurt his feelings one bit if we transferred to someone that knew more. Did I tell you we will be moving to Ft.Bliss TX next March. It's in El Paso. How close is that to you? I'm not terribly thrilled about the location, but the good news is the airport is right across the road from the installation....I'm charging everything on AMEX to rack up those frequent flyer miles. Thanks for the info Barb. You are amazing how you find things and stay on top of everything. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Barb, Yes I got your note. I've been meaning to write you back when I could sit down and concentrate. I cannot believe Kathe lost her husband too. Did you ever receive anything back from signing the guest book? I can't imagine not only her loss, but the other children as well losing a brother and father so close together. I wonder if Kathe stayed in New Orleans. I've been keeping up with Ken's progress toward evaluation. Kinda scarey I'm sure. I've gotten an appointment in July with a doctor in Atlanta that seems to be a PSC guru...his name is Dr. Norman Gitlin. After talking to 's GI doctor he admitted that he really didn't know a lot about PSC, and it would not hurt his feelings one bit if we transferred to someone that knew more. Did I tell you we will be moving to Ft.Bliss TX next March. It's in El Paso. How close is that to you? I'm not terribly thrilled about the location, but the good news is the airport is right across the road from the installation....I'm charging everything on AMEX to rack up those frequent flyer miles. Thanks for the info Barb. You are amazing how you find things and stay on top of everything. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2006 Report Share Posted June 26, 2006 Did you receive my e-mail? Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (32) UC 91 - PSC 99 Quote Link to comment Share on other sites More sharing options...
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