Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Whoo-hoo, congrats Pam!!! You're and inspiration! Enjoy this day...heck, go celebrate! Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Whoo-hoo, congrats Pam!!! You're and inspiration! Enjoy this day...heck, go celebrate! Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam.....I am so happy for you. Those are good labs!! > >Reply-To: graves_support >To: " hyperthyroidism " <hyperthyroidism >, > " graves_support " <graves_support > >Subject: Success !!!!!!!!!!!!!!!!!!!! >Date: Wed, 20 Mar 2002 12:32:23 -0800 > > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission >halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic >points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few >drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison >event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > >This blood work was done one week after taking nothing ( after the poison >event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being >put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from >what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare >this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam.....I am so happy for you. Those are good labs!! > >Reply-To: graves_support >To: " hyperthyroidism " <hyperthyroidism >, > " graves_support " <graves_support > >Subject: Success !!!!!!!!!!!!!!!!!!!! >Date: Wed, 20 Mar 2002 12:32:23 -0800 > > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission >halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic >points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few >drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison >event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > >This blood work was done one week after taking nothing ( after the poison >event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being >put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from >what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare >this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam.....I am so happy for you. Those are good labs!! > >Reply-To: graves_support >To: " hyperthyroidism " <hyperthyroidism >, > " graves_support " <graves_support > >Subject: Success !!!!!!!!!!!!!!!!!!!! >Date: Wed, 20 Mar 2002 12:32:23 -0800 > > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission >halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic >points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few >drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison >event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > >This blood work was done one week after taking nothing ( after the poison >event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being >put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from >what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare >this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Pam Congratulations to you. You go girl. I can hear you partying all the way over here in Mollymook. Sue Mollymook, Australia At 12:32 PM 20/03/2002 -0800, you wrote: > > Hi All, > > I am so excited I can hardly stand myself !!!!!!!!!!!!! > > > just got my first lab results, after all this possible remission >halabaloo. > > Read it and celebrate. :-) > > range .71 - 1.85 > > 230 - 420 > range .32 - 5.00 > > This included a few panic >points where I took > a 1/4 of a pill, and on those 2 or three day events, >I also took a few >drops of bugleweed. > Then there was quite awhile, that >I took nothing. Until the fateful >'poison event'. During > the scary two >days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > > > This blood work was done one week after taking nothing ( after the poison >event) . Not the > full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being > put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely > manner. So I rushed in a week early, hoping this is not too far off from >what is really > going on. > > I am only slightly puzzled. > TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first > showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus > justifying my reduction in meds at that time. > > FT4.... why did it continue to not go up ? > I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get > back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit > higher. > Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has > gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. > This has been our goal all along. > > Are their others here in remission that would tell me where your TSH stays. > I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since > I am not on ATDs , it seems the TSH will have more bearing now. > > ******************************************************* > I mostly just had to let all of you know the good news, and I now declare >this a red > letter day.....A National Holiday as far as I am concerned ! > I shall now resume dancing in the streets ! > > -Pam- boogieing on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Pam Congratulations to you. You go girl. I can hear you partying all the way over here in Mollymook. Sue Mollymook, Australia At 12:32 PM 20/03/2002 -0800, you wrote: > > Hi All, > > I am so excited I can hardly stand myself !!!!!!!!!!!!! > > > just got my first lab results, after all this possible remission >halabaloo. > > Read it and celebrate. :-) > > range .71 - 1.85 > > 230 - 420 > range .32 - 5.00 > > This included a few panic >points where I took > a 1/4 of a pill, and on those 2 or three day events, >I also took a few >drops of bugleweed. > Then there was quite awhile, that >I took nothing. Until the fateful >'poison event'. During > the scary two >days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > > > This blood work was done one week after taking nothing ( after the poison >event) . Not the > full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being > put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely > manner. So I rushed in a week early, hoping this is not too far off from >what is really > going on. > > I am only slightly puzzled. > TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first > showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus > justifying my reduction in meds at that time. > > FT4.... why did it continue to not go up ? > I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get > back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit > higher. > Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has > gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. > This has been our goal all along. > > Are their others here in remission that would tell me where your TSH stays. > I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since > I am not on ATDs , it seems the TSH will have more bearing now. > > ******************************************************* > I mostly just had to let all of you know the good news, and I now declare >this a red > letter day.....A National Holiday as far as I am concerned ! > I shall now resume dancing in the streets ! > > -Pam- boogieing on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Pam Congratulations to you. You go girl. I can hear you partying all the way over here in Mollymook. Sue Mollymook, Australia At 12:32 PM 20/03/2002 -0800, you wrote: > > Hi All, > > I am so excited I can hardly stand myself !!!!!!!!!!!!! > > > just got my first lab results, after all this possible remission >halabaloo. > > Read it and celebrate. :-) > > range .71 - 1.85 > > 230 - 420 > range .32 - 5.00 > > This included a few panic >points where I took > a 1/4 of a pill, and on those 2 or three day events, >I also took a few >drops of bugleweed. > Then there was quite awhile, that >I took nothing. Until the fateful >'poison event'. During > the scary two >days, I took a total of 3/4 of a PTU, and a few drops of my >bugleweed. > > > This blood work was done one week after taking nothing ( after the poison >event) . Not the > full two weeks I wanted to wait, but my endos office has become TOO busy ( >due to being > put on the Top Docs list, sigh) and I can no longer count on getting >anything in a timely > manner. So I rushed in a week early, hoping this is not too far off from >what is really > going on. > > I am only slightly puzzled. > TSH seems a bit high ??? But the only time I had a readable TSH was that >.90 when it first > showed up, and I was suffering hypo symptoms at the time, and my FT4 was >low, thus > justifying my reduction in meds at that time. > > FT4.... why did it continue to not go up ? > I have been chasing it like a elusive butterfly. I keep reducing my PTU, >trying to get > back to the point I remember so well. Life was great, and my FT4 was 1.23 >and a bit > higher. > Every reduction in meds has resulted in the FT4 staying down at 1.03 and >such. So it has > gone up. But I want more. My endo and I agreed that I needed to be between >1.23 and 1.50. > This has been our goal all along. > > Are their others here in remission that would tell me where your TSH stays. > I guess that is the one that bothers me now. Now that it has deiced to >move. :-) And since > I am not on ATDs , it seems the TSH will have more bearing now. > > ******************************************************* > I mostly just had to let all of you know the good news, and I now declare >this a red > letter day.....A National Holiday as far as I am concerned ! > I shall now resume dancing in the streets ! > > -Pam- boogieing on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam! Congratulations girl! I am so excited for you, too! Yippee! I'm joining your club - you'll see my good news post just before this! This is definitely a reason to celebrate! And to think we were worried that we were getting worse - I feel like I have egg on my face now! Maybe anxiety about getting worse is a sign that we're actually getting better :-) You think your TSH is high? .45 seems pretty low me, but it all depends on you. Do you have a reference for your TSH when you were " normal " and felt good? The only other one I have before GD was 1.97 and I definitely felt tired and run down then. I'm curious about when yours was also .90 - what was it before that? Was it still undetectable? Did you feel hypo when it was rising to .90? Maybe that's what I've been experiencing - that big change causing you to " feel " hypo even though you're not. Congrats again! Happy happy dance! Frolicking may now commence! And break out the cookies, darn it! (another happy camper) Success !!!!!!!!!!!!!!!!!!!! > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. > >This blood work was done one week after taking nothing ( after the poison event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being >put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that ..90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam! Congratulations girl! I am so excited for you, too! Yippee! I'm joining your club - you'll see my good news post just before this! This is definitely a reason to celebrate! And to think we were worried that we were getting worse - I feel like I have egg on my face now! Maybe anxiety about getting worse is a sign that we're actually getting better :-) You think your TSH is high? .45 seems pretty low me, but it all depends on you. Do you have a reference for your TSH when you were " normal " and felt good? The only other one I have before GD was 1.97 and I definitely felt tired and run down then. I'm curious about when yours was also .90 - what was it before that? Was it still undetectable? Did you feel hypo when it was rising to .90? Maybe that's what I've been experiencing - that big change causing you to " feel " hypo even though you're not. Congrats again! Happy happy dance! Frolicking may now commence! And break out the cookies, darn it! (another happy camper) Success !!!!!!!!!!!!!!!!!!!! > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. > >This blood work was done one week after taking nothing ( after the poison event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being >put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that ..90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Pam! Congratulations girl! I am so excited for you, too! Yippee! I'm joining your club - you'll see my good news post just before this! This is definitely a reason to celebrate! And to think we were worried that we were getting worse - I feel like I have egg on my face now! Maybe anxiety about getting worse is a sign that we're actually getting better :-) You think your TSH is high? .45 seems pretty low me, but it all depends on you. Do you have a reference for your TSH when you were " normal " and felt good? The only other one I have before GD was 1.97 and I definitely felt tired and run down then. I'm curious about when yours was also .90 - what was it before that? Was it still undetectable? Did you feel hypo when it was rising to .90? Maybe that's what I've been experiencing - that big change causing you to " feel " hypo even though you're not. Congrats again! Happy happy dance! Frolicking may now commence! And break out the cookies, darn it! (another happy camper) Success !!!!!!!!!!!!!!!!!!!! > >Hi All, > >I am so excited I can hardly stand myself !!!!!!!!!!!!! > >I just got my first lab results, after all this possible remission halabaloo. > >Read it and celebrate. :-) > >FT4 1.14 range .71 - 1.85 >FT3 309 range 230 - 420 >TSH .45 range .32 - 5.00 > >History... Started on no PTU on Jan. 28th. This included a few panic points where I took >a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. >Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During >the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. > >This blood work was done one week after taking nothing ( after the poison event) . Not the >full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being >put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely >manner. So I rushed in a week early, hoping this is not too far off from what is really >going on. > >I am only slightly puzzled. >TSH seems a bit high ??? But the only time I had a readable TSH was that ..90 when it first >showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus >justifying my reduction in meds at that time. > >FT4.... why did it continue to not go up ? >I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get >back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit >higher. >Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has >gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. >This has been our goal all along. > >Are their others here in remission that would tell me where your TSH stays. >I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since >I am not on ATDs , it seems the TSH will have more bearing now. > >******************************************************* >I mostly just had to let all of you know the good news, and I now declare this a red >letter day.....A National Holiday as far as I am concerned ! >I shall now resume dancing in the streets ! > >-Pam- boogieing on > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Congratulations, Pam! I'm so excited for you. This is truly inspirational for those of us still battling the ATD roller coaster! And I wouldn't worry about that TSH. It's in the normal range, and we all know that it's slow to go up. Just keep track of how you're feeling, and if you get those hyper feelings again, get more labs! I'm really happy for you and will pray for your continued remission! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Congratulations, Pam! I'm so excited for you. This is truly inspirational for those of us still battling the ATD roller coaster! And I wouldn't worry about that TSH. It's in the normal range, and we all know that it's slow to go up. Just keep track of how you're feeling, and if you get those hyper feelings again, get more labs! I'm really happy for you and will pray for your continued remission! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Congratulations, Pam! I'm so excited for you. This is truly inspirational for those of us still battling the ATD roller coaster! And I wouldn't worry about that TSH. It's in the normal range, and we all know that it's slow to go up. Just keep track of how you're feeling, and if you get those hyper feelings again, get more labs! I'm really happy for you and will pray for your continued remission! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 > > > You think your TSH is high? .45 seems pretty low me, but it all depends on > you. ... oops...... I meant LOW > Do you have a reference for your TSH when you were " normal " and felt > good? I have no clue...... So you can see my concern... > > > I'm curious about when yours was also .90 - what was it before that? Was it > still undetectable? For three years on ATDs my TSH was .02 or .002, depending on which lab I used. > Did you feel hypo when it was rising to .90? YES ! Makes sense to me, that in 7 weeks to see that change, it sure could take your body time to figure it all out. > Maybe > that's what I've been experiencing - that big change causing you to " feel " > hypo even though you're not. At that time my FT4 was a bit low also....within the normal range, BUT low for me. Since then I have not had TSH done, until today. For me, any FT4 under say 1.03 is too hypo. Causes brain fog and serious arthritis. From 1.05 on up, the pain goes away, progressively. > > > > > This is the very FIRST FT3 test I have ever had ! And it was quite the battle. At one point I was surrounded by three women that work there. They ALL insisted that I could not get this test. They then continued explaining that there is NO difference between FT3 and plainT3...over and over ! Then it turns out this test has to be sent out...so ??? Do you know it might cost $70....so??? But they will have to bill you seperatly...so??? It is not on our computer.....so??? Well, we can have them do it........but it is exactly the same thing as T3 they kept repeating ! Thank goodness for all the repetition on this list. I was able to stand in the middle of the chaos, remain calm, and explain the difference between T3 and FT3 to the best of my ability..no it was not perfect, but they were not going to believe me anyway. I didn't see anyone taking notes, or asking for references to my outrageous statements. Like " there is a difference in the two tests ! " A lesser woman would have folded under the pressure. Or as in the past, when I was kept hypo, I would not have had the willpower to stay calm and discuss the matter until I was happy with the conclusion. They kept me hypo, and submissive way to long ! It dulls your brain, and makes you doubt yourself. ************************************* Oops, got off the subject of cookies and frolicking ...... Sue... I'll try to keep it down, you must need your rest. LOL Shanie, You have missed all the bad parts. I was at least as ill as Jeff..if not worse, and it took a long time to get here... but boy is it worth the work and time. I now have a future with no worries about any permanent damage I could have done to myself. If I had to do it over, knowing what the struggle would entail, and the results now, I would still do the same thing over, as far as choice of treatment. I would just get labs more often, and I would learn about diet and lifestyle sooner. This could possibly taken a couple of years off my time. Worst case now, would be if I , at some time, have to go back on a very low dose...so..??? -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Holly... The funny thing is, that everyday I wonder..is this hyper ??? No...Oh no, maybe this is hyper.... LOL Hard habit to break. So you see why this result is so amazing! Even the best experts said given my condition at diagnosis, I would NEVER hit this point ! Heck , as bad as things were, and being very ill for a very long time, before the cause was found, all the experts could have been right. Remember, I am old, out of shape, and on and on.... Hang in there kid ! Don't believe any of that stuff they try to tell you !!! I think the whole problem with this, is that everyone gives up and just wants to believe RAI will work. The journey was exhausting. I will not lie about that. But it was worth it. When my golden years get here, I want to enjoy them. My only worry will be if Graves will reappear.....Not a problem, I know what to do now. Better than wondering where the unexplained cancer will come from. Or how to keep rebalancing my artificial hormones. Nope, give me a refill of my ATD and I am off. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 yay! Pam what great news - time to celebrate! stay well- Pam B. Success !!!!!!!!!!!!!!!!!!!! Hi All, I am so excited I can hardly stand myself !!!!!!!!!!!!! I just got my first lab results, after all this possible remission halabaloo. Read it and celebrate. :-) FT4 1.14 range .71 - 1.85 FT3 309 range 230 - 420 TSH .45 range .32 - 5.00 History... Started on no PTU on Jan. 28th. This included a few panic points where I took a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. This blood work was done one week after taking nothing ( after the poison event) . Not the full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely manner. So I rushed in a week early, hoping this is not too far off from what is really going on. I am only slightly puzzled. TSH seems a bit high ??? But the only time I had a readable TSH was that .90 when it first showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus justifying my reduction in meds at that time. FT4.... why did it continue to not go up ? I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit higher. Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. This has been our goal all along. Are their others here in remission that would tell me where your TSH stays. I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since I am not on ATDs , it seems the TSH will have more bearing now. ******************************************************* I mostly just had to let all of you know the good news, and I now declare this a red letter day.....A National Holiday as far as I am concerned ! I shall now resume dancing in the streets ! -Pam- boogieing on ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. ---------------------------------------------------------------------------- ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 yay! Pam what great news - time to celebrate! stay well- Pam B. Success !!!!!!!!!!!!!!!!!!!! Hi All, I am so excited I can hardly stand myself !!!!!!!!!!!!! I just got my first lab results, after all this possible remission halabaloo. Read it and celebrate. :-) FT4 1.14 range .71 - 1.85 FT3 309 range 230 - 420 TSH .45 range .32 - 5.00 History... Started on no PTU on Jan. 28th. This included a few panic points where I took a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. This blood work was done one week after taking nothing ( after the poison event) . Not the full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely manner. So I rushed in a week early, hoping this is not too far off from what is really going on. I am only slightly puzzled. TSH seems a bit high ??? But the only time I had a readable TSH was that .90 when it first showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus justifying my reduction in meds at that time. FT4.... why did it continue to not go up ? I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit higher. Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. This has been our goal all along. Are their others here in remission that would tell me where your TSH stays. I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since I am not on ATDs , it seems the TSH will have more bearing now. ******************************************************* I mostly just had to let all of you know the good news, and I now declare this a red letter day.....A National Holiday as far as I am concerned ! I shall now resume dancing in the streets ! -Pam- boogieing on ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. ---------------------------------------------------------------------------- ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 yay! Pam what great news - time to celebrate! stay well- Pam B. Success !!!!!!!!!!!!!!!!!!!! Hi All, I am so excited I can hardly stand myself !!!!!!!!!!!!! I just got my first lab results, after all this possible remission halabaloo. Read it and celebrate. :-) FT4 1.14 range .71 - 1.85 FT3 309 range 230 - 420 TSH .45 range .32 - 5.00 History... Started on no PTU on Jan. 28th. This included a few panic points where I took a 1/4 of a pill, and on those 2 or three day events, I also took a few drops of bugleweed. Then there was quite awhile, that I took nothing. Until the fateful 'poison event'. During the scary two days, I took a total of 3/4 of a PTU, and a few drops of my bugleweed. This blood work was done one week after taking nothing ( after the poison event) . Not the full two weeks I wanted to wait, but my endos office has become TOO busy ( due to being put on the Top Docs list, sigh) and I can no longer count on getting anything in a timely manner. So I rushed in a week early, hoping this is not too far off from what is really going on. I am only slightly puzzled. TSH seems a bit high ??? But the only time I had a readable TSH was that .90 when it first showed up, and I was suffering hypo symptoms at the time, and my FT4 was low, thus justifying my reduction in meds at that time. FT4.... why did it continue to not go up ? I have been chasing it like a elusive butterfly. I keep reducing my PTU, trying to get back to the point I remember so well. Life was great, and my FT4 was 1.23 and a bit higher. Every reduction in meds has resulted in the FT4 staying down at 1.03 and such. So it has gone up. But I want more. My endo and I agreed that I needed to be between 1.23 and 1.50. This has been our goal all along. Are their others here in remission that would tell me where your TSH stays. I guess that is the one that bothers me now. Now that it has deiced to move. :-) And since I am not on ATDs , it seems the TSH will have more bearing now. ******************************************************* I mostly just had to let all of you know the good news, and I now declare this a red letter day.....A National Holiday as far as I am concerned ! I shall now resume dancing in the streets ! -Pam- boogieing on ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. ---------------------------------------------------------------------------- ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Pam, Congratulations!!!! Remember that TSH lags at least 6 week behind and often much longer so it can be reflecting a time when you felt hypo. With your FT4 not rising, I wonder if you also have blocking TSH receptor antibodies. Keep well, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hi Pam, >>>Wish I could take total responsibility for being a pro active patient. >>>But I must share my victory with all of you that have taken the time out >>>of you days, to help me get here.<<< You should take responsibility for beCOMING proactive with all that you have accomplished! When you first came here you were so sick and so at the end of your rope, and look where you are today! I agree, the support and knowledge in this group is worth so much to all of us! Together we learn, together we teach, and together we reach successes. If I didn't have this group and the people in it I think I would fall apart some days. >>>I am afraid I was one that had to hit the bottom of the barrel before I >>>really DID something instead of thinking about it. After all, my Top Doc >>>told me diet would have no effect at all. And when I was way too hypo for >>>me... he said I was fine. Thoughts of suicide because of the mental fog >>>and the terrible pain is not FINE in my book. Lab numbers are good to >>>use, but we must find our own set- point. I personally can not function >>>at a FT4 of .78, my personal thing I guess.<<< I had to hit the bottom of the barrel too Pam. Became suicidal after more than 4 years of being left in hypOhell because doctors wouldn't attribute anything to thyroid because all they used was a TSH for 4 years. When I bottomed out, I found my first support board that led me to this one and my learning began...and still continues each and every day. Some of us, like you and me, well we just have to get desparate to get us moving I think ;-) Until I found this group, I lived in the denial that my doctors created and I believed...that will never happen again on anything else in my life that is for sure. Talk to you later, Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Laurel, ROFL....yeah, I can type all that every time... tee hee ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Laurel, ROFL....yeah, I can type all that every time... tee hee ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Pam, Maybe for the purpose of this list we could all coin a term that means " fought hard and achieved a healthy victory against the dark forces of allopathic medicine. " I guess this would be like moving up levels in scouting only in this case you get points for persistence and results. I'll bet the Native Americans could coin a word for that. Perhaps it should be your adult name. Better than " Stands with a Fist " eh? or maybe its the same. Laurel Re: Success !!!!!!!!!!!!!!!!!!!! Hi Jody, Wish I could take total responsibility for being a pro active patient. But I must share my victory with all of you that have taken the time out of you days, to help me get here. I am afraid I was one that had to hit the bottom of the barrel before I really DID something instead of thinking about it. After all, my Top Doc told me diet would have no effect at all. And when I was way too hypo for me... he said I was fine. Thoughts of suicide because of the mental fog and the terrible pain is not FINE in my book. Lab numbers are good to use, but we must find our own set- point. I personally can not function at a FT4 of .78, my personal thing I guess. All goes back to treating my high blood pressure with more ATDs. <sigh> I shall continue to try to get him to understand, when I have the time, as he has so many other patients on ATDs. Once I finally REALLY took charge of everything...and insisted politely every time he said I was fine, that this was wrong... we had agreed on a FT4 for me...he would then back off and say, " oh, that's right " ......THAT is when I was able to regain my brain, and move forward. Now I need a new word or phrase... I keep saying 'my possible remission'. That is a lot to type. I have now found the true definition of remission. It is euthyroid for one year with no medication.( and I will include my bugleweed in the 'medication' category.) Same as menopause not being what you have finally achieved until one year with no periods. -Pam- ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Hey Group, The repetition of the word " suicidal " is frightening. I thought that I was the only one who felt this and it was because of going off the latest serotonin reuptake inhibitor. It seems to be true that several of these cause suicidal ideation and I'm wondering now which this is. Is suicidal thought related to the disease, the way we feel or the drugs? And, if any of these are the case, shouldn't we be putting that symptom in CAPITAL LETTERS for everyone to see? Never having seen the face of anyone on this list but Elaine (and that was a long long time ago) I still would feel terrible grief if one of us were lost so senselessly. And I think we may have a mandate to keep reinforcing the existence of this symptom for anyone new who may sign on. You guys are so cool. The message that " you are not alone " is the primo one always. Laurel Re: Success !!!!!!!!!!!!!!!!!!!! Hi Pam, >>>Wish I could take total responsibility for being a pro active patient. >>>But I must share my victory with all of you that have taken the time out >>>of you days, to help me get here.<<< You should take responsibility for beCOMING proactive with all that you have accomplished! When you first came here you were so sick and so at the end of your rope, and look where you are today! I agree, the support and knowledge in this group is worth so much to all of us! Together we learn, together we teach, and together we reach successes. If I didn't have this group and the people in it I think I would fall apart some days. >>>I am afraid I was one that had to hit the bottom of the barrel before I >>>really DID something instead of thinking about it. After all, my Top Doc >>>told me diet would have no effect at all. And when I was way too hypo for >>>me... he said I was fine. Thoughts of suicide because of the mental fog >>>and the terrible pain is not FINE in my book. Lab numbers are good to >>>use, but we must find our own set- point. I personally can not function >>>at a FT4 of .78, my personal thing I guess.<<< I had to hit the bottom of the barrel too Pam. Became suicidal after more than 4 years of being left in hypOhell because doctors wouldn't attribute anything to thyroid because all they used was a TSH for 4 years. When I bottomed out, I found my first support board that led me to this one and my learning began...and still continues each and every day. Some of us, like you and me, well we just have to get desparate to get us moving I think ;-) Until I found this group, I lived in the denial that my doctors created and I believed...that will never happen again on anything else in my life that is for sure. Talk to you later, Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
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